Hello all. It seems the pepto bysmal treatment is starting to help some with the constant d. How long can i be on this and what happens after the 8 weeks. Do i just start it again when d comes back?
Question no.2. My short term disability from work claim is being looked into. The insurance guy said that this disease basically isnt a big deal and they usually.only alot 7 days to recovery. Did i miss something? Ive had this for a year and a half....lost 40 lbs and all my energy and stregnth. Most days im in the bathroom off and on till noon and somethimes at night. I dont know what to do or say...they have a play book for each condition....however it seems very lacking for someone with this.
Update and info needed
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armstrongpilot
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Gabes-Apg
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hi there
Q1 - I have never used the pepto treatment so can not offer suggestions on this
one thing we have seen over the years here, is that any of the medication protocols have limited scope of success if the person is deficient in Vit D3 and magnesium, and having contact with too many triggers. (this can be food triggers, enviro triggers, medication triggers, etc)
Q2 - yes they do have a 'play book' for each condition and for things like this it is very lacking and disconnected from reality. This is one of the reasons that so many people come to this forum, the playbook is the same as the one used by medical profession, so when the meds dont work they have limited scope to help people.
One of the descriptions for MC is 'slightly inconveniencing Diarrhea' - All of us here know that this is not the case. Constant Diarrhea and having to wear diapers for the no notice motions is not slightly inconveniencing, it is life changing. Physically, mentally and emotionally.
With my combo of health issues most of which are not 'mainstream' it took 9 months to get my income insurance short term disability claim approved. In Australia Microscopic Colitis was not even listed in their playbook! basically after going through my 10 years of medical history (every doctor visit, every script etc etc ) they did not have a reason not to approve it, and only when I threatened to go to the insurance ombudsmen did they approve the claim. Given that one of my main triggers is stress, this was not a fun period.
I now know of some people that in these instances they have got an insurance lawyer to help them with their claim and pushing the insurance company to their decision.
Q1 - I have never used the pepto treatment so can not offer suggestions on this
one thing we have seen over the years here, is that any of the medication protocols have limited scope of success if the person is deficient in Vit D3 and magnesium, and having contact with too many triggers. (this can be food triggers, enviro triggers, medication triggers, etc)
Q2 - yes they do have a 'play book' for each condition and for things like this it is very lacking and disconnected from reality. This is one of the reasons that so many people come to this forum, the playbook is the same as the one used by medical profession, so when the meds dont work they have limited scope to help people.
One of the descriptions for MC is 'slightly inconveniencing Diarrhea' - All of us here know that this is not the case. Constant Diarrhea and having to wear diapers for the no notice motions is not slightly inconveniencing, it is life changing. Physically, mentally and emotionally.
With my combo of health issues most of which are not 'mainstream' it took 9 months to get my income insurance short term disability claim approved. In Australia Microscopic Colitis was not even listed in their playbook! basically after going through my 10 years of medical history (every doctor visit, every script etc etc ) they did not have a reason not to approve it, and only when I threatened to go to the insurance ombudsmen did they approve the claim. Given that one of my main triggers is stress, this was not a fun period.
I now know of some people that in these instances they have got an insurance lawyer to help them with their claim and pushing the insurance company to their decision.
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
Are you aware that MC is covered by the Americans with Disabilities Act of 1990 as Amended ? As such, an official diagnosis is sufficient to win a Social Security Disability Insurance claim. You don't have to be disabled to qualify — you just have to have an official diagnosis. The details on this are at the end of chapter 14 in my book, if you have a copy. If you don't have a copy, I'll be happy to send you a PDF of that information (attached to an email). Just let me know.
Unfortunately, it's not that easy in the real world, because as you have found, most insurance companies and government bureaucrats follow the same misguided rules used by the medical community. Because of that, some people have found that hiring an attorney who specializes in SSDI claims can eliminate a lot of unnecessary appeals.
Tex
Unfortunately, it's not that easy in the real world, because as you have found, most insurance companies and government bureaucrats follow the same misguided rules used by the medical community. Because of that, some people have found that hiring an attorney who specializes in SSDI claims can eliminate a lot of unnecessary appeals.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Hello. I used the Pepto treatment - 6/day for 8 weeks. At the end of 8 weeks I no longer had D but by that time I had changed my diet as well. When I was accidentally glutened the D came back but after taking a few Pepto tablets it stopped again. Diet is the key to the D not returning. I don't know how long you are able to safely take the Pepto after the 8 weeks as recommended by my G.I. I didn't not have any side effects although I know that others have. I was fortunate. Three years out I still carry Pepto with me but really haven't had to take any.
Marcia
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My mission in life is not merely to survive, but to thrive and to do so with some passion, some compassion, some humor and some style. - M. Angelou
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My mission in life is not merely to survive, but to thrive and to do so with some passion, some compassion, some humor and some style. - M. Angelou
Regarding repeating the Pepto treatment, it appears that as long as one's body is clearing excess amounts of bismuth normally, repeating or continuing the treatment is not a problem. However, some people seem to have trouble clearing excess bismuth, and if that should happen it can build up in the system, possibly leading to a toxic condition.
Tex
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Hey Tex,
Are you aware if pepto treatment takes a lot of your magnesium? I know other meds do. After 10 days of using it way back when, I had a period of time where I was shaking off of the bed like the excorsist and felt like I was attached to a motor that was revving up. That lasted for 6 mo. And didn't get relief even after starting anti anxiety med (of course). Now I wonder if it was just the straw that broke the camels back and was a coincidence in timing of majorly depleted mag?
Are you aware if pepto treatment takes a lot of your magnesium? I know other meds do. After 10 days of using it way back when, I had a period of time where I was shaking off of the bed like the excorsist and felt like I was attached to a motor that was revving up. That lasted for 6 mo. And didn't get relief even after starting anti anxiety med (of course). Now I wonder if it was just the straw that broke the camels back and was a coincidence in timing of majorly depleted mag?
Vanessa
Vanessa,
As far as I'm aware, the bismuth subsalicylate in Pepto-Bismol does not affect magnesium absorption or retention. Your experience (regarding the timing of the Pepto-Bismol treatment) may have just been a coincidence. But it's also possible to be allergic to one of the ingredients in Pepto-Bismol, and that can certainly cause the symptoms that you described.
Tex
As far as I'm aware, the bismuth subsalicylate in Pepto-Bismol does not affect magnesium absorption or retention. Your experience (regarding the timing of the Pepto-Bismol treatment) may have just been a coincidence. But it's also possible to be allergic to one of the ingredients in Pepto-Bismol, and that can certainly cause the symptoms that you described.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Since I plateaued this was the last thing that has made the biggest difference. Say Polly could this mess with mag absorption even if one is applying the mag externally and off set taking it before or after the cholestyramine accordingly?
Thanks
Erica
To Succeed you have to Believe in something with such a passion that it becomes a Reality - Anita Roddick
Dx LC April 2012 had symptoms since Aug 2007
Dx LC April 2012 had symptoms since Aug 2007