That's too bad!!!! Well, will try another fish soon.Laine
Need to vent
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
This is so good to hear you are doing better! Hoping your heart rate gets better, mine did that while I was on antibiotics for a UTI. Mine was due to magnesium deficiency, I'm almost definite! I have a feeling yours will get better too!! You take care and soak those feet
...
...Martha E.
Philippians 4:13
Jul 2008 took Clindamycin for a Sinus infection that forever changed my life
Dec 2014 MC Dx
Jul 15, 2015 Elimination Diet
Aug 17, 2015 Enterolab Test
Dec 2015 Reflux
Sept 2016 IC
Philippians 4:13
Jul 2008 took Clindamycin for a Sinus infection that forever changed my life
Dec 2014 MC Dx
Jul 15, 2015 Elimination Diet
Aug 17, 2015 Enterolab Test
Dec 2015 Reflux
Sept 2016 IC
Laine,
Magnesium deficiency and heart issues can be very closely related. When my magnesium became critically low a couple of years ago, it definitely messed with my sleep. It eventually got to the point where I hated to go to bed just so I could go through the whole routine again, but as we all know, sleep is essential.
I would wake up during the night with my heart doing about 110–115 bpm. I would typically need to get up 1–3 times during the night to empty my bladder (normally, I never have to get up during the night), and I would often have leg cramps which I attributed to dehydration. I thought at the time that I might be developing diabetes. Sometimes I wondered if I might be having a heart attack because my breathing would be relatively rapid and shallow, and I couldn't take a deep breath. When I would check my BP first thing in the morning, it would be low (occasionally my systolic pressure would be below 90 mmHg). But as I became rehydrated during the day, my systolic BP would climb to way above normal, in the 140–180 mmHg range (chronic magnesium deficiency typically causes hypertension, but dehydration obviously can temporarily trump the hypertension symptoms). On some days my resting heart rate would remain in the 95–110 range all day (at least whenever I checked it).
For reference, these days my systolic BP typically runs in the 110–115 mmHg range with occasional excursions above or below that range. And I'm not taking any BP meds. Before I corrected my magnesium deficiency I was taking lisinopril (for 5 or 6 years) as stroke insurance. But if I take it now, my systolic BP is consistently too low (usually below 100, sometimes below 90 mmHg), so I stopped taking it.
Has the ReMag brought your heart rate down? It's potent stuff, but unfortunately some of us cannot tolerate it.
Regarding the mahi mahi, protein shouldn't affect stool consistency unless it provokes an immune system response. However, the way it's cooked and served matters. IOW if you put any kind of sauce on it or fried it in an oil that your immune system doesn't particularly like, that might have caused the difference.
If'/when you're able to wean off the cholestyramine you'll probably be able to reduce your vitamin D and magnesium losses so you may eventually be able to lower your supplementation rates.
Your test results should be illuminating.
Tex
Magnesium deficiency and heart issues can be very closely related. When my magnesium became critically low a couple of years ago, it definitely messed with my sleep. It eventually got to the point where I hated to go to bed just so I could go through the whole routine again, but as we all know, sleep is essential.
I would wake up during the night with my heart doing about 110–115 bpm. I would typically need to get up 1–3 times during the night to empty my bladder (normally, I never have to get up during the night), and I would often have leg cramps which I attributed to dehydration. I thought at the time that I might be developing diabetes. Sometimes I wondered if I might be having a heart attack because my breathing would be relatively rapid and shallow, and I couldn't take a deep breath. When I would check my BP first thing in the morning, it would be low (occasionally my systolic pressure would be below 90 mmHg). But as I became rehydrated during the day, my systolic BP would climb to way above normal, in the 140–180 mmHg range (chronic magnesium deficiency typically causes hypertension, but dehydration obviously can temporarily trump the hypertension symptoms). On some days my resting heart rate would remain in the 95–110 range all day (at least whenever I checked it).
