Can Lymphocytic colitis go away
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Can Lymphocytic colitis go away
I just had a colonoscopy - said lymphocytic colitis is no longer present. I am still having symptoms. Not diarrhea - but urgency and needing to go and can't always go and tons of gas. Still on a limited eating plan. Last disaster was caused by straying off my eating plan. I also have SIBO. Could I now just have SIBO and LC is gone? I am seeing a Functional medical practitioner and on supplements to eradicate the SIBO. I am better. Better than I was - much better but still have these "episodes". Help!!!!!
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Gabes-Apg
- Emperor Penguin
- Posts: 8332
- Joined: Mon Dec 21, 2009 3:12 pm
- Location: Hunter Valley NSW Australia
Hi Sheryl
Yes - LC can go into 'remission' where the lymphocytic levels do not qualify as active LC
albeit, with a combo of excessive inflammation triggers the LC can return
this can be via one, some or a combo of the folloiwng
eating the wrong food items,
having certain medications,
illness, bacteria, virus
excess stress (mental,emotional physical )
in saying that if you are are still having digestion symptoms and have SIBO then there are indicators of inflammation and maybe leaky gut.
the best way to optimise wellness and minimise symptoms is to avoid as many inflammation triggers as possible majority of the time.
ie stay on a safe eating plan, keep Vit D3 and magnesium levels at a good range, and avoid other triggers, (stress, enviro etc)
Yes - LC can go into 'remission' where the lymphocytic levels do not qualify as active LC
albeit, with a combo of excessive inflammation triggers the LC can return
this can be via one, some or a combo of the folloiwng
eating the wrong food items,
having certain medications,
illness, bacteria, virus
excess stress (mental,emotional physical )
in saying that if you are are still having digestion symptoms and have SIBO then there are indicators of inflammation and maybe leaky gut.
the best way to optimise wellness and minimise symptoms is to avoid as many inflammation triggers as possible majority of the time.
ie stay on a safe eating plan, keep Vit D3 and magnesium levels at a good range, and avoid other triggers, (stress, enviro etc)
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
Thank u so much for your swift reply. Doc says it's all gone and that's it. But I know my digestion still isn't good. 2 1/2 days off work last week proves it but the regular medical system doesn't have a clue. So I ran to u guys - the experts in this. Thanks for all your work u do here and for helping us navigate thru this horrid disease.
Sheryl,
Did your doc take at least half a dozen biopsy samples during the colonoscopy exam? (More is better). If not, then he probably missed it. What did your pathology report actually say? Did it report normal numbers of lymphocytes or was the count elevated even though it may not have been high enough for an official diagnosis of LC. Below 10 lymphocytes per high-power field is normal. Above 20 lymphocytes per high-power field is diagnostic of LC. In between is undefined (meaning that you still almost surely have active LC but they don't have a way to diagnose it.)
Remember that SIBO is a symptom of LC, not the other way around. When your LC symptoms are completely resolved, the SIBO will fade away because gut bacteria populations depend on diet and digestion effectiveness.
Tex
Did your doc take at least half a dozen biopsy samples during the colonoscopy exam? (More is better). If not, then he probably missed it. What did your pathology report actually say? Did it report normal numbers of lymphocytes or was the count elevated even though it may not have been high enough for an official diagnosis of LC. Below 10 lymphocytes per high-power field is normal. Above 20 lymphocytes per high-power field is diagnostic of LC. In between is undefined (meaning that you still almost surely have active LC but they don't have a way to diagnose it.)
Remember that SIBO is a symptom of LC, not the other way around. When your LC symptoms are completely resolved, the SIBO will fade away because gut bacteria populations depend on diet and digestion effectiveness.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
. - I don't know what the report said. I thought after I left the doc I should have asked for a copy of the report. So I will do that. And thank u for telling me what to look for. U have been a great help.tex wrote:Sheryl,
Did your doc take at least half a dozen biopsy samples during the colonoscopy exam? (More is better). If not, then he probably missed it. What did your pathology report actually say? Did it report normal numbers of lymphocytes or was the count elevated even though it may not have been high enough for an official diagnosis of LC. Below 10 lymphocytes per high-power field is normal. Above 20 lymphocytes per high-power field is diagnostic of LC. In between is undefined (meaning that you still almost surely have active LC but they don't have a way to diagnose it.)
Remember that SIBO is a symptom of LC, not the other way around. When your LC symptoms are completely resolved, the SIBO will fade away because gut bacteria populations depend on diet and digestion effectiveness.
Tex
Hi Sheryl, I had Lymphocytic Colitis back in 2011. After taking Entocort (I think it was for 6 months) my symptoms went away. About a year or so ago I began having similar symptoms. Last Oct I was diagnosed with Mastocytic Colitis. I was put on a high dose of Zantac and my symptoms seemed to go away. This past April I started Weight Watchers and my symptoms returned. I was no longer responding to the Zantac. I reluctantly had another scope for more biopsies. They showed I still had Mastocytic Colitis but it was negative for Lymphacytic. I wonder in your case if they checked for Mastocytic?
I'm still battling my symptoms. It's frustrating that there's so little known about it and there's no known cause or cure. Just have to manage the symptoms I guess.
I'm still battling my symptoms. It's frustrating that there's so little known about it and there's no known cause or cure. Just have to manage the symptoms I guess.
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Gabes-Apg
- Emperor Penguin
- Posts: 8332
- Joined: Mon Dec 21, 2009 3:12 pm
- Location: Hunter Valley NSW Australia
Lulybug
welcome to our group...
with something like Mastocytic colitis, the methylation cycle is involved (have you heard of methylation cycle? if not here are some resources http://www.perskyfarms.com/phpBB2/viewforum.php?f=78 ) along with the magnesium and Vit D3, things like B6 and B12 are important, namely in their 'active forms'.
hope this helps
welcome to our group...
in line with this, the right eating plan, lifestyle changes and correcting key nutritional deficiencies will go along way to not just managing the symptoms but helping the body to heal and attain a stable remissionJust have to manage the symptoms I guess.
with something like Mastocytic colitis, the methylation cycle is involved (have you heard of methylation cycle? if not here are some resources http://www.perskyfarms.com/phpBB2/viewforum.php?f=78 ) along with the magnesium and Vit D3, things like B6 and B12 are important, namely in their 'active forms'.
hope this helps
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama