I would rather go to Enterolab and find out sooner than later what's what with me and food!
What tests should I be asking for?
My primary care is willing to ask as I live in NY State. He is testing me for Vitamin D, IgA and IgE
This I have gleaned from reading through some of the forums personal posts.
I'm a bit overwhelmed how this all works being new to this forum.
what tests do I need to ask for at Enterolab?
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
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Gabes-Apg
- Emperor Penguin
- Posts: 8332
- Joined: Mon Dec 21, 2009 3:12 pm
- Location: Hunter Valley NSW Australia
Here is a link to a discussion to help you
http://www.perskyfarms.com/phpBB2/viewtopic.php?t=22259
and other discussions in this area
http://www.perskyfarms.com/phpBB2/viewforum.php?f=67
http://www.perskyfarms.com/phpBB2/viewtopic.php?t=22259
and other discussions in this area
http://www.perskyfarms.com/phpBB2/viewforum.php?f=67
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
Hi Tim,
It sounds as though you have an above-average doctor who's actually willing to help, and he is ordering the right tests. Good for him. And good for you for choosing him. Once you get those test results they should answer a lot of questions and make it much easier to design a recovery diet.
Yes, this disease, and properly treating it, can seem overwhelming at first, but we just have to take life one day at a time, and learn as we go. Eventually, doing the right things to control the symptoms becomes second nature, and part of our normal routine.
You're off to a good start. Please keep us posted on your progress.
Tex
It sounds as though you have an above-average doctor who's actually willing to help, and he is ordering the right tests. Good for him. And good for you for choosing him. Once you get those test results they should answer a lot of questions and make it much easier to design a recovery diet.
Yes, this disease, and properly treating it, can seem overwhelming at first, but we just have to take life one day at a time, and learn as we go. Eventually, doing the right things to control the symptoms becomes second nature, and part of our normal routine.
You're off to a good start. Please keep us posted on your progress.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Thanks Gabes & Tex-
Gabes & Tex-
Thanks for the responses.
Checking it out the links pronto!
I currently am not having any major issues. When I was diagnosed in May I began googling for information. Stumbled upon a site that one individual said he/she had had good results with metamucil slowing things down. I needed to get back to work as I had been out of work with knee surgery and 'renegade polyp' surgery since January.
My routine was coffee in the morning to get 'everything out' and then a glass of smooth berry metamucil for breakfast. I would then make up three more containers to add water to during the day when 'hunger' became an issue. I'm sure it wasn't the best solution but it worked. I could confidently be out and about where facilities were not always convenient. On long hot days I couldn't wait to get home and eat. I kept that up until mid-August early September. I lost nearly 15 lbs but it was extra weight from laying around waiting for surgeries so I wasn't complaining.
I stumbled upon this site in August trying to find where I had read the hint for using metamucil in May. Wow! I immediately ordered both of Tex's books. Read them back to back in a day or so and left them with my primary care physician this past week. I was there for a sinus infection that I figured was part of change of season, heat coming on in the house and a tooth extraction. Pointed out to him that I had not been able to work the past month as hip and back pain wouldn't allow me to bend and carry things and reminded him that the pain in hip had appeared the first of the year as well as a rash on my chest and back. Though not severe or annoying at that time. Now 'both' have my attention 24/7. I mentioned that from the books that they were both possible side affects/symptom. He rolled his eyes, but listened to what I said. He's a good guy and doesn't rush into things willy nilly. Ordered the aforementioned blood tests, asked me what others I needed and sent me for x-rays.
So here I am. Experimenting with gluten free, brown rice cereal and rice milk, reading labels in the health food section of grocery store and currently having real 'stools'. I am looking forward to the Enterolab test results and waiting for the shoe to drop on my current 'good' situation! lol
Thanks again-Tim
Thanks for the responses.
Checking it out the links pronto!
I currently am not having any major issues. When I was diagnosed in May I began googling for information. Stumbled upon a site that one individual said he/she had had good results with metamucil slowing things down. I needed to get back to work as I had been out of work with knee surgery and 'renegade polyp' surgery since January.