For reference, these days my systolic BP typically runs in the 110–115 mmHg range with occasional excursions above or below that range. And I'm not taking any BP meds. Before I corrected my magnesium deficiency I was taking lisinopril (for 5 or 6 years) as stroke insurance. But if I take it now, my systolic BP is consistently too low (usually below 100, sometimes below 90 mmHg), so I stopped taking it.
Has the ReMag brought your heart rate down? It's potent stuff, but unfortunately some of us cannot tolerate it.
Regarding the mahi mahi, protein shouldn't affect stool consistency unless it provokes an immune system response. However, the way it's cooked and served matters. IOW if you put any kind of sauce on it or fried it in an oil that your immune system doesn't particularly like, that might have caused the difference.
If'/when you're able to wean off the cholestyramine you'll probably be able to reduce your vitamin D and magnesium losses so you may eventually be able to lower your supplementation rates.
Your test results should be illuminating.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Cooked the mahi mahi in coconut oil, no sauce.. felt very slight rumbles each night afterwards but no big deal I thought. I think it is a big deal actually!! Will settle this weekend and try another fish next week. Anyone with experience with shrimp, crab, lobster??? Wondering what to try next.
I'm sure a lot of this is magnesium related, just wish this would start resolving..I need to get some sleep. And like you said Tex, I almost dread lying down in bed to just get 3 hours of interrupted sleep maybe!! And that's a maybe...3 hours might be an optimistic guess.
I'm ran out of elk so a friend brought over more elk and antelope for me last night. Easy to hunt this stuff in Colorado...lucky I have friends that hunt (late hubby did). I figure the antelope will probably be ok...
Was supposed to have a colonoscopy next Tuesday, cancelled that until I feel better and am getting more sleep! Think that was a good call with what is going on with this heart rate thing.
Y'all have a good weekend.
Laine
I'm sure a lot of this is magnesium related, just wish this would start resolving..I need to get some sleep. And like you said Tex, I almost dread lying down in bed to just get 3 hours of interrupted sleep maybe!! And that's a maybe...3 hours might be an optimistic guess.
I'm ran out of elk so a friend brought over more elk and antelope for me last night. Easy to hunt this stuff in Colorado...lucky I have friends that hunt (late hubby did). I figure the antelope will probably be ok...
Was supposed to have a colonoscopy next Tuesday, cancelled that until I feel better and am getting more sleep! Think that was a good call with what is going on with this heart rate thing.
Y'all have a good weekend.
Laine
"Do what you can, with what you have, where you are"-Teddy Roosevelt
Yes, rumbles are a bad sign because they're uniquely associated with an MC reaction or flare.
Unless we're otherwise allergic to shellfish, as far as I'm aware (based on most of the posts about them that I've seen) most of us seem to tolerate them well.
Colorado is definitely a good place to be if you need meat from wild game. And yes, the antelope should be MC-safe.
I agree that rescheduling a colonoscopy until after you've resolved any symptoms that might be heart-related is a good idea.
An RBC (red blood cell) magnesium blood test would provide a reasonably accurate and reliable way to check your magnesium level, but you would need to skip any magnesium supplements prior to the blood draw on the day of the draw. The RBC magnesium test isn't perfect, but it's much more reliable than the serum magnesium test. The serum test is pretty much worthless, and it's the one that most docs order. I can't recall if you've had a recent RBC magnesium test or not.
Thanks, and I hope that you have an enjoyable weekend too.
Tex
Unless we're otherwise allergic to shellfish, as far as I'm aware (based on most of the posts about them that I've seen) most of us seem to tolerate them well.
Colorado is definitely a good place to be if you need meat from wild game. And yes, the antelope should be MC-safe.
I agree that rescheduling a colonoscopy until after you've resolved any symptoms that might be heart-related is a good idea.
