One more thing....as Columbo would say...

Mrs. Poopy Jeans · Post by **Mrs. Poopy Jeans** » Sat Feb 27, 2016 9:26 pm

I have always had wonderful hearing. Besides onset a year ago, I finally had to give in to hearing aids as my hearing because of Tinnitus and just plain hearing loss was moderately severe. Also about that time, my hands started to tingle and tremble. I was told it was not MS I was suffering from. In fact, I have yet to be diagnosed. Same ol' same ol' with neurologists...I've seen 4...not coming to any conclusion and dropping me like a hot potato.

Anyone else have shaky hands with this? Just curious. Or hearing loss?

Gabes-Apg · Post by **Gabes-Apg** » Sat Feb 27, 2016 9:32 pm

Neurological symptoms are very common across the group - combo of excess inflammation in the body and deficiencies with key nutrients such as magnesium and B Group vitamins.

if you peruse recent discussions in the main message board you will see quite a few discussions in this area...

Gabes-Apg · Post by **Gabes-Apg** » Sat Feb 27, 2016 9:39 pm

http://www.perskyfarms.com/phpBB2/viewtopic.php?t=21971

Once you have done 5 posts - you will be able to use the search function - it is a fantastic way to see previous discussions

use key words like 'hearing' or 'shaking' or 'tremours'

there are alot of 'niggly' type symptoms that come with this type of condition. Majority of them resolve easily with low inflammation eating plan (gluten free, dairy free and removal of other triggers) and fixing key nutrient deficiencies like Vit D3 and magnesium.

Gabes-Apg · Post by **Gabes-Apg** » Sat Feb 27, 2016 9:41 pm

you may find this post of interest
http://www.perskyfarms.com/phpBB2/viewt ... ht=hearing

Mrs. Poopy Jeans · Post by **Mrs. Poopy Jeans** » Sat Feb 27, 2016 11:11 pm

Lots of research ahead but tonight I am hopeful for the first time since last year. WHEEEEEEEE!

Blueberry · Post by **Blueberry** » Sun Feb 28, 2016 5:01 am

Hi Mrs Poopy Jeans,

Love the name! I was notified yesterday that a friend's daughter just gave birth to her first child. One of the names given is Jean. (The other Enola. I guessing the families does not plan on visiting Japan in the future.) I figure there is a high likelihood over the next couple years in my friends house hold poopy Jean will be said on a few occasions.

I didn't see it mentioned so thought to bring up low dose naltrexone (LDN). It is a generic prescription some find helpful with MC colitis. You can read more about LDN and MC here ~

"An update on my LDN therapy: A Miracle? An unequivocal YES!"

http://www.perskyfarms.com/phpBB2/viewtopic.php?t=20020

Also LDN helps with many autoimmune conditions such as MS, Parkinson, etc. There are a few web sights on the benefits of LDN, and a few books, one of which can be seen here ~

"The Promise Of Low Dose Naltrexone Therapy: Potential Benefits in Cancer, Autoimmune, Neurological and Infectious Disorders Kindle Edition"

http://www.amazon.com/Promise-Low-Dose- ... g=UTF8&me=

Naltrexone is an opiate antagonist drug developed in the 1970s and approved by the FDA in 1984 for opiate and drug abuse treatment. When used at much lower doses in an off-label protocol referred to as low dose naltrexone (LDN), the drug has been shown to halt disease progression in Crohn's disease and certain cancers, to reduce symptoms in multiple sclerosis and autism, and to improve numerous autoimmune and neurodegenerative conditions, including Parkinson's disease and amyotrophic lateral sclerosis (ALS).
Grounded in clinical and scientific research, this book describes the history of naltrexone, its potential therapeutic uses, its effects on the immune system, its pharmacological properties, and how the drug is administered. It also lists fillers and compounding pharmacies, doctors who prescribe LDN, and patient resources, and includes interviews with LDN patients and researchers.

Good luck.

Post by **tex** » Sun Feb 28, 2016 9:54 am

Mrs. Poopy Jeans wrote:Anyone else have shaky hands with this? Just curious. Or hearing loss?

Yes, I had those symptoms. But at the time it never dawned on me that there was a connection. Now I know better. Gabes is right on target (as usual). Years of untreated gluten sensitivity causes neurological symptoms. Gluten does this by causing a major malabsorption problem. The malabsorption problem leads to a vitamin D deficiency, a magnesium deficiency, and eventually a vitamin B-12 deficiency. The vitamin D deficiency prevents our intestinal damage from healing and it frequently leads to the development of GERD. Magnesium deficiency and vitamin B-12 deficiency cause neurological symptoms. 6 and a half years ago my neurological symptoms were so bad that I was actually diagnosed with Parkinson's disease. The only problem with that diagnosis is that I don't have Parkinson's disease. I have peripheral neuropathy caused by years of untreated gluten sensitivity that lead to mineral and vitamin deficiencies that actually caused my symptoms.

Some of the damage is permanent, but I've been able to stop most of the symptoms by taking relatively high doses of vitamin D, magnesium, and the active forms of vitamins B-12. B-9, and B-6.

