I was recently diagnosed with LC and have noticed my eyesight getting worse. It's like I can't focus. Is this a symptom of the MC, a symptom of the Entocort, or just a coincidence? My eyesight hasn't changed in over 10 years so I find this unusual. Of course, with all the other things going on because of the MC, I wouldn't be surprised.
TIA
Tory
Has anyone had eyesight issues?
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tcbolander
- Posts: 20
- Joined: Thu Oct 13, 2016 9:17 pm
Has anyone had eyesight issues?
Tory
I'm just a girl who wants to feel well enough to enjoy her family and hang out with her chickens.
I'm just a girl who wants to feel well enough to enjoy her family and hang out with her chickens.
Re: Has anyone had eyesight issues?
Hi Tory,tcbolander wrote:I was recently diagnosed with LC and have noticed my eyesight getting worse. It's like I can't focus. Is this a symptom of the MC, a symptom of the Entocort, or just a coincidence? My eyesight hasn't changed in over 10 years so I find this unusual. Of course, with all the other things going on because of the MC, I wouldn't be surprised.
TIA
Tory
When I was in the midst of flaring my eyes were affected and I had similar symptoms to you. I went to an ophthalmologist who diagnosed me with chronic inflammation. I now wear glasses (part of it is definitely my age) and clean my eyes daily with lids cleaner which has helped immensely.
Re: Has anyone had eyesight issues?
Hi Tory,tcbolander wrote:I was recently diagnosed with LC and have noticed my eyesight getting worse. It's like I can't focus. Is this a symptom of the MC, a symptom of the Entocort, or just a coincidence? My eyesight hasn't changed in over 10 years so I find this unusual. Of course, with all the other things going on because of the MC, I wouldn't be surprised.
TIA
Tory
Around the time I started having issues (later, when I was diagnosed with LC), my eyes (and particularly my left eye) had frequent bouts of "shakiness," as if it was twitching (but it was not visibly twitching). The "shakiness" has reduced significantly since I started treatment, but comes back occasionally. Not sure if it is related to LC or not.
Hi Tory,
Yes, as the other responses have pointed out, eye inflammation and vision issues are commonly associated with IBDs, including MC. Iritis and uveitis are often reported, and reduced visual acuity is a common complaint.
A few members have even noted that after they reached remission, the noticed a significant improvement in their hearing.
Tex
Yes, as the other responses have pointed out, eye inflammation and vision issues are commonly associated with IBDs, including MC. Iritis and uveitis are often reported, and reduced visual acuity is a common complaint.
A few members have even noted that after they reached remission, the noticed a significant improvement in their hearing.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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tcbolander
- Posts: 20
- Joined: Thu Oct 13, 2016 9:17 pm
I think I can can say MC contributed to some eyesight declining starting at age 40....by the time I was 48 I wondered just how much more issue with distance I was going to have....since changing my diet (cornish hen bone broth with lots of carrots and celery and sea salt) a year later at age 49 and my eyesight has improved...not perfect and I doubt it ever will be but I don't have much correction for distance and just a little correction for reading...I consider that good news 
I think after some healing was underway the nutrients started getting to where they needed again
With the help of extra D and Elemental Magnesium.
It will take time though....and it will be gradual effects as it gets better.
I think after some healing was underway the nutrients started getting to where they needed again
With the help of extra D and Elemental Magnesium.It will take time though....and it will be gradual effects as it gets better.
To Succeed you have to Believe in something with such a passion that it becomes a Reality - Anita Roddick
Dx LC April 2012 had symptoms since Aug 2007
Dx LC April 2012 had symptoms since Aug 2007
Hi, Tory. You are not alone. I experience bluriness and sometimes a dull ache in one eye. I worry about uveitis because a co-worker has it and I see what she's been through. Even though I'm in remission my eye issues haven't resolved.
