My latest visit to UAB birmingham kirklamd clinic
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
-
armstrongpilot
- Adélie Penguin
- Posts: 121
- Joined: Wed Sep 02, 2015 4:31 pm
My latest visit to UAB birmingham kirklamd clinic
Hello all! I went to my gi doctor and the long story short is that he says my lc is in remission. Despite the fact that one bite of bad food ruins my whole next day. He said that is not mc. He is convimced i have a food sensitivty enteropathy that is seperate from mc. Not sure what that entails. He wants me to quit entocort and try taking xifactin followed by vsl 3. He thinks i haave bad bacteria causing all this mess. He also wants me to start closyremine pouder....what do u guys rhink of this course of treatment? I think he is fed up and doesnt know what to do. He wants me to start seeing a nutritionist due to mosy foods not working.
-
armstrongpilot
- Adélie Penguin
- Posts: 121
- Joined: Wed Sep 02, 2015 4:31 pm
-
Gabes-Apg
- Emperor Penguin
- Posts: 8332
- Joined: Mon Dec 21, 2009 3:12 pm
- Location: Hunter Valley NSW Australia
Cholestraymine is one of the recommended treatment protocols for MC -it also used by people with Lyme / excess gut bacteria /biotoxin issues to help clear parasites/mould spores/bacteria etc so in the scheme of bad bacteria causing you issues it is a reasonable suggestion.
Many people here are using Cholestraymine, and there are multiple discussions about it
Here is the most recent one http://www.perskyfarms.com/phpBB2/viewtopic.php?t=22117
Many people here are using Cholestraymine, and there are multiple discussions about it
Here is the most recent one http://www.perskyfarms.com/phpBB2/viewtopic.php?t=22117
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
-
Gabes-Apg
- Emperor Penguin
- Posts: 8332
- Joined: Mon Dec 21, 2009 3:12 pm
- Location: Hunter Valley NSW Australia
Further recent discussions
http://www.perskyfarms.com/phpBB2/viewt ... light=bile
http://www.perskyfarms.com/phpBB2/viewt ... light=bile
http://www.perskyfarms.com/phpBB2/viewt ... light=bile
http://www.perskyfarms.com/phpBB2/viewt ... light=bile
http://www.perskyfarms.com/phpBB2/viewt ... light=bile
http://www.perskyfarms.com/phpBB2/viewt ... light=bile
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
IMO your doctor is lost because he doesn't realize that food sensitivities are not only associated with LC, but they are the primary cause of the perpetuated symptoms.
He is also confused about remission markers and what they mean, regarding IBD symptoms. There will be an article in the next issue of the Microscopic Colitis Foundation Newsletter that explains why so many IBD patients are not in clinical remission from symptoms, despite no longer having histological markers of active disease (their doctor informs them that they are in remission, and yet their symptoms are just about as bad as ever). Unfortunately I can't add the details of that information here because it's kind of complicated and my main computer is down, so I can't access the data, references, etc., for a few days or so.
If you look for that information in the newsletter after it's published, you'll find it in an article about the medical use of marijuana to treat IBD.
Tex
He is also confused about remission markers and what they mean, regarding IBD symptoms. There will be an article in the next issue of the Microscopic Colitis Foundation Newsletter that explains why so many IBD patients are not in clinical remission from symptoms, despite no longer having histological markers of active disease (their doctor informs them that they are in remission, and yet their symptoms are just about as bad as ever). Unfortunately I can't add the details of that information here because it's kind of complicated and my main computer is down, so I can't access the data, references, etc., for a few days or so.
If you look for that information in the newsletter after it's published, you'll find it in an article about the medical use of marijuana to treat IBD.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
-
armstrongpilot
- Adélie Penguin
- Posts: 121
- Joined: Wed Sep 02, 2015 4:31 pm
Xifaxan for 2 weeks usually doesn't cause any problems for most MC patients, but to date I don't recall anyone posting that they saw any benefits from it that lasted longer than a couple of weeks. It's advertised to only target certain pathogenic bacteria while saving the so-called "good" bacteria. So there really shouldn't be any need for a probiotic following xifaxan.
Of course all gut bacteria are parasites, but for some strange reason many/most people view any gut bacteria that don't try to kill us as "good" bacteria.
While it's true that MC causes disruptions in the gut bacteria population profiles, attempting to alter that profile with antibiotics never helps (at least not for very long). The reason why they don't help is because but bacteria imbalances do not cause MC — MC causes gut bacteria imbalances. Antibiotics will temporarily distort the gut bacteria populations, but after the treatment is ended the same basic gut bacteria population balance will automatically reestablish itself, with or without probiotics.
Most of us don't have much luck with probiotics, but you might be a rare exception if you happen to be one of the lucky few.
All these comments are just my opinion, and remember that I'm not a doctor.
Tex
Of course all gut bacteria are parasites, but for some strange reason many/most people view any gut bacteria that don't try to kill us as "good" bacteria.
While it's true that MC causes disruptions in the gut bacteria population profiles, attempting to alter that profile with antibiotics never helps (at least not for very long). The reason why they don't help is because but bacteria imbalances do not cause MC — MC causes gut bacteria imbalances. Antibiotics will temporarily distort the gut bacteria populations, but after the treatment is ended the same basic gut bacteria population balance will automatically reestablish itself, with or without probiotics. Most of us don't have much luck with probiotics, but you might be a rare exception if you happen to be one of the lucky few.
All these comments are just my opinion, and remember that I'm not a doctor.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.