Thyroid issues

Feel free to discuss any topic of general interest, so long as nothing you post here is likely to be interpreted as insulting, and/or inflammatory, nor clearly designed to provoke any individual or group. Please be considerate of others feelings, and they will be considerate of yours.

Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh

crervin
Rockhopper Penguin
Rockhopper Penguin
Posts: 751
Joined: Tue Jul 14, 2015 7:52 pm
Location: Chattanooga, TN

Post by crervin »

Sorry Lou Ann that I confused the issue, but glad Tex cleared it up. I took too much Betaine and it caused burning. I just drank a little baking soda in water and it fixed it immediately. I took 3 days worth I believe and it fixed it...

Like Tex said, use it only for a big protein meal.
Martha E.

Philippians 4:13

Jul 2008 took Clindamycin for a Sinus infection that forever changed my life
Dec 2014 MC Dx
Jul 15, 2015 Elimination Diet
Aug 17, 2015 Enterolab Test
Dec 2015 Reflux
Sept 2016 IC
Lou Ann
Adélie Penguin
Adélie Penguin
Posts: 182
Joined: Mon May 09, 2016 6:41 pm
Location: Pennsylvania

Post by Lou Ann »

Martha,
Please don't apologize...I confuse easily!!

Lou Ann
User avatar
tex
Site Admin
Site Admin
Posts: 35067
Joined: Tue May 24, 2005 9:00 am
Location: Central Texas

Post by tex »

Lou Ann wrote:AND it makes me wonder because my cardiologist cut me from 20 to 10 and all my numbers stayed the same.....hmmmm
That's an interesting observation because I agree that one would think that your cholesterol level should have increased in response to a decreased statin dose.

That brings back some memories. I noticed that when I first started taking the statin (because of a second TIA in May, 2010), my total cholesterol level went way down (like from 220-something to 140-something in about 6 weeks. :shock: Around 145 is the most dangerous level for total cholesterol (as far as overall mortality risk is concerned), so that worried me a lot. But I noticed that as the months went by, my cholesterol level climbed back up to the 190–200 range after about 6 more months. Come to think of it, when I stopped taking it, I don't recall any significant changes in my test results, either.

Apparently the body has a way of compensating. That was over 5 years ago and my cholesterol level didn't significantly change after that until last year. I've noticed that in the past year (since I've corrected my magnesium deficiency) my cholesterol level has increased by about 20 points. Because correcting a magnesium deficiency is a good thing (as far as overall health is concerned), I have to conclude that the increase in my cholesterol level must be a good thing, also. I note that about half that increase was in my HDL — it increased by about a third.

And looking back and considering what I've learned since then, I have a hunch that those 2 TIAs were probably caused by a chronic magnesium deficiency, because none of the tests, including brain scans, offered any clues as to why they occurred.

The neurologist ordered tests for virtually everything — everything except magnesium, that is. :roll: No one ordered a magnesium test.

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Lou Ann
Adélie Penguin
Adélie Penguin
Posts: 182
Joined: Mon May 09, 2016 6:41 pm
Location: Pennsylvania

Post by Lou Ann »

It really made me pause to think if I really need it at all...I asked if I could try 5mg and it was a quick NO from the doctor...he said once your on, your not going off. 🙃
I had no idea if your number was to low it was dangerous...
The magnesium sure was a big help to so many of your problems...that is an amazing thing...and seems like such a simple non expensive fix for people...if only doctors would think outside the box.
User avatar
tex
Site Admin
Site Admin
Posts: 35067
Joined: Tue May 24, 2005 9:00 am
Location: Central Texas

Post by tex »

Liability lawsuits keep doctors from thinking outside the box, unfortunately. As long as they follow accepted practices, if a patient dies, it's just unfortunate. If they deviate from the rules though, and something goes wrong — they're hung.

Here are some links to articles assessing the relative risks of low cholesterol levels in various situations. In general, the risk is the most significant in high-stress situations, such as trauma or major surgery. You'll note that most studies are done with older subjects because death must occur before the researchers can complete their data collection, unfortunately.

Low preoperative cholesterol level is a risk factor of sepsis and poor clinical outcome in patients undergoing cardiac surgery with cardiopulmonary bypass.

Serum cholesterol levels and in-hospital mortality in the elderly

Cholesterol as risk factor for mortality in elderly women.

High cholesterol may protect against infections and atherosclerosis

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
hollyweb
Gentoo Penguin
Gentoo Penguin
Posts: 288
Joined: Fri Jul 01, 2016 4:08 pm
Location: Cameron Park, CA

Post by hollyweb »

Just to chime in here ... I'm another one who was on a statin for over 20 years (and was also told it was for life). I tapered off it and have been statin-free for almost a year. My cholesterol numbers have gone up, but none of my doctors have been alarmed enough to put me back on (and I wouldn't do it if they did). I'm staying the course for correcting my magnesium deficiency and since statins do have a negative relationship with mc, those are the tools in my toolbelt should the issue come up.
Apparently the body has a way of compensating.

Agree with everything said! I, too, wish I'd had the knowledge to say "no" to all the prescription meds I was given and took for decades. How can the body do what it's trying to do when we keep interfering with these powerful meds? Plus, without the true coordination of care, not only do the meds interfere with the body trying to compensate, they also can interfere with each other.

~ Holly
2015 Hashimoto's, MTHFR
2016 LMC, Malabsorption
2017 Lymphocytic Dermatologic Vasculitis

"I strive to live in my heart, not in my head!"
User avatar
tex
Site Admin
Site Admin
Posts: 35067
Joined: Tue May 24, 2005 9:00 am
Location: Central Texas

Post by tex »

Holly wrote:How can the body do what it's trying to do when we keep interfering with these powerful meds? Plus, without the true coordination of care, not only do the meds interfere with the body trying to compensate, they also can interfere with each other.


Excellent points. Many medications are labeled to be used for a few weeks (such as PPIs), and yet doctors prescribe them for years. Our poor immune system (and any other organs that happen to be affected) don't know what to do, and eventually they lose some of their ability to function and they may even stop trying (as in the case of the affect of corticosteroids on adrenal glands).

And most specialists focus only on the issue that they are treating and tend to ignore everything else. They expect the patient's PCP to coordinate everything, but the problem is that the specialists are supposed to be the experts who understand the drugs they prescribe, and many PCPs are hesitant to overrule them (for one thing they don't crave having a specialist chewing on their butt and accusing them of interfering with a treatment). Because of this disconnect, if a pharmacist (or the patient) doesn't catch risky drug interaction possibilities, no one will catch them.

And then there are the doctors who, when a patient complains about a side effect of a drug, prescribe another drug to mask the side effects of the first one rather than to recommend that the patient stop taking the first drug. :roll: I have to say that has never happened to me, but apparently it happens, if half the stories I've heard about that practice are true.

That said, it's not easy for doctors to win in this debate, because when it comes to prescribing drugs, they're damned if they do, and damned if they don't. :shrug:

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Lou Ann
Adélie Penguin
Adélie Penguin
Posts: 182
Joined: Mon May 09, 2016 6:41 pm
Location: Pennsylvania

Post by Lou Ann »

Tex,
When I went to my cardiologist I asked her about the RGB magnesium test that she had a confused look on her face.....maybe I am asking the wrong type of doctor? She did give me a slip for just a test but from what I could understand from the paper it just said magnesium….. is that a worthless test to have? Thank you!
I might have more luck with my endocrinologist next week.

Lou Ann
User avatar
tex
Site Admin
Site Admin
Posts: 35067
Joined: Tue May 24, 2005 9:00 am
Location: Central Texas

Post by tex »

Lou Ann,

Unfortunately most doctors know so little about magnesium that they are only aware of the serum test. But the serum test will only show a deficiency if your body is almost completely out of magnesium.

It's better than nothing, but that's about all.

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Lou Ann
Adélie Penguin
Adélie Penguin
Posts: 182
Joined: Mon May 09, 2016 6:41 pm
Location: Pennsylvania

Post by Lou Ann »

Regular Magnesium test 2.1.....
Any thoughts?
Push for the better test? .....do I stilll need mag supplements?

Lou Ann
User avatar
Gabes-Apg
Emperor Penguin
Emperor Penguin
Posts: 8332
Joined: Mon Dec 21, 2009 3:12 pm
Location: Hunter Valley NSW Australia

Post by Gabes-Apg »

Lou Ann
with this type of stuff - your best indicator is 'listen to your body'
the only truly accurate test is muscle sample testing (which mainstream medicine do not do)

your body needs at least 350-400mg magnesium per day.
if you are drinking coffee, detoxing toxins, taking medications etc then you will need at least 500mg per day

if you have less than 350mg and you get magnesium deficiency symptoms, you need to increase it.
Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
User avatar
tex
Site Admin
Site Admin
Posts: 35067
Joined: Tue May 24, 2005 9:00 am
Location: Central Texas

Post by tex »

Lou Ann,

If your lab uses the same "normal" range as the one my doctor/clinic/hospital uses, that result is OK. The normal range at my hospital is 1.8–2.4 mg/dL. When my magnesium deficiency became so bad (a year and a half ago) that I couldn't eat breakfast, which prompted me to go to the ER, my magnesium test result was 1.7 mg/dL. Since I've increased my magnesium supplementation to correct the problem, my test result has consistently been 2.2 mg/dL on a couple of tests since then.

I take 500 mg of magnesium per day — 300 mg after breakfast, and 100 mg after lunch and another 100 mg after an afternoon snack.

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Lou Ann
Adélie Penguin
Adélie Penguin
Posts: 182
Joined: Mon May 09, 2016 6:41 pm
Location: Pennsylvania

Post by Lou Ann »

Thank you Gabes!

Tex,
My hospital is about the same range. 1.8- 2.6, so I guess I'll be ok with the 2.1.....I've only been doing topical mag for a while because of the D with the oral. I will still run all this buy my first visit with the endocrinologist next week....this will be my millionth doc That will look at me like I had five heads...🙃🙃🙃🙃🙃

Thanks!
Lou Ann
Lou Ann
Adélie Penguin
Adélie Penguin
Posts: 182
Joined: Mon May 09, 2016 6:41 pm
Location: Pennsylvania

Post by Lou Ann »

I'm totally frustrated.....went to the endocrinologist today....said the thyroid nodule and cyst were way to small to even biopsy right now.....good news to me....hair loss, weird feeling in neck and burning tongue were pushed aside issues...especially the tongue....I think this might be the eighth doctor that looked at me like I have five heads for even saying my tongue has been hot for years....anyway, she caught a look of a high fasting blood sugar from last year and ordered me, literally 20 blood tests, urine tests, etc....... told me to only take vitamin D and calcium as far as supplements......my last A-1 C was down to 5.2 from 6.1...... Why is she worried about diabetes? I am done over thinking about it...it's all driving me nuts....i seriously doubt I need anything she's ordering....that was a rant.....sorry.

Lou Ann
User avatar
Vanessa
Rockhopper Penguin
Rockhopper Penguin
Posts: 640
Joined: Wed Mar 05, 2014 5:03 pm
Location: Des Moines, IA

Post by Vanessa »

Lou Ann,

I'm so sorry for your frustration. I don't have a regular Dr. because of this reason, so when I get really sick I wonder what will become of me :sad: and of course no calcium supplements if you get some from your diet......
Vanessa
Post Reply

Return to “Main Message Board”