Marcia
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My mission in life is not merely to survive, but to thrive and to do so with some passion, some compassion, some humor and some style. - M. Angelou
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My mission in life is not merely to survive, but to thrive and to do so with some passion, some compassion, some humor and some style. - M. Angelou
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Gabes-Apg
- Emperor Penguin
- Posts: 8332
- Joined: Mon Dec 21, 2009 3:12 pm
- Location: Hunter Valley NSW Australia
I had a bad keratitis 2 years before my MC dx was (with hindsight) the first sign that I had multi auto immune issues
at the time i saw the top ophthalmologist and immunologist in the state and neither could provide reason for the issue and why it/my body didnt respond to treatment.
Once diagnosed with MC and I found this group - years of various health issues, joint pain, fatigue, eye issues etc all 'made sense'
since that keratitis event I have not been able to wear eye make up (liner, mascara etc)
If I am fatigued, and have excess inflammation, my eyes are easily irritated.
since this event I get my eyes checked every 12 months. the last check up the optomologist said they frequently see patients that are having 'weird symptoms' along with minor eye symptoms and when general practitioner does further investigation, auto immune conditions are diagnosed. She said Ankylosing spondylitis was the most common.
(and once inflammation in the body is reduced the eyes improve)
In Australia, up until 2 years ago - annual eye checks were covered by our govt subsidised medicare system, ie no cost to patient. With budget cuts it is now only no cost to patient every 3 years, unless you are over 65. The optometrist that i see is very pro-active and supportive and if you have auto immune issues, he does some coding tweaking so that he can do annual check at no cost to me. Most of the optometrists agree that regular checks and being pro-active is the best approach for long term eye health.
at the time i saw the top ophthalmologist and immunologist in the state and neither could provide reason for the issue and why it/my body didnt respond to treatment.
Once diagnosed with MC and I found this group - years of various health issues, joint pain, fatigue, eye issues etc all 'made sense'
since that keratitis event I have not been able to wear eye make up (liner, mascara etc)
If I am fatigued, and have excess inflammation, my eyes are easily irritated.
since this event I get my eyes checked every 12 months. the last check up the optomologist said they frequently see patients that are having 'weird symptoms' along with minor eye symptoms and when general practitioner does further investigation, auto immune conditions are diagnosed. She said Ankylosing spondylitis was the most common.
(and once inflammation in the body is reduced the eyes improve)
In Australia, up until 2 years ago - annual eye checks were covered by our govt subsidised medicare system, ie no cost to patient. With budget cuts it is now only no cost to patient every 3 years, unless you are over 65. The optometrist that i see is very pro-active and supportive and if you have auto immune issues, he does some coding tweaking so that he can do annual check at no cost to me. Most of the optometrists agree that regular checks and being pro-active is the best approach for long term eye health.
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
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tcbolander
- Posts: 20
- Joined: Thu Oct 13, 2016 9:17 pm
I had not thought to connect my eye issues with LC before this post...I have temporarily lost the vision in one of my eyes twice in the past 3 years....both times it was fleeting...lasting maybe 5 minutes. The first time it was as if a white hanky with holes dropped down over my eye....then slowly faded away. The next time was 6 months ago and it seemed like a screen slowly moved from the bottom of my eye to totally cover it. Opthalmologist both times had no explanation except age....my frequent default diagnosis.
I also have auras without the headache in both eyes after my mitral valve repair. The surgeon said they don't know why it happens but it's not unusual and will stop in a few months....that was said in 2011 and I still have them. Opthalmologist says it's from the optic nerve , but again, no explanation.
Sunny
I also have auras without the headache in both eyes after my mitral valve repair. The surgeon said they don't know why it happens but it's not unusual and will stop in a few months....that was said in 2011 and I still have them. Opthalmologist says it's from the optic nerve , but again, no explanation.
Sunny
"It is very difficult to get a man to understand something, when his salary depends upon his not understanding it. "
Upton Sinclair
Upton Sinclair
Re: Has anyone had eyesight issues?
