MC and 3 children

jessica329 · Post by **jessica329** » Tue Aug 23, 2016 9:46 am

I work for Appen
http://appen.com/company/opportunities/

crervin · Post by **crervin** » Tue Aug 23, 2016 2:10 pm

Thank you so much Jessica for that info!

Just got back from dr, he thinks I have interstitial cystitis. I asked him to send off the urine sample just to be sure. He's referring me to a urologist. I think the previous UTI/antibiotic caused the flare. I have felt like I've had IC most my life, but didn't know the name. It was a lot better when I started the vit d/mag dosage.

My concern is my "spurts" of nausea that overcome me 3-5 hours after I eat (anything, including safe foods) with no accompanying D. It started Saturday. That's why I thought I had a UTI, along with frequent urination, even through the night. I just start sweating and feel I'm going to throw up out of blue. I noticed the pollen count went from low to med/high for ragweed. Maybe that's my new response to the fall

Just when I think I've figured this out....

Thanks again for listening, I don't know what I'd do without you guys!

Post by **tex** » Tue Aug 23, 2016 3:03 pm

Martha,

For many of us, MC can cause symptoms that can mimic interstitial cystitis. Here's a link to a past discussion, and a search of the archives will turn up more.

http://www.perskyfarms.com/phpBB2/viewtopic.php?t=21198

I realize this sounds like a broken record, but magnesium deficiency can cause gastroparesis (in fact, despite the lack of medical research I'm pretty sure that it's the main cause of gastroparesis). There probably will never be any medical research on this because magnesium does not interest physicians in general. It was a common problem for me, back when I was still reacting. But of course I had no idea why it was happening, back then. Here's a quote from pages 28–29 of the pancreatic cancer book to describe my reasoning:

Gastroparesis (slow stomach emptying) is a common problem with diabetes.
It's a serious problem for almost a third of diabetes patients because it can cause nausea, acid reflux, and other problems, and doctors seem flummoxed by this issue. But this is not rocket science. Muscles cannot perform properly without adequate magnesium. They cannot relax, and they tend to spasm and develop tremors.

The pyloric sphincter is located between the stomach and the first segment of the small intestine (known as the duodenum). The pyloric sphincter is regulated by the enteric nervous system to allow chyme (partially digested food) to flow from the stomach into the small intestine as the stomach completes it's part of the digestive process. The adverse effects of magnesium deficiency on the central nervous system are well known and there's no obvious reason not to attribute the same association to the enteric nervous system (Langley, & Mann, 1991).28 The enteric nervous system, sometimes called the second brain, controls the digestive system and correlates information between the digestive system and the brain.

This particular observation does not seem to have been explored by medical researchers, so there is no published medical proof of this theory, but it seems apparent that a magnesium deficiency would be very likely to interfere with the proper functioning of the pyloric sphincter. And compromised functioning could prevent it from allowing the stomach to empty properly as chyme is ready to be passed into the small intestine. Chyme that remains in the stomach too long tends to ferment in the warm, moist environment, producing gas and pressure that can cause nausea.

This can also cause acid reflux and gastroesophageal reflux disease (GERD) because if the pyloric sphincter cannot function properly because of a magnesium deficiency, then the lower esophageal sphincter between the esophagus and the stomach probably will not function well enough to prevent acid reflux, either. And we already know that diabetes is closely associated with magnesium deficiency. Therefore, to resolve a gastroparesis problem, most diabetes patients probably simply need magnesium, rather than the drugs that most doctors prescribe to treat the problem.

Here is reference 28 from that quote:

28. Langley, W. F., & Mann, D. (1991). Central nervous system magnesium deficiency. Archives of Internal Medicine, 151(3), 593-596. Retrieved from http://www.ncbi.nlm.nih.gov/pubmed/2001142

The time frame for your symptoms fits, because that would give the stomach contents plenty of time for fermentation to begin.

Tex

crervin · Post by **crervin** » Tue Aug 23, 2016 3:25 pm

Thank you so Tex for your research!

I felt like the oil I use throughout the day was working. A couple of months ago, I tried the drs best 100% absorbed just 100 mg for 2 days in a row. At the same time a couple of hours later, my legs got really weak. After I stopped taking it, the feeling didn't return. The same thing happened when I tried the remag after drinking 1/2 of the quart of water, using 1/8 tsp remag. I talked to the company and they said to use it topically at first to get use to its potency. I thought maybe my body was absorbing the oil and that was too much.

I guess I need to try again! This was 2 months ago...

Post by **tex** » Tue Aug 23, 2016 3:49 pm

There's a lot we don't know about magnesium (and many other elements that the body operates on, for that matter). It's possible that you may have a genetic mutation that affects your ability to absorb or utilize magnesium, or methylation issues might be involved.

I would think though, that an adequate amount of magnesium could be absorbed from your diet plus topical applications as long as you're not ingesting any excessive amounts of "magnesium-wasting" compounds (such as coffee, tea, alcohol, corticosteroids, calcium, etc.).

