Hi all, my name is David and im from Croatia.
All started a 5 months ago when I headed to wrok early in morning, i had few loose stools - i though ok..i eated a lot of fiber, it will be okay, but it wasnt....after that, trough the 3 weeks i developed gastritis - hopefully that is gone, i healed it by the food regime that works both for pains in lower abdomen and upper.
3months i fighted battle with urgent need to defecate, pain, and bloating, and i tryed to go Gluten free, dairy free, and sugar free-that helped alot.
Then i got appointment for colonoscopy, results are that i have perfectly healty big intestine by look, but 3 byopsies from terminal illeum showing some slight inflammation here is what its writed from pathologist:
Histological into 2/3 pieces of medium abundant chronic inflammed infiltrate the lamina propria with hyperintensity bleeding in the folds. In the one of pieces there are increased, unclear limited solitary limphatic follicles visible centers of germination. Below alignes superficial epithel there are granulomas from lymphocytes, eosinophils,, plasma, stations and histiocytes. Foldes are broken partially so that ratio is 3:1 -2:1.
I got mild symptoms.
I got budenosid 3x1 - feeling better on it , but my stomach hurts from it, need to visit him again, and GI specialist said that i got slightly inflammation - got diet wich consitis of dry bread...
My doctor thinks i have chron disease - beside i told her i have non bloody diarrhea,
I have/had max to 3-4 loose stools- thats it, now when im GF 40days and on budenosid 3 weeks i got max 2 stools a day.
If anyone of you have some advice about suplemmentation,probiotics species, and diet please do tell, i want to feel more better.
Thanks, this forum is full of precious information.
21 year old male in need for few info
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
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UkuleleLady
- Gentoo Penguin
- Posts: 383
- Joined: Sun Jun 23, 2013 4:45 pm
- Location: Texas
Hi David,
What worked for me was, to stay on the budesonide as long as i could, to lower the inflammation.
Also what worked best in terms of diet was a diet high in meat protein (think turkey sausage for breakfast, plain burger for lunch, pork chop for dinner), supplemented with potatoes and very cooked green vegetables (green beans, chard, collards). Fruit and raw veggies didn't work for me.
I found I couldn't eat dairy, eggs, gluten at all when I was ill.
Recovery was slow but I did see steady improvement. I am still gluten, egg and mostly dairy free at this point and doing very well, almost no symptoms at this point (2-3 years later?)
Find a way to deal with stress or negative emotions; meditate, practice affirmations <<<<< this is VERY important.
Supplement with vitamin D and magnesium in a form you can tolerate.
I hope this helps. Be kind to yourself, baby yourself. Don't let the bastards drag you down.
I doubt you have crohn's, but I'm not a doctor.
Nancy
What worked for me was, to stay on the budesonide as long as i could, to lower the inflammation.
Also what worked best in terms of diet was a diet high in meat protein (think turkey sausage for breakfast, plain burger for lunch, pork chop for dinner), supplemented with potatoes and very cooked green vegetables (green beans, chard, collards). Fruit and raw veggies didn't work for me.
I found I couldn't eat dairy, eggs, gluten at all when I was ill.
Recovery was slow but I did see steady improvement. I am still gluten, egg and mostly dairy free at this point and doing very well, almost no symptoms at this point (2-3 years later?)
Find a way to deal with stress or negative emotions; meditate, practice affirmations <<<<< this is VERY important.
Supplement with vitamin D and magnesium in a form you can tolerate.
I hope this helps. Be kind to yourself, baby yourself. Don't let the bastards drag you down.
I doubt you have crohn's, but I'm not a doctor.
Nancy
If you want others to be happy, practice compassion. If you want to be happy, practice compassion. ~The Dalai Lama
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Gabes-Apg
- Emperor Penguin
- Posts: 8332
- Joined: Mon Dec 21, 2009 3:12 pm
- Location: Hunter Valley NSW Australia
Hi David
welcome - and sympathies that you had to find us
Nancy has made great suggestions above.
we do have some members that have both Crohns and MC. Long story short- the eating plan, lifestyle changes and supplements suggested here will help all IBD's. we recommend a low inflammation, gut healing protocol.
