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renee2
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Post by renee2 »

Thanks so much for taking the time to help me understand what's going on in my body. I really appreciate the effort you all make in helping me.

Tex, I chuckled when I thought of you, and then maybe me, wearing a big belt buckle to keep the pants up. My hunger, and weight gain, began before the steroid treatment started. I was only on steroids for a week before my doctor changed me to the pepto treatment. I wasn't able to tolerate the steroids, he said, because of the heaviness and cramping I was having in my legs. I've used food to comfort throughout my life, and I also enjoy cooking, so I think I just tried to eat my way through the most uncomfortable part of this process. I know I'm going to have to adjust my food intake in order to heal. I've made baby steps in that direction but I am certainly going to have to prepare foods in advance for when I'm scheduled to work long shifts. I'm just not disciplined enough to cook at night and end up going for fast food after work, which is too close to bedtime for me. I don't sleep well when I eat late. I wake up with heartburn, have crazy dreams, and night sweats associated with menopausal symptoms. I am a hot mess for sure.

Martha, I don't understand why histamine is reduced in frozen foods? It seems as if everything I thought I was doing right, like eating fresh foods, is now all wrong. I get that meat cooked in the grocery store would be potentially injected with substances and could have been sitting on the shelf for hours, but wouldn't it be better to buy fresh meat and cook it at home without the additives?

Thanks in advance for your responses. I have three days off now and I'm wanting to get to the grocery and spend some time preparing meals for my work days. Why is jasmine rice better?
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Post by crervin »

renee,

I've always read rice from Thailand is better for you. Fresh veges are good, but I can't keep fresh veges all the time. I have a family of 5, so typically I would eat canned veges. Frozen are a lot better than canned. As far as the meat, just one day in the refrig causes problems for me. Freezing stops the histamine/mold production. As soon as I buy the meat I eat some then freeze the rest. I cook straight from frozen on meats. Do you ever itch anywhere or get red patches on your face, or feel flushed?
Martha E.

Philippians 4:13

Jul 2008 took Clindamycin for a Sinus infection that forever changed my life
Dec 2014 MC Dx
Jul 15, 2015 Elimination Diet
Aug 17, 2015 Enterolab Test
Dec 2015 Reflux
Sept 2016 IC
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tex
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Post by tex »

Renee,

The heaviness and cramping you experienced in your legs was not from the budesonide itself, but from the magnesium deficiency that corticosteroids cause. Anyone taking a corticosteroid needs to increase their vitamin D and magnesium intake because corticosteroids rapidly deplete both. Doctors virtually always ignore that association (or maybe they're unaware of the connection).

Do you crave chocolate? That's common with magnesium deficiency because chocolate is a source of magnesium. When I was magnesium deficient I didn't sleep well either, and I often woke up with severe night sweats, tachacardia, breathing problems, etc., (and I doubt that I'm in menopause). If you check your blood pressure during one of those episodes you will find that it will either be way too high or way too low because your body has trouble regulating all your vital functions if magnesium becomes critically deficient.

To add some insight from personal experience to what Martha said about histamines and temperatures: if I make fresh chicken soup and put it in the refrigerator, when I eat some the next day I will be fine. After the second day in the fridge if I eat some I will notice some minor bloating after I eat it, and maybe a few scattered itchy spots on my skin. If I eat some after 3 days in the fridge I will have major bloating, D, and major itching of large areas of skin.

The bottom line is that freezing (at zero degrees F) will stop histamine propagation, but normal refrigeration temperatures will not. Fish and chicken are especially bad about histamine build up. When truly fresh, they are fine. But after they have been under refrigeration temperatures for a few days they may not be fine.

Most of us have to buy such foods fresh, and then either cook them promptly, or freeze them until we are ready to use them. After we cook food, we freeze whatever we are not going to eat immediately in serving-size portions and thaw them as needed. Otherwise we will have the symptoms of excess histamine levels, and too much histamine buildup can prevent recovery/remission (for those who have histamine/mast cell issues).

Jasmine rice not only has less arsenic than most rice on the market, but most of the starch it contains is much easier to digest than the starch in most other types of rice (because it's water-soluble). Jasmine mostly contains amylopectin starch. Rice varieties that are high in amylopectin are sometimes called sticky rice or glutinous rice.

This is also true of potatoes — the primary starch in Russet potatoes (amylose) makes them better for cooking (because is is not water soluble so the potato is less likely to become "mushy"), but that starch is more difficult to digest. The starch in most colored potatoes (amylopectin), such as red or yellow potatoes, and many others, is easier to digest.

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
renee2
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Post by renee2 »

Martha, Yes I often wake up scratching the inside of both of my arms from elbow to armpit. There are no red marks or hives or any other indication of why they may itch, however. I do have random bumps on my thighs. They are not clumped together, and are only slightly raised. I doubt if anyone else could notice them but my legs are not smooth like they used to be. At one point I was concerned that I was being bitten by some sort of bug at work. Health care establishments are pretty popular places for bed bug populations so I took precautions and bagged my clothes and washed them separately before bringing them into my house. I stopped doing that and have not spotted any sort of bug. This was happening months before I had any symptoms of LC though, so not sure it's related.

Tex,
I most certainly crave chocolate. I'm no longer divulging in it as I've learned sugar really kills me right now. I can have a small pinch of a doughnut and will pay for it. As far as blood pressure goes, I had to start on a blood pressure medication a month or so ago. My blood pressure had been climbing for nearly a year. My primary care doctor wasn't too concerned when it was in the 140/80 range, but at my last appointment it was 187/93. I really hope after I get through this tough phase I can go off the blood pressure medication. Sometimes I just think I've been misdiagnosed and this thing is the real culprit. For instance, I went to the primary doctor a year ago with symptoms of depression (lethargy, weight gain), and she put me on an antidepressant. It worked well at first and then stopped, so she upped the dosage. That helped for a minute and then I just seemed to stop caring about anything. I was so exhausted all of the time. She ran blood tests because I caught bronchitis and had WD for a month and that's when it was noted that my WBC was elevated to 17. I'm no longer taking the antidepressant. I decided to stop that because at the end of that day I do want to care about what's going on in my life.

I now feel physically ill and stressed about all of this but I also feel hopeful that I will be well again someday.
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tex
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Post by tex »

Renee,

Dry, itchy skin is another symptom of magnesium deficiency. It usually presents without any visible bumps or rash, so those bumps on your legs are probably due to mast cell issues.

My blood pressure did exactly the same thing that you described. Magnesium deficiency can cause some of the same symptoms as diabetes (including constant thirst and excessive urination). Sometimes when I would get up in the mornings, because of the dehydration during the night, my systolic BP would be in the 80s. But by mid-day, after I became hydrated again, it would be in the 140—180+ range. This was when my magnesium deficiency had become acute. And I was taking lisinopril at the time. I've been taking lisinopril for almost 6 years because of a couple of TIAs. Originally, my systolic BP was in the 120—130 range, but it really became erratic as my magnesium deficiency became worse.

These days (now that I have been able to rebuild my magnesium reserves) my systolic BP typically runs around 95–105 if I take the lisinopril, and around 105–115 if I skip it. But it took me about 8–10 months of taking 500 mg of magnesium daily (more during the first couple of months) to get to this point.

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
crervin
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Post by crervin »

and definitely watch those meats. Make sure you freeze them. At one point a couple of years ago I diagnosed myself with cancer due to my itching all over every night (you know every symptom points to cancer). I woke up to scratching myself to death. If you notice a lot of gas after eating and immediately going to the bathroom after you eat, it's typically histamines I think. My husband does it at times and he has a "normal" colon.

Good luck to you!
Martha E.

Philippians 4:13

Jul 2008 took Clindamycin for a Sinus infection that forever changed my life
Dec 2014 MC Dx
Jul 15, 2015 Elimination Diet
Aug 17, 2015 Enterolab Test
Dec 2015 Reflux
Sept 2016 IC
renee2
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Post by renee2 »

Tex,
The magnesium I'm taking is 250mg, by Natures Bounty. It doesn't contain any of the know nasty ingredients, but does have vegetable cellulose, silica, and <2% titanium dioxide color, vegetable magnesium stearate. Is this an acceptable form of magnesium or should I purchase something else?