An RBC (red blood cell) magnesium blood test would provide a reasonably accurate and reliable way to check your magnesium level, but you would need to skip any magnesium supplements prior to the blood draw on the day of the draw. The RBC magnesium test isn't perfect, but it's much more reliable than the serum magnesium test. The serum test is pretty much worthless, and it's the one that most docs order. I can't recall if you've had a recent RBC magnesium test or not.
Thanks, and I hope that you have an enjoyable weekend too.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
-
Gabes-Apg
- Emperor Penguin
- Posts: 8332
- Joined: Mon Dec 21, 2009 3:12 pm
- Location: Hunter Valley NSW Australia
Laine
while you are so inflammed, having any new food will cause some symptoms to your gut.
when having new food items, we encourage people to have small amounts first off, (no more than 1/2 a cup) wait 24 hours, have another small amount.
wait 24 hours then have another small serve, if after the 3rd day there are no symptoms that food item is a keeper.
like when you migrate babies from milk to gooey solids, you give small amounts, and the poop always reacts.
re the heart rate, I would take the oral magnesium really slow.
lean towards topical application/use (epsom salt foot soaks, or mixing the remag with some demineralised water and applying it topically)
you have been trying to digest (pun intended) lots of info these past weeks, and you are super motivated to get well. breathe, relax and take small steps.
getting well is like a marathon, we have to pace ourselves for the long term journey. Sadly there is no quick fix in MC world... (pretty sucky i know)
while you are so inflammed, having any new food will cause some symptoms to your gut.
when having new food items, we encourage people to have small amounts first off, (no more than 1/2 a cup) wait 24 hours, have another small amount.
wait 24 hours then have another small serve, if after the 3rd day there are no symptoms that food item is a keeper.
like when you migrate babies from milk to gooey solids, you give small amounts, and the poop always reacts.
re the heart rate, I would take the oral magnesium really slow.
lean towards topical application/use (epsom salt foot soaks, or mixing the remag with some demineralised water and applying it topically)
you have been trying to digest (pun intended) lots of info these past weeks, and you are super motivated to get well. breathe, relax and take small steps.
getting well is like a marathon, we have to pace ourselves for the long term journey. Sadly there is no quick fix in MC world... (pretty sucky i know)
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
Hey Laine,
I had the HR pounding as well. I had to have a little ReMag next to by bed to sip on when mag levels went down through the night then could drift back to sleep. I've been at the ReMag for 10 months now and feel like my old self again, I took 3 months to slowly increase to 2 teaspoons (600 mg elemental mag) and thats where I stay. It does take a while to heal chronic mag deficiency, but if you keep at it you will feel enough benefits to keep going....
I had the HR pounding as well. I had to have a little ReMag next to by bed to sip on when mag levels went down through the night then could drift back to sleep. I've been at the ReMag for 10 months now and feel like my old self again, I took 3 months to slowly increase to 2 teaspoons (600 mg elemental mag) and thats where I stay. It does take a while to heal chronic mag deficiency, but if you keep at it you will feel enough benefits to keep going....
Vanessa
Thanks Guys-
Gabes...did 2 nights of just a little mahi-mahi along with my other protein (turkey, lamb, elk...) and didn't do a 3rd day due to the change in stool. Didn't like the slight gurgles after I ate it..freaked me out. Have some crab I might try next. Would love some variety in my life.
Tex-never have done the RBC test...know you can order that online right?? Might need to do that. Almonds/cashews are out, rice is out, potatoes and corn are out.. Do avocado with sweet potato or root veggie chips . Not sure about the sunflower butter yet...don't do that every day. Have also tried some plain coconut milk by the spoonful. Am going to go cook up turkey and antelope in a few.
Vanessa-started the Re Mag last Tuesday at 1/8 teaspoon/day..ok with that so went up to 1/2 t twice a day with the himalayan salt. Working this around the cholestyramine. I have slept SOME better the past few nights, and my heart rate has slowed down some. I am doing lots of mag oil spray every morning w/more mag lotion during the middle of the day with mag salt bath maybe every other night. Plus 10,000 D3. Want to go slow with this.
