I was diagnosed with LC today...

Feel free to discuss any topic of general interest, so long as nothing you post here is likely to be interpreted as insulting, and/or inflammatory, nor clearly designed to provoke any individual or group. Please be considerate of others feelings, and they will be considerate of yours.

Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh

Post Reply
Jumpindogs
Adélie Penguin
Adélie Penguin
Posts: 129
Joined: Thu May 12, 2016 9:41 pm
Location: Wisconsin

Post by Jumpindogs »

jlbattin wrote:I was one that Budesonide didn't mask symptoms for......so, I could try things and know if I would react or not.........some people, however, eat what they want and take Budesonide to feel better (or so my GI doctor tells me) and don't get the symptoms...........

You'll have to judge for yourself when you get on the Budesonide. You'll know if it masks symptoms or not..........
Sorry if I wasn't clear. I was on 9 mg Uceris every other day for 24 days and my symptoms nearly resolved almost immediately. Then off and back they came. Then on that shorted 6 mg dose of Entocort a week ago with no symptom resolution. Now switching to 9 mg Entocort tomorrow morning. The Uceris did mask my symptoms...with a little help from Loperamide every 12 hours to scare away the remaining urgency. I am guessing the 9 mg Entocort will as well.

I am a little confused though. If the budesonide did not mask your symptoms then how did you know if you were reacting to a food or just reacting because you were still symptomatic? Thanks for your patience with me and sorry if my questions are dumb. :???: :oops: :smile:
Joanne and the Recycled Aussies
LC May 2016
User avatar
tex
Site Admin
Site Admin
Posts: 35070
Joined: Tue May 24, 2005 9:00 am
Location: Central Texas

Post by tex »

Joanne wrote:but mistakenly thought the symptoms returned because my colon was not yet healed
That could certainly be true also. You did not take Uceris long enough to do much healing. Healing takes a long time (many months to years).
Joanne wrote:My doc and I had a good conversation and he told me today that he and I will be speaking directly from now on.
:thumbsup: Now you're cooking with gas.
Joanne wrote:Anyway, he is upping my Entocort to 9 mg daily and sending a pre-auth letter to my drug insurance company for Uceris. I am assuming my symptoms will likely resolve while on the proper dose of Entocort/if I get back on Uceris. So no 3 day bacon testing until I am off the budesonide, right?
If you really want to see if you can eat bacon, there's no reason not to try it soon after you are in remission from the budesonide. When you begin to wean off the budesonide, if symptoms should return, try avoiding the bacon. If it's the problem, your symptoms should diminish after 2 or 3 days.

Most foods do not cause long-term reactions after we cut them out of our diet. That distinction belongs to gluten, and in some cases casein. Most food antibodies have a half-life of only about 6 days, so they fade away relatively quickly. Anti-gliadin antibodies have a half-life of 120 days. That's why reactions to gluten are so persistent and seem to linger forever.

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Jumpindogs
Adélie Penguin
Adélie Penguin
Posts: 129
Joined: Thu May 12, 2016 9:41 pm
Location: Wisconsin

Post by Jumpindogs »

Gabes-Apg wrote:
the other option given your circumstances is doing a coconut flour type paleo muffin/slice with minimal ingredients.
there are savoury options and if you made it with bone broth and cooked safe protein this may be a better option
I looked in the recipe section and can't seem to find a minimal ingredient Paleo muffin recipe. Do you have any ideas?

And what about duck eggs? I just found a post from Tex that most forum members who are sensitive to chicken eggs can safely eat duck eggs. Might I try that for breakfast while my colon is healing?
Joanne and the Recycled Aussies
LC May 2016
Jumpindogs
Adélie Penguin
Adélie Penguin
Posts: 129
Joined: Thu May 12, 2016 9:41 pm
Location: Wisconsin

Post by Jumpindogs »

tex wrote: If you really want to see if you can eat bacon, there's no reason not to try it soon after you are in remission from the budesonide. When you begin to wean off the budesonide, if symptoms should return, try avoiding the bacon. If it's the problem, your symptoms should diminish after 2 or 3 days.

