Emily has an appointment today

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ronipow
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Emily has an appointment today

Post by ronipow »

Emily has her appointment today at the new Gi's Dr. Lubin. I was concidering at least doing Bentyl to help her with her stomach aches until this diet kicks in a little better. Now, I 'm not sure. I think he will recommend the PB treatment. I don't see how this is really going to help. It seemed to me that most patients just went back to D after being on it.

We haven't tried accupuncture for the pain yet. That could be a possibility.
The women that recommended Dr. Lubin also recommended Dr. Donald Counts. Not only is he a Family Physician he is also an accupuncturist,
and herbalist. So he is the type that believes in whole body care. One of his specialities is Celiac. Living in Austin we have a better pick. Such a groovy place to live.

I figure she can't eat much less food. Since we took out rice she's lost a few pounds.

I want to get the Great Smokey Parisite testing done and neither one of these doctors use this lab. I have a call out to Dr. Counts to see if he will
do those test. His receptionist said he will call me back personally. Go figure.

Dr. Counts is out of Network. So, I'm going to have to pick up an extra day of work to pay for these bills.

It's been four months, since treeking the diet. still no norman. If she could just survive on water we could get there faster.

Roni
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Post by starfire »

Good luck Roni, with the doctors. I hope one of them can help. I know it has to be very hard for you and for Emily.

Love, Shirley
When the eagles are silent, the parrots begin to jabber"
-- Winston Churchill
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kate_ce1995
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Post by kate_ce1995 »

Roni,

Although I believe Dr. Fine doesn't recommend the pepto treatment plan so much anymore, I think because of his findings that it was the gf diet that really helped, I wouldn't poo-poo the pepto treatment either because it can calm the gut and allow the healing process to go to work. In my understanding, of course.

Good luck at the appointment. How was her camping trip?
Katy
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tex
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Post by tex »

Roni,

Is Emily taking a probiotic? If not, has anyone ever checked her intestinal bacteria to see if they are the proper type for normal function? If she has never had a normal BM in her life, she may not have the correct flora and fauna populating her gut.

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Post by CAMary »

Roni-

I wouldn't *necessarily* rule out the PB treatment...I tried several things simultaneously to get myself on the road to recovery. I was on Asacol AND probiotics AND the PB treatment when I went GF....I'm not sure which, or if it was the combination, but I felt much better after a few months - and I definitely remember it was during the PB part where I went from liquid to solid -though the black element was a little shocking :wink:

My GI gave me his blessing - though at the time he didn't know about the PB regimen - he said it is a good GI med - relatively safe as long as people don't have aspirin/salicylate sensitivity and it is an anti-inflammatory....I figured it would be like attacking the inflammation component from both sides - one as symptomatic, and going GF would perhaps address the root cause....

I hope the appointment goes well!!

Mary
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Roni

Post by TendrTummy »

Hey :)

I've tried the PB treatment but at the time I was VERY new to the GF diet. I have to say, tho, that Dr. Fine DOES still recommend the PB diet but ONLY in conjuction with the GF diet. The theory is that the GF takes away the BAD stuff ingested, but that PB takes away the diarrhea. If you do it for 6 weeks then quit, while GF the entire time, it's supposed to work.

Now, I would guess since Emily has multiple intolerances, chances are she MAY have a few you still don't know about. I would stick with the very minimal diet and SLOWLY add one thing after another in the meantime, and stick with "safe" foods if you can.. foods MOST of us consider safe would be best. I have more intolerances than most, and strongly feel there is still something I am eating that is bothering me, but unfortunately they only have "so many" tests at Dr. Fine's lab, and the only other way to test is a tolerance test, the idea of which freaks me out for now..

So I'm status quo...

Christine
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Post by ronipow »

Christine,

We did a food intolerance test that was blood only, through the www.leapallergy.com program.

Roni
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Post by ronipow »

Tex,

That way I want to get these great Smokey Diagnostic test done. They have a test for what flora is in the intestines.

Roni
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