I feel like I have been more emotionally labile in the past few months than I have ever been in my life...think this may be magnesium related also. I started seeing a friend of ours a few months ago and I feel sorry for him as I am just not myself. Fortunately he knows me and knows this isn't my baseline so he's been very understanding. I feel like I've become so needy emotionally... I wish he lived closer/I could see him more often-he's out of state.
Had a good weekend, worked today and out of the blue I have loose stools when I get to work today. Feeling somewhat unsettled all day..all I can say I did differently was have a diet Coke at a happy hour for work Friday night (figured regular Coke is too sugary..all I drink is herbal tea/decaf tea or mineral water anymore). Otherwise nothing new.
Still going in the right direction, just slow. I definitely am not as bloaty and rarely rumbly (except for today and with the mahi mahi..)
Laine
Gabes...did 2 nights of just a little mahi-mahi along with my other protein (turkey, lamb, elk...) and didn't do a 3rd day due to the change in stool. Didn't like the slight gurgles after I ate it..freaked me out. Have some crab I might try next. Would love some variety in my life.
Tex-never have done the RBC test...know you can order that online right?? Might need to do that. Almonds/cashews are out, rice is out, potatoes and corn are out.. Do avocado with sweet potato or root veggie chips . Not sure about the sunflower butter yet...don't do that every day. Have also tried some plain coconut milk by the spoonful. Am going to go cook up turkey and antelope in a few.
Vanessa-started the Re Mag last Tuesday at 1/8 teaspoon/day..ok with that so went up to 1/2 t twice a day with the himalayan salt. Working this around the cholestyramine. I have slept SOME better the past few nights, and my heart rate has slowed down some. I am doing lots of mag oil spray every morning w/more mag lotion during the middle of the day with mag salt bath maybe every other night. Plus 10,000 D3. Want to go slow with this.
I feel like I have been more emotionally labile in the past few months than I have ever been in my life...think this may be magnesium related also. I started seeing a friend of ours a few months ago and I feel sorry for him as I am just not myself. Fortunately he knows me and knows this isn't my baseline so he's been very understanding. I feel like I've become so needy emotionally... I wish he lived closer/I could see him more often-he's out of state.
Had a good weekend, worked today and out of the blue I have loose stools when I get to work today. Feeling somewhat unsettled all day..all I can say I did differently was have a diet Coke at a happy hour for work Friday night (figured regular Coke is too sugary..all I drink is herbal tea/decaf tea or mineral water anymore). Otherwise nothing new.
Still going in the right direction, just slow. I definitely am not as bloaty and rarely rumbly (except for today and with the mahi mahi..)
Laine
"Do what you can, with what you have, where you are"-Teddy Roosevelt
Laine,
Yes, I believe those tests are available online and at walk-in labs.
And yes, a magnesium deficiency can really affect us emotionally. It can cause us to "not be ourselves". It can cause us to be irritated by the slightest issue, and it can cause us to cry at the drop of a hat if we encounter something that is the least bit sad. Been there done that. Here's a quote from a Psychology Today blog that sums it up well:
I would guess that your loose stools were a symptom of the diet Coke. It contains several ingredients that could easily be responsible — take your pick: caramel color, aspartame, natural flavors, and citric acid. If I recall correctly, caramel color is commonly made from corn (at least that's the reason why I avoided all colas back when I was recovering). Aspartame causes virtually every one of us to react (all artificial sweeteners do this, but aspartame may be the worst). Natural flavors could be anything. And finally, most of us cannot tolerate any significant amount of citric acid while we are recovering.
I hope you're back on track by now.
Tex
Yes, I believe those tests are available online and at walk-in labs.