Others here that are similar age to you, tend to heal quicker and can expand their eating plan once there has been good healing. Although they may have to avoid Gluten etc as a life long habit,
we have a guidelines to recovery that has suggested eating plan, this is the best way to optimise healing for the body
http://www.perskyfarms.com/phpBB2/viewforum.php?f=79
supplement wise, good quality Vit D3 and magnesium are the essentials in the early stage of healing.
next priority is good quality active forms of B Group
the members success stories area is another good resource - you will see what others have done etc
http://www.perskyfarms.com/phpBB2/viewforum.php?f=71
happy healing
welcome - and sympathies that you had to find us
Nancy has made great suggestions above.
we do have some members that have both Crohns and MC. Long story short- the eating plan, lifestyle changes and supplements suggested here will help all IBD's. we recommend a low inflammation, gut healing protocol.
Others here that are similar age to you, tend to heal quicker and can expand their eating plan once there has been good healing. Although they may have to avoid Gluten etc as a life long habit,
we have a guidelines to recovery that has suggested eating plan, this is the best way to optimise healing for the body
http://www.perskyfarms.com/phpBB2/viewforum.php?f=79
supplement wise, good quality Vit D3 and magnesium are the essentials in the early stage of healing.
next priority is good quality active forms of B Group
the members success stories area is another good resource - you will see what others have done etc
http://www.perskyfarms.com/phpBB2/viewforum.php?f=71
happy healing
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
Hi David,
I'm not an expert on how to heal, although there are many on this forum and it would be wise to take their advice seriously. I have, and I've made a lot of progress as a result. But I can offer a bit of general wisdom that helped me through. You are a young man, and I am a relatively young man, too. I think that made things scarier for me - sickness is supposed to come when you get older, right? I have my whole life ahead of me - will I lose it all because I am sick? Don't ask yourself those questions, or try to answer them. It will only cause you unneeded stress, which will make things worse. Trust in the truth: you can't see it now, but things will improve, even if not to the level of health that you were at before. But I can promise you this: the sooner you get that stress out of your life, the sooner you will feel better. And when you do feel better, you'll realize that in an unexpected way, you are a better person for having dealt with the challenge of your illness. The illness will teach you what is important in life, and to focus on it. It will teach you to listen to your body, and to treat it right. And -- most important to me -- it will teach you that you can overcome anything, and all other challenges in your life (and there will be many, as you are a young man and have a whole life to enjoy) can be overcome.
You aren't alone and groups like this are blessings. Let us know if you have questions. I'm no expert, but the kind souls that frequent this site are experts, and are graciously willing to help. You will be ok!
I'm not an expert on how to heal, although there are many on this forum and it would be wise to take their advice seriously. I have, and I've made a lot of progress as a result. But I can offer a bit of general wisdom that helped me through. You are a young man, and I am a relatively young man, too. I think that made things scarier for me - sickness is supposed to come when you get older, right? I have my whole life ahead of me - will I lose it all because I am sick? Don't ask yourself those questions, or try to answer them. It will only cause you unneeded stress, which will make things worse. Trust in the truth: you can't see it now, but things will improve, even if not to the level of health that you were at before. But I can promise you this: the sooner you get that stress out of your life, the sooner you will feel better. And when you do feel better, you'll realize that in an unexpected way, you are a better person for having dealt with the challenge of your illness. The illness will teach you what is important in life, and to focus on it. It will teach you to listen to your body, and to treat it right. And -- most important to me -- it will teach you that you can overcome anything, and all other challenges in your life (and there will be many, as you are a young man and have a whole life to enjoy) can be overcome.
You aren't alone and groups like this are blessings. Let us know if you have questions. I'm no expert, but the kind souls that frequent this site are experts, and are graciously willing to help. You will be ok!