Most foods do not cause long-term reactions after we cut them out of our diet. That distinction belongs to gluten, and in some cases casein. Most food antibodies have a half-life of only about 6 days, so they fade away relatively quickly. Anti-gliadin antibodies have a half-life of 120 days. That's why reactions to gluten are so persistent and seem to linger forever.

Tex
I love that bacon logic, Tex. Thanks! And the science on the half-lives. Makes sense.

Now to find a bacon that doesn't contain celery juice powder...
Joanne and the Recycled Aussies
LC May 2016
User avatar
Gabes-Apg
Emperor Penguin
Emperor Penguin
Posts: 8332
Joined: Mon Dec 21, 2009 3:12 pm
Location: Hunter Valley NSW Australia

Post by Gabes-Apg »

The recipe is in the " paleo diet information" Section.

The search function is a good way to find posts etc.
Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
User avatar
Gabes-Apg
Emperor Penguin
Emperor Penguin
Posts: 8332
Joined: Mon Dec 21, 2009 3:12 pm
Location: Hunter Valley NSW Australia

Post by Gabes-Apg »

Duck eggs would be worth trying...
Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
Jumpindogs
Adélie Penguin
Adélie Penguin
Posts: 129
Joined: Thu May 12, 2016 9:41 pm
Location: Wisconsin

Post by Jumpindogs »

Gabes-Apg wrote:The recipe is in the " paleo diet information" Section.

The search function is a good way to find posts etc.
Thanks. I've used that search function a lot, Gabes. :smile:

The recipe I found seemed to have lots of stuff in it. I am not the best cook but I am capable of subbing out the veggies, dates, etc. And using duck eggs instead of chicken eggs...guessing 2 ducks to 3 chickens? Just not smart enough to know if the skeleton of this recipe is minimal enough...there are lots of things there I am not currently eating if this is the one you were referring to. Sorry for all the questions.

http://www.perskyfarms.com/phpBB2/viewt ... leo+muffin
Joanne and the Recycled Aussies
LC May 2016
Jumpindogs
Adélie Penguin
Adélie Penguin
Posts: 129
Joined: Thu May 12, 2016 9:41 pm
Location: Wisconsin

Post by Jumpindogs »

Gabes-Apg wrote:Duck eggs would be worth trying...
Beyond cool! :grin: That's a fab breakfast protein. One of my two problems potentially solved. Gonna sleep good tonight. :smile: Thank you, Gabes!
Joanne and the Recycled Aussies
LC May 2016
Jumpindogs
Adélie Penguin
Adélie Penguin
Posts: 129
Joined: Thu May 12, 2016 9:41 pm
Location: Wisconsin

Post by Jumpindogs »

Erica P-G wrote:I just came across a Natural Slow Roasted Turkey Breast deli meat by Oscar Mayer, the verdict is still out but its ingredients are: Turkey breast, water, cultured dextrose(to preserve quality), contains less than 2% of potato starch, sea salt, honey, vinegar, cultured celery juice, and cherry powder.

Not sure but the 2% of ingredients may so small that this one may be ok, if nothing else to at least rotate with. I have been using a good helping of it on a safe toasted local cinn/raisin bread (or a plain toasted local made bread) with some plain coffee with cashew milk in it every morning for breakfast for a month at least. Before that I tried to find the next best deli meat, this one is even better for me with less offending ingredients that trigger my MC.

For lunch, and I have been doing this for a year now, I bring my frozen bone broth Cornish hen noodle soup to work and warm it up in a microwave along with some rice chips (I have a mini Mtn Dew it is that tiny bit of caffeine that keeps me feeling up an ready).