And yes, a magnesium deficiency can really affect us emotionally. It can cause us to "not be ourselves". It can cause us to be irritated by the slightest issue, and it can cause us to cry at the drop of a hat if we encounter something that is the least bit sad. Been there done that. Here's a quote from a Psychology Today blog that sums it up well:
Magnesium and the Brain: The Original Chill PillMagnesium is an old home remedy for all that ails you, including "anxiety, apathy, depression, headaches, insecurity, irritability, restlessness, talkativeness, and sulkiness." In 1968, Wacker and Parisi reported that magnesium deficiency could cause depression, behavioral disturbances, headaches, muscle cramps, seizures, ataxia, psychosis, and irritability - all reversible with magnesium repletion.
I would guess that your loose stools were a symptom of the diet Coke. It contains several ingredients that could easily be responsible — take your pick: caramel color, aspartame, natural flavors, and citric acid. If I recall correctly, caramel color is commonly made from corn (at least that's the reason why I avoided all colas back when I was recovering). Aspartame causes virtually every one of us to react (all artificial sweeteners do this, but aspartame may be the worst). Natural flavors could be anything. And finally, most of us cannot tolerate any significant amount of citric acid while we are recovering.
I hope you're back on track by now.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
-
Gabes-Apg
- Emperor Penguin
- Posts: 8332
- Joined: Mon Dec 21, 2009 3:12 pm
- Location: Hunter Valley NSW Australia
Laine
some people react to the chemical sugars that are in diet soda's
for me, I don't do well with any drinks with bubbles! (except for French champagne) even plain soda water and mineral water cause me issues.
re the herbal teas/ decaf tea - are you having them as fresh made via leaves etc OR in teabags etc. Some herbal teas in teabags etc can have additives like soy etc (pain in the neck I know)
and depending on the type of decaf tea and the processed they used to decaffinate it, there can be toxins etc in the products. Majority of the population do not have an issue with this, but for MC'ers it can be contributing to our inflammation issues
hope things like the crab, turkey and antelope work out
so far as variety - with time, our mental need for variety does fade. Sticking with the safe eating plan and being symptom free is more important. It takes about 6 months to retrain our tastebuds/brains to not crave wide variety of ingredients, spices, cooking styles etc.
Keep in mind that variety in eating is more of a marketing ploy than anything else. Many of us here have put our bland staple eating plan into a nutritional counter and you will be surprised by the level of coverage of the vitamins and nutrients you are getting.
only 60 years ago major populations did very well on small amount of ingredients (mostly what was in season) with minimal health issues.
Current day, in remote areas of many isolated countries large amounts of people live on small amount of ingredients - importantly these populations do not have health issues like diabetes, heart disease, IBD's, AI issues etc
part of the success of living with MC, is our mindset and feelings about the changes and being ok with them for the long term.
re the emotional things going on - the MC symptoms hitting you hard has made you review various events and forced you to make changes. this can be tough for anyone. Living with MC is a tough gig, and hard when there is no help or support around.
again the mental and emotional aspects of this is just as important as the diet and supps etc.
Tracking reactions to foods, double checking everything for hidden ingredients, think you are doing everything good and there is a day with urgent poop, it does your head in! we are constantly 'on guard' daily relaxation is very important
a good habit is 5-10 minutes, morning and night listening to podcasts, or audiobooks, guided meditation, relaxation activity like, breathing exercises, yoga, or colouring in or another craft. Something that slows the mind, relaxes the body etc and break away from the intensity of the day...
once you are doing 10 mins morning and night for a few weeks, then try increasing to 15 mins morning and night.
you will be surprised at the benefit of doing this ...
hope this helps
some people react to the chemical sugars that are in diet soda's
for me, I don't do well with any drinks with bubbles! (except for French champagne) even plain soda water and mineral water cause me issues.
re the herbal teas/ decaf tea - are you having them as fresh made via leaves etc OR in teabags etc. Some herbal teas in teabags etc can have additives like soy etc (pain in the neck I know)
and depending on the type of decaf tea and the processed they used to decaffinate it, there can be toxins etc in the products. Majority of the population do not have an issue with this, but for MC'ers it can be contributing to our inflammation issues
hope things like the crab, turkey and antelope work out
so far as variety - with time, our mental need for variety does fade. Sticking with the safe eating plan and being symptom free is more important. It takes about 6 months to retrain our tastebuds/brains to not crave wide variety of ingredients, spices, cooking styles etc.
