Can you be 'Almost Gluten Free'

[Gabes-Apg]

For new people, those with who tested negative to the celiac blood test and those thinking that gluten free most of the time is enough, or when they have a little bit they dont have noticeable symptoms

came across this article and linkage to a study;

Can You Be “Almost Gluten Free”?
Back to my original question – and this is an important one because there are many people who think that being almost gluten free is still almost good.

I’m sorry to say the data says NO. A study in the Journal of Neurology, Neurosurgery and Psychology looked at this question and their answer?

“Even minute traces of gliadin are capable of triggering a state of heightened immunological activity in gluten sensitive people.” Crap!

What they are saying is even a little bit, just an eeny weeny bit of gluten, triggers a major immune response. That translates to a flare up of your symptoms and further tissue destruction.

I’m afraid its true, people. One thing you need to realize is that you only need a tiny amount to get a response from your immune system. Antibodies have memories better than elephants.

https://www.hashimotoshealing.com/is-it ... uten-free/

[T]

Great article Gabes

Yes it only takes A trace amount to have A very bad flare(been there done that by accident)
Getting gluten is my worse fear.


Terry

[ldubois7]

So, eating out will always bring anxiety to me, I guess....I will always wonder if my salad has some gluten in it from kitchen prep....depressing.....

[Erica P-G]

It's articles like this that make me feel I will end up living in a box, by myself, with no interaction with the outside world....as I can not trust where I go and what I eat will not ever have some sort of gluten contamination on it for the rest of my life.

This is not encouraging at all! I'm doomed to flares forever Just had another flare of sorts after my agonizing month of April....its really annoying to when you haven't gone much outside the 'box' of foods either but a flare appear out of nowhere...this to me suggests environment or gluten has gotten to me, and I don't do any cooking with wheat flour at home.

[DebE13]

Thanks Gabe!

This is a great simple and short explanation that's easy to understand. I've been having this discussion with my son who has UC and it will be a good article to forward to him. He is missing the point with being kinda gluten free. I am thrilled he is actually attempting to modify his diet but not quite. This will be a good reinforcement.

I worry about him developing thyroid issues too in addition to everything else he has going on.

[Gabes-Apg]

Deb
when i see these articles, it is people like your son that i have in mind when I post them

I wish him luck on his journey of diet changes..

[DebE13]

Thanks Gabes,

It's hard to accept that I can only do so much and it's his choice how far he wants to take his care (strict diet vs meds) but it's a learning process and when you reach tge point where you've had enough. He may never get there but I at least he has access to answers which was more than I had when I was first dx. Took way too many years to stumble across the right connections.

Thanks for all your work into making the information so accessible.

[wmonique2]

Thanks Gabes!

I've slacked off a bit mostly when I am out at a party or something like that.... a cookie here or there mostly.... never at home. Back to square one....

It could explain why I am having mild nausea for about 2 months now. Can't get rid of it. Rereading Tex's book trying to figure out this conundrum.... Can't eat anything till 3pm. Just water or sipping juice. Maybe a mast cell issue. I am increasing Vit D today, see if that helps.

Love,

Monique

Tex: I miss you my friend :)

[tex]

Hi Monique,

I've missed you too. Since writing that book I've learned a lot about some of the unexplained mysteries surrounding many of the symptoms of MC. Edition II will take up where the first one left off, but I still have a long way to go before it will be finished. As an example, I'm now convinced that the primary cause of nausea (especially when it is associated with an IBD or diabetes) is magnesium deficiency.

Diabetes is strongly associated with magnesium deficiency because insulin is necessary to transport magnesium into muscle cells for storage. So diabetes typically causes magnesium deficiency (and there is some evidence that a chronic magnesium deficiency can eventually lead to Type 2 diabetes). As you are probably aware, magnesium is necessary for insulin to work properly. The 2 are co-dependent. Magnesium is also necessary for the pancreas to produce insulin. Of course with Type 1 diabetes, that's a moot point. When insulin resistance or insulin availability becomes a problem, any extra magnesium in the blood is purged by the kidneys rather than being stored for future use (in muscle cells). This means that eventually, magnesium availability may become entirely dependent on magnesium in the diet, with no reserves available to take up the slack.

I had a similar problem a year or 2 ago. My magnesium reserves became so low that I was having some of the symptoms of diabetes (constant thirst, frequent, urgent urination, etc.). I would run out of magnesium during the night and until I ate something or took a magnesium supplement (which I usually took after breakfast), I would feel rough. By noon or so I would feel much better. But it never occurred to me that I was magnesium deficient, because I was taking a magnesium supplement.

Only 1 % of one's normal magnesium supply is typically available in the bloodstream. The other 99 % is stored in muscle cells. But as we slowly run out of magnesium, eventually a much higher percentage of what is left will be in the blood (with very little left in storage). Because of the co-dependence of magnesium and insulin, it can be very difficult to restart the process of restoring magnesium reserves. But by having a surplus available in your blood at all times, your body should slowly begin to store some of it in your muscle cells again. It took me at least 6–8 months to rebuild my magnesium reserves, taking 600–700 mg of oral magnesium plus topically-applied magnesium oil (I used the oil for a couple of months).

