Too much to wrap my head around

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Gabes-Apg
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Post by Gabes-Apg »

I buy the THorne P5P from iHerb - (as do many aussies who use P5P) cheapest way to get P5P.
Gabes Ryan

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Post by dhouts »

How does one bookmark this thread? This has been really interesting and I would like to be able to refer to it.
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heidiiiii5
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Post by heidiiiii5 »

Someone in the FB group told me to read a book called The Paleo Approach to Auto Immune disorder. I was poking around the internet and I found a list of foods I should avoid. Tell me if I am right.


Gluten (obviously)
nuts and seeds
eggs
Dairy
nightshades

This list will be added to what I already cannot eat because of the diabetes..All starches (bread, rice, pastas, potatoes), sugars in all forms, fruit, artifical sweeteners and soy. Yeah. That is a bit of a nightmare.


I do try to put a positive spin and think of all the foods I can eat.
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tex
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Post by tex »

Diana,

Look just above the posts, on the left edge, below the "new topic" and "post reply" buttons. Clicking on the words "Bookmark topic" will bookmark it. To access your bookmarks later, click on the "Bookmarks" link near the top of the page, just above the Potty People logo.

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Gabes-Apg
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Post by Gabes-Apg »

Heidi
i think in my first reply to you I provided a link to our 'guidelines to recovery' and in this area, is information about suggested eating plan etc..

http://www.perskyfarms.com/phpBB2/viewforum.php?f=79


many people here do a modified auto immune paleo... as each person can have different triggers issues, there is no one eating plan that works for all.
Gabes Ryan

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heidiiiii5
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Post by heidiiiii5 »

I am going to stick to the phase one list for now. I saw a histamine list on here and I got really discouraged. So many more foods to not eat.

I have seen all the recipes for chicken bone broth. Is there a link for a beef bone broth?

Am I to stay away from fish? Tuna? Shellfish?

I actually had a pretty good gut day today. Only a little bit of pain. I know that I cannot change everything all at once because it is too much to take in. One day at a time

Someone asked me if I could still consume goat or sheeps milk and their products. No dairy means all dairy? I haven't tried it but just asking out of curiosity.

Thank you for the help and responses. You are helping me cope with these changes immensely.
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Post by Gabes-Apg »

what foods to have and stay away from is up to each individual to figure out...

- seafood in one country can be different to seafood in another country etc
- what each person can access food wise changes from state to state, country to country.
availability, affordability, etc
each person has to figure out what works best for them.

be cautious of tinned / refrigerated satchels of seafood - they are high risk for additives (like vegetable oil )


so yes there is a bit of trial and error, but once you have your list of 'safe foods' it is a solid foundation to long term wellness.
the other thing we find (this is more stage two type area...)
most of us have ingredients that are safe staples- we can eat them every day no issues and then there are some ingredients that are sometimes foods, we can only have them 1-3 times a week. any more frequency than this and it can start to cause issues...


Bone broth - these instructions work for any type of bone broth
big pot - water - salt - bones from preferred meat source - slow boil for 3 hours
as soon as it is cool enough, freeze into small portions.

if you have time and inclination - you can bake the bones first (high temp in oven ) and then boil. This can increase mineral content of the bone broth.
Gabes Ryan

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Post by tex »

Heidi wrote:Someone asked me if I could still consume goat or sheeps milk and their products. No dairy means all dairy? I haven't tried it but just asking out of curiosity.
Virtually everyone who is sensitive to chicken eggs is able to safely eat eggs from ducks, turkeys, quail, etc. Duck eggs are available at many Farmer's Markets and in some supermarkets. This works because those birds are sufficiently genetically dissimilar to chickens.

But the genetics of sheep and goats are too similar to the genetics of cows, buffalo, bison, deer, etc. for their milk to be a safe substitute. The only safe substitutes for cow's milk is milk from cameloids (camels, guanacos, llamas, alpacas, and vicuñas) or equines (horses, zebras, asses, etc). Goat and sheep milk will not work because their milk contains enough of the same type of casein to cause us to react. That leaves nut milks as the only practical alternatives to cow's milk (for most of us). Most of us are able to safely use Almond Milk, Cashew milk, and Coconut milk. And many of us can tolerate Rice Milk and Hemp Milk.

Believe it or not, someone actually set up a camel dairy in Ramona, California, but I don't believe they were ever able to obtain a permit from the state to sell the milk for human consumption.

http://www.cameldairy.com/

If you ever travel to South America, you might be able to find alpaca and llama milk products in a few places in the Andes.

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Post by Janie »

I ate Turkey only for the first 2 weeks. I slowly added well cooked carrots to the turkey. I also made turkey bone broth in the crockpot. I worked up to squash, sweet potatoes, and broccoli. A month later I added almond milk to the list. I worked on getting my magnesium and vit d up to levels. That took about 6 months to feel better. Keep it simple for at least a couple of months. I couldn't handle rice, no matter how mushy I made it but now I can. I now adding more items, maintaining gluten and dairy free. I am slowly adding Vit B complex and some other supplements. I am working on the soy but it is sneaky. And egg free too.
I don't know if this helps you, Heidi but don't over think right now. My house isn't gluten free but no flour in the house and I have my own area of the kitchen.
Janie
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Post by JFR »

tex wrote:
Heidi wrote: Virtually everyone who is sensitive to chicken eggs is able to safely eat eggs from ducks, turkeys, quail, etc. Duck eggs are available at many Farmer's Markets and in some supermarkets. This works because those birds are sufficiently genetically dissimilar to chickens.
It may be true for virtually everyone but it wasn't true for me. I tried duck eggs. Within 24 hours I reacted and it was about 2 weeks before things returned to their previous state of remission.

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heidiiiii5
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Post by heidiiiii5 »

I do have a local source for duck eggs. I will give them a try but not right now. I have gravitated towards almond and cashew milk the past few years. I am glad to read that I can still have them.

I almost ate tomato today. It was on my fork (from kids plate of food) and I stopped myself and dropped it. It is going to take time.
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Post by jessica329 »

Welcome Heidiiiiii5,

I've searched high and low for an "eating plan" to follow, and finally figured out that I need to eat the foods that make me feel better. I do follow the guidelines here on the forum and on the foundation website
http://www.microscopiccolitisfoundation ... anges.html


I'm also in CT, btw :-)
Jessica
Lymphocytic colitis August 2012
heidiiiii5
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Post by heidiiiii5 »

Does anyone know how much it costs to send sample to Entero Lab?
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tex
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Post by tex »

Most members here seem to order the combination Panel A1 + C1 tests, which tests for the four most common food sensitivities, gluten, casein, soy, and eggs, plus 11 other antigenic foods for $539.00. But you can order various other combinations, or individual tests.

https://enterolab.com/StaticPages/TestI ... #PanelA1C1

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
heidiiiii5
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Post by heidiiiii5 »

I am still here. Navigating through all of this. Added more foods to the no list. I was getting really down about it. You stand there, hungry, but cannot find anything to eat. Then you have to make sure what you eat satietes you so your not dealing with the same dilemma hours later. I would become like an insolent child and eat whatever and then suffer in pain, or run to the bathroom midmeal. I really need to get a handle on it. I am getting there though.
What are your thoughts on intermittent fasting with a person with MC? Is it okay. Not okay. Do you have a post I can read about it?
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