Martha,
I bought meat and more meat and yellow potatoes, which I cooked and froze in individual portions. I cooked lamb with potatoes today and that was really yummy, but I woke up from a nap with some serious heartburn. I can set my watch to going to the toilet around 10 minutes after I eat. At first I didn't always make it there but now I do so some progress.
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Post by tex »

Renee,

If the form of that supplement is magnesium citrate or magnesium glycinate that should be fine (except that it's probably half as much as you think it is — keep reading for the explanation). If it's magnesium oxide it's not fine, because magnesium oxide has the poorest absorption potential of any form of magnesium and it's the most likely form to cause D. Also, you need to supplement it with additional magnesium applied to the skin or increase the oral dose to get enough magnesium. I used 250–300 mg of magnesium citrate for years, but I always had magnesium deficiency. And when I had to take an antibiotic for some dental work, it only took a few days before my meager magnesium reserves were completely depleted and I was in serious trouble. After that I had to double the dose I had been taking, just to keep up.

The problem is, most magnesium has exactly half as much magnesium as the front label shows. If it shows 250 mg on the label, look on the back label and read it carefully. If it's like most brands I'll bet a GF cookie that somewhere on the back label it will say "250 mg per serving" and somewhere else it will say, "serving size 2 tablets". This was the reason why I was taking half as much as I thought I was taking originally, and it seems to deceive virtually everyone. Many members here argue that their magnesium is different and it contains what it shows on the front label, but when they finally get around to checking the label carefully, they discover the truth — it contains half as much as they thought. So far the only exceptions have occurred in Australia, where they apparently label their magnesium correctly (according to Gabes).

You may be having a problem digesting the potatoes. MC makes digesting carbs much more difficult. But many people who don't have MC also have a problem with carbs. Please read the relatively short article at the following link, regarding heartburn. Dr. Eades is one of the good guys in the health game.

Heartburn Cured

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
crervin
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Post by crervin »

Going to the bathroom 10 minutes after eating makes me really think histamines.....someone else can chime in if I'm wrong. But sounds like you are on the right road. Good luck, hope you can see an improvement soon!!! You can drink some baking soda in water to help the heartburn.
Martha E.

Philippians 4:13

Jul 2008 took Clindamycin for a Sinus infection that forever changed my life
Dec 2014 MC Dx
Jul 15, 2015 Elimination Diet
Aug 17, 2015 Enterolab Test
Dec 2015 Reflux
Sept 2016 IC
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tex
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Post by tex »

Martha wrote:Going to the bathroom 10 minutes after eating makes me really think histamines.....someone else can chime in if I'm wrong.
You're not wrong, but I'm chiming in anyway because :iagree:

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
renee2
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Post by renee2 »

The serving size does say one, but it's magnesium oxide. Back to the pharmacy for me.

I guess I'll isolate the potato and lamb and see which one is the culprit. I hope it's not carbs because I'm not sure what I'll eat. I already know that sugar and dairy are causing me problems. What's left? I can't tolerate onions or lettuce right now either. Fermented foods are definitely out. When I first got D my primary care suggested I try probiotics. I studied up on that and tried to replace bad bacteria with good by eating pickles and yogurt and beets and keifer and drinking probiotic shakes and such. That was a disaster. Ha.

What's to be done about a histamine reaction? Nearly everything I eat does this to me. My guess is if it weren't for the pepto I'd be right where I was. I do seem to be okay with chicken and rice and carrots. Can a girl live on that?

I had a pedicure yesterday and part of the package was a lower leg massage. Though my legs feel good now when he first started massaging them I was in some serious pain. I could feel the places where I had spasms in my sleep last week just throbbing. I haven't had those since I started using magnesium spray, but it still concerns me. My legs have always been strong. I have definition in my calves from bicycling (which I can no longer do), and my work, which is difficult now but something I push through.

I worked long shifts over the weekend, so was certainly tired, but I went to bed at 10pm and other than a couple of times when I woke up for an hour or so, I slept until 4:30 pm the next day. I could go to sleep almost anytime. I don't know what this is about. I'm not sad and have many things I could do but I just want to sleep. I'm trying not to fall into complete isolation by doing things like getting pedicures but I have to force myself.
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Post by tex »

Renee wrote:Can a girl live on that?
Surely. You can be as healthy as a horse on that diet as long as you eat enough to get the protein and calories you need. These days, almost everyone has been deceived into thinking that they have to eat a widely-varied diet in order to be healthy. Why would anyone think that? The paleo people ate a very limited diet (controlled by the seasons) and our ancestors as recent as our great grandparents ate relatively limited diets. Up until about a hundred years ago, only the wealthy ate a variety of foods. Most people ate a very limited diet and on the average all of those ancestors (especially back in paleo times) were a heck of a lot healthier than the average resident of this country today.

