I've never had it like this before either Wayne. Lots of things can cause it I think. Why it was so bad on the day that I had the colonoscopy was that while it was extremely hot here I was told to stop drinking water for 3 hours before my scheduled appointment. They changed the time 3 times & eventually I was to go in at 3.30 pm. I had last drink of water about 12.15pm but was not even taken down until 6pm & it was 7.30 before I was given anything to drink. By then I think my mouth was as shrivelled up as a prune. As you can imagine, I was dehydrated to start with & between that & the heat, just about desicated I reckon. The inside of my mouth was tender for a couple of days and stung whenever I put anything in it. Soreness has gone but still have the dry mouth & I have tried chewing gum & the odd lolly but that only works for a while.
Love
Liz
expected too much
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Hi Liz,
I see your point. The delays were the main cause of the problem. I've never had a test of that sort that was delayed for more than a few minutes. One would think that they would have allowed you to take at least a sip of water when they anounced the delays. Water is not a big problem during a colonoscopy anyway, as they can suction it.
Good luck with your x-rays today.
Love,
Wayne
I see your point. The delays were the main cause of the problem. I've never had a test of that sort that was delayed for more than a few minutes. One would think that they would have allowed you to take at least a sip of water when they anounced the delays. Water is not a big problem during a colonoscopy anyway, as they can suction it.
Good luck with your x-rays today.
Love,
Wayne
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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artteacher
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Hi Liz,
I'm also one of those that had visible MC at one colonoscopy/biopsy, and then a year later told there were no visible signs of it. I'm so sorry. You know yourself that you still have it, with all the symptoms. So I'm glad you have your GP. God bless her . . .
I breaks my heart to hear what you're going through. I've been there, Love, Marsha
I'm also one of those that had visible MC at one colonoscopy/biopsy, and then a year later told there were no visible signs of it. I'm so sorry. You know yourself that you still have it, with all the symptoms. So I'm glad you have your GP. God bless her . . .
I breaks my heart to hear what you're going through. I've been there, Love, Marsha
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Liz
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Thanks Marsha. I have felt very down but with the help of my wonderful GP things will get better, I know it. I still have some entocort here if I get desperate but am holding off for the moment, trying diet & just using imodium & gastrostop. Starting to feel a bit more positive now.
Love
Liz
Love
Liz
A smile is a light in the window of your face that shows that your heart is at home
Liz-
I am new here but I understand your complaints about your new GI. can you go back to the old one?
Have you tried the gluten free diet which so many people here advocate?
I am new here but I understand your complaints about your new GI. can you go back to the old one?
Have you tried the gluten free diet which so many people here advocate?
Dr Fine test shows positive for gluten and casien but negative for soy, eggs, and yeast
Maybe its UC maybe its MC? Who knows at this point, but at least I know my intollerances now... so heres to the road to healing!
Maybe its UC maybe its MC? Who knows at this point, but at least I know my intollerances now... so heres to the road to healing!
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Liz
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Hi Terps
The problem is that my old GI doc retired after I had been with him for nearly 30 years. He was a wonderful, caring man & I had a lot of confidence in him.
I went down the GF road years ago & unless things have changed Iam not gluten sensitive although there are many other things that set me off.
Liz
The problem is that my old GI doc retired after I had been with him for nearly 30 years. He was a wonderful, caring man & I had a lot of confidence in him.
I went down the GF road years ago & unless things have changed Iam not gluten sensitive although there are many other things that set me off.
Liz
A smile is a light in the window of your face that shows that your heart is at home
Liz,
I don't know if it's possible to send a sample from Australia to Dallas, Texas, or not, but the folks at Enterolab could surely tell you, if you email them. That quick and easy test could tell you whether or not you are actually gluten sensitive, and resolve that question, once and for all.
Love,
Wayne
I don't know if it's possible to send a sample from Australia to Dallas, Texas, or not, but the folks at Enterolab could surely tell you, if you email them. That quick and easy test could tell you whether or not you are actually gluten sensitive, and resolve that question, once and for all.
Love,
Wayne
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Not too long ago Tessa sent a stool sample all the way from Spain to Dallas because no one in her country was doing the appropriate testing. Do you remember? (She found out that she is gluten-senstive and has been steadily improving on the diet).
It is definitely a little unnerving when the UPS guy arrives at your home to pick up the stool sample, which is in one of those biohazard bags. I guess it's a little trickier now with terrorism and all.
Love,
Polly
It is definitely a little unnerving when the UPS guy arrives at your home to pick up the stool sample, which is in one of those biohazard bags. I guess it's a little trickier now with terrorism and all.
Love,
Polly
Blessed are they who can laugh at themselves, for they shall never cease to be amused.
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Liz
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Polly & Tex
I don't know about sending a sample to Dallas. I could make enquiries. I expect that Spain would be a lot closer than where I live. Something I will check out though. I think there is a lab in Melbourne who do that sort of thing. My daughter sent hair & other specimens down there. Worth a try. Although I did go gluten free some years ago with no result maybe my situation has changed.
love
Liz
I don't know about sending a sample to Dallas. I could make enquiries. I expect that Spain would be a lot closer than where I live. Something I will check out though. I think there is a lab in Melbourne who do that sort of thing. My daughter sent hair & other specimens down there. Worth a try. Although I did go gluten free some years ago with no result maybe my situation has changed.
love
Liz
A smile is a light in the window of your face that shows that your heart is at home
Hi Liz,
I don't believe hair, etc. would do it. The reason that the stool sample is so helpful with M.C. is because the antibodies are actually MADE in the gut. The whole concept of stool testing has been developed more recently for the express purpose of being able to detect lower levels of antibodies, etc., such as we have.
The other validated research for a similar method of stool testing proved to be accurate, and you can read about that in the articles sections somewhere on here, I believe. Maybe I'm thinking about the old board, but I believe it's here as well.
Sometimes genetic tests can be done on hair, but I doubt that that's what they were used for, and if they were, they might not test for the genes that aren't the ones found in almost all gold-standard-proved celiac cases.
By the way, enterolab does the gene test using "cheek cells" and it's relatively easy to do with a little swab.
Since all this stuff eventually travels by plane, I'll just bet that you'd have no problem having your little biohazzard baby picked up and shipped to Dallas. Perhaps it could visit South Fork while it's there! Ha!
(I'm assuming that you were familiar with that tv show, "Dallas.")
OK, wish you could get to the bottom of this, and as was said above, know for sure what/if foods you have an immune problem with.
Yours, Luce
I don't believe hair, etc. would do it. The reason that the stool sample is so helpful with M.C. is because the antibodies are actually MADE in the gut. The whole concept of stool testing has been developed more recently for the express purpose of being able to detect lower levels of antibodies, etc., such as we have.
The other validated research for a similar method of stool testing proved to be accurate, and you can read about that in the articles sections somewhere on here, I believe. Maybe I'm thinking about the old board, but I believe it's here as well.
Sometimes genetic tests can be done on hair, but I doubt that that's what they were used for, and if they were, they might not test for the genes that aren't the ones found in almost all gold-standard-proved celiac cases.
By the way, enterolab does the gene test using "cheek cells" and it's relatively easy to do with a little swab.
Since all this stuff eventually travels by plane, I'll just bet that you'd have no problem having your little biohazzard baby picked up and shipped to Dallas. Perhaps it could visit South Fork while it's there! Ha!
(I'm assuming that you were familiar with that tv show, "Dallas.")
OK, wish you could get to the bottom of this, and as was said above, know for sure what/if foods you have an immune problem with.
Yours, Luce