Is there anyone here dealing with Bile Reflux?

Feel free to discuss any topic of general interest, so long as nothing you post here is likely to be interpreted as insulting, and/or inflammatory, nor clearly designed to provoke any individual or group. Please be considerate of others feelings, and they will be considerate of yours.

Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh

User avatar
tex
Site Admin
Site Admin
Posts: 35070
Joined: Tue May 24, 2005 9:00 am
Location: Central Texas

Post by tex »

henrym wrote:I checked, in Germany its not possible without prescription.

EDIT Yes they are! in a lower dose (75mg) there is no prescription needed.
That's the way they're sold here, also. We just have to take more of them if the dose is too low.

Stress is one of the main triggers for MC flares. An exhausting day with little sleep (in addition to all the stress that we normally encounter in our lives) could certainly cause a flare. It's possible that stress may be the reason why you are not able to reach remission by diet alone — you may be very sensitive to stress.

But if you need budesonide, and it's available to you, then it is usually better to use it than to suffer for weeks or months without it. The problem with budesonide and all the other corticosteroids is that each time we use them and then stop using them, they lose some of their effectiveness. In other words, each time we begin to use them again, they are less effective than they were the time before. Eventually, after enough cycles, we don't get much benefit from them. As long as we continue to use them without interruption, even at very low doses (such as 1 capsule every 5 or 6 days or so), they remain effective.

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
henrym
Adélie Penguin
Adélie Penguin
Posts: 137
Joined: Fri Dec 30, 2011 6:03 pm
Location: Belgium

Post by henrym »

Thanks Tex, what you (and Gabes) are saying is very plausible. Like always.
User avatar
T
Adélie Penguin
Adélie Penguin
Posts: 234
Joined: Sun Nov 30, 2014 10:09 am
Location: OHIO

Post by T »

Tex
I met with my new GI yesterday and he took my food intolerances serious he does not prescribe Pepcid for Bile reflux he told me to take A big spoon full of Gaviscon 15 min before each meal (I did 3x yesterday) and I can tell A big improvement today with A lot less inflammation and my BM's improved today.I am to stop Imodium as it slows down the stomach from emptying.Had to have blood work he wants to rule out Celiac disease (I know its not 100% accurate)and he will know if my small intestines are asorbing vitamins and minerals.
I have to have A CT scan as he also suspecting my past surgeries twisted bowel, restrictions, blood flow and the time it takes for my stomach to empty.I cannot have the Ct scan at my local hospital I have to go back to the city he does not trust other facilities I believe he said the barium some use is to thin.He told me that if nothing shows up he is he is going to keep digging. My first GI and he is determined to get my health back time will tell I hope he is A keeper.

Terry
User avatar
tex
Site Admin
Site Admin
Posts: 35070
Joined: Tue May 24, 2005 9:00 am
Location: Central Texas

Post by tex »

Hi Terry,

That's interesting (and good news, of course). The basic difference between Gaviscon and Pepcid (as far as I'm aware) is that Pepcid is an H2 blocker, meaning that it decreases the amount of acid that the stomach produces, whereas Gaviscon absorbs fatty acids and neutralizes some of the stomach acid produced, but does not interfere with the production of stomach acid.

The generic version of Gaviscon is known as aluminum/magnesium trisilicate. Interestingly, magnesium trisilicate is used to filer oils used in deep fryers in the fast food industry, in order to absorb fatty acids and impurities that accumulate in those oils as they are used. It's also used as a food additive.

One of the biggest problems resulting from abdominal surgery is that it almost always leads to the development of adhesions, and our guts kind of grow together, and also attach to other abdominal organs. The adhesions can cause pain, or interfere with normal operation in some cases because they can limit or even prevent normal movement, and they can lead to stenoses/restrictions in some cases.

And as you mentioned, if the integrity of the mesentery is compromised during surgery, The gut may not be properly supported in some locations, resulting in the possibility of twisting or other restrictions that can interfere with flow through the intestines. The mesentery is the membrane that holds the intestines in position in the abdominal cavity.

It sounds as though your new GI specialist is seriously interested in tracking down the problem. Good luck with the scans.

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
User avatar
T
Adélie Penguin
Adélie Penguin
Posts: 234
Joined: Sun Nov 30, 2014 10:09 am
Location: OHIO

Post by T »

Thanks Tex
yes he did mention that adhesions might be the problem, back then when I was healing adhesions caused me A lot of pain for quite a while.