Keep in mind that variety in eating is more of a marketing ploy than anything else. Many of us here have put our bland staple eating plan into a nutritional counter and you will be surprised by the level of coverage of the vitamins and nutrients you are getting.
only 60 years ago major populations did very well on small amount of ingredients (mostly what was in season) with minimal health issues.
Current day, in remote areas of many isolated countries large amounts of people live on small amount of ingredients - importantly these populations do not have health issues like diabetes, heart disease, IBD's, AI issues etc
part of the success of living with MC, is our mindset and feelings about the changes and being ok with them for the long term.
re the emotional things going on - the MC symptoms hitting you hard has made you review various events and forced you to make changes. this can be tough for anyone. Living with MC is a tough gig, and hard when there is no help or support around.
again the mental and emotional aspects of this is just as important as the diet and supps etc.
Tracking reactions to foods, double checking everything for hidden ingredients, think you are doing everything good and there is a day with urgent poop, it does your head in! we are constantly 'on guard' daily relaxation is very important
a good habit is 5-10 minutes, morning and night listening to podcasts, or audiobooks, guided meditation, relaxation activity like, breathing exercises, yoga, or colouring in or another craft. Something that slows the mind, relaxes the body etc and break away from the intensity of the day...
once you are doing 10 mins morning and night for a few weeks, then try increasing to 15 mins morning and night.
you will be surprised at the benefit of doing this ...
hope this helps
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
Hi Laine,
You've been through a rough couple of years. This disease takes a huge toll on us too when we are in a flare.
For Happy Hour situations I usually have club soda with a splash of cranberry juice. It looks like a mixed drink but it is mostly club soda. A lot of times the bartenders don't charge me for this, I'm not sure why so I tip well.
I'm not even a coffee drinker but in some situations I will order decaf coffee (and bring my own stevia).
You've been through a rough couple of years. This disease takes a huge toll on us too when we are in a flare.
For Happy Hour situations I usually have club soda with a splash of cranberry juice. It looks like a mixed drink but it is mostly club soda. A lot of times the bartenders don't charge me for this, I'm not sure why so I tip well.
I'm not even a coffee drinker but in some situations I will order decaf coffee (and bring my own stevia).
Good morning crew-
Gabes-I check the herbal teas carefully as I was surprised a few years ago when life was better (I've been on this board since being diagnosed FINALLY in October of 2011...) that Celestial Seasonings (here in Colorado) had soy lecithin in most of their herbal teas!! Sent them an email about it actually. Not sure about how Bigelow is getting the caffeine out of the black tea though.
In hindsight I also ate about 5 olives at that happy hour...and put a splash of cran/grape juice in my mineral water this weekend. Otherwise..can't think of anything else to set me off!!
I have slept better the past 3 nights...gonna give magnesium credit for that. Just did my pulse...80 bpm...better than it was. That has to help..
The emotional thing is crazy huh? I typically am the rock who everyone leans on...but in the past few months (really..just the past few months, not this whole past year since my life went off the tracks..) I have felt just completely out of control. Which has scared the pants off of me. And this disease is very isolating in that I have friends that want to include the new widow in things (dinner out, drinks out, etc..) but I don't go cause I don't feel well/can't eat/blah blah blah. I did well (or what I thought was well) for years after diagnosis just being gf/df/sf...so they don't understand why all of the sudden I can't eat anything other than the meat/overcooked veggies I bring for myself to their home. Ya, I've gone over the edge as far as they are concerned!!