Your tinnitus might have been caused by taking Pepto-Bismol or Ciprofloxacin or one of the other fluoroquionolone antibiotics, but the root cause is almost surely a magnesium deficiency. Magnesium protects the inner ear from damage. Don't believe me? Check this out:

As Barry Keate (2) explains, “Magnesium also protects the nerves in the inner ear and is a powerful glutamate inhibitor. Glutamate is a neurotransmitter, produced by the action of sound waves on the hair cells of the inner ear. The unregulated production of glutamate at sound frequencies for which there is no external stimulation is the cause of tinnitus.”

“The protective effect of magnesium in preventing noise-induced hearing loss has been studied since it was found that magnesium in inner ear fluid decreases significantly after intense noise exposure. The results of one placebo controlled study showed that subjects who took oral magnesium supplements displayed a significantly lower incidence of noise-induced hearing loss compared to the control group. In 1998 a highly motivated patient elected to undergo a catheter-delivered infusion of magnesium sulfate to the round window (of the inner ear). Within 60 seconds of the infusion she experienced complete resolution of her tinnitus. This effect lasted until the flow of medication was discontinued 48 hours later.” (2)

Tinnitus and Magnesium Deficiency

MC is the initial cause of the problems, but the actual damage is caused by vitamin and mineral deficiencies, and resolving those deficiencies is the key to relieving the symptoms.

Tex

Mrs. Poopy Jeans · Post by **Mrs. Poopy Jeans** » Sun Feb 28, 2016 4:10 pm

This is all so fascinating! My Tinnitus started when my PCP at the time put me on Wellbutrin for anxiety. I didn't stay on it long when my ears started ringing. I weaned myself off it but the loud ringing never went away.

I do know I'm low on vitamin D but according to blood tests, my B12 is right where it should be according to my doctor. Should I take more? I'll have to look into the Magnesian. The last time I used it, I tried the powder. Bad idea. Diarreah was bad and that was way before MC. Maybe a low mg tablet would be better?

Great info everyone. I'm beginning to feel very welcome here.

Post by **tex** » Sun Feb 28, 2016 6:39 pm

Yes, when a medication causes tinnitus (or makes it worse), sometimes the symptoms resolve when the treatment is discontinued, and sometimes the tinnitus can be permanent, unfortunately. I've had tinnitus for over 30 years, but mine was initially caused by loud noises. Still, when I took Cipro last spring for a dental procedure, it made my tinnitus worse.

Roughly half of us have methylenetetrahydrofolate reductase (MTHFR) gene mutations that cause certain methylation problems. Because of that our ability to convert the inactive forms of certain vitamins into the active forms so that our body can use them to perform certain chemical processes is compromised. We seem to do better if we keep our B-12 level near the top of the so-called "normal" range. But we need to take the active form of B-12 (methylcobalamin), not the inactive form (cyanocobalamin). Without DNA testing, it's difficult to say which mutations you might have (if any), but some of your symptoms (such as tremors) are consistent with a deficiency of the active form of vitamin B-12.

You probably took magnesium oxide. When magnesium oxide is combined with water in the stomach, the result is milk of magnesia, a common laxative. Magnesium oxide is the worst form to take, and it has the lowest absorbability of all the available forms, so it isn't much help as a magnesium supplement. Magnesium citrate is much better, and magnesium glycinate (chelated magnesium) seems to the least likely form to cause diarrhea.

Note that virtually all magnesium supplements are labeled in a very deceptive way. If the front label says 200 mg, for example, when you read the back label you will see that this is "per serving", and a "serving" is 2 tablets. Therefore each tablet has exactly half of what the front label says, for every brand and type that I have seen in recent years. Because of that poor labeling practice, most people take half of what they think they are taking, and then they naturally complain that it isn't doing any good.

Tex

Mrs. Poopy Jeans · Post by **Mrs. Poopy Jeans** » Sun Feb 28, 2016 6:59 pm

Thanks Tex! I am amazed by your knowledge!! I will be ordering your book....this week.

Post by **tex** » Sun Feb 28, 2016 8:44 pm

You're very welcome.

I hope that you will soon be known as "Mrs. Clean Jeans".

Tex

Mrs. Poopy Jeans · Post by **Mrs. Poopy Jeans** » Sun Feb 28, 2016 9:16 pm

ME TOO!

Sheila · Post by **Sheila** » Tue Mar 01, 2016 8:39 pm

Hi Mrs. PJ,
I have lost significant hearing in one ear and have tinnitus as well. My MC (and other AI diseases) were triggered by a severe reaction to an antibiotic. D was so bad I ended up in the hospital because of dehydration. Apparently, the dehydration and my lack of body fat caused my Eustachian tube to become stuck open. It took my ENT Doctor a couple of hours to figure it out. This was 5+ years ago. None of the meds given to me corrected the problem. When I am laying down, the Eustachian tube closes and my hearing improves. This is a really rare occurrence but something to think about.
My late husband said that his severe tinnitus was caused by Naproxen.
You have gotten excellent advice from other members and I hope you get to the bottom of your issues.

Sheila W

Mrs. Poopy Jeans · Post by **Mrs. Poopy Jeans** » Tue Mar 01, 2016 11:35 pm

Hi Sheila! I'm glad to meet you. Yep! It's amazing what sophisticated meds are doing to people. When I first told my PCP that Wellbutrin was making my ears ring really bad, her reply? "Well either you get over the anxiety and deal with the ringing ears or get off the med now and suffer anxiety." Great attitude.