Warning! - Just when you thought you might be getting better

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DebE13
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Post by DebE13 »

Thanks Donna! I've read that too. Crazy that they would even use common allergens in drugs. I take a generic liothyronine made by Paddock. It's a good reminder though to double check on their ingredient list. I selected them a few years ago but I haven't checked lately to confirm it hasn't changed. I switched to Tirosint about seven weeks ago and was hoping I might notice a difference. The price is quite a bit higher than my previous levothyroxine by Mylan. It does stick in my mind since I have continued D after years of avoiding gluten, soy, dairy, and eggs.

I appreciate the reminder- there's so much good info here!
Deb

"Do not follow where the path may lead. Go instead, where there is no path, and leave a trail.
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2007 CC
2013 thyroid cancer- total thyroidectomy
2013 Hashimoto's - numbers always "normal"
2017 Lyme's Disease
nsaidcolitis
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Post by nsaidcolitis »

i feel for you. Your diet isnt so bad, tex is right the sugar can be a killer in my case it immediately sets a bpmb if i overdo it fructose for example. its nice to vent here and i hope you are more careful next time. just remember the more strict you are the sooner ull heal and some intolerances may go, i read of a member who waited years to eat vegetables! youll get there, well get there ! :cool:
janden143
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Post by janden143 »

I have had symptoms of MC for about 4 years but they only became constant in June last year. I was treated for diverticulitis twice last winter and then, finally, diagnosed with CC this July following biopsies. I'm having a gastroscopy on Friday to see if I have CD.

Life has been very restricted for the past year because of the constant WD but, a lot of the time, I have not felt too bad. That is until 10 days ago, when I had already been on Budesonide for three weeks. I went to bed at midnight feeling normal. At 12.30 I felt that I needed to visit the bathroom but I felt fine. When I was in there I got excruciating pains and had D three times over the next half hour. Sweat was literally pouring off me, running down my arms, face and chest. When I felt that the episode was over, I tried to get up. I couldn't stand up straight and felt very weak. I tried to get back to bed but collapsed on the way, waking my partner who was able to help me. Next morning I still felt weak but improved during the day. Has anyone else had this happen???
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tex
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Post by tex »

Yes, been there, done that. You are severely magnesium deficient. Budesonide depletes magnesium. MC depletes magnesium. Before I resolved my magnesium deficiency I would wake up around 1 or 2 am sweating just like you described (even though the room was very cool), with various other symptoms, including muscle weakness. I'm guessing that you also had leg or foot cramps during the night. Am I right?

Those are classic magnesium deficiency symptoms, but doctors never recognize them. I felt so bad one morning that I couldn't even eat breakfast so I went to the Emergency Room and they couldn't figure out what was wrong, either. Fortunately I figured it out myself, a few days after that, based on my test results.

I was already taking about 200 mg of magnesium each day, but it wasn't enough because of a medication I was taking (many medications deplete magnesium). After I almost tripled my magnesium intake, and started applying magnesium oil to my skin every night for a while before taking a shower, I was much better in 2 or 3 days. But it took several months of 400—500 mg of magnesium per day (plus magnesium oil) to get rid of most of my symptoms so that I began to feel normal again.

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Gabes-Apg
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Post by Gabes-Apg »

Yes
the cramping, the sweating and feeling weak was a common event for me prior to confirming my MC Dx. Once I went on the low inflammation eating plan and fixed nutritional deficiencies like Vit D3 and magnesium, i no longer have these episodes.

hope this helps
Gabes Ryan

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janden143
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Post by janden143 »

Thank you for you replies Tex and Gabes. It was a scary experience and seemed to come from nowhere. I bought some magnesium tablets a couple of days ago (375mg) but haven't taken one yet - only because I am supposed to be on a gluten challenge until Friday when I am to have a gastroscopy. I read somewhere here that magnesium can give us D and I don't want any problems on that day! I shall start taking them Friday afternoon. The GE has prescribed D3 and calcium to go with the Budesonide. I didn't have leg cramps that night but I often get really weird cramps in the night going from my knee down the front of my leg. This has only happened during the past 11 years since I have had RA. It is VERY painful.

One more question! What is all this about the penguins???
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tex
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Post by tex »

Be sure that it's not magnesium oxide because magnesium oxide is mostly just a laxative. Only about 2 % of it is absorbed — the rest stays in the gut to act as a laxative. The best types of oral magnesium are chelated magnesium (magnesium glycinate), magnesium citrate, and ReMag. We can absorb up to about 50 % of magnesium glycinate and magnesium citrate, and almost 100 % of ReMag is absorbed. Magnesium oil or magnesium lotion (or Epsom salt soaks) are also effective and they don't cause any laxative effects because they bypass the digestive system.
janden143 wrote:One more question! What is all this about the penguins???
Those are just part of the "bells and whistles" on this site. As members write enough posts to exceed certain threshold counts, the system changes the type of penguin displayed and increases the number of penguins that are highlighted. It's just a representation of the number of posts written. There's no other significance.

You're very welcome,
Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Post by janden143 »

Oh dear, just read the packaging and it is magnesium oxide that I have bought. The other reason I have delayed taking them is that I have a low eGFR (chronic renal failure stage 3 but not enough to make me feel ill). I read your comments on another entry about it being a problem if the kidneys aren't working properly.
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tex
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Post by tex »

Yes, we have to be very careful with magnesium because any excess has to be removed from the bloodstream and disposed of by the kidneys. If you are at stage 3 renal failure then you should check with your doctor before starting a magnesium supplementation program. It might require careful dosing and careful monitoring.

But a magnesium deficiency can also cause compromised kidney function. The only time in my life that I had kidney problems was when my magnesium deficiency became severe. My EGFR got down in the 30s. After a couple of months taking more magnesium, it finally got back up to normal again.

So both too little and too much magnesium can cause kidney problems.

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
janden143
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Post by janden143 »

Thanks again for your help. I'll have a chat with my GP.
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