Afraid to take anything for pain.

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renee2
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Afraid to take anything for pain.

Post by renee2 »

I've been in remission for just a short time now. It feels great to be able to eat somewhat normally, but now I'm having what I'm assuming is sciatic nerve pain. Ibuprofen helps, and sleeping without taking it is a challenge, but I'm afraid to get LC symptoms back. I know I have problems with inflammation and the sciatic pain is from that.

Does anyone know of a safe alternative for inflammatory type pain? Do steroid shots affect LC? Is there any difference between gel caps and tablets when it comes to Ibuprofen. I want to make an appointment with my family doctor for this because my son is getting married in three weeks and I want to dance at his wedding but don't want to risk a return of LC symptoms. I'd rather have back pain than that which is frustrating me. To poop or not move doesn't seem like a fair situation to me. Ha.

I also get that there are supplements that could help with inflammation but I don't want to risk taking those just yet either.
hollyweb
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Post by hollyweb »

Hi Renee,

I feel your pain!! More knowledgeable people will surely be responding, so hang in there! It's been my understanding that Tylenol is the safest pain medication for those of us with MC. Not sure about the injections; during the beginning of my severe back injury (before MC), I did have one epidural injection. For some, those have been wonderful; for me, it didn't help at all, plus there's always going to be some scar tissue from any procedure like that. Although it's my lower back that's injured, my pain is also sciatic (right hip, initially down entire right leg). What actually helped me most is physical therapy. Fortunately, there was one my doctor recommended who did deep tissue work, as there wasn't much else I could do at that point.

Getting a pillow to put under your lower legs and learning the correct way to position your body when you sleep also helps; PT has a lot of great info. As Tex posted somewhere else, I'm so glad you are in remission and I do hope it lasts forever!! And you WILL dance at your son's wedding!! You are right to look into these things now.

All the best,

~ Holly
2015 Hashimoto's, MTHFR
2016 LMC, Malabsorption
2017 Lymphocytic Dermatologic Vasculitis

"I strive to live in my heart, not in my head!"
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tex
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Post by tex »

Renee,

All oral NSAIDs are likely to cause problems. Some members here have claimed some benefits from topically-applied NSAIDs.

But remember that magnesium deficiency is often implicated in both muscle and neurological pain. It too can be applied both orally and topically. The active forms of some of the B vitamins can also help in some cases. For example, the active form of B-12 is methylcobalamine (cyanocobalamione is the common inactive form). If I remember correctly, Lilja relieved sciatic pain by taking an approximation of this:

The active forms of vitamins B-12, B-9, and B-6.

Methylcobalamin 2mg

L-methylfolate Calcium (as Metafolin®) 3mg

Pyridoxal 5-phosphate 35mg

I take that formulation every day as a prescription vitamin known as Metanx. It treats peripheral neuropathy, cognizance and memory probelms, endothelial dysfunction, etc.

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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