HOw much Vit D3 are you taking per day? In early days of MC and optimising healing we recommend 5000iu-7000iu D3 (make sure it is D3)
(I would caution about supplementing with too much Calcium, as it will deplete magnesium.)
There is a Vit D test that can be done via the Vit D council
http://www.vitamindcouncil.org/testkit/
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Excellent. I shall look into the test.
I am taking 2000iu only and then I take this Caltrate plus stuff. It is 600mg calcium, 800iu D3, 20mcg K1 (never heard of that one), 50mg magnessium, 7.5 mg zinc, 1 mg copper, 1.8 mg mananese. Holy smokes that a lot. Maybe I should stop taking the Caltrate and up my D3??
I am taking 2000iu only and then I take this Caltrate plus stuff. It is 600mg calcium, 800iu D3, 20mcg K1 (never heard of that one), 50mg magnessium, 7.5 mg zinc, 1 mg copper, 1.8 mg mananese. Holy smokes that a lot. Maybe I should stop taking the Caltrate and up my D3??
Monica D.
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Gabes-Apg
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For now, taking a pure VIt D3 (or maybe Vit D3 with some K) is best option
and getting the daily dosage up to at least 5000iu will help alot,
Vit D3 helps to reduce inflammation, we need good levels of Vit D3 in our cells to absorb other nutrients via our digestion.
and getting the daily dosage up to at least 5000iu will help alot,
Vit D3 helps to reduce inflammation, we need good levels of Vit D3 in our cells to absorb other nutrients via our digestion.
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
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Gabes-Apg
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http://www.perskyfarms.com/phpBB2/viewtopic.php?t=22083
this discussion has information about 'MC Safe' brands/products
this discussion has information about 'MC Safe' brands/products
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
Monica,
I have found that integrative medicine drs with nutritionists are more likely to perform vitamin deficiency blood work. Not sure if you have those where you are. I had no luck with my GI dr on deficiency tests. You can order a vitamin d test from the vitamin d council and do it yourself.
Are you using magnesium oil or supplements?
I have found that integrative medicine drs with nutritionists are more likely to perform vitamin deficiency blood work. Not sure if you have those where you are. I had no luck with my GI dr on deficiency tests. You can order a vitamin d test from the vitamin d council and do it yourself.
Are you using magnesium oil or supplements?
Martha E.
Philippians 4:13
Jul 2008 took Clindamycin for a Sinus infection that forever changed my life
Dec 2014 MC Dx
Jul 15, 2015 Elimination Diet
Aug 17, 2015 Enterolab Test
Dec 2015 Reflux
Sept 2016 IC
Philippians 4:13
Jul 2008 took Clindamycin for a Sinus infection that forever changed my life
Dec 2014 MC Dx
Jul 15, 2015 Elimination Diet
Aug 17, 2015 Enterolab Test
Dec 2015 Reflux
Sept 2016 IC
There is no maximum time for budesonide. New research (published in 2014) has superseded that previous belief. So there is no valid medical reason why you should have to stop taking it if you feel that it is helping. Check out this research (show it to your doctor if necessary).Monica wrote:As for the endocort unfortunately I have been on them my maximum time and have to come off.
Conclusions Budesonide at a mean dose of 4.5 mg/day maintained clinical remission for at least 1 year in the majority of patients with collagenous colitis and preserved health-related quality of life without safety concerns. Treatment extension with low-dose budesonide beyond 1 year may be beneficial given the high relapse rate after budesonide discontinuation.
Low-dose budesonide for maintenance of clinical remission in collagenous colitis: a randomised, placebo-controlled, 12-month trial
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
HI Martha. I'm booked in for next week to see a Naturopathic Doctor. Curious to see their train of thought as they mostly deal in supplements and hope to also get their own food intolerance based test called electrodermal screening. It's suppose to run through food intolerances and mineral deficiencies. Interested to see the results for that.
I am also taking magnesium. I take a horse pill every day of it, lol, and topical spray oil a couple times a day. I just started the magnesium about 5 days ago and am already noticing a huge difference with my headaches!
Tex that is very interesting about the endocort! I will indeed show him the study. I'm just on the fence too as since I reduced my dose my symptoms are more pronounced and faster, which in turn has helped me pinpoint some specific foods. I may suck it up for a bit and see if I can discover any other foods that give me instant reactions. Geez the pain may be worth it for a bit of clarity. I can then cross reference what I get back from both tests I will get done. Not sure if this is the best course of action. I may be better off waiting for the tests and go back on full strength until then. Good grief I don't know. I guess I have a week to decide as I see my GI next week and I am out of pills then too.
