Hi, I was diagnosed with CC in Jan 2016. (had D since Dec 2015) have been GF since then (I have been gluten intolerant past 4 years, would ingest gluten on special occassions), weaned off all dairy, and now off soy for over a week. still have D - My doctor has prescribed Entocort, but i am reluctant to take it. not sure if i am ready to commit to long term steroids. never been on em before. I think i have had MC for many years. I had C and cramping, when this would come up (every few months or so) I would take a few Naproxyn and things would settle down over a 24 hr period. NEVER in my life have i had D ! I thought the cramping was hormone related.
I finally figured out which Mag and D3 to take and feel a thousand times better- except for the D several times a day. I feel like i am reacting to everything! But I can't tell. I think i have some kind of Histamine response going on which i understand is common with us.
Am I on the right track? The cramping is so bad sometimes-- how do you manage it? it takes everything i have got not to take Naproxyn. Would love some advice. thanks
Help, need some advice with cramping
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grhandlan@comcast.net
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The cramping seems to be more of a problem for those of us who have C associated with our MC reactions. I had alternating C and D and sometimes the cramps were so bad and came on so quickly that they would almost bring me to my knees. Fortunately for me they usually faded away fairly quickly also. Of course on some days less severe cramps would be present for many hours. I just toughed them out, but I believe that some members here have used heat pads. Whenever I took Tylenol to help control headaches/migraines/stiff aching neck/etc., it seemed to help somewhat with the cramps also, but I didn't use it for that purpose so I never studied how well it actually worked. Tramadol is also safe to use with MC, though I never tried it.
Yes, you are on the right track. Be sure that every trace of gluten is out of your diet because if you ate it occasionally on special occasions, that can make your immune system even more sensitive to it. And that kicked your antibody level back up a notch or 2, so the antibody decay process had to start over each time you stopped eating it.
I hope that some of this is helpful,
Tex
Yes, you are on the right track. Be sure that every trace of gluten is out of your diet because if you ate it occasionally on special occasions, that can make your immune system even more sensitive to it. And that kicked your antibody level back up a notch or 2, so the antibody decay process had to start over each time you stopped eating it.
That's exactly the way that I felt before my gluten antibodies began to fade. I couldn't tell what was making me sick because everything seemed to cause problems randomly. After my gut healed for a few months I could begin to detect which foods were causing problems by keeping a food and reaction journal.grhandlan wrote:I feel like i am reacting to everything!
I hope that some of this is helpful,
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
