Ok assuming I do have Crohns and I'm not sure if they even looked for MC or not , what supplements should I be taking, I know to stick to D3 , how about magnesium (I'm taking dr best chelated at moment ), shall I carry on with two tablets a day, increase / decrease or stop . Other than that is there any others?
My mother by the way got diagnosed at University College Hospital London which is one of the leading lights for gastroenterology in the uk. Hence she got a proper diagnosis and she has MC. I however went to the most hapless institute to ever pass itself as a hospital (the legendary for all the wrong reasons 'North Middlesex Hospital'). In all fairness I have myself to blame I could've chosen UCH but it was further and I couldn't clandestinely go without my mother finding out and getting stressed , she's already had her share and doesn't need to know.
Assuming that I do have Crohns?
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Since your small intestine is obviously inflamed, (as with many Crohn's patients) you will have malabsorption issues similar to most of us here. That means that in the long run it will be prudent for you to make sure that you do not run low on magnesium and the B vitamins especially, in addition to vitamin D.
By the way, I enjoyed reading your description of your hospital. It reminds me of my own experiences back when I was first trying to find out what was wrong with me.
Remember that if you can get the inflammation under control by diet changes and keep it under control you may be able to prevent Crohn's from developing.
Celiac disease was the first IBD to be medically described, roughly 2,000 years ago. But doctors didn't figure out how to treat it until relatively recently. CC was only first described in 1976, a little over 20 years after the medical community finally figured out how to treat celiac disease. So as slowly as the wheels of progress sometimes turn in the hallowed halls of medicine, it's not surprising that doctors still don't understand MC — heck, they still don't understand celiac disease. But it shouldn't take a rocket scientist to figure out that if 1 type of IBD (celiac disease) can be completely controlled by diet changes then it's very likely that the other types of IBD can be controlled by diet changes also. Some of them just require more complex diet changes than celiac disease.
Tex
P. S. I just had an inspiration that provides some insight into the dilemma that exists with the mainstream medical community's failure to understand IBDs in general, and how to treat them. I think I'll start a new thread with my thoughts on that problem.
By the way, I enjoyed reading your description of your hospital. It reminds me of my own experiences back when I was first trying to find out what was wrong with me.
Remember that if you can get the inflammation under control by diet changes and keep it under control you may be able to prevent Crohn's from developing.
Celiac disease was the first IBD to be medically described, roughly 2,000 years ago. But doctors didn't figure out how to treat it until relatively recently. CC was only first described in 1976, a little over 20 years after the medical community finally figured out how to treat celiac disease. So as slowly as the wheels of progress sometimes turn in the hallowed halls of medicine, it's not surprising that doctors still don't understand MC — heck, they still don't understand celiac disease. But it shouldn't take a rocket scientist to figure out that if 1 type of IBD (celiac disease) can be completely controlled by diet changes then it's very likely that the other types of IBD can be controlled by diet changes also. Some of them just require more complex diet changes than celiac disease.
Tex
P. S. I just had an inspiration that provides some insight into the dilemma that exists with the mainstream medical community's failure to understand IBDs in general, and how to treat them. I think I'll start a new thread with my thoughts on that problem.
HI Jimbo,
how much Magnesium are you taking a day?
If you are only relying on the 2 Drs Best per day...then I would definitely increase that to at least the recommended minimum of 400 for men as a daily requirement. If you are still healing and are using topical Magnesium along with taking the internal then I would think if you are doing ok with the combination you are currently doing and you don't have WD your body must be responding to your low doses of supplements. You will know if you need more magnesium....you start to ache, or get tired more easily in the middle of the day...you will just know. I'm 48 and I seem to need 600-700 mg of Mag a day at least for right now anyway, I may be able to back that off as I continue to keep healing, but I suspect my body will forever require around the 500 mark, it's just a 'gut' feeling
Also the Jarrows brand B-Right seems to be working fairly well for me, I have been using an additional safe sublingual b-complex under the tongue too, as I have felt I needed a better pick me up energy wise. Toilet water is a pretty yellow often, lol, but it is what it is.
Take care
Erica
how much Magnesium are you taking a day?
If you are only relying on the 2 Drs Best per day...then I would definitely increase that to at least the recommended minimum of 400 for men as a daily requirement. If you are still healing and are using topical Magnesium along with taking the internal then I would think if you are doing ok with the combination you are currently doing and you don't have WD your body must be responding to your low doses of supplements. You will know if you need more magnesium....you start to ache, or get tired more easily in the middle of the day...you will just know. I'm 48 and I seem to need 600-700 mg of Mag a day at least for right now anyway, I may be able to back that off as I continue to keep healing, but I suspect my body will forever require around the 500 mark, it's just a 'gut' feeling
Also the Jarrows brand B-Right seems to be working fairly well for me, I have been using an additional safe sublingual b-complex under the tongue too, as I have felt I needed a better pick me up energy wise. Toilet water is a pretty yellow often, lol, but it is what it is.
Take care
Erica
To Succeed you have to Believe in something with such a passion that it becomes a Reality - Anita Roddick
Dx LC April 2012 had symptoms since Aug 2007
Dx LC April 2012 had symptoms since Aug 2007