No nuts for me either, Tex!

jlbattin · Post by **jlbattin** » Wed Jan 27, 2016 2:31 pm

Well, night before last, I had a MAJOR setback. I've been doing so well, and haven't had diarrhea in over 6 months. I was feeling great, but I am pretty rigid about my diet. I do try to introduce new things from time to time, and even those haven't caused D (just mostly tummy aches that I attributed to my digestion system learning how to digest them again)!

So, the only thing that I ate that was different was my chocolate hazelnut coconut bliss. I eat the Naked Coconut all the time and have no trouble with it so had bought a couple of different flavors to try. I actually didn't eat much of it (but apparently enough to cause MAJOR havoc)! I went to bed early as I always do and woke up at 11 PM thinking it must be morning. Looking at the clock, I realized I was in for a long night as my stomach was hurting and gurgling (as only MCers would know). I had a violent attack about 2 AM and was up and down and awake the rest of the night.

It had small chunks of hazelnut mixed in, and since I've eaten their chocolate before with no problems, the nuts are the only thing I can attribute it to.

We live and we learn. I am finally feeling somewhat human again today and I went back to my safe foods to help me recover. The whole time I was laying around in misery, I kept thinking, "I sure wish my GI doctor could experience this, and then he would understand that you don't just tell someone they ought to try all the foods again. Diet is important!"

There's a reason I don't cheat on my diet (other than trying new foods from time to time), and I sure don't like feeling like this. I won't make that mistake again. It'll be a REALLY LONG time before I ever try whole, chunks, slivered or any kind of nuts again!

Erica P-G · Post by **Erica P-G** » Wed Jan 27, 2016 4:07 pm

Oh Nuts Jari

I really feel for you....I can tolerate a few cashews once in a while, but that is the only nut I partake in, and it was a safe nut on the Enterolab results.
I do hope your system forgives you soon and you get back on track again

Hugs
Erica

Post by **tex** » Wed Jan 27, 2016 5:27 pm

Jari,

Sorry that they didn't work out. I think I have finally learned my lesson, because if I can't handle nuts after all these years of remission, then obviously I need to stay well away from them. The last episode I had with almonds lasted longer than I expected. I felt decent again after a couple of days, but it took roughly a week before my digestion was working well enough that I didn't have at least a slight bellyache and other aches and pains, especially at night. After the first night, the pains weren't major, but they were enough to remind me not to do that again.

Still, the only way we can test out "new" foods is to actually try them. I don't plan any more trials for the foreseeable future, though.

I hope you're back to as good as new, soon. And I agree that it seems a shame to waste all that misery on MC patients, because we already know what it's like. The gastroenterologists who insist that diet has nothing to do with MC on the other hand, could surely benefit from some first hand experience along these lines.

Tex

crervin · Post by **crervin** » Sat Jan 30, 2016 8:24 pm

So sorry this happened Jari! So hope you recover quickly!

When you all are talking nuts are you including nut butters too? I am having a bad week as well. I tried cashew butter this week (1 tbs) on a rice cake. I can't figure out if that's it or my hormones and high stress week. It seems even my safe foods are bothersome right now. I figured by now the b12 supplement would be out of my system.

It doesn't take much for me to get off track. I get so mad at myself when I try just a tiny thing and it takes forever to get back.

I'm so excited of your progress jari! I stop and think sometimes should I try budesonide.

jlbattin · Post by **jlbattin** » Sat Jan 30, 2016 8:30 pm

Martha,

Hang in there! I think the Budesonide helped jump start me and then the diet did the rest. I'm on the very slow weaning off of it now.

We are talking real nuts. I can eat both cashew butter and almond butter with no problems. I ate real chunks of hazelnuts and that's what caused me all the grief!

Post by **tex** » Sat Jan 30, 2016 9:26 pm

Martha,

I can also tolerate cashew and almond butter (although I haven't retested almond butter since my almond fiasco), but for a few years I couldn't even tolerate nut butters. I avoid peanut butter of course, since I produce antibodies to soy.

It's possible that cedar pollen (or some other allergen) is keeping your immune system in an agitated condition. Whatever the cause, budesonide would probably suppress your immune system sensitivity by enough to make life much easier while taking it.

Tex

crervin · Post by **crervin** » Sun Jan 31, 2016 6:12 am

Thanks guys! I do so well for a bit then out of nowhere its back. I did perfectly while on a vacation at Disneyworld. Seems I need to stay on a vacation to completely obtain remission

.

Post by **tex** » Sun Jan 31, 2016 9:45 am

Martha,

We've had a number of members here post about how well they did while on vacation. The question is,"Is the improvement due to a reduction in stress, a change in diet, some type of allergen at home, or . . .?

Tex

crervin · Post by **crervin** » Sun Jan 31, 2016 11:53 am

My husband says it can't be stress because Disneyworld was very stressful, plus my mother went with us

. We do live in a melting pot for environmental allergies! I've uped my mag so now my question is, is it that. I am using 300 mg of mag oil and taking 300 mg of doctors best like you. Going to go without pills for 3 days to see.....