My routine was coffee in the morning to get 'everything out' and then a glass of smooth berry metamucil for breakfast. I would then make up three more containers to add water to during the day when 'hunger' became an issue. I'm sure it wasn't the best solution but it worked. I could confidently be out and about where facilities were not always convenient. On long hot days I couldn't wait to get home and eat. I kept that up until mid-August early September. I lost nearly 15 lbs but it was extra weight from laying around waiting for surgeries so I wasn't complaining.
I stumbled upon this site in August trying to find where I had read the hint for using metamucil in May. Wow! I immediately ordered both of Tex's books. Read them back to back in a day or so and left them with my primary care physician this past week. I was there for a sinus infection that I figured was part of change of season, heat coming on in the house and a tooth extraction. Pointed out to him that I had not been able to work the past month as hip and back pain wouldn't allow me to bend and carry things and reminded him that the pain in hip had appeared the first of the year as well as a rash on my chest and back. Though not severe or annoying at that time. Now 'both' have my attention 24/7. I mentioned that from the books that they were both possible side affects/symptom. He rolled his eyes, but listened to what I said. He's a good guy and doesn't rush into things willy nilly. Ordered the aforementioned blood tests, asked me what others I needed and sent me for x-rays.
So here I am. Experimenting with gluten free, brown rice cereal and rice milk, reading labels in the health food section of grocery store and currently having real 'stools'. I am looking forward to the Enterolab test results and waiting for the shoe to drop on my current 'good' situation! lol
Thanks again-Tim
Tim,
Please be aware that many of us cannot tolerate the amount of fiber in brown rice so we have to use white rice instead. Rice Chex is GF and apparently made with white rice, so many of us use it. If you can handle the fiber in brown rice, then you're OK, but for many of us, brown rice (or too much fiber from any source) can prevent remission by continually irritating our colon. After we have been in remission for a while then we can handle a lot more fiber.
Yes, as your gut heals from the diet changes, your back and joint pain should fade away. The arthritis symptoms are caused by the leaky gut syndrome associated with MC. The rash is caused by histamine issues, known as mast cell activation disorder (MCAD). Many of us have to minimize high-histamine foods in our diet in order to limit MCAD problems. Antihistamines can help, but labeled doses are often not sufficient to treat an existing rash. Allergists prescribe up to 4 times the labeled dose of antihistamines to treat chronic urticaria issues, and it often takes several months or more to clear them up, especially if histamine sources in the diet are not adequately limited.
Here's some basic information about mast cells, and how mast cell issues are associated with microscopic colitis (and I can guarantee that your doctor will not be aware of this connection
):
What are mast cells?
How are mast cells associated with microscopic colitis?
How do I know if mast cells are causing problems for me?
How are mast cell issues treated?
You're very welcome,
Tex
Please be aware that many of us cannot tolerate the amount of fiber in brown rice so we have to use white rice instead. Rice Chex is GF and apparently made with white rice, so many of us use it. If you can handle the fiber in brown rice, then you're OK, but for many of us, brown rice (or too much fiber from any source) can prevent remission by continually irritating our colon. After we have been in remission for a while then we can handle a lot more fiber.
Yes, as your gut heals from the diet changes, your back and joint pain should fade away. The arthritis symptoms are caused by the leaky gut syndrome associated with MC. The rash is caused by histamine issues, known as mast cell activation disorder (MCAD). Many of us have to minimize high-histamine foods in our diet in order to limit MCAD problems. Antihistamines can help, but labeled doses are often not sufficient to treat an existing rash. Allergists prescribe up to 4 times the labeled dose of antihistamines to treat chronic urticaria issues, and it often takes several months or more to clear them up, especially if histamine sources in the diet are not adequately limited.
Here's some basic information about mast cells, and how mast cell issues are associated with microscopic colitis (and I can guarantee that your doctor will not be aware of this connection
):What are mast cells?
How are mast cells associated with microscopic colitis?
How do I know if mast cells are causing problems for me?
How are mast cell issues treated?
You're very welcome,
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.