Still, I have to say that when I was severely magnesium deficient, l definitely had the symptoms of interstitial cystitis.

Tex

Post by **tex** » Tue Aug 23, 2016 3:53 pm

Have you done the RBC test for magnesium? It tests for magnesium content of red blood cells and it's the best magnesium test you're likely to be able to get from your doc. It's not great, but it's much better than the worthless serum magnesium test.

Tex

crervin · Post by **crervin** » Tue Aug 23, 2016 7:12 pm

Thank you Tex, I have been thinking about that. There is test in dr deans downloaded book going to see which that is and if I have a lab around here to do it. It doesn't require a dr.

Post by **tex** » Tue Aug 23, 2016 8:29 pm

From pages 10–11:

The most accurate magnesium blood test is a test known as the ionized magnesium test. But unfortunately this test is not available to most people because it is only available at a few select locations.

The most accurate magnesium test of all is known as an EXA test.
EXA stands for Energy Dispersive X-Ray Analysis. This test is based on tissue samples scraped from the mouth. But similar to the ionized magnesium test, finding a physician or a lab set up to do the EXA test can be difficult.

You're most welcome,
Tex

crervin · Post by **crervin** » Wed Aug 24, 2016 12:25 pm

Thank you Tex for all that you do! Sadly, the Exa test requires a dr to do. So he would have to research it. At the moment I can think of anyone except my nutrionist who isn't a physician. Going to keep that on the back burner until I can find one. Going to take the RBC mag test tomorrow morning. I have to go 24 hours without mag oil. I order online then show up at labcorp. Should I skip my morning coffee? I drink a tiny (single kerig cup) in the am? Any thoughts? I so hope this will give me some indication!

Post by **tex** » Wed Aug 24, 2016 2:28 pm

Yes, definitely don't take any magnesium supplements before the test or it could skew the results and show that your magnesium level is higher than it actually is. A single cup of coffee might reduce your serum magnesium level slightly, but it shouldn't have a significant effect on your RBC magnesium level. If your RBC magnesium level is so low that a cup of coffee affects it, then it's surely going to test low anyway.

Tex

crervin · Post by **crervin** » Fri Aug 26, 2016 11:03 am

Back on the roller coaster.....my dr just called and yes a UTI again with over 100,000 e-coli count. Thank goodness I insisted on him sending off the urine specimen. But now the one million dollar question, why am I having these now?

Trying Bactrim ds this time and praying I can take it! He wants me to come in and leave a urine sample next week to make sure it's gone. Smartest thing I've heard

.

I so appreciate everyone on here!

brandy · Post by **brandy** » Fri Aug 26, 2016 1:35 pm

Hi Martha,

If you are using bar soap switch to pump soap. Some sites recommend fragrance free soap or even no soap. Also, use a clean wash cloth each shower/bath.

I've read that bar soap and wash cloth can reinfect.

Showers are better than baths.

Gabes-Apg · Post by **Gabes-Apg** » Fri Aug 26, 2016 3:35 pm

Martha
not sure if it was your UTI post or someone elses post - in line with Brandy's post about minimising reinfection- using colloidal silver as a disinfectent works really well. (my mother that has to use a catheter for bladder emptying uses it)

the other thing I have done for my lichen sclerosis etc is that I buy bulk dish wipes and use them as washers/facecloths and dispose of them after every shower. Not ideal for the environment but sort of necessary for minimising health issues.
I have learnt via the biotoxin forums that the only way to remove bacteria etc from underwear /washcloths is boiling them. no other cleaner completely removes it. (yes they have allocated pots to do this) I dont have the time for that so using disposable cloths is what works best.

crervin · Post by **crervin** » Fri Aug 26, 2016 4:10 pm

Great tips and yikes about the underwear. I use fragrance free detergent on mine. Maybe I should buy only white and bleach in hot water until I get my flora under control. Do you wipe with colloidal silver, I'm not familiar with it?

Definitely need disposable wash cloths.

Any recommendations on how to improve flora?? Probiotics are evil. Do they work if you take them every other day?

I really believe the cure for my first UTI is causing the additional ones......why oh why did I swim in that pool with all those kids

Thank you guys!!

Gabes-Apg · Post by **Gabes-Apg** » Fri Aug 26, 2016 4:22 pm

Interestingly Martha, bleach doesnt always work.
white vinegar and boiling water is your best bet.

Yes use the colloidal silver as wiping solution after toilet visits, showers etc.

The flora will improve on its own if the body/cells have the right environment.
I did come across this article in my Facebook feed yesterday - maybe do some research on E-coli specific remedies.
this article does not mention bladder - but it may give you some leads on where to find information (ie sites, authors etc)
http://www.thehealthyhomeeconomist.com/ ... h-problem/

and do reading / research on E-Coli specific treatments
https://www.sweet-cures.com/understandi ... ctions.htm

my feeling is - your MC issues/ histamine issues are secondary or a symptom of other stuff going on.
ie your digestion stuff wont improve until the bladder issue resolves.