Why can't I meet them for sushi like I used to?? Wow, you can't eat at the Mediterranean place you used to like?? Wacko, they are pretty sure that I have become a wacko. They understood the gluten/dairy/soy thing I adhered to for so long...they don't understand what is going on now.
I hope the magnesium will help with all this because I really don't think I am the nice person at work that I used to be!!! I was the department clown..feel like I am just Debbie Downer anymore...well, maybe not that bad but definitely not my norm. And they so want me to be normal again!! They are a good group who are very supportive...I don't say anything but they ask how I am doing and my answer alot of times is just FAIR...
I try and get some down time Gabes, typically my thing is Blues music...settles things and calms the soul. Working out/riding my bike/Tai Chi at home also used to be on the agenda but haven't done any of that in months as I just can't burn the calories to do that (well, could do the Tai Chi), need to gain weight, not lose more..
So, I'm writing this as I am the late therapist at work today. Gotta go feed the howling cat and hop in the shower. I so appreciate all of you here and have over the years..It is a wonderful place here with people that understand what you are going through
Laine
Gabes-I check the herbal teas carefully as I was surprised a few years ago when life was better (I've been on this board since being diagnosed FINALLY in October of 2011...) that Celestial Seasonings (here in Colorado) had soy lecithin in most of their herbal teas!! Sent them an email about it actually. Not sure about how Bigelow is getting the caffeine out of the black tea though.
In hindsight I also ate about 5 olives at that happy hour...and put a splash of cran/grape juice in my mineral water this weekend. Otherwise..can't think of anything else to set me off!!
I have slept better the past 3 nights...gonna give magnesium credit for that. Just did my pulse...80 bpm...better than it was. That has to help..
The emotional thing is crazy huh? I typically am the rock who everyone leans on...but in the past few months (really..just the past few months, not this whole past year since my life went off the tracks..) I have felt just completely out of control. Which has scared the pants off of me. And this disease is very isolating in that I have friends that want to include the new widow in things (dinner out, drinks out, etc..) but I don't go cause I don't feel well/can't eat/blah blah blah. I did well (or what I thought was well) for years after diagnosis just being gf/df/sf...so they don't understand why all of the sudden I can't eat anything other than the meat/overcooked veggies I bring for myself to their home. Ya, I've gone over the edge as far as they are concerned!!
Why can't I meet them for sushi like I used to?? Wow, you can't eat at the Mediterranean place you used to like?? Wacko, they are pretty sure that I have become a wacko. They understood the gluten/dairy/soy thing I adhered to for so long...they don't understand what is going on now.
I hope the magnesium will help with all this because I really don't think I am the nice person at work that I used to be!!! I was the department clown..feel like I am just Debbie Downer anymore...well, maybe not that bad but definitely not my norm. And they so want me to be normal again!! They are a good group who are very supportive...I don't say anything but they ask how I am doing and my answer alot of times is just FAIR...
I try and get some down time Gabes, typically my thing is Blues music...settles things and calms the soul. Working out/riding my bike/Tai Chi at home also used to be on the agenda but haven't done any of that in months as I just can't burn the calories to do that (well, could do the Tai Chi), need to gain weight, not lose more..
So, I'm writing this as I am the late therapist at work today. Gotta go feed the howling cat and hop in the shower. I so appreciate all of you here and have over the years..It is a wonderful place here with people that understand what you are going through
Laine
"Do what you can, with what you have, where you are"-Teddy Roosevelt
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twirlitgirl
- Adélie Penguin
- Posts: 181
- Joined: Thu Aug 21, 2014 5:46 am
- Location: Canada
Beautifully said Gabes. I always feel uplifted reading your words. It made my day. thank -you. Life is a gift. I choose to look at possiblities not my many limits.. always a positive in the sea of negatives..Gabes-Apg wrote:Laine
some people react to the chemical sugars that are in diet soda's
for me, I don't do well with any drinks with bubbles! (except for French champagne) even plain soda water and mineral water cause me issues.
