Tirosint and MC

[DebE13]

I had my annual ultrasound for my thyroid cancer follow up. The mystery spot on the left side of my neck that gave me a scare last year has not changed so it could very well be scar tissue or calcification. My thyroglobulin levels are undetectable and have remained the same as last year so I've been given the ok until next year. That's a relief.

My previous endo that I've struggled with for three years moved and my visit was with one of his colleagues. I explained my MC situation and concern with malabsorption and sensitivites to fillers and asked to try Tirosint. He explained that it is very expensive and many of the patients who go on it ask to switch back because of the cost. He also said he liked where all my numbers were at and didn't think I'd notice a difference from what I'm taking now (levothyroxine by Mylan). I thought, here we go again but it was followed up with it is my choice. Then he sat and waited for me to respond. I said I'd like to try and could always switch back if I don't like it. That was that. He didn't take it personally or get an attitude. Wow! He said the only issue we may encounter if I truly have absorption issues is that I absorb it better and may need a lower dose. He scheduled labs in six weeks and sent the rx to my pharmacy.

Does anyone have an experience with Tirosint? I am hoping I notice a difference. I continue to have neck and shoulder pain that is quite annoying. I am convinced it is thyroid related. I've also read that drinking coffee with it is not an issue. That's a plus........ Trying to fit in meds, eating, and work gets to be a very rigid timeline for when I can and cannot eat.