Tapering off Budesonide after rectal prolapse surgery

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wnorm
Little Blue Penguin
Little Blue Penguin
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Joined: Fri Jul 01, 2011 6:34 am

Tapering off Budesonide after rectal prolapse surgery

Post by wnorm »

I am 63 and have collagenous colitis, mastocytic enterocolitis, and numerous food allergies and intolerances.
In May/2015 I had a perianal rectal prolapse surgery. My rectum was removed and part of my colon was used to create a new rectum. Since then I was advised to do a 1.5 litre water enema daily. Bowel function was erratic at best. Prior to that surgery I had long term diarrhea. Afterwards I had chronic constipation alternating with severe diarrhea. I am intolerant to most laxatives and stool softeners. High fibre foods made me ill. I used to take Pentasa and Salofalk enemas, but in the last few months have become intolerant to them.
The prolapse recurred, and was even more painful and larger than prior to the 2015 surgery.
I had a 2 1/2 hour laparoscopic abdominal rectal prolapse surgery (no resection) 9 days ago. I had g.a. and took 5 mg morphine tabs every 4 or so hours +tylenol +advil for about 2 1/2 days post surgery as prescribed. I was released ~ about 7 hours after surgery.

I am having major issues with bowel function now. Laxaday has not been with severe constipation. I was getting more and more dizzy and nauseous with each passing day after the surgery. I suspect that I may have developed an intolerance to the polyethylene glycol.
I have been taking Budesonide since early July/2016 to help with the pain and inflammation in my colon and rectum. The regimen is as follows:6 mg/day for one month and then 3mg/day until February 2017. I suspect that the Budesonide may be contributing to the constipation.
I also take:
Nalcrom (gastrocrom in the US) 100mg -2 caps, 4 times daily
Zaditen (ketotifen fumarate) 1 mg tab- 3 tabs at bedtime
Aerius 5 mg tab-1 tab 3x/day
10,000 u VIT D/week as recommended, calcium , magnesium,
Ritalin for excessive daytime sleepiness

I would like to taper off the Budesonide. What exact protocol do you recommend? If I taper to 1 tab every second day, and so on, how many days should I maintain the schedule? I checked the section in your book, but I still would like you to clarify the regimen.
Should I decrease the Nalcrom, Zaditen , and Aeries as well.I am very careful with my diet. Some of the main symptoms being controlled previously were : overall body itch,
abdominal cramping, and diarrhea. Since the diarrhea is absent now, perhaps I should modify the regimen.

I know that I still need to heal from the surgery, G.A. and morphine. However, I would like to regulate my bowels so I can rejoin the world. I suspect that years of diarrhea and one year of water enemas may have permanently damaged my colon. I don't want to do any more water enemas. You have been very helpful in the past. Thank-you.Any suggestions would be greatly appreciated.
allergic to :nuts, all seeds, tomatoes, eggplant, all pepper, nutmeg, most raw fruit, many cooked fruits, peanuts, chestnuts, etc.
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