Are you still and how long in budesonid? Its my 16 day on it, and i feel tired, fatigued, low on concentrating, tomorrow going to see my GI,UkuleleLady wrote:Hi David,
What worked for me was, to stay on the budesonide as long as i could, to lower the inflammation.
Also what worked best in terms of diet was a diet high in meat protein (think turkey sausage for breakfast, plain burger for lunch, pork chop for dinner), supplemented with potatoes and very cooked green vegetables (green beans, chard, collards). Fruit and raw veggies didn't work for me.
I found I couldn't eat dairy, eggs, gluten at all when I was ill.
Recovery was slow but I did see steady improvement. I am still gluten, egg and mostly dairy free at this point and doing very well, almost no symptoms at this point (2-3 years later?)
Find a way to deal with stress or negative emotions; meditate, practice affirmations <<<<< this is VERY important.
Supplement with vitamin D and magnesium in a form you can tolerate.
I hope this helps. Be kind to yourself, baby yourself. Don't let the bastards drag you down.
I doubt you have crohn's, but I'm not a doctor.
Nancy
Done blood work glucise and GUGT, complete blood screen is ok, does that mean i have good apsorbtion of nutritients?
I need to done CT in future,
I eat eggs, i found no symotoms of flare, also i eat rice in morning, lunch, liw fiber and i blend it( spinach, sweet potato, carrot etc)
Also low glycemic index fruit i found ok.
Its like mix of paleo, scd and liw fodmap.
Also discivering what other groceries works ok with my gut!:)
Thanks man, i appreciate this.bttory wrote:Hi David,
I'm not an expert on how to heal, although there are many on this forum and it would be wise to take their advice seriously. I have, and I've made a lot of progress as a result. But I can offer a bit of general wisdom that helped me through. You are a young man, and I am a relatively young man, too. I think that made things scarier for me - sickness is supposed to come when you get older, right? I have my whole life ahead of me - will I lose it all because I am sick? Don't ask yourself those questions, or try to answer them. It will only cause you unneeded stress, which will make things worse. Trust in the truth: you can't see it now, but things will improve, even if not to the level of health that you were at before. But I can promise you this: the sooner you get that stress out of your life, the sooner you will feel better. And when you do feel better, you'll realize that in an unexpected way, you are a better person for having dealt with the challenge of your illness. The illness will teach you what is important in life, and to focus on it. It will teach you to listen to your body, and to treat it right. And -- most important to me -- it will teach you that you can overcome anything, and all other challenges in your life (and there will be many, as you are a young man and have a whole life to enjoy) can be overcome.
You aren't alone and groups like this are blessings. Let us know if you have questions. I'm no expert, but the kind souls that frequent this site are experts, and are graciously willing to help. You will be ok!
Hello David,
Welcome to our Internet family. You have already received some excellent advice. We have found that for any type of inflammatory bowel disease the symptoms can be controlled, and in many cases the disease can be put into remission, by avoiding certain foods that cause our immune system to produce antibodies that promote inflammation. By avoiding those foods at all times, our digestive system slowly heals, and our symptoms go away.
I am not convinced that you have Crohn's disease, based on what you posted about your pathology report. Did the report include information on any biopsy samples taken from your colon?
It is possible that you may have Crohn's disease, but the presence of eosinophils in biopsy samples from your terminal ileum suggests that you might have eosinophilic colitis. Eosinophilic colitis is not well understood and your doctors may not have even considered it when they examined your biopsy samples.
Besides the colonoscopy, did you also have an upper endoscopy that included biopsy samples taken from your esophagus or your stomach? If you did, and the pathology report showed increased numbers of eosinophils, that would indicate eosinophilic esophagitis and it would also suggest that you might have eosinophilic colitis. Here are links to a couple of research articles about eosinophilic colitis:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3165205/
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3152953/
I am not a doctor, and I do not have access to your records, so I can only guess based on what you have posted, but if you have eosinophilic colitis then budesonide should help. However, if budesonide causes unpleasant side effects, the disease can also be treated with antihistamines or mast cell stabilizers, such as cromolyn sodium. It should also help to avoid high-histamine foods as much as possible. Examples of high-histamine foods include fermented foods, smoked foods, dried or very ripe fruits, chicken or fish that have been stored in the refrigerator for several days, and other "aged" foods. Fresh or frozen foods have much lower histamine levels.
Following these guidelines and the diet suggestions made by others here, will treat any inflammatory bowel disease. So regardless of what type of IBD you may actually have, these diet suggestions should help to heal your digestive system so that your symptoms will be controlled.
Also, did your doctors test you for parasites? Eosinophils are used by the immune system to fight parasites.
I hope that some of this is helpful.
Tex
Welcome to our Internet family. You have already received some excellent advice. We have found that for any type of inflammatory bowel disease the symptoms can be controlled, and in many cases the disease can be put into remission, by avoiding certain foods that cause our immune system to produce antibodies that promote inflammation. By avoiding those foods at all times, our digestive system slowly heals, and our symptoms go away.
I am not convinced that you have Crohn's disease, based on what you posted about your pathology report. Did the report include information on any biopsy samples taken from your colon?
It is possible that you may have Crohn's disease, but the presence of eosinophils in biopsy samples from your terminal ileum suggests that you might have eosinophilic colitis. Eosinophilic colitis is not well understood and your doctors may not have even considered it when they examined your biopsy samples.
Besides the colonoscopy, did you also have an upper endoscopy that included biopsy samples taken from your esophagus or your stomach? If you did, and the pathology report showed increased numbers of eosinophils, that would indicate eosinophilic esophagitis and it would also suggest that you might have eosinophilic colitis. Here are links to a couple of research articles about eosinophilic colitis:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3165205/
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3152953/
I am not a doctor, and I do not have access to your records, so I can only guess based on what you have posted, but if you have eosinophilic colitis then budesonide should help. However, if budesonide causes unpleasant side effects, the disease can also be treated with antihistamines or mast cell stabilizers, such as cromolyn sodium. It should also help to avoid high-histamine foods as much as possible. Examples of high-histamine foods include fermented foods, smoked foods, dried or very ripe fruits, chicken or fish that have been stored in the refrigerator for several days, and other "aged" foods. Fresh or frozen foods have much lower histamine levels.
Following these guidelines and the diet suggestions made by others here, will treat any inflammatory bowel disease. So regardless of what type of IBD you may actually have, these diet suggestions should help to heal your digestive system so that your symptoms will be controlled.
Also, did your doctors test you for parasites? Eosinophils are used by the immune system to fight parasites.
I hope that some of this is helpful.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Yes i did done and gastroscopy(upper endoscopy) it says:tex wrote:Hello David,
Welcome to our Internet family. You have already received some excellent advice. We have found that for any type of inflammatory bowel disease the symptoms can be controlled, and in many cases the disease can be put into remission, by avoiding certain foods that cause our immune system to produce antibodies that promote inflammation. By avoiding those foods at all times, our digestive system slowly heals, and our symptoms go away.
I am not convinced that you have Crohn's disease, based on what you posted about your pathology report. Did the report include information on any biopsy samples taken from your colon?
It is possible that you may have Crohn's disease, but the presence of eosinophils in biopsy samples from your terminal ileum suggests that you might have eosinophilic colitis. Eosinophilic colitis is not well understood and your doctors may not have even considered it when they examined your biopsy samples.
Besides the colonoscopy, did you also have an upper endoscopy that included biopsy samples taken from your esophagus or your stomach? If you did, and the pathology report showed increased numbers of eosinophils, that would indicate eosinophilic esophagitis and it would also suggest that you might have eosinophilic colitis. Here are links to a couple of research articles about eosinophilic colitis:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3165205/
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3152953/
I am not a doctor, and I do not have access to your records, so I can only guess based on what you have posted, but if you have eosinophilic colitis then budesonide should help. However, if budesonide causes unpleasant side effects, the disease can also be treated with antihistamines or mast cell stabilizers, such as cromolyn sodium. It should also help to avoid high-histamine foods as much as possible. Examples of high-histamine foods include fermented foods, smoked foods, dried or very ripe fruits, chicken or fish that have been stored in the refrigerator for several days, and other "aged" foods. Fresh or frozen foods have much lower histamine levels.
