Corn allergy hell

Gabes-Apg · Post by **Gabes-Apg** » Tue Jan 24, 2017 5:49 pm

Stacey
I think there is a combo of reasons the meds didnt work for him
- deficient in Vit D3 and magnesium
- not on the right eating plan ie high fructose and too much fibre with the almonds etc
- MS med
- corn

for some of us with multiple health issues, we can remove ALL our triggers 100%. We remove as many as we can, we minimise the rest.
with good levels of Vit D3 and magnesium, our body can handle the small exposure to the ones we cant remove totally

so far as getting meds as transdermal form, do you mean MC type meds? I dont believe you can.
your best option is getting them compounded so they are totally free of dairy and corn.

Post by **tex** » Tue Jan 24, 2017 11:04 pm

Stacy,

You're right of course — it's been so long since I had to avoid corn that I forgot that those 2 ingredients may be derived from corn. My bad.

Stacy wrote:and maybe they would if we could them in a transdermal form.

I agree with Gabes, the anti-inflammatory meds used to treat IBDs, are not going to be available in a patch. Nicotine patches are available for treating UC, but that's the only one, and nicotine doesn't help to treat the other IBDs.

But compounding is definitely an option (other members here have gone that route for the same reason), and compounded budesonide costs only a small fraction of the price of conventional formulations in the U. S.

Tex

brandy · Post by **brandy** » Tue Jan 24, 2017 11:44 pm

About myelin peptide skin patches for MS. Not sure if these are available or even applicable for your husbands situation.

https://www.ncbi.nlm.nih.gov/pubmed/23817921

http://www.medscape.com/viewarticle/808582

http://mymsaa.org/publications/msresearch-update-2015/ scroll down for patch discussion

It looks like patch not yet available as far as I could tell. Study was small on 30 patients. Decent results and patch was "well tolerated."

StaceyB · Post by **StaceyB** » Wed Jan 25, 2017 6:18 pm

Thank you, everyone. This was his worst flare yet and because of your recommendations, it has subsided.
He is up and about and doing well. His color has returned and he is eating. The bone broth suggestion was fantastic. I made turkey rice meatballs and almost immediately the rumblings odd lower gut feelings stopped. He got the vitamin patches and plans to try them tomorrow. He still wants to eat donuts, but hopefully when he sees how much better he can feel, he will change his mind.

Brandy, wow, this is awesome about the myelin peptide patches. I had not heard of them. I was following the anti-lingo clinical trials, but they have been going on so long I stopped.

Gabes-Apg · Post by **Gabes-Apg** » Wed Jan 25, 2017 6:24 pm

Stacey
wonderful wonderful news.

Glad things like the bone broth is helping.
there will be time in the future for gluten free donuts and other treats, but it would be really good if he can stick with the bland turkey, rice on home made bone broth eating plan for a couple of months. that with the patches etc, you are optimising healing.

StaceyB · Post by **StaceyB** » Fri Jan 27, 2017 7:27 pm

Thanks, Gabes! The turn-around has been so dramatic, that he is making plans to see friends again. I'm hoping that inspires him to stick with safe eating so he can go into a good remission again.

Gabes-Apg · Post by **Gabes-Apg** » Fri Jan 27, 2017 7:45 pm

the rate of improvement is a great sign!

pretty much most MC'ers will test the waters, try gluten again or eat something shouldnt, the reminder of messy urgent WD is generally enough to convince you it is not worth it. He has to find his own boundaries with this stuff, along with the eating plan, the supps there is the mental and emotional aspects of living with these life long health issues.
best thing to do, dont have any risky items in the house.

with this level of improvement with the other triggers gone, and reduced inflammation I think he will cope with the small amount of corn in the meds if compounding is expensive.
and maybe that is the thing to discuss together - sticking with the bland diet, means more money for other things. not sticking with bland diet, having to do compounded meds etc will impact the budget.

re the mental and emotional aspects here are some resources that have helped others
http://www.perskyfarms.com/phpBB2/viewtopic.php?t=22350

I know we've all been there... we make plans but are too sick to keep them. We dread having to tell others that we are sick and can't make it. We worry about their perceptions of us. Will they stop asking us to do things? Sometimes we feel alone and isolated.

This book titled "How To Live Well With Chronic Pain and Illness" was written by a high achieving type-A woman who found herself suddenly ill with a debilitating illness. The first chapter is: Skills to Help with Each Day- Educating Family and Friends About Chronic Pain and Illness. Next: Letting Go- the Not-To-Do-List for the Chronically ill. And it goes on from there- covering how to let go and how to recognize when to ask your loved ones for help with things, etc. See the link below to see more.

I found this book very relevant and very helpful. I gave a copy to a friend of mine who is now struggling with a long list of autoimmune diseases. She found it immensely helpful and accurate. It expressed her feelings when she couldn't. It helps you see that it's okay to accept your limitations. ( I attached a link to Amazon below so you could see a picture of the book, but I'm not promoting Amazon. Just sayin'.) I felt this book was well worth sharing.

https://www.amazon.com/Live-Well-Chroni ... nd+illness

if he hesitates at this approach, audiobooks or podcasts that you are interested in, play them while you are in the kitchen preparing meals, doing chores around the house. even if he is in another room, he may hear some of it and subconsciously get benefit.

In our current social environment where there is huge focus on achievement, 'beating cancer' or 'climbing everest' it can seem weak to accept and embrace that we have chronic health conditions. what i have learnt is that embracing what is, going with the flow with it rather than trying to beat it or bury it, makes life way way easier!

crervin · Post by **crervin** » Fri Jan 27, 2017 10:11 pm

Stacey, I have been following your post and this put a smile on my face! I am so glad your husband is feeling better. This website is life changing! I'm so thankful for everyone on here!

You take care and tell your husband everyone is rooting for him, so he needs to stay away from those doughnuts

....