I looked at one of two types of my lara bars and there is one with only 2 ingredients it has 6 gm of protein and it is the cashew/fig bar with sea salt. All you can do is give it a try if you can't bring some cold meat in a cooler. Also Cashew spread on rice chips is good....but again the cashew spread needs to stay cool throughout the day (a couple ice packs in a good cooler may be important in your line of work in order to help you maintain enough energy to do your job ;-) I'm not pushing this bar....it just doesn't have to be cold. I've limited myself quite a bit too, so forgive me if I am not much help in this protein dept.

I work in a scratch cooking facility too and I am still not much help because we react to so many things it can be so pathetic at times.

Hugs
Erica
Can't seem to find that particular bar on their website. Do you have a link for it?

Yeah, I am guessing I'll be eating my chicken/potato stew for lunch at work for some years. It's a good thing I've never been one to require much variety on my menu. Inconsequential factoid for some, huge blessing for me.

Pathetic...that's a good description. :lol: Thanks for the hugs. :smile: Back atcha!
Joanne and the Recycled Aussies
LC May 2016
User avatar
Gabes-Apg
Emperor Penguin
Emperor Penguin
Posts: 8332
Joined: Mon Dec 21, 2009 3:12 pm
Location: Hunter Valley NSW Australia

Post by Gabes-Apg »

This is where google becomes your friend..
I put the words - savoury paleo muffins into google search and got over 300,000 results!

and you get to be a bit of a scientist tweak the recipes a bit to to suit what you are eating now

recipes that have dried fruits, dont include the fruits, put some extra coconut oil in to keep the muffin moist
recipes that have blend of flours, just use total quantity of coconut flour
if it says 'shredded coconut' I replace with smaller amount of coconut flour and some extra coconut oil (keeps it low fibre)
do not use nuts

so long as the mix is doughy moist it will cook ok!

as i had a quick browse there were quite a few that used protein powder with things like pumpkin or sweet potato.

you dont have to make them as muffins, you could bake the mix in a slice tin /cake tin and cut it into squares
Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
Jumpindogs
Adélie Penguin
Adélie Penguin
Posts: 129
Joined: Thu May 12, 2016 9:41 pm
Location: Wisconsin

Post by Jumpindogs »

Gabes-Apg wrote:This is where google becomes your friend..
I put the words - savoury paleo muffins into google search and got over 300,000 results!

and you get to be a bit of a scientist tweak the recipes a bit to to suit what you are eating now

recipes that have dried fruits, dont include the fruits, put some extra coconut oil in to keep the muffin moist
recipes that have blend of flours, just use total quantity of coconut flour
if it says 'shredded coconut' I replace with smaller amount of coconut flour and some extra coconut oil (keeps it low fibre)
do not use nuts

so long as the mix is doughy moist it will cook ok!

as i had a quick browse there were quite a few that used protein powder with things like pumpkin or sweet potato.

you dont have to make them as muffins, you could bake the mix in a slice tin /cake tin and cut it into squares
OK. Thanks. But I am unable to evaluate those recipes the way you are able to, Gabes. Because you are an MC food expert and I am comparatively clueless. So Google is not my friend just yet.

For example, here is the recipe I think you were referencing on the forum.

2 1/2 c almond flour
1 T cinnamon
2 tsp baking soda
1/2 tsp salt
2 C grated carrots ( or substitute: grated zucchini, canned pumpkin, bananas, etc)
1 large apple, cored and grated
1 C shredded coconut
1 C raisin (or dates) I substituted chopped nuts
3 lg eggs
2 T honey (optional)
1/2 C coconut oil or avocado oil
1 tsp vanilla.

