Diet and other questions

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janhsmn
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Diet and other questions

Post by janhsmn »

Hi, a, relatively new to forum and new to this diagnosis. Since joining have been reading a lot about histamine issues and diet etc but have still not quite grabbed it.

I have done gluten free in past and fully understand that (sister is coeliac so have had to support her as well). But eating for this disease is much more confusing. I am doing my grocery order for next week and am stuck on what I should be looking for (am in the uk). During the week when at work would have gf cereal with almond milk, gf bread or wrap with either ham or cheese, a easiyo yoghurt (Australian brand) he evening meal would be some form of meat with either risotto or chips made from potatoes at home.

Is any of this any good or is it all wrong.

Also having read a few posts I have picked up on other health issues. I currently have a very dry mouth and my eyes are often misty in a morning. Doc said that could be down to the 20mg of amitriptelyne I am taking? Also have a stuffy nose and have had that for a long time as well. Suffer with hot feet as in burning hot especially in bed.

Sounds like I should be put down lol.

Any tips would be helpful

Thanks
Jan
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Gabes-Apg
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Post by Gabes-Apg »

Jan
we have prepared a eating plan for this early stage of MC
here is a link: http://www.perskyfarms.com/phpBB2/viewtopic.php?t=22328

I have tried to make it 'global friendly'

the dry mouth can be a side effect of the Amitriptelyne. I encourage you to supplement with Magnesium and with the low inflammation eating plan this may improve
The other symptoms are excess mucus/inflammation related to histamine, going to the suggested eating plan will help with this and taking anti histamines
(having histamine symptoms is common for MC'ers)

some other suggested reading - there are some other recent new people where similar things have been discussed
i have provided the links for these conversations
http://www.perskyfarms.com/phpBB2/viewtopic.php?t=22200
http://www.perskyfarms.com/phpBB2/viewtopic.php?t=22276

hope this helps
Gabes Ryan

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tex
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Post by tex »

Hi Jan,

I agree with Gabes. At least 75 % or more of us are sensitive to casein, the primary protein in all dairy products. IOW, most of us cannot tolerate either cheese or yoghurt.

I also agree that the amitriptylene could be causing the oral symptoms. However I note that when I was magnesium deficient I often had dry mouth, eyes that were sometimes misty, and sometimes burned, and I was often too hot when there was no reason to be too hot.

Back when I was vitamin B-12 deficient I often had burning sensations in my feet, especially the soles. B-6 can also help because it helps with the absorption of magnesium.

Dilated blood vessels tend to cause a sensation of a stuffy nose. Blood vessel elasticity/dilation issues are associated with endothelial dysfunction. Endothelial dysfunction can be treated by a certain ratio the active forms of vitamins B-6, B-9, and B-12. The details of that combination can be seen in post number 5 [url=http://www.perskyfarms.com/phpBB2/viewtopic.php?t=18500]in this thread.[url] However, if your nose is actually stuffy (as opposed to feeling stuffy), that's an entirely different matter. That would almost certainly be due to a mast cell reaction to something in your diet or in your environment. The casein in your diet is a very common cause for that symptom (and also misty eyes) in many cases.

I would try cutting out all dairy products for a few days to see if the stuffy nose and misty eyes improve.

Good luck with your recovery, and please keep us posted on your progress (or lack of it, if you don't see any improvement)

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
janhsmn
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Post by janhsmn »

If I cut out all cheese and yoghurt as well as milk what's rage best way to get calcium, am over 50 and mother has osteoporosis and my sister the coeliac is on the border following a bone scan.

Thanks
Jan
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tex
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Post by tex »

Jan,

It's actually somewhat rare for someone to not have adequate calcium in their diet. The problem is virtually always inadequate magnesium and vitamin D. Without adequate magnesium and vitamin D, anyone can eat a wheelbarrow load of calcium every day, but they will still develop osteoporosis.

If you feel that you need more calcium in your diet, all of the nut milks have at least as much calcium as cow's milk. Many other foods are fortified with calcium these days, including cereals and shack bars. In fact, calcium is added to so many foods these days that many people get too much calcium, which adds to the magnesium deficiency problem, because calcium depletes magnesium. IOW, if you take a calcium supplement (or eat foods high in calcium), you need to take in an equal amount of magnesium (a 1:1 ratio) to offset the amount that the calcium will use up.