Yes, while I was in the dark and had no diagnose, I had double sight and could not focus, and I was afraid of driving while it was dark which is pretty much 50% of the year here where I live. Nobody could help me find an answer, except this board.tcbolander wrote:I was recently diagnosed with LC and have noticed my eyesight getting worse. It's like I can't focus. Is this a symptom of the MC, a symptom of the Entocort, or just a coincidence? My eyesight hasn't changed in over 10 years so I find this unusual. Of course, with all the other things going on because of the MC, I wouldn't be surprised.
TIA
Tory
As soon as I changed my diet and increased vit A, omega3, vit D3, magnesium, zink and B12 I felt so much better, and I was not afraid to drive. It took some time to get there, 1,5-2 years.
Lilja
Collagenous Colitis diagnosis in 2010
Psoriasis in 1973, symptom free in 2014
GF, CF and SF free since April, 2013
Psoriasis in 1973, symptom free in 2014
GF, CF and SF free since April, 2013
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tcbolander
- Posts: 20
- Joined: Thu Oct 13, 2016 9:17 pm
Lilja,
Thanks for the vitamin suggestions. I need to add those into my new diet regime. I'm glad they worked for you and am hoping for the same. Hope is a wonderful thing!
Sunny, that totally stinks! I hope you can find answers!
Thanks for the vitamin suggestions. I need to add those into my new diet regime. I'm glad they worked for you and am hoping for the same. Hope is a wonderful thing!
Sunny, that totally stinks! I hope you can find answers!
Tory
I'm just a girl who wants to feel well enough to enjoy her family and hang out with her chickens.
I'm just a girl who wants to feel well enough to enjoy her family and hang out with her chickens.
I had Lasik surgery over 10 years ago and I thought some of the blurriness was from the surgery, aging and dry eyes but now I believe it's from the LC. I'm going to start documenting when it is the worst, I think it sometimes depends on what I eat. I rarely eat white potatoes but after eating a few baked French fries the next day I had eye pain. I see an Ophthalmologist annually due to the Lasik surgery and he always says everything is fine other than the dryness so he must not see anything during my examinations. My grandmother had glaucoma so I am very proactive with eye examinations. She lost the vision in one eye years ago because her doctor didn't diagnose it until it was too late.
Marcia
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My mission in life is not merely to survive, but to thrive and to do so with some passion, some compassion, some humor and some style. - M. Angelou
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My mission in life is not merely to survive, but to thrive and to do so with some passion, some compassion, some humor and some style. - M. Angelou
Wow, Tex.tex wrote:Hi Tory,
Yes, as the other responses have pointed out, eye inflammation and vision issues are commonly associated with IBDs, including MC. Iritis and uveitis are often reported, and reduced visual acuity is a common complaint.
A few members have even noted that after they reached remission, the noticed a significant improvement in their hearing.
Tex
I have been accused by my sons for having a severe hearing loss, and they asked me to see an audiologist. The audiologist said that my hearing was "ok", but asked me to return in two years.
Now, as my healing continues, I have noticed that I don't need to put the TV on 58-60 volume, and that I can hear very well at volume 30-35.
But, I have never connected my hearing issue with my MC, not until you mention this in your post.
Lilja
Collagenous Colitis diagnosis in 2010
Psoriasis in 1973, symptom free in 2014
GF, CF and SF free since April, 2013
Psoriasis in 1973, symptom free in 2014
GF, CF and SF free since April, 2013
Lilja,
We often tend to overlook such changes because they usually come very slowly, so the differences from day to day are impossible to notice. It's easy to overlook long-term changes. And even if we notice, it can be difficult to connect them with the cause.
Thank you for your confirmation that it does happen.
Tex
We often tend to overlook such changes because they usually come very slowly, so the differences from day to day are impossible to notice. It's easy to overlook long-term changes. And even if we notice, it can be difficult to connect them with the cause.
Thank you for your confirmation that it does happen.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.