I know enough on my own to replace the veggies with bananas, use duck eggs (after I asked about them yesterday) and cut the raisins/dates/nuts. Here are the ingredients I don't know if I can have at this stage: almond flour, cinnamon, baking soda, shredded coconut (now I know to use coconut flour and coconut oil thanks to your response above), honey, vanilla. As you can see, I am unsure regarding just about everything in them! I am not much of a cook but I know muffins need a basic backbone...am I to assume that all those backbone ingredients are OK for someone on the healing diet suggested on the forum? One of many things I've learned from you kind and generous people is that I should not assume anything when it comes to ingredients (rosemary and celery extract come to mind). So my ability to evaluate this forum recipe or to Google "savory Paleo muffins" and evaluate any given recipe for suitability is, to use a word that Erica used and that I love for it's rich conveyance, pathetic.

When you mention protein powder I don't know if I can use that now. Or canned pumpkin, as you also mention. This is why so many suggestions lead to more questions from me.

Again, I apologize for all the questions. I must be getting on your nerves and I am loathe to do that...I am so sorry! But I get confused so many times. People post what works for them and suggestions for me and that is awesome. But since I am still in the healing diet phase...what I am referring to as phase 1 based on http://www.perskyfarms.com/phpBB2/viewtopic.php?t=732 ...I read all these food suggestions and am not sure if people are responding to me with suggestions of what to eat now or what might work for me after my colon heals. All my questions have been asking about what I can eat now and I have tried to make that clear. But maybe I am failing at that. Or maybe I am just completely confused.

I realize people are trying to help me because I am bereft without a breakfast protein and a snack protein. That's what you were doing when you so kindly wrote this "the other option given your circumstances is doing a coconut flour type paleo muffin/slice with minimal ingredients". And I am so grateful for that. But I really want to stay on the suggested healing diet (or as close to it as I can) because I want to heal my colon so that I can get to the point of trying to figure out what I can and cannot eat.

Maybe I just need to stop posting for a while. The last thing I want to be is an aggravation to you lovely people. :smile:
Joanne and the Recycled Aussies
LC May 2016
User avatar
jlbattin
Rockhopper Penguin
Rockhopper Penguin
Posts: 760
Joined: Tue Jun 30, 2015 9:02 am
Location: Colorado

Post by jlbattin »

Jumpindogs wrote:
jlbattin wrote:I was one that Budesonide didn't mask symptoms for......so, I could try things and know if I would react or not.........some people, however, eat what they want and take Budesonide to feel better (or so my GI doctor tells me) and don't get the symptoms...........

You'll have to judge for yourself when you get on the Budesonide. You'll know if it masks symptoms or not..........
Sorry if I wasn't clear. I was on 9 mg Uceris every other day for 24 days and my symptoms nearly resolved almost immediately. Then off and back they came. Then on that shorted 6 mg dose of Entocort a week ago with no symptom resolution. Now switching to 9 mg Entocort tomorrow morning. The Uceris did mask my symptoms...with a little help from Loperamide every 12 hours to scare away the remaining urgency. I am guessing the 9 mg Entocort will as well.

I am a little confused though. If the budesonide did not mask your symptoms then how did you know if you were reacting to a food or just reacting because you were still symptomatic? Thanks for your patience with me and sorry if my questions are dumb. :???: :oops: :smile:
I knew if I was reacting because I was no longer symptomatic. The Budesonide within about 3 days had stopped my diarrhea and I was only eating chicken, rice and 1 banana several times a day. So, when I tried something new (after about a couple of months of that very restricted diet) and it caused stomach ache, cramping, or diarrhea, I knew it was the food. The Budesonide didn't mask my symptoms completely like it does a lot of folks.
Jari


Diagnosed with Collagenous Colitis, June 29th, 2015
Gluten free, Dairy free, and Soy free since July 3rd, 2015
User avatar
jlbattin
Rockhopper Penguin
Rockhopper Penguin
Posts: 760
Joined: Tue Jun 30, 2015 9:02 am
Location: Colorado

Post by jlbattin »

Jumpindogs wrote:
Gabes-Apg wrote:This is where google becomes your friend..
I put the words - savoury paleo muffins into google search and got over 300,000 results!

