When you were first diagnosed, was there a period of Denial?

Mrs. Poopy Jeans · Post by **Mrs. Poopy Jeans** » Fri Mar 11, 2016 8:23 pm

gack!!

You poor dear! Kind of amusing but not really. I was told to see a mental specialist so many times that I finally did. I must say, I am medicated for everyone's' protection.

Adelaide · Post by **Adelaide** » Fri Mar 11, 2016 8:29 pm

Blueberry wrote: I can laugh about it now, but I became so frustrated about the denial that I began asking family members to come and attend my doctors appointment so he/she could hear for their selves what was said. What was always kind of strange about bringing a guest with me to the doctor appointment, is that the doctor then would bring a guest, often another doctor, with him. It could make for a very crowded room.

Haha...this gave me such a laugh. I had a mental picture of all these people sitting in the room. So funny Blueberry! It was so good to read the other responses as well.

Sandi, I am going through all this at the same time as you are. I have decided to go gluten, dairy, sugar and nut free and only started this a few days ago. Last night my husband brought home a chocolate aero bar that he had taken fishing. It was sitting on the kitchen bench talking to me and tempting me. So I gave into temptation. I am not in remission so it is hard for me to gauge the reaction but my stomach was rumbling and complaining for some time.

I am remembering what Gabes said about it being about progress and not perfection. We will get there Sandi

Gabes-Apg · Post by **Gabes-Apg** » Fri Mar 11, 2016 8:32 pm

the other good response (you sometimes have to pick your time / audience for this one)

have you ever had travelers diarrhea?? and few hours in you were thinking you were going to die?
that is why MC flare is like... again why would i knowingly ingest something that causes that!

Vanessa · Post by **Vanessa** » Fri Mar 11, 2016 8:52 pm

Oh yes.....

I wasn't one of "those people" who had to be GF. I went back and forth for about a month until I realized I was one of those people. I look back and laugh at what my idea of GF actually was back then. Oh my! The diet is so simple people can not grasp it. My step mother asked me the other day when I'll be able to eat regular food again. Wow. My jaw dropped, I gave an annoying sigh and said, "Well, that would be never". Sometimes you can't fix stupid

Gabes-Apg · Post by **Gabes-Apg** » Fri Mar 11, 2016 8:57 pm

Regular food

interesting that your mother in law things that highly processed, chemical filled, highly inflammatory 'food' is regular!!!

Vanessa · Post by **Vanessa** » Fri Mar 11, 2016 9:02 pm

Yes! Very interesting and sad indeed Gabes!

Mrs. Poopy Jeans · Post by **Mrs. Poopy Jeans** » Fri Mar 11, 2016 9:15 pm

Oh my goodness, Vanessa! Regular food? LOL!

People are so brainwashed that bad food is good for you. Another case if they have never been sick, they will not understand.

Lilja · Post by **Lilja** » Sat Mar 12, 2016 4:11 am

Hi,

I was diagnosed in 2010, but I had no idea that it was the food that made me sick, and no one told me so either. When I finally came to some knowledgeable doctors in 2013 they told me that I had to stop eating gluten and caseine.

I was so happy that somebody understood what was wrong with me, so I jumped into my new life and never looked back.

No anger, no grief, no "why me". I was just grateful that I had got an answer, and looked forward to not having to run to the toilet all the time.

Of course, it's challenging and unpractical, but the alternative is so much worse.

Lilja

Blueberry · Post by **Blueberry** » Sat Mar 12, 2016 6:53 am

Thanks everyone. Marcia - I'm thankful I don't have anyone in the family right now that is a believer in eating beans as a cure. I've written a few times of late about my more extreme bean avoidance diet. I've not only been avoiding beans in my diet but will also avoid animal meats were soy meal had been used as feed. It's to early to get excited, but since doing this diet quiet happily the stomach is better, and low energy and fatigue issues are greatly improved. Ironically and while she is not a believer in eating beans, I hope I keep healing as 3 weeks from now I have a tough drive ahead of me with my sister. We are to drive half way across the country to the soy bean growing and processing capital of the world, central Illinois.

JFR · Post by **JFR** » Sat Mar 12, 2016 7:24 am

Lilja wrote:Hi,

I was diagnosed in 2010, but I had no idea that it was the food that made me sick, and no one told me so either. When I finally came to some knowledgeable doctors in 2013 they told me that I had to stop eating gluten and caseine.

I was so happy that somebody understood what was wrong with me, so I jumped into my new life and never looked back.

No anger, no grief, no "why me". I was just grateful that I had got an answer, and looked forward to not having to run to the toilet all the time.

Of course, it's challenging and unpractical, but the alternative is so much worse.

Lilja

That was my reaction. I was so happy to have a solution. No denial at all. Just happy to be getting better.

Jean

DJ · Post by DJ » Sat Mar 12, 2016 9:02 am

I find this to be a helpful discussion. We have all been through so much just figuring out the problem. I've had gut problems since my earliest memories. I began seeking help from GI doctors and other doctors about 34 years ago. I took prescribed medications that harm but do not help, and I could wallpaper my house with unfilled prescriptions. MC and other conditions used to be dumped in a "catch all" called Irritable Bowel. What a foolish diagnosis. Whatever is making the irritable bowel irritable should be the diagnosis! If someone has a nail through their foot, should the diagnosis be throbbing foot? A throbbing foot would be treated with pain medication, anti-inflammatories, and maybe antibiotics. The nail would remain and the medication regimen would be ongoing for the chronic condition of throbbing foot.
In our case, the initial need to treat diarrhea and spasms is like treating the throbbing foot. It needs to be addressed, then we need to treat the underlying cause. Eliminating gluten and other sensitivities while finding a way to provide nutrients and fluids to our bodies is pulling the nail out. It's not what we hoped for but it's what's best in the end.

My doctor did better than Tex's. She didn't tell me to see a psychiatrist. Prior to my flood of MC, she said, "I'm sorry, I tried everything. I don't know what more I can do for you. At least she was honest and she didn't tell me that it was all in my head.

We work our way through this gradually and we experience back-steps. I continue to plan and create a new lifestyle. We all agree that living with MC is difficult. Try not to spend too long grieving over what you used to eat. Those thought will come and go. Spend time learning what you CAN do and what you can enjoy eating.

I wonder if MC existed back in the day of outhouses. That would have been a hardship for sure. :emptytoiletpaperroll:

Mrs. Poopy Jeans · Post by **Mrs. Poopy Jeans** » Sat Mar 12, 2016 10:45 am

Wonderful comments and stories. I feel better to have y'all on my side. The nail in the foot analogy was spot on!

I had a great food night. I served pork tenderloins with s/p and olive oil, roasted carrots and Barilla GF penne pasta with a drizzle of EVOO. I also worked on my Pinterest MC breakfast, lunch, dinner, snacks and desserts boards. I don't have a lot there yet but it is a work in progress. Does anyone else have food/recipe boards they can share? If you would like to follow me on Pinterest, I am under my real name, Sandi Hooyman. I would love to see what you're cooking.