Here's the mechanism by which I believe magnesium deficiency causes nausea:

Magnesium is necessary for the proper functioning of smooth muscles. They cannot relax without adequate magnesium. Most of the muscles in the digestive system (including the pyloric sphincter between the stomach and the duodenum) are smooth muscle tissue. As you are aware, gastroparesis is a common problem with diabetes (roughly a third of patients have the problem). Doctors treat it with certain drugs. But IMO this occurs because the pyloric valve malfunctions due to inadequate magnesium availability. When the stomach cannot empty on schedule, food tends to ferment in the warm, moist environment, causing gas, nausea, and possibly acid reflux. Magnesium will keep it operating smoothly though.

Nausea was an almost constant problem for me back when I was recovering, but it never dawned on me that I was magnesium deficient. I hope this helps and you'll soon be as fit as a fiddle again. Please keep us posted, because if my theory is wrong, I sure don't want to include it in the book.

Love,
Tex

[wmonique2]

Thank you Tex for this expansive explanation.

I already take magnesium as oil since it causes major D otherwise. I am concerned about absorption with oil but I feel it is better than not having any.

Perhaps I'll increase my daily 5-6 shots and see what happens. I don't think i have gastroparesis. At least I didn't at the time I got diagnosed with MC.

Nausea has been my biggest enemy since then. Debilitating at first until I took Elavil for it. I refuse to take that again. I felt drugged with it and gained weight. Was hungry and sleepy all the time. It seems that the serotonin (endorphins) in the gut is the issue. LDN works on those receptors just like Elavil and it did a great job until recently.

I just changed LDN from cream to liquid a couple of days ago. I was concerned about absorption even though I have been on it that way for more than 2 years and I got up feeling better today. Still nauseated but not as bad. I am going to increase my D as well as you mention in your book. I was taking 4,000 and at one point took as much as 12,000... decreased it. Maybe I shouldn't have. All of this is all trial and error as you know.

Didn't know you are working on edition II ---

Thank you for doing that for us. I know how much work that is.

Much love to you,

Monique

[tex]

You are most welcome. You're right of course that magnesium that is not absorbed remains in the gut to possibly act as a laxative. Did you try chelated magnesum (magnesium glycinate)? It's the least likely form to cause D. Magnesium Oxide is the most likely form to cause D because it's very poorly absorbed and magnesium oxide plus water makes milk of magnesia (same as the laxative).

If you are magnesium deficient, you should be able to absorb the magnesium in the oil. It appears that most of the members here who are getting results from the oil are using 3 or 4 times as many applications (or more). At least that's the impression I get after reading their posts.

I didn't realize that I was having gastroparesis problems until one day I happened to notice that sometimes I could actually feel when my pyloric sphincter opened to begin emptying my stomach. Soon afterward the nausea would be gone.

Yes, more vitamin D might help, especially if you're only taking a low dose now. For years, I took 6,000–7,000 IU of vitamin D during the winter and early spring, and then dropped it to 3,000 IU or less during the summer. But every summer my vitamin D blood level would drop from the 80s or 90s to the 40s, so I've decided to take at least 5,000 IU all year long to see how that works. I check my level about April and October each year. It was 85 in April.

I hope that you're working on a book or 2, also.

Much love to you too, Monique.

Tex

[ldubois7]

Tex,

Very interesting regarding nausea and magnesium....my theory was that when I didn't take enough HCL with a meal, my food just sat in my stomach and fermented....but, the magnesium connection must be considered too.

I'm taking 250 mg glycinate magnesium, of course always worried that too much will cause loose stools.
Maybe I should increase?

[tex]

Linda,

Low stomach acid may delay stomach emptying, but I can't find any medical research where that has ever actually been checked out. But that's probably because physicians are never interested in treating low stomach acid — they're only interested in prescribing PPIs to treat too much stomach acid (without even testing stomach acidity).

The reason why PPIs deplete magnesium appears to be because most forms of magnesium must be converted into a salt (by interaction with stomach acid) before they can be absorbed. Therefore low stomach acid very likely does reduce magnesium absorption. Chelated magnesium forms are exceptions because they are absorbed by "hitchhiking" on certain amino acids. For example, magnesium glycinate is chelated with glycine so it is readily absorbed and should not cause diarrhea.

I suspect that you would benefit from more magnesium. If you're concerned about oral magnesium supplements, topical application can be used.

Tex

[ldubois7]

That's a good idea, Tex.....I was doing magnesium oil, but ran out and didn't reorder.

I am interested in why you put the magnesium oil on and rinse it off not long after.
I used to put it on after my shower in the morning and leave it on until my next shower the following morning.

[tex]

For many people it seems to dry, so that some left over salt crystals can be seen on the skin. That doesn't happen for me. I've tried leaving it on for an hour or 2, but it remains oily on my hide, and I don't crave to get everything I come in contact with oily. Maybe I'm using the wrong type, but I use Ancient Minerals Magnesium Oil.

Tex