and you get to be a bit of a scientist tweak the recipes a bit to to suit what you are eating now

recipes that have dried fruits, dont include the fruits, put some extra coconut oil in to keep the muffin moist
recipes that have blend of flours, just use total quantity of coconut flour
if it says 'shredded coconut' I replace with smaller amount of coconut flour and some extra coconut oil (keeps it low fibre)
do not use nuts

so long as the mix is doughy moist it will cook ok!

as i had a quick browse there were quite a few that used protein powder with things like pumpkin or sweet potato.

you dont have to make them as muffins, you could bake the mix in a slice tin /cake tin and cut it into squares
OK. Thanks. But I am unable to evaluate those recipes the way you are able to, Gabes. Because you are an MC food expert and I am comparatively clueless. So Google is not my friend just yet.

For example, here is the recipe I think you were referencing on the forum.

2 1/2 c almond flour
1 T cinnamon
2 tsp baking soda
1/2 tsp salt
2 C grated carrots ( or substitute: grated zucchini, canned pumpkin, bananas, etc)
1 large apple, cored and grated
1 C shredded coconut
1 C raisin (or dates) I substituted chopped nuts
3 lg eggs
2 T honey (optional)
1/2 C coconut oil or avocado oil
1 tsp vanilla.


Maybe I just need to stop posting for a while. The last thing I want to be is an aggravation to you lovely people. :smile:
I make these muffins all the time and made them pretty early on. I use the above recipe, but I've tweaked it a little.

1 cup almond flour
1 cup coconut flour
1 T cinnamon
2 tsp baking soda
1/2 tsp salt
2 cups grated zucchini or 2 cups bananas
1 cup coconut (natural kind)
3 large eggs (I can't eat eggs so I use the Energee Replacement)
1/2 cup coconut oil
1 tsp vanilla

I don't add the dates or apples, and I don't add any additional honey or sweetener. It was sweet enough for me. The almond and coconut flour both will add some protein to the recipe.

I make them and freeze them and pull them out when I need them or need to take something along with me for a snack.
Jari


Diagnosed with Collagenous Colitis, June 29th, 2015
Gluten free, Dairy free, and Soy free since July 3rd, 2015
User avatar
tex
Site Admin
Site Admin
Posts: 35070
Joined: Tue May 24, 2005 9:00 am
Location: Central Texas

Post by tex »

Joanne,

There are about a zillion alternate recipes for "Paleo Muffins" in the 9-page thread at the following link. Pick one that looks simple and the ingredients appeal to you.

Paleo Muffins ???

Also to answer your question in your last post — the following ingredients are safe for almost eveyone here:

almond flour, cinnamon, baking soda, shredded coconut, honey, vanilla

And a good rule of thumb:

When in doubt,
leave it out!

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
User avatar
Erica P-G
Rockhopper Penguin
Rockhopper Penguin
Posts: 1815
Joined: Sun Mar 08, 2015 2:06 pm
Location: WA State

Post by Erica P-G »

Another way to look at this recipe is:

1 cup almond flour or tapioca flour
1 cup coconut flour
1 T cinnamon
2 tsp baking soda
1/2 tsp salt
1/2 cup So-Delicious coconut yogurt (1/2 cup is one small container)
1/2 cup coconut oil
1 tsp vanilla
If this recipe was a bit dry you can add a bit of coconut milk or coconut oil to make it sticky enough for baking.

With just these ingredients you could take prepackaged honey along and that would make a good snack or a great bread with soup. This you don't have to keep cold either and can eat with your fingers.

Here is the Lara Bar link http://shop.larabar.com/LARABAR-Cashew- ... ar@LaraBar like everything else in gluten free land a bit spendy, but on the bright side I don't think you'd eat a lot of them on a daily basis, so one a day is not out of the question.
To Succeed you have to Believe in something with such a passion that it becomes a Reality - Anita Roddick
Dx LC April 2012 had symptoms since Aug 2007
Post Reply

Return to “Main Message Board”