I am also taking magnesium. I take a horse pill every day of it, lol, and topical spray oil a couple times a day. I just started the magnesium about 5 days ago and am already noticing a huge difference with my headaches!
Tex that is very interesting about the endocort! I will indeed show him the study. I'm just on the fence too as since I reduced my dose my symptoms are more pronounced and faster, which in turn has helped me pinpoint some specific foods. I may suck it up for a bit and see if I can discover any other foods that give me instant reactions. Geez the pain may be worth it for a bit of clarity. I can then cross reference what I get back from both tests I will get done. Not sure if this is the best course of action. I may be better off waiting for the tests and go back on full strength until then. Good grief I don't know. I guess I have a week to decide as I see my GI next week and I am out of pills then too.
Monica D.
Hi Martha! I just wanted to add to this post thank you so much for the suggestion on different eggs. I have tried duck eggs and they don't upset my stomach! So happy :). You are a life saver! I have used them hard boiled, fried, baking, etc. They are great.
Also found that I can't tolerate nuts but can nut butter! Someone else is the same as me. Bizarre.
Now my newest quest. Drank wine twice and got a reaction. Though I was going nuts but apparently they use egg whites as a binder or something such as that. UGH!!! Any suggestions on any light drinks or coolers or such I can enjoy that are GF, EF, SF. I can tolerate my gin fine but it's just too strong sometimes. I know it's a bizarre question but honestly I thougt I had everything I can or cannot eat. Of course this is very important that I find a light drink for summer months. Lol
Also found that I can't tolerate nuts but can nut butter! Someone else is the same as me. Bizarre.
Now my newest quest. Drank wine twice and got a reaction. Though I was going nuts but apparently they use egg whites as a binder or something such as that. UGH!!! Any suggestions on any light drinks or coolers or such I can enjoy that are GF, EF, SF. I can tolerate my gin fine but it's just too strong sometimes. I know it's a bizarre question but honestly I thougt I had everything I can or cannot eat. Of course this is very important that I find a light drink for summer months. Lol
Monica D.
Be careful with wine coolers as many of them are apparently blended back with products that contain gluten (from barley malt).
The main problem with wine for most people is the sulfites. Sulfites are a byproduct of the fermentation process, so all wines will have some sulfites. But additional sulfites are added to many wines because it acts as a preservative/stabilizer. Look for wines labeled as "Low-sulfite". You might be able to tolerate limited amounts of them. In general, red wines are more likely to contain more sulfites than white wines.
Tex
The main problem with wine for most people is the sulfites. Sulfites are a byproduct of the fermentation process, so all wines will have some sulfites. But additional sulfites are added to many wines because it acts as a preservative/stabilizer. Look for wines labeled as "Low-sulfite". You might be able to tolerate limited amounts of them. In general, red wines are more likely to contain more sulfites than white wines.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Thank you Tex! I have been feeling pretty decent lately with all the advice I have been following from all of you. I hope to keep on track. My relaps used to last days. Now I'm usually okay the following day :). The one thing I am having trouble with is soy. It is in so many foods so just need to be careful. Now wine. Glad I have a support system to ask questions from 
Monica D.
Monica,
Brandy's post reminded me that alcohol is a high-histamine food. That means that if you have histamine or mast cell issues, it may be necessary to keep your total histamine intake below the threshold at which a mast cell event may be triggered.
You're probably aware of this bit of trivia, but alcohol is the only "food" or "nutrient" that is absorbed into the bloodstream in the stomach. Everything else is absorbed in the small intestine, or the colon (only water and electrolytes).
Tex
Brandy's post reminded me that alcohol is a high-histamine food. That means that if you have histamine or mast cell issues, it may be necessary to keep your total histamine intake below the threshold at which a mast cell event may be triggered.
You're probably aware of this bit of trivia, but alcohol is the only "food" or "nutrient" that is absorbed into the bloodstream in the stomach. Everything else is absorbed in the small intestine, or the colon (only water and electrolytes).
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Gabes-Apg
- Emperor Penguin
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- Joined: Mon Dec 21, 2009 3:12 pm
- Location: Hunter Valley NSW Australia
Monica
once I had settled histamine inflammation, and had some good gut healing, i could tolerate small amounts of wine.
there are now low alcohol wines available, so this helps. I know that some people take anti-hsitamines before consuming wine.
hang in there! once you have your safe eating plan, life with MC is not so overwhelming and things 'flow'
once I had settled histamine inflammation, and had some good gut healing, i could tolerate small amounts of wine.
there are now low alcohol wines available, so this helps. I know that some people take anti-hsitamines before consuming wine.
hang in there! once you have your safe eating plan, life with MC is not so overwhelming and things 'flow'
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama