Lilia
Back Pain or Bladder/Kidney Problems
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Hi,
I met my cousin at the store the other day, he is a doctor of medicine. He sugggested a possible antibiotic for my bladder issue, and reminded me of the fact that I had a stone in my one ureter back in 2007, which I had forgotten. (I will ask for a CT scan to confirm that it has been flushed out).
I told him that I use D-Mannose and that the bladder problem is manageable, but he proposed an antibiotic, since I have had quite a few UTIs over the last years, and they keep coming back. When I said that I would not risk an MC-flare because of an antibiotic prescription, he exclaimed: "But MC is an autoimmune disease, and antibiotics will not harm your MC. In fact, some antibiotics like Metronidazol or Erythromycin can be part of a treatment regimen for MC!!"
Really? I have never heard of it!
Well, I was of course polite and thanked him for his advice and said I might try it
Lilia
I met my cousin at the store the other day, he is a doctor of medicine. He sugggested a possible antibiotic for my bladder issue, and reminded me of the fact that I had a stone in my one ureter back in 2007, which I had forgotten. (I will ask for a CT scan to confirm that it has been flushed out).
I told him that I use D-Mannose and that the bladder problem is manageable, but he proposed an antibiotic, since I have had quite a few UTIs over the last years, and they keep coming back. When I said that I would not risk an MC-flare because of an antibiotic prescription, he exclaimed: "But MC is an autoimmune disease, and antibiotics will not harm your MC. In fact, some antibiotics like Metronidazol or Erythromycin can be part of a treatment regimen for MC!!"
Really? I have never heard of it!
Well, I was of course polite and thanked him for his advice and said I might try it
Lilia
Collagenous Colitis diagnosis in 2010
Psoriasis in 1973, symptom free in 2014
GF, CF and SF free since April, 2013
Psoriasis in 1973, symptom free in 2014
GF, CF and SF free since April, 2013
Lilia,
If you haven't been doubled over with pain ever since that stone was found in your ureter, it is long gone. I had that problem last fall, and although my doctors didn't have a clue, it finally dawned on me that magnesium deficiency was the cause. As long as you don't run short of magnesium, you are extremely unlikely to ever have that problem again.
Well, some of what your cousin says is true. Some doctors have no qualms about prescribing antibiotics to treat MC or virtually anything else. We even have a member here who refused to change her diet and took Cipro to control her MC until she developed severe RA and her doctor prescribed Humira and it also controlled her MC well enough that she was able to stop taking Entocort. Later she took Cipro for a UTI (at least I think that is the reason why she used it) and it caused a torn Achilles tendon.
But the part about "But MC is an autoimmune disease, and antibiotics will not harm your MC" is obviously incorrect. Many a case of MC has been triggered by the use of an antibiotic, especially repeated use of certain antibiotics. You obviously know much more about the disease than he does. Good for you for being diplomatic, because trying to correct a doctor is usually a waste of time, and will only bring resentment in most cases.
Tex
If you haven't been doubled over with pain ever since that stone was found in your ureter, it is long gone. I had that problem last fall, and although my doctors didn't have a clue, it finally dawned on me that magnesium deficiency was the cause. As long as you don't run short of magnesium, you are extremely unlikely to ever have that problem again.
Well, some of what your cousin says is true. Some doctors have no qualms about prescribing antibiotics to treat MC or virtually anything else. We even have a member here who refused to change her diet and took Cipro to control her MC until she developed severe RA and her doctor prescribed Humira and it also controlled her MC well enough that she was able to stop taking Entocort. Later she took Cipro for a UTI (at least I think that is the reason why she used it) and it caused a torn Achilles tendon.
But the part about "But MC is an autoimmune disease, and antibiotics will not harm your MC" is obviously incorrect. Many a case of MC has been triggered by the use of an antibiotic, especially repeated use of certain antibiotics. You obviously know much more about the disease than he does. Good for you for being diplomatic, because trying to correct a doctor is usually a waste of time, and will only bring resentment in most cases.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Hi Tex and Gabes,
I have been taking D-Mannose and Urisan Probiforte for more than 1 month now, and not only has it cured my bladder issue, it has also helped my digestion hugely (in April I've been GF, DF, and soy free for 3 years). I would love to know whether the digestion improvement is caused by the probiotics, or if it's just a coincidence, or a matter of time.
I suspect that I must have had UTI for a long, long time, because I have never had this fantastic feeling of being able to wait before I have to run to the toilet, and the feeling of being in control, I can sort of feel my own muscles down there (sorry for being so open).
I have had some accidents as to gluten during this period, but it has not caused any problems other than maybe a little bloating that has passed within 12 hours.
I'm so happy and forever grateful to this forum
Lilja
I have been taking D-Mannose and Urisan Probiforte for more than 1 month now, and not only has it cured my bladder issue, it has also helped my digestion hugely (in April I've been GF, DF, and soy free for 3 years). I would love to know whether the digestion improvement is caused by the probiotics, or if it's just a coincidence, or a matter of time.
I suspect that I must have had UTI for a long, long time, because I have never had this fantastic feeling of being able to wait before I have to run to the toilet, and the feeling of being in control, I can sort of feel my own muscles down there (sorry for being so open).
I have had some accidents as to gluten during this period, but it has not caused any problems other than maybe a little bloating that has passed within 12 hours.
I'm so happy and forever grateful to this forum
Lilja
Collagenous Colitis diagnosis in 2010
Psoriasis in 1973, symptom free in 2014
GF, CF and SF free since April, 2013
Psoriasis in 1973, symptom free in 2014
GF, CF and SF free since April, 2013
Lilja,
Since you have been taking both D-Mannose and Urisan Probiforte, it's impossible to guess which one might be responsible for your improvement.
Our first introduction to the benefits of D-Mannose for MC came with the post at the following link:
Progress report and supplement that's helping
Tex
Since you have been taking both D-Mannose and Urisan Probiforte, it's impossible to guess which one might be responsible for your improvement.
Our first introduction to the benefits of D-Mannose for MC came with the post at the following link:
Progress report and supplement that's helping
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
-
Gabes-Apg
- Emperor Penguin
- Posts: 8332
- Joined: Mon Dec 21, 2009 3:12 pm
- Location: Hunter Valley NSW Australia
Wow
that is great news
my thoughts are; by fixing the UTI, there is less inflammation in the body, the immune system is calming down, and you are using less Vit D3, magnesium etc. so now the body can focus on healing the gut...
and that is why you are handling the gluten accidents better!
reiterates the situation that
-other health issues in the body can make the MC worse,
-in situations like this MC can be the symptom of something else going on
Glad you had a super birthday and hope you the improvements to wellness keep happening!!
that is great news
my thoughts are; by fixing the UTI, there is less inflammation in the body, the immune system is calming down, and you are using less Vit D3, magnesium etc. so now the body can focus on healing the gut...
and that is why you are handling the gluten accidents better!
reiterates the situation that
-other health issues in the body can make the MC worse,
-in situations like this MC can be the symptom of something else going on
Glad you had a super birthday and hope you the improvements to wellness keep happening!!
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
Dear Tex and Gabes,
I have now taken the time to read the link of a former thread regarding D-mannose that Tex included. It's amazing. I have cut out the Urisan Probiforte, and now I'm on D-mannose only. It's very efficient so far, both as to the UTI and the MC. I now have only one BM in the morning, an that's it.
I appreciate that you are taking the time to answer my comments so thoroughly.
Lilja
I have now taken the time to read the link of a former thread regarding D-mannose that Tex included. It's amazing. I have cut out the Urisan Probiforte, and now I'm on D-mannose only. It's very efficient so far, both as to the UTI and the MC. I now have only one BM in the morning, an that's it.
I appreciate that you are taking the time to answer my comments so thoroughly.
Lilja
Collagenous Colitis diagnosis in 2010
Psoriasis in 1973, symptom free in 2014
GF, CF and SF free since April, 2013
Psoriasis in 1973, symptom free in 2014
GF, CF and SF free since April, 2013
Hi,
Visit at my GP yesterday. My MC is calm, and I'm still loyal to my diet, but I wanted to talk about my bladder issue and brought a urine test. I take D-Mannose every day, because I feel there is something wrong, although the burning feeling has subsided. I also told him that I have had microscopic blood in my urine since 1992, and have had all kinds of tests, like MR, ultrasound etc at Urology Dept at the local university hospital in 2013. Nothing wrong there.
There were no bacteria in the urine that my GP was able to detect, but he called me to tell they had found a lot of blood. I had my last period twenty years ago, so it should not be a gynecological issue. My GP now wants to get to the bottom of the problem, and that is a huge relief. He was unaware of the fact that people with MC often have bladder issues, and he sort of shrugged me off on that one.
So, finally something is happening
Lilja
Visit at my GP yesterday. My MC is calm, and I'm still loyal to my diet, but I wanted to talk about my bladder issue and brought a urine test. I take D-Mannose every day, because I feel there is something wrong, although the burning feeling has subsided. I also told him that I have had microscopic blood in my urine since 1992, and have had all kinds of tests, like MR, ultrasound etc at Urology Dept at the local university hospital in 2013. Nothing wrong there.
There were no bacteria in the urine that my GP was able to detect, but he called me to tell they had found a lot of blood. I had my last period twenty years ago, so it should not be a gynecological issue. My GP now wants to get to the bottom of the problem, and that is a huge relief. He was unaware of the fact that people with MC often have bladder issues, and he sort of shrugged me off on that one.
So, finally something is happening
Lilja
Collagenous Colitis diagnosis in 2010
Psoriasis in 1973, symptom free in 2014
GF, CF and SF free since April, 2013
Psoriasis in 1973, symptom free in 2014
GF, CF and SF free since April, 2013
Lilja,
24 years is a long time to have an issue. I'm glad that your GP has finally decided to try to track down the problem.
Good luck with the investigation.
Tex
24 years is a long time to have an issue. I'm glad that your GP has finally decided to try to track down the problem.
Good luck with the investigation.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Yes it is, but I had accepted the result from the investigation in 2013, where the urologist concluded that nothing was wrong, and said something like "some women have thin bladder walls". Maybe the problems sits further up.tex wrote:Lilja,
24 years is a long time to have an issue. I'm glad that your GP has finally decided to try to track down the problem.
Good luck with the investigation.
Tex
I whish you a Happy Easter!
Lilja
Collagenous Colitis diagnosis in 2010
Psoriasis in 1973, symptom free in 2014
GF, CF and SF free since April, 2013
Psoriasis in 1973, symptom free in 2014
GF, CF and SF free since April, 2013