If you have been boosting calcium intake for years without boosting your magnesium intake, you are virtually guaranteed to have a magnesium deficiency and this needs to be corrected in order to prevent the development of osteoporosis. And this might apply to your vitamin D level, also.

As supporting evidence I would point out that the residents of the developed countries who consume the most dairy products, have the highest rates of osteoporosis in the world. Why? Because most of those people are magnesium and/or vitamin D deficient. It's as simple as that, but few doctors seem to understand what's going on.

Celiac disease and all other IBDs (including MC) deplete magnesium. Many, many drugs deplete magnesium, including antibiotics, corticosteroids, PPIs, etc. Certain foods (such as coffee) deplete magnesium. Is it any wonder why so many people are magnesium deficient these days?

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
janhsmn
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Post by janhsmn »

I need to look for the right magnesium in uk. A lot of health food stores sell creams but it sounds like there are specific types I should be looking for. Getting fed up these week every night for last week have been running to loo on a night and it's so debilitating, people don't realise. Tonight had steak, and selection of green baby veg, corvette, broccoli, baby sweetcorn and Mushrooms with a Diane sauce. Twenty minutes late I am off. How can anything go through someone so fast.
Jan
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tex
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Post by tex »

Magnesium creams should work as long as they don't contain something that causes you to react.

Sweet corn is something that most of us cannot tolerate when we are still recovering — too much sugar and too much fiber. And that many vegetables together would contain a lot of fiber. We recover a lot faster if we forget about a balanced diet and simply eat a bland, simple diet consisting of a few basic foods so that we can recover as quickly as possible. After we are in remission then we can begin to fine-tune our diet and look at the nutrients we are getting.

Most sauces contain something that will cause us to react, and many/most seasonings are a problem. They should be reserved until later, after we are in remission. After we are in remission it's much easier to tell when a food is a problem.

When we begin to react to a meal in less than half an hour, that's usually an allergic or mast cell reaction to one or more of the foods in the meal. IOW, you are actually allergic to something in that meal, or else histamines are a problem for you.

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
janhsmn
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Post by janhsmn »

Thanks, this is a minefield
Jan
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Gabes-Apg
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Post by Gabes-Apg »

Jan
there has been quite a bit of research recently that actually links Vit D3 and magnesium deficiency to Osteoporosis, it is not actually a calcium intake that affects it
following the low inflammation eating plan as suggested and supplementing with Vit D3 and magnesium is very healthy.

Life with MC is a minefield at first, it takes a bit of time and energy to figure out what works best for you. Did you read the posts that i provided the links for?
the first one, the eating guideline will give you a good map of how to avoid the mines in the minefield...
Gabes Ryan

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janhsmn
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Post by janhsmn »

I did read it thanks, but struggling to see how I can make it fit with working five days a week where I need pack up style lunches. Being coeliac would be a walk in the park compared to this

Ta
Jan
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Post by Gabes-Apg »

Many of us here have worked while sorting out our MC management plan ( in my first year of MC diagnosis I travelled domestically and Internationally to France from Australia which was over 30 hour transit time)

lunch ideas, cold meats cooked at home, paleo type muffins made with coconut flour, protein shakes (i use a rice protein, some use hemp protein)
if you have a really good breakfast that will also help

can you reheat things at work? soups and stews work well,
Gabes Ryan

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Post by Gabes-Apg »

I know most homes in the UK dont have large fridges / freezers etc.

one thing that really helped me was having a good size freezer, I would do cook ups on the weekend of soups, stews etc, and freeze them in meal portions.
these would be my lunches and dinners etc having them pre-prepared that i just had to reheat them made it way easier to stick to the bland eating plan

the other option is using a slow cooker, putting it on of a night and your breakfast is ready when you wake up, and putting it on during the day so your evening meal is ready for when you get home.
Gabes Ryan

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tex
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Post by tex »

Jan,

Regarding Gabes' suggestion about using a slow cooker for breakfast — for many of us our breakfast was very similar to our other meals while we were recovering. Many of us ate the same foods 3 or 4 times each day, every day until our digestive system was working well.

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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