Update - Now Seven Months in Remission!

Updates from members who have been successful in controlling their symptoms.

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ant
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Update - Now Seven Months in Remission!

Post by ant »

Dear Tex and all Potty People,

I last updated in August after being hospitalized with Vestibular Neuritis. A course of Prednisone to treated the Neuritis also seemed to have knocked my MC into remission (together with continued diet). Since then I have not had to take Entocort. :grin:

In the last seven months, I have had a couple of short (one day maximum) flares when I obviously had consumed some gluten, dairy, soy etc. But otherwise in the clear.

I have even started to try slowly to reintroduce some foods back into my diet. I find I can eat a little goats cheese without problem. I also seem to be able handle corn chips and possibly chickpeas. My next test will be other legumes (but not soy). I also plan to test nightshades and finally eggs. But I am doing this gradually one food at a time.

So..........after having multiple food intolerances for a number of years, and a number of failed attempts to taper off Entocort it looks like a have really reached a stage of long term remission (:xfingers: hope I am not tempting fate by writing this).

In the Chinese Year of the Monkey have a finally caught that pesky, naughty MC monkey? :monkey: Without PP's help and guidance I would not have been close to doing that.

Best wishes to all on the long MC journey and the wonderful people here who give so much of their time, wisdom, guidance and compassion. Ant :ant: :ant:
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"Softly, softly catchee monkey".....
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Vanessa
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Post by Vanessa »

Thanks for the update Ant! Good to see people feeling better....
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Post by terre »

How encouraging....thank you for posting! Continued success!!!

Terre
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tex
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Post by tex »

Ant,

That's super news! We had another member, a number of years ago, who also couldn't achieve remission despite all his hard work with diet control. He finally tried a short course of prednisone and it seemed to shock his immune system back to reality and after that he too enjoyed stable remission. I've mentioned this to others before, but as far as I'm aware no one else has ever tried it, until now. A link to his story is below, in case anyone is interested.

Bobs Prednisone -> Entocort

Thank you so much for sharing such an encouraging update with us. I can't believe it — you finally caught that monkey. :thumbsup:

Kudos to you.

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Gabes-Apg
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Post by Gabes-Apg »

Fantastic, Super Dooper News!!

that has made my day today to read your update.

hope things with the building project are going well and there is not too much stress in your life

take care -
Gabes Ryan

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ant
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Post by ant »

Dear Venessa and Terre,

Thanks for your comments.

"You can get your life back" is the hope and reality, even if it takes longer than expected. Of course the diet restriction and changed lifestyle will remain, but that is not so bad compared with MC before it is tamed.

Dear Tex,

Thanks for the link. Unless I have miss-read, Bob successfully used Prednisone to get into remission, but he still occasionally takes Entocort when he needs to stop a flare. I am hoping to stay fully off it. The common thread seems to be that in both cases Prednisone made a step change that seems to have lasted.

Dear Gabes,

Hope things are well with you. The building project is completed although still have one or to minor things to fix (like water pressure). So less stress.

Best wishes, Ant
----------------------------------------
"Softly, softly catchee monkey".....
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tex
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Post by tex »

Ant,

Note that Bob's post is almost 10 years old now. He wrote that post less than a month after he had reached remission, so he surely had a fair amount of healing remaining to be done. I'll bet that he hasn't needed any Entocort in a long time (but that's just a guess, of course).

Yes, my point was that prednisone can sometimes shock the immune system sufficiently to "persuade" it to straighten out and fly right.

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Marcia K
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Post by Marcia K »

Good for you, Ant! I love to read the success stories!
Marcia
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Martha
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Post by Martha »

Dear Ant,

I'm so glad that you are feeling better, and able to add some foods back into your diet. Time and persistence (and prednisone!) paid off.

My husband and I are planning another trip to Thailand for Christmas. Last time we were there, we went to a resort near Monkey Island that is run by a French couple who are quite aware of gluten-free issues, and I was able to eat there safely. Interestingly, the only ones who got sick were my husband and son, who ate something from a street vendor. At my son's house, I don't worry, because he is very aware of my dietary needs, and cooks accordingly. My son lives in Bangkok.

Again, I'm happy for your good news!

Martha
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DebE13
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Post by DebE13 »

Great news Ant! It's good to hear you're doing well!
Deb

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DJ
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Post by DJ »

Great news! Thanks for the update!!
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Post by Leah »

Yay!
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Post by humbird753 »

Congratulations, Ant!!! I know it's been a long journey for you (as it can and often is for all of us). I am happy to hear you are feeling much better. I pray you continue to remain in remission.

Paula
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