re the herbal teas/ decaf tea - are you having them as fresh made via leaves etc OR in teabags etc. Some herbal teas in teabags etc can have additives like soy etc (pain in the neck I know)
and depending on the type of decaf tea and the processed they used to decaffinate it, there can be toxins etc in the products. Majority of the population do not have an issue with this, but for MC'ers it can be contributing to our inflammation issues
hope things like the crab, turkey and antelope work out
so far as variety - with time, our mental need for variety does fade. Sticking with the safe eating plan and being symptom free is more important. It takes about 6 months to retrain our tastebuds/brains to not crave wide variety of ingredients, spices, cooking styles etc.
Keep in mind that variety in eating is more of a marketing ploy than anything else. Many of us here have put our bland staple eating plan into a nutritional counter and you will be surprised by the level of coverage of the vitamins and nutrients you are getting.
only 60 years ago major populations did very well on small amount of ingredients (mostly what was in season) with minimal health issues.
Current day, in remote areas of many isolated countries large amounts of people live on small amount of ingredients - importantly these populations do not have health issues like diabetes, heart disease, IBD's, AI issues etc
part of the success of living with MC, is our mindset and feelings about the changes and being ok with them for the long term.
re the emotional things going on - the MC symptoms hitting you hard has made you review various events and forced you to make changes. this can be tough for anyone. Living with MC is a tough gig, and hard when there is no help or support around.
again the mental and emotional aspects of this is just as important as the diet and supps etc.
Tracking reactions to foods, double checking everything for hidden ingredients, think you are doing everything good and there is a day with urgent poop, it does your head in! we are constantly 'on guard' daily relaxation is very important
a good habit is 5-10 minutes, morning and night listening to podcasts, or audiobooks, guided meditation, relaxation activity like, breathing exercises, yoga, or colouring in or another craft. Something that slows the mind, relaxes the body etc and break away from the intensity of the day...
once you are doing 10 mins morning and night for a few weeks, then try increasing to 15 mins morning and night.
you will be surprised at the benefit of doing this ...
hope this helps
". stay well and keep smiling
diagnosed with LC by biopsy
in May 2013 , supplements B complex, Vit C ,Vit D3 Zinc, with a multivitamin, and magnesium to round out the pack.
in May 2013 , supplements B complex, Vit C ,Vit D3 Zinc, with a multivitamin, and magnesium to round out the pack.
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Gabes-Apg
- Emperor Penguin
- Posts: 8332
- Joined: Mon Dec 21, 2009 3:12 pm
- Location: Hunter Valley NSW Australia
Laine
the combo of the diet drink and the 5 olives may well be enough to cause the issues - another reminder that you are super inflammed.
(i can not tolerate any olives, or olive oil)
great news that you are sleeping better..
Yes MC is alienating, especially during flares like this. having these changes forced on us is tough. All i can say is, the isolation is not forever, things will get better. Right now your body needs nurturing, via the bland diet, via good rest, and keeping a calm mind.
in time, you can juggle some socialization options...
as i said, start with 5 mins morning and night and over time extend it. Make it part of your routine.
the combo of the diet drink and the 5 olives may well be enough to cause the issues - another reminder that you are super inflammed.
(i can not tolerate any olives, or olive oil)
great news that you are sleeping better..
Yes MC is alienating, especially during flares like this. having these changes forced on us is tough. All i can say is, the isolation is not forever, things will get better. Right now your body needs nurturing, via the bland diet, via good rest, and keeping a calm mind.
in time, you can juggle some socialization options...
to quote my hero Yoda - do or do not, there is no try. down time and nurturing the body and mind 'guilt free' is super important - just as important as the eating plan, the Vit D3 and the magnesium....I try and get some down time Gabes, typically my thing is Blues music...
as i said, start with 5 mins morning and night and over time extend it. Make it part of your routine.
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama