Hi all...I'm back

armstrongpilot · Post by **armstrongpilot** » Mon Jan 18, 2016 5:35 pm

Hope you all had a great holiday. I drove to Ohio to visit family...had butternut squash and had d for 2 whole days.....it seems I cannot calm the lc. Still mostly meat and rice, sometimes even that is causing small issues. My doc told me to eat low format....I tried some...but most foods don't work. So far no gluten, egg, soy, dairy, nightshades, fruits (bananas bad, apples bad, oranges bad). Beans and nuts are a huge no no. Some veggies don't work either. I think I will start eating paper soon? There has got to be a way to calm the gut so I can eat a few normal foods again!

Gabes-Apg · Post by **Gabes-Apg** » Mon Jan 18, 2016 6:06 pm

What meats are you eating?? What veges settle best for you?

Are you getting contamination from shared kitchen? Sharing cooking items?
Are you having any medications/supplements?
What are you drinking?

Most people, once they are doing an eating plan of bland well cooked safe meat and veges see improvement. if they are having issues it is either any or all of the following;
- contamination
- inactive ingredients in medications
- supplemements
- trying new foods too soon
- external triggers, stress, histamine triggers, chemicals, mould

Are you 100% certain there is no wheat, oat, soy in your bathroom and make up products?

It is tiring and overwhelming that we can be so sensitive to soo many things.... Once we have removed majority of our triggers life can be symptom free.. It is worth the effort.

Erica P-G · Post by **Erica P-G** » Tue Jan 19, 2016 4:43 pm

I feel so bad for you Pilot, not only do we need to have the most bland diet in the world, for an unspecified amount of time, it seems cruel when we try to introduce something out of sheer boredom from what we are eating and it keeps us from reaching a comfort mark.

Love your responses Gabes!

We all have to get to that small circle of Safe Foods without supplements, other than VitD3 and External Magnesium oil, no matter how meager or boring they are, if that doesn't work within a few days then it is obvious it is something in our environment hindering us.

I was going along great guns last December until that crappy cold virus hit me, and ever since I can't seem to get my body back on track either....sooo I too need to take all my progress back to an almost beginning approach.

This is all about Progress....not Perfection....hang in there, work on the puzzle the best you can

Cheers
Erica

Erica P-G · Post by **Erica P-G** » Tue Jan 19, 2016 5:42 pm

FYI

Here is a snipit of a link Tex shared with a Newbie recently, and it was in regards to Histamine Intolerance. I bring this up because the type of food we eat contributes to the whole puzzle too. I hope you find some of the info as interesting as I did.

Typical symptoms of histamine intolerance include gastrointestinal disorders, sneezing, rhinorrhea and congestion of the nose, headache (14, 57), dysmenorrhea, hypotonia, arrhythmias (58, 59), urticaria (16, 60), pruritus, flushing, and asthma (7, 8).

Here is the link to read up on Histamine Intolerance http://ajcn.nutrition.org/content/85/5/1185.long Very interesting.

armstrongpilot · Post by **armstrongpilot** » Wed Jan 27, 2016 4:15 pm

So far my diet is white rice, asparagus, zucchini, beef, steak, pork, occasionally chicken (gives me headaches???). Bacon settles well. Don't know what I can add. So far I cannot have gluten, soy, egg, dairy, legumes, nuts, sauash or things with fructose.

I am taking 4000 in vitamin d3. 200mg of magnesium. Calcium and vit b12.

Still super skinny! I'm down 35 lbs in 5 or 6 months. I need more food. Don't have an appetite....some days it seems one bite and I feel overfull. I miss the days when I could eat anything and everything.

On a weird note.....when I eat rice chex I get super tired and I can feel my heart pounding.....what kind of reaction is that? After I eat it my pee is very cloudy. Tested it many times. Boiled white rice is fine.

I don't have d if I eat the above items.....but my guts never feel right....bloated or pressure.

armstrongpilot · Post by **armstrongpilot** » Wed Jan 27, 2016 4:17 pm

Sorry gabes......I'm a dude....no make up. Lol

Erica P-G · Post by **Erica P-G** » Wed Jan 27, 2016 4:37 pm

HI Pilot,
I'd leave the asparagus and zucchini out for a little while, and substitute it with overcooked carrot or green beans for a few days. I'd also remove the beef (steak) as that red meat is a bit harder to digest when the gut is healing (also if one does the Enterolab and the results say you react to it the highest then it may be a meat that you no longer can agree to eat due to reactivity).

Since you may feel chicken can have a tendency to feel like a head ache, then stick with Pork, and Turkey, maybe even a Cornish hen or lamb from time to time.

I'd up my VitD3 to at least 5000mg and I'd up the Magnesium to around 500-600mg a day (Glycinate should be safe enough - plus external mag oil if need be). If you are D free and have been for a while I'd consider the B-Right by Jarrow brand vitamin B complex (I get mine at vitacost at the moment, shop around on the net it comes in a brown bottle with purple writing).

Super tired and heart pounding sound like a low magnesium episode....with a glucose high (due to the cereal of course)!

These are just my opinions here....so feel free to take any ideas or none as we are all different

A couple ideas for food (I feel like I am getting plenty of food) are at least a half bowl of steamed white rice with diced up meat of choice and don't be shy with it, and a 1/3 or so cup of over cook veggie. Sea Salt for flavor or one can use a little bit of Coconut Aminos in the non-soy version or the non-soy Teriyaki version http://www.vitacost.com/coconut-secret- ... fgodz3UGvw it has really helped my taste buds so I eat healthy portions. Mind you I eat this every night, and for lunch I eat my home made bone broth that has gluten free noodles and carrots in it, for breakfast I have Cinnamon/Raisin gluten free toast (I have a GF bakery near by) with some deli meat warmed in the micro and placed on top the bread and a cup of coffee with a little bit of Nesquik Syrup (no soy or gluten) for flavor and my vitamins.

Hopefully there is something in all this conversation that you haven't tried yet and will work for you too

Cheers
Erica

Gabes-Apg · Post by **Gabes-Apg** » Wed Jan 27, 2016 5:46 pm

You may not use make up, but still check bathroom products, hair products, shaving cream etc

Further, you have not mentioned what you are drinking. Some teas have soy.
Have you minimised sugar?
What were you having on the rice chex?

armstrongpilot · Post by **armstrongpilot** » Wed Jan 27, 2016 6:23 pm

Good questions. I only drink water...and have done that for years. Just plain dry boring chex mix. I don't eat anything with sugar now.....it messes me up.

I need to check my shaving cream....ever since lc started I get red splotches on my neck......I've never had skin issues before. My body isn't mine anymore!

Gabes-Apg · Post by **Gabes-Apg** » Wed Jan 27, 2016 6:32 pm

Might be worth 'testing' the water ( you can get test kits off the net) if there is algae, bacteria, parasites in the water this might be causing the issues.

The reactions to the rice chex sounds like histamine, as does the shaving cream. Your mag intake is low, and there is a recent post by tex that talks about magnesium deficiency and increased histamine reaction.

I have recently posted how cholestramyne can help with biotoxins like bacteria, parasites etc.

Post by **tex** » Wed Jan 27, 2016 6:54 pm

armstrongpilot wrote:On a weird note.....when I eat rice chex I get super tired and I can feel my heart pounding.....what kind of reaction is that? After I eat it my pee is very cloudy. Tested it many times. Boiled white rice is fine.

While it's true that those symptoms may be associated with a severe magnesium deficiency, unless you're taking antibiotic or a corticosteroid, 200 mg per day of magnesium should be enough to prevent that sort of reaction. If you're still taking budesonide though, that might not be nearly enough magnesium.

But my first impression would be that the heart pounding after eating is almost surely due to an allergic reaction to one of the ingredients in the chex — maybe a preservative or one of the many additives designed to boost nutrition.

When we're on a very restricted diet we have to eat more of the foods that we can eat — larger servings. But you mentioned another symptom of magnesium deficiency — "some days it seems one bite and I feel overfull." I had that symptom when my magnesium deficiency got so bad that I finally went to the ER to see what was wrong. And since I didn't eat but a few bites of breakfast that morning, and didn't feel like taking any supplements (so I skipped taking my magnesium supplement), my magnesium level remained low enough so that when I got to the ER, the blood test actually showed a magnesium deficiency. If I had eaten a significant amount, or taken my supplements the test would have been normal, and I probably never would have figured it out.

IOW like Erica, I have a hunch that the budesonide has depleted the last of your magnesium reserves and you're not taking enough magnesium supplement to keep up with the demand.

And I agree with Gabes that the skin issues are probably due to a histamine buildup, and as she mentioned, that problem can definitely be caused by a magnesium deficiency. The headache following chicken is almost surely a histamine reaction also, because chicken is often a high-histamine food. Until you get your magnesium level up and your histamine level down, turkey, lamb, duck, goose, or rabbit would be better choices.

Tex

armstrongpilot · Post by **armstrongpilot** » Thu Jan 28, 2016 11:31 am

thanks again for the advice. im in California on a trip right now...when I get home I will up mag and d3 and see what happens. I am on budesonide right now 6mg a day (been on that for 3 months). doesn't seem to help if I try something that doesn't work.

anybody ever explore this?? https://colitispainfreefoods.com/home

im just lookin for ideas to get thru this.

Erica P-G · Post by **Erica P-G** » Thu Jan 28, 2016 11:53 am

HI Pilot,
I'd never seen this site before....but the first thing that strikes me is the fact that no supplement but VitD are mentioned....and from my experience by upping VitD3 and taking a good healthy dose of Magnesium my "heartburn" is completely gone and has not returned....so I know my enzymes are doing their job once food hits my stomach.

I tried adding some enzymes early on and all it did was give me a feeling of more heartburn reaction....once I started upping my D and Mag I understood I did not need the extra enzymes, my body was just screaming for more magnesium. Now that I have healed for a while I have been able to add the B-complex vitamin, that has helped with my energy, and I am doing so much better.

I know Jari has tried the Budesonide, and she can attest to how she has been able to work around certain feelings in the body with food an such plus supplements.

cheers
Erica

crervin · Post by **crervin** » Fri Jan 29, 2016 1:20 pm

I'd skip the b12 for now and calcium.....I've tried 2 different b12s and cant find one that settles well. Now my guts upset from the 15 days of b12 and I'm starting from scratch myself. Supplements or OTC meds have been my problem everytime!

There is a vegan protein vanilla shake out there will get the name and get it back to you. Its helped me to add a little weight....

crervin · Post by **crervin** » Fri Jan 29, 2016 1:35 pm

Its vanilla bean vegan protein factors by natural factors ...