Terry
User avatar
Gabes-Apg
Emperor Penguin
Emperor Penguin
Posts: 8332
Joined: Mon Dec 21, 2009 3:12 pm
Location: Hunter Valley NSW Australia

Post by Gabes-Apg »

Terry
I have adhesion's from multiple bowel surgerys. for the past 20 years my bowel has been adhered to my left ovary.

before getting onto my low inflammation gut healing MC eating plan, and fixing nutrient deficiencies I am sure that the adhesion's were a bit part of cramping pains i would have. with time and healing, the cramping pains have gone.

good luck with the scans.
Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
User avatar
T
Adélie Penguin
Adélie Penguin
Posts: 234
Joined: Sun Nov 30, 2014 10:09 am
Location: OHIO

Post by T »

For years I have thought that my organs might be A little out of place some times when I have to go P and everything is full I also feel like I have to go poop but don't.I am hoping I don't need another surgery the two I had more than 30 years ago was enough to last me A lifetime.
Two days on Galviscon has done wonders on getting rid of the inflammation I feel better than yesterday I feel like I finally have A Doc that knows his stuff.I still keep away from spices and grease I just want my gut back to normal.

Terry
User avatar
T
Adélie Penguin
Adélie Penguin
Posts: 234
Joined: Sun Nov 30, 2014 10:09 am
Location: OHIO

Post by T »

Well my blood work came back all clear (as expected)now by back will be in the corner as to why I cannot eat gluten he said my MC should be all cleared up it been 2 years (here we go again)

Terry
User avatar
tex
Site Admin
Site Admin
Posts: 35070
Joined: Tue May 24, 2005 9:00 am
Location: Central Texas

Post by tex »

Terry,

Wouldn't it be nice if humans were capable of utilizing near field communication (NFC) similar to cell phones? You could simply lightly bump heads with your doctors and instantly transfer all the information they need to understand MC and your other issues as well as you do.

Some day that will probably be possible. But I'd like to go on record as being the first to predict that doctors will drag their feet for decades before accepting the technology because most of them refuse to admit that their patients might know more than they do about any of their own health issues. :lol:

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
User avatar
T
Adélie Penguin
Adélie Penguin
Posts: 234
Joined: Sun Nov 30, 2014 10:09 am
Location: OHIO

Post by T »

Well I still have one more week until I go for my CT scan.
Thinking back when my MC became full blown and my system could not tolerate any grease until last spring I now suspect I had two issues hitting me at the same time I now suspect its my gallbladder any amount of grease or spices makes me sick and it takes A couple of days
to recuperate no chest pain just gut pain and my legs have been itching for weeks and last night my back started to itch like crazy and most days I am bloated and still can not gain weight.I just don't know where this Bile Reflux came from yet.

Terry
User avatar
tex
Site Admin
Site Admin
Posts: 35070
Joined: Tue May 24, 2005 9:00 am
Location: Central Texas

Post by tex »

I apologize because I can't recall if this has been discussed yet, but are your liver enzyme levels normal?

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
User avatar
T
Adélie Penguin
Adélie Penguin
Posts: 234
Joined: Sun Nov 30, 2014 10:09 am
Location: OHIO

Post by T »

? What type of blood tests checks liver enzyme?
My yearly blood draw showed everything ok


Terry
User avatar
tex
Site Admin
Site Admin
Posts: 35070
Joined: Tue May 24, 2005 9:00 am
Location: Central Texas

Post by tex »

Terry,

The liver enzymes of interest are the ALT and AST test results. They indicate the presence of inflammation or damage to the liver. Sometimes bile issues can be associated with liver problems. Certain issues that cause elevated liver enzyme test results sometimes are associated with itching. If your levels are OK, then that's apparently not the cause of the itching.

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
User avatar
T
Adélie Penguin
Adélie Penguin
Posts: 234
Joined: Sun Nov 30, 2014 10:09 am
Location: OHIO

Post by T »

I don't recall having those tested(not part of A standard blood draw) but I believe the CT scan will tell the story and I have no jaundice

Terry

Just checked today and yes it was there ALT and AST all in normal range
User avatar
T
Adélie Penguin
Adélie Penguin
Posts: 234
Joined: Sun Nov 30, 2014 10:09 am
Location: OHIO

Post by T »

Well I ended up in the ER yesterday it came down to my safest foods was making me sick and my CT appointment is (was)for Monday.
My blood work and urine dip came back ok but the CT scan only revealed Enteritis and apparently I was dehydrated they pumped A bag of fluids into me so after four hours they sent me home with two prescriptions DICYCLOMINE 20 MG and OMEPRAZOLE 20MG and to see my GI