Following these guidelines and the diet suggestions made by others here, will treat any inflammatory bowel disease. So regardless of what type of IBD you may actually have, these diet suggestions should help to heal your digestive system so that your symptoms will be controlled.
Also, did your doctors test you for parasites? Eosinophils are used by the immune system to fight parasites.
I hope that some of this is helpful.
Tex
Held areas, the appropriate relationship villi and crypts, the epithelium shows reperatorno regenerative changes, lamina propria threaten the edematous, imbued with chronic inflammatory infiltrate areas with extravasation of erythrocytes and more dilated stagnated capillaries
Byiopsies are taken fromsmall intestine.
How to test for histamine intolerrance?
Yes i eat sometimes frozen fish and chicken, but nothing else.
i must admit that 2 weeks ago when i got the results of biopsy i was on egde really,i was lost, docs didnt told me nothing more about my condition, just "here`s your tablets", then he gave me some diet with apples and bread..i though wtf really? I was getting 40%better when i throw away bread...
They gave me and modulen ibd which also contains some sugars and casein, i drink it sometimes, im testing it, to see how it affects my bm.
Also my regular doc. gave me ppi tablets for my stomach pain....thats for acid, i dont have problems with acid i told, its pain from corticosteroids, hopefully its getting better from itself since i take it wiht meal...:))
Im really realive when found this forum, and im full of hope and entusiasm for me and all people here on forum to feel much much better in closer future!
Thank you so much! God bless!
They gave me and modulen ibd which also contains some sugars and casein, i drink it sometimes, im testing it, to see how it affects my bm.
Also my regular doc. gave me ppi tablets for my stomach pain....thats for acid, i dont have problems with acid i told, its pain from corticosteroids, hopefully its getting better from itself since i take it wiht meal...:))
Im really realive when found this forum, and im full of hope and entusiasm for me and all people here on forum to feel much much better in closer future!
Thank you so much! God bless!
David wrote:Held areas, the appropriate relationship villi and crypts, the epithelium shows reperatorno regenerative changes, lamina propria threaten the edematous, imbued with chronic inflammatory infiltrate areas with extravasation of erythrocytes and more dilated stagnated capillaries
That indicates much continuing (chronic) inflammation and swelling, but it's not clear what the cause of the inflammation might be because the types of lymphocytes and their population densities (counts) are not specified. If the villi are not damaged, that rules out celiac disease. If the crypts are normal, that rules out Crohn's disease unless it is in a very early stage.
There is no way to test for histamine levels, but there is an indirect test. When mast cells or basophils are activated, they release histamine. Mast cells also release tryptase enzyme when they release histamine. There is a test to measure the amount of tryptase enzyme in the blood. About 2 hours after large amounts of histamine are released, the tryptase level in the blood will peak, and after that the level declines relatively rapidly. If a blood test shows a higher than normal tryptase level, that indicates mast cell activation disorder (MCAD). But if the blood draw is made too soon or too late, the test result will be normal.
Many of us have MCAD secondary to MC. But I doubt that you have it because you would probably be complaining of itching and rashes if you had MCAD. If you have MCAD, within a few minutes after beginning to eat, you should notice itching and maybe a rash on your face, or your chest, or maybe your arms. Or you might notice a facial or chest flush (redness and a feeling of warmth). Or you might notice throat congestion or watery eyes soon after you begin to eat. Or several hours after eating you might notice one or more red, itchy bumps or weals somewhere on your body, but the bumps can also appear a day or two later. If you don't notice any of those symptoms, you probably do not have a problem with too much histamine.
Taking a ppi is very risky. They are known to cause microscopic colitis, osteoporosis, magnesium deficiency, C. diff infections, acid reflux/GERD, kidney damage, addiction/dependence and other problems. It should be illegal to prescribe them, in my opinion.
I still wonder what is causing all the inflammation. Maybe your doctors need to do more complete testing for parasites. Were you taking any medications or supplements or herbs before your symptoms began?
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Hmm..how long before symptoms? I did not before symotoms, it just came one morning, and i was in emergency week after and had been told that l got gastritis.
I feel something similar what you described, i feel sometimes like on surface on skin on my upper abdomen little painy areas when i slightly touch it, cant perfectly describe it, i it started when i started taking budosan, first on empty stomach and now on full and there less pain.
Should i be worried about this chronic inflammation in small intestine, could this be healed, he gave me ppi for that, and was better.
I feel something similar what you described, i feel sometimes like on surface on skin on my upper abdomen little painy areas when i slightly touch it, cant perfectly describe it, i it started when i started taking budosan, first on empty stomach and now on full and there less pain.
Should i be worried about this chronic inflammation in small intestine, could this be healed, he gave me ppi for that, and was better.
If the inflammation started with gastritis then parasites are probably not the problem. Gastritis can be caused by Helicobacter pylori bacteria, large amounts of alcohol, anti-inflammatory medications (NSAIDs) such as aspirin, or stress. If your doctors did stool cultures then they probably checked to make sure that you do not have an H. pylori bacteria infection.
Some people develop gastritis after using NSAIDs for years, but some cases develop after only a few weeks of use.
Gastritis can also be caused by anemia. Anemia causes a vitamin B-12 deficiency, and a vitamin B-12 deficiency can cause muscle twitches or unusual pain areas on the skin. Your doctors probably tested your iron level (ferritin). If ferritin is low, that indicates iron-deficiency anemia. They also surely did a complete blood count. Were your test results for hemoglobin and hematocrit normal, or were they low?
When the small intestine is inflamed (enteritis), digestion becomes more difficult because the small intestine cannot produce normal amounts of some of the enzymes needed to digest food, especially carbohydrates. This causes malabsorption of nutrients.
PPIs will not help to heal the small intestine. They only affect the stomach — they prevent the stomach from producing normal amounts of stomach acid. But this can cause other problems, because we need stomach acid to help digest food and to kill any bacteria that might be in food.
Did you travel out of the country before your symptoms began? Usually, parasites are not a common problem as long as we are at home. But if we travel out of the country we can be exposed to different types of parasites (or bacteria) in different parts of the world. And we may have no resistance to parasites or bacteria found in other parts of the world.
Tex
Some people develop gastritis after using NSAIDs for years, but some cases develop after only a few weeks of use.
Gastritis can also be caused by anemia. Anemia causes a vitamin B-12 deficiency, and a vitamin B-12 deficiency can cause muscle twitches or unusual pain areas on the skin. Your doctors probably tested your iron level (ferritin). If ferritin is low, that indicates iron-deficiency anemia. They also surely did a complete blood count. Were your test results for hemoglobin and hematocrit normal, or were they low?
When the small intestine is inflamed (enteritis), digestion becomes more difficult because the small intestine cannot produce normal amounts of some of the enzymes needed to digest food, especially carbohydrates. This causes malabsorption of nutrients.
PPIs will not help to heal the small intestine. They only affect the stomach — they prevent the stomach from producing normal amounts of stomach acid. But this can cause other problems, because we need stomach acid to help digest food and to kill any bacteria that might be in food.
Did you travel out of the country before your symptoms began? Usually, parasites are not a common problem as long as we are at home. But if we travel out of the country we can be exposed to different types of parasites (or bacteria) in different parts of the world. And we may have no resistance to parasites or bacteria found in other parts of the world.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
That means that they ruled out bacteria as a cause of the inflammation and they don't know what is causing the inflammation. Non-specific colitis can be microscopic colitis, in some cases.David wrote:And pato-anatomy dg. says non infective gastroenteritis and colitis non specified
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.