Thank you
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Thank you
Thank you all for the imput and great site. I am 2 weeks diagnosed LC. Also have UC and psoriasis. The uc is in remission but had a bad flare and diagnosed LC after colonoscopy. I started my vitamin D3 and magnesium this week. I have been on scd diet one year and cut out eggs and cut cheese and yogurt in half. I also started entocort because this has been a 3 month flare and dont have the energy to fight it anymore without roids. I know i can adjust my diet and keep thing in check. Problem is i dont see any maintence drugs I could take because O am allergic to mesalmine and you cant take steroids forever. Any idea?
Diagnosed ulcerative colitus 2010
Went thru all meds
Achieved remission with remicaid and scd diet
Had a flare then colonoscopy in 2016 and diagnosed with lymphocytic colitus
Went thru all meds
Achieved remission with remicaid and scd diet
Had a flare then colonoscopy in 2016 and diagnosed with lymphocytic colitus
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Gabes-Apg
- Emperor Penguin
- Posts: 8332
- Joined: Mon Dec 21, 2009 3:12 pm
- Location: Hunter Valley NSW Australia
hi there
welcome to our group
so far as maintenance drugs, for quite a few people here once the inflammation has reduced they are able to maintain life with minimal symptoms without the use of maintenance drugs per say, via sticking to an eating plan that minimises contact with trigger / high inflammation foods.
Further to this, once the body is no longer deficient in key nutrients (like the Vit D3, magnesium, B Group etc) reactions to triggers reduce drastically, so there is not need for maintenance drugs.
Spent some time reading the posts in the Success Stories area and this will give you an idea of what others have done to minimise symptoms and for many of those people not need medication support that often. some use OTC support for travelling etc.
hope this helps
welcome to our group
so far as maintenance drugs, for quite a few people here once the inflammation has reduced they are able to maintain life with minimal symptoms without the use of maintenance drugs per say, via sticking to an eating plan that minimises contact with trigger / high inflammation foods.
Further to this, once the body is no longer deficient in key nutrients (like the Vit D3, magnesium, B Group etc) reactions to triggers reduce drastically, so there is not need for maintenance drugs.
Spent some time reading the posts in the Success Stories area and this will give you an idea of what others have done to minimise symptoms and for many of those people not need medication support that often. some use OTC support for travelling etc.
hope this helps
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
Hi,
Welcome to our Internet family. I have no way of knowing how strict you are in avoiding gluten in your diet, but please be aware that most of us here are at least as sensitive to gluten as celiacs, and casein, the primary protein in all dairy products (including yogurt), causes the same problem for most of us.
If you will totally avoid all traces of gluten and dairy with your diet (not just in food, but also in cosmetics, supplements, medications, etc.), you should find that not only will your LC and UC symptoms go into remission, but after a number of months of healing your psoriasis should slowly fade away. If avoiding gluten and dairy is not sufficient, you may have to also avoid soy, legumes, and all derivatives of soy. Well over half of us here are sensitive to soy. Eggs are a problem for roughly half of us, so avoiding eggs might also be necessary.
If worse comes to worst, and you are still unable to control your symptoms by diet alone, please be aware that recent research shows that budesonide can be used in maintenance doses for extended periods. Note this research for example:
That research was based on 4.5 mg of budesonide per day. But many members here have found that if they need budesonide in order to allow them to remain in remission, they can get by with very low doses. Some use 3 mg per day, but others use 3 mg every other day, and some use 3 mg every third day. Some use even lower doses. The point is, at those low dosage levels, the risk of adverse consequences (such as osteoporosis, adrenal dependency, etc.), is very low. We have members who have been using budesonide at low doses for many, many years, with no apparent adverse effects. The key to preventing osteoporosls is to eliminate your magnesium deficiency. Virtually all of us are magnesium deficient, and this is one of the reasons why our healing is impaired and other health issues develop (unless we resolve our magnesium deficiency). IBDs also deplete vitamin D, and vitamin D deficiency cripples our immune system. As Gaves pointed out, once we resolve our magnesium and vitamin D deficiencies, our immune system (and many other body processes) can begin to function more normally again.
If you find it hard to believe that diet changes could control UC, please read NJ's post (post number 5) in the thread at the following link:
http://www.perskyfarms.com/phpBB2/viewtopic.php?t=10248
I hope that some of this is helpful. Again, welcome aboard, and please feel free to ask anything.
Tex
Welcome to our Internet family. I have no way of knowing how strict you are in avoiding gluten in your diet, but please be aware that most of us here are at least as sensitive to gluten as celiacs, and casein, the primary protein in all dairy products (including yogurt), causes the same problem for most of us.
If you will totally avoid all traces of gluten and dairy with your diet (not just in food, but also in cosmetics, supplements, medications, etc.), you should find that not only will your LC and UC symptoms go into remission, but after a number of months of healing your psoriasis should slowly fade away. If avoiding gluten and dairy is not sufficient, you may have to also avoid soy, legumes, and all derivatives of soy. Well over half of us here are sensitive to soy. Eggs are a problem for roughly half of us, so avoiding eggs might also be necessary.
If worse comes to worst, and you are still unable to control your symptoms by diet alone, please be aware that recent research shows that budesonide can be used in maintenance doses for extended periods. Note this research for example:
http://gut.bmj.com/content/early/2014/1 ... 08363.fullConclusions Budesonide at a mean dose of 4.5 mg/day maintained clinical remission for at least 1 year in the majority of patients with collagenous colitis and preserved health-related quality of life without safety concerns. Treatment extension with low-dose budesonide beyond 1 year may be beneficial given the high relapse rate after budesonide discontinuation.
That research was based on 4.5 mg of budesonide per day. But many members here have found that if they need budesonide in order to allow them to remain in remission, they can get by with very low doses. Some use 3 mg per day, but others use 3 mg every other day, and some use 3 mg every third day. Some use even lower doses. The point is, at those low dosage levels, the risk of adverse consequences (such as osteoporosis, adrenal dependency, etc.), is very low. We have members who have been using budesonide at low doses for many, many years, with no apparent adverse effects. The key to preventing osteoporosls is to eliminate your magnesium deficiency. Virtually all of us are magnesium deficient, and this is one of the reasons why our healing is impaired and other health issues develop (unless we resolve our magnesium deficiency). IBDs also deplete vitamin D, and vitamin D deficiency cripples our immune system. As Gaves pointed out, once we resolve our magnesium and vitamin D deficiencies, our immune system (and many other body processes) can begin to function more normally again.
If you find it hard to believe that diet changes could control UC, please read NJ's post (post number 5) in the thread at the following link:
http://www.perskyfarms.com/phpBB2/viewtopic.php?t=10248
I hope that some of this is helpful. Again, welcome aboard, and please feel free to ask anything.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.