The excessive fatigue that you describe is typical of anyone who tries to continue working while living with MC. Fighting the inflammation in our intestines uses up almost all of the energy that we have available (it's a full time job), so any other work we do will require additional rest. You're just like most of us here, and like us, your diet changes will slowly but surely allow you to get your health back, and eventually your energy and stamina will return — but that will come later, after some extended healing.

Please keep in mind though that because chicken carries a high risk of histamine buildup, turkey and lamb are usually safer choices. One of the problems with high-histamine foods such as chicken and fish is that we have no way of knowing how long it sat in the store at mediocre refrigeration temperatures before we bought it. It's probably safer to buy them frozen.

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
renee2
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Post by renee2 »

Well, I did accomplish my goal of learning quite a bit on my days off. Thanks for the link to understanding carbs and it's role in heartburn. I'm starting to see a connection for sure. I had potato today and again developed heartburn. I ate a smaller portion, so it wasn't as bad, but still. I'm embracing the idea of eating smaller meals more often. It seems to help some. I guess I just have to do all of these things in order to regain my health. It is my intention to have a solid understanding and new way of eating before my six weeks of pepto treatment is over. Maybe it's a good thing that it's not working so well that I can't tell what triggers me.

I am excited that I was able to eat cashew butter on white toast without difficulty. I've never had it before and love it. The bread wasn't what I wanted. I was shooting for GF, Low carb, fat free, and no high fructose corn syrup, but couldn't find a white bread free of gluten. I love whole grain bread but that's not working for me right now. It's almost as if my body is starting to say no to anything that has bulk to it.

I bought a magazine that specializes in gluten free foods, but it contains a lot of ingredients I can't have right now. The articles are good, but I'd love to find a magazine type recipe book that includes all of the special requirements. Ha. I guess it doesn't take a recipe to just cook a meat with bones and salt.
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Post by tex »

Renee,

With any luck at all, after you've been in remission for a while that carb digestion problem should diminish. When the small intestine is inflamed (as it is for most of us) we don't produce enough of some of the enzymes needed to digest certain carbs. That's why eating small amounts of them (or smaller, more frequent meals) may still work.

If you're looking for a bread substitute, someone else here (I believe it was Jari) suggested rice rollers a while back, and I find they make a nice shack with cashew butter smeared on them. Here's a link to the product I'm referring to. This particular Amazon item is 4 packages of 8 rolls each, but you can buy single packages (for almost as much money). The ingredients are white rice, cane sugar, rice syrup, and agar. They're low-fat, low sodium, and no cholesterol. Some members here use rice cakes for snacks, but these are sweet enough to be a treat.

http://www.amazon.com/Bamboo-Lane-Crunc ... A95FS096HG

For safe (but tasty) recipes, any of the several hundred recipes posted by Dee (in the Dee's Kitchen forum here) are gluten-free, dairy-free, and soy-free, and she lists egg substitute suggestions for those who need to avoid eggs.

Dee's Kitchen

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
crervin
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Post by crervin »

I didn't try anything with more than 5 ingredients the first 3 or 4 months. I didn't eat any breads either, but I'm not a big bread eater anyway. It would be best to stick with a frozen turkey breast cooked in a crock pot while you work. I only ate that plus either rice or potatoes for the first month. No veges or fruit and water. I lost weight but then was able to start trying veges after that and now am gaining weight. I cooked potatoes in different ways to change it up. Fried in coconut oil, baked, or mashed with coconut oil....
I got tired of it, but felt much better. Definitely no probiotics, those are laxatives in my opinion :lol:

I use rice cakes with nut butter and honey. I use to eat them plain like a cracker to settle my gut sometimes.

Hope this helps!
Martha E.

Philippians 4:13

Jul 2008 took Clindamycin for a Sinus infection that forever changed my life
Dec 2014 MC Dx
Jul 15, 2015 Elimination Diet
Aug 17, 2015 Enterolab Test
Dec 2015 Reflux
Sept 2016 IC
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