MC and 3 children

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Patricia
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Post by Patricia »

Thanks, Gabes! Good to know!!

I will ask next time I see my PCP.

Love, Patricia
crervin
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Post by crervin »

Thanks patricia,

I haven't tried injections. My last b12 vitamin test showed I was in the mid range. I would imagine the injections would really make my head spin.
Martha E.

Philippians 4:13

Jul 2008 took Clindamycin for a Sinus infection that forever changed my life
Dec 2014 MC Dx
Jul 15, 2015 Elimination Diet
Aug 17, 2015 Enterolab Test
Dec 2015 Reflux
Sept 2016 IC
crervin
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Post by crervin »

Good news (i think, anyway)

I had a reaction to the cipro (not good, heart fluttering) after day 3, so went back to Dr. and found my latest urine test showed no e-coli, only strep b 5,000 cfu/ml. Evidently my fever was something viral and not related to UTI. Stopped cipro.

Just wondering if the dr would have ever called me to tell me that info before I took 14 days of cipro for no reason. :shock: I'm trying to be positive and think yes....

The dr wants me to continue D-mannose and 3 months probiotic for the strep b.

Hoping to recover this weekend and get this cipro out of my system.
Martha E.

Philippians 4:13

Jul 2008 took Clindamycin for a Sinus infection that forever changed my life
Dec 2014 MC Dx
Jul 15, 2015 Elimination Diet
Aug 17, 2015 Enterolab Test
Dec 2015 Reflux
Sept 2016 IC
crervin
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Post by crervin »

Well despite the fact that school has started and there's been a lot of stress with my 3 children adjusting, my gut is doing surprisingly well. I can identify what causes me problems and it's typically supplements or OTC meds. I don't even have to sprint to the bathroom at 5:45 am when I now have to get my oldest up for school (that's insane, he's in middle school). I did a double take this morning as my BM looked like a normal persons....yay!

Now my problem is trying to get enough vitamins from foods because I still can't tolerate additional supplements. Sadly I believe I've acquired another UTI (i've never, ever had problems in the past), despite my d-mannose usage. Now I believe I'm lacking something that's causing these. Probiotics kill me. I'm going back to the Dr tomorrow, making my husband go for moral support. This is super depressing. For one that can't tolerate antibiotics this is a nightmare. I have got to figure these out. I've stopped swimming, taking baths, and now I fear it's from my husband 😢😢😢.

Wish me luck! I've not been diagnosed yet, so maybe not. One can only hope!
Martha E.

Philippians 4:13

Jul 2008 took Clindamycin for a Sinus infection that forever changed my life
Dec 2014 MC Dx
Jul 15, 2015 Elimination Diet
Aug 17, 2015 Enterolab Test
Dec 2015 Reflux
Sept 2016 IC
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Vanessa
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Post by Vanessa »

Martha,

Thinking of you, that's a tough position to be in! I wonder if you and your hubby took some sovereign silver as a natural antibiotic that won't mess up gut. I've had luck with this when needed. You can get it on Amazon. Won't mess up gut bacteria...you both could take a good dose (1 tablespoon 5-7 times a day for a week). The Sovereign brand is the one you want. Keep us posted.
Vanessa
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Gabes-Apg
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Post by Gabes-Apg »

get enough vitamins from foods because I still can't tolerate additional supplements.
if you still have increased inflammation levels in your gut, absorption will be compromised.
in this situation I would encourage you to consider lingual versions / liquid powder versions of key nutrients to optimise absorption
yes it does cost more, but you are getting way more benefit

lingual Vit D is fantastic
lingual forms of active B12

using powders or adding drops to a drink so you can spread the dose through the day works really well

keep in mind, that if you are deficient in Vit D, your body wont absorb nutrients via the gut as well. the priority is to get Vit D3 levels up and reduce inflammation (that depletes Vit D3) and we need good magnesium levels to use the Vit D properly.
Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
crervin
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Post by crervin »

Thank you vanessa, I've never heard of that. Going to check into it!

Thanks gabes, my d level is 46 ng/ml.

I really appreciate all of you!!! I feel different day, different problem!!
Martha E.

Philippians 4:13

Jul 2008 took Clindamycin for a Sinus infection that forever changed my life
Dec 2014 MC Dx
Jul 15, 2015 Elimination Diet
Aug 17, 2015 Enterolab Test
Dec 2015 Reflux
Sept 2016 IC
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Gabes-Apg
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Post by Gabes-Apg »

Martha
the other thing I heard in a podcast the other day - we cant always minimise stress or avoid stress. It will always be there

what we can do - is change the way we embrace and react to stress.
I wouldnt overthink the food, supplements etc at this stage, your gut is improving and healing. Maybe a bit of time on the mental and emotional aspects of 'life' and how you can minimise the impact stress has.
Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
crervin
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Post by crervin »

I definitely over think every situation. I believe it's hereditary plus staying at home for 12 years with children after leaving my engineering career.😢

I start thinking what ifs.....instead of dealing with it one day at a time.

Your podcast is so right, I just need to learn to function with problems😊. It seems by now, I could deal with them. My husband thinks I need to go back to work.....

Thank you guys for listening to my woes today!!
Martha E.

Philippians 4:13

Jul 2008 took Clindamycin for a Sinus infection that forever changed my life
Dec 2014 MC Dx
Jul 15, 2015 Elimination Diet
Aug 17, 2015 Enterolab Test
Dec 2015 Reflux
Sept 2016 IC
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tex
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Post by tex »

Martha wrote:I definitely over think every situation.
That's not just a problem due to heredity and raising a family — it's also a primary symptom of being a good engineer. :grin:

Your husband might be right, but is he willing to take over raising the kids? :lol:

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
crervin
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Post by crervin »

Thank you Tex, that made me smile!!
Martha E.

Philippians 4:13

Jul 2008 took Clindamycin for a Sinus infection that forever changed my life
Dec 2014 MC Dx
Jul 15, 2015 Elimination Diet
Aug 17, 2015 Enterolab Test
Dec 2015 Reflux
Sept 2016 IC
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jessica329
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Post by jessica329 »

Martha-
I work from home on the computer doing work for social media giants. It's certainly not the highest paid job, but it's not minimum wage either. Right now I work 1 hour a day, 5-7 days a week (5 are required, up to 7 are optional). I am also in the process of securing another project that will allow me to work up to an additional 20 hours a week with no work minimums. Anyways, to get to my point, it's no different than your typical job (I get biweekly evals, log my time in ADP, get a paycheck), but I can work while on the toilet (literally) and it does a lot for me mentally (I feel happy that I can contribute financially to our marriage and family). If you ever seriously wanted to "go back to work", but feel like you can't due to MC, consider online work from home.
Jessica
Lymphocytic colitis August 2012
crervin
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Post by crervin »

Thank you Jessica!!! I'll look into that!

Hey guys, been researching before my dreaded dr apt and found on the mayo clinic website that vit d increases risk of UTIs. Sorry I can't figure out how to insert the website on here.

Any thoughts on this Tex or Gabes??

Oh I so hope this isn't true....I'm taking 8,000 units to keep a level of 46 ng/ml. Could it be I'm vitamin k deficient?

There is blog after blog about people associating the two....I can't see how this can happen, it should help prevent them :roll:
Martha E.

Philippians 4:13

Jul 2008 took Clindamycin for a Sinus infection that forever changed my life
Dec 2014 MC Dx
Jul 15, 2015 Elimination Diet
Aug 17, 2015 Enterolab Test
Dec 2015 Reflux
Sept 2016 IC
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tex
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Post by tex »

Martha,

I took this from the Mayo Clinic site:
Vitamin D may cause allergic skin reactions (inflammation, irritation, rash, and thinning), build-up of calcium in the arteries, changes in cholesterol levels, daytime sleepiness, excessive vitamin D levels, hardening of the arteries, headaches, increased calcium excretion or levels, increased risk of falls and fractures, increased risk of heart attack and stroke, increased risk of high blood pressure during pregnancy, increased risk of urinary tract infection, kidney or urinary stones, muscle pain, respiratory tract infection, and stomach problems (constipation, cramps, diarrhea, upset stomach, and vomiting).

Vitamin D may affect blood sugar levels. Caution is advised in people with diabetes or low blood sugar, and in those taking drugs, herbs, or supplements that affect blood sugar. Blood sugar levels may need to be monitored by a qualified healthcare professional, including a pharmacist, and medication adjustments may be necessary.

Vitamin D may affect blood pressure. Caution is advised in people with blood pressure disorders or those taking drugs or herbs and supplements that affect blood pressure.

Use cautiously in people with headaches, heart disease, immune disorders (including lymph cancer and tuberculosis), kidney disease, liver disease, lung disorders, musculoskeletal disorders, skin disorders, stomach disorders, and thyroid disorders.
http://www.mayoclinic.org/drugs-supplem ... b-20060400

Those claims appear on the surface to be a major indictment of vitamin D for all sorts of major health issues. But I have debunked virtually every one of them in various posts over the past year or so. if you look at them carefully, one by one, you will see that every one of them is associated with a magnesium deficiency. Yes, if a patient is magnesium deficient, then increased vitamin D supplementation can cause all of those symptoms because it will promote the absorption of additional calcium without a way to safely remove (and utilize) the calcium in the bloodstream. Magnesium is essential in the regulation of calcium. And taking vitamin D without taking magnesium can lead to the same problem, because more magnesium is used for calcium regulation when additional vitamin D is taken.

Naturally the Mayo Clinc (like all other mainstream medical institutions) is blind to the problems associated with magnesium deficiency. So in their ignorance, they blame something else to cover up their lack of knowledge. Is it any wonder why they don't understand how to treat MC?

Yes, recurrent UTIs are a symptom of magnesium deficiency. The only kidney stones I ever had in my life was when I was magnesium deficient. The only time in my life when my kidney function headed south (low EGFR) was when I was magnesium deficient. The only time in my life that I had a problem with frequent, urgent urination (having to get up several times during the night) was when I had a magnesium deficiency. Now, I never have to get up during the night.

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
crervin
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Post by crervin »

Thank you tex for clearing that up.....that was my first thought, but dang I'm using almost 700 mg of oil daily. Every time I try a different form I get the symptoms of what I trying to stay away from.
Martha E.

Philippians 4:13

Jul 2008 took Clindamycin for a Sinus infection that forever changed my life
Dec 2014 MC Dx
Jul 15, 2015 Elimination Diet
Aug 17, 2015 Enterolab Test
Dec 2015 Reflux
Sept 2016 IC
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