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Hi, I am so glad to find you!! I'm starting on Entocort tomorrow after a month's flare of Collagenos Colitis which has become unbearable!!! I've been on Asacol after being dx couple years back. That and some Immodium did the trick for some time. I recently made plans to get a THR, And got my flare. I think a short trial of another NSAID did it. Been on Feldene many years. I just didn't know how good I had it till now. I can still have my THR if I d not have to take Entocort long term. Got fingers and toes crossed 6 weeks puts me in good shape. Thx for listening!! I'm so overwhelmed!!@'jjjúju
Welcome to our Internet family. Yes, NSAIDs are definitely contraindicated for CC in most cases. Stress can cause a flare, also.
The problem with budesonide (Entocort) is that it tends to cause a rebound effect of mast cell activity (usually followed by a relapse within about 2–6 weeks) when the treatment is discontinued, unless a much longer dose tapering program is followed when weaning off the drug. IOW, most members here continue to taper the dose far more slowly and far beyond what most doctors recommend in order to avoid a relapse of symptoms after the treatment is ended.
If THR is meant to represent "total hip replacement", you sure don't want to have a relapse during the recovery period. As far as I'm aware, this is not mentioned on the label, because these are uncharted waters (with no research data to back up this observation), but if Uceris performs as the manufacturer claims (absolutely no systemic activity) you should be able to take it (if needed) while recovering from the surgery without any risk of it interfering with healing. But I would be surprised if you could find a doctor who would recognize that option. Most doctors tend to think that all corticosteroids pretty much perform the same way, and they would likely assume that even Uceris would interfere with healing.
Uceris is a form of budesonide, but it is unique as corticosteroids go, and while it would surely interfere with healing of colon surgery, it should have minimal to no effect on hip surgery.
Again, welcome aboard, and please feel free to ask anything.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
I have recently read about the latter drug. I think I will be on entocort about up to my surgery. So hopefully we'll go from there. Only thing is, I have read the latter drug did not affect all parts of the colon needed for MC remission. Ugh!!! One day at a time, right??
Lela
Yes, Uceris is designed specifically to treat UC, which starts at the distal end of the colon, so Uceris does not become fully activated until it has made substantial progress into the colon. MC typically is more concentrated in scattered patches in the proximal colon (the right side colon or ascending colon) and the terminal ileum. However, despite this apparent issue, for some reason or other, most members here who have tried Uceris have reported good results. So I definitely wouldn't rule it out as an option (if needed).
Keep us posted.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Just wanted to also welcome you to the board! This is an amazing group of people, who give so freely of their knowledge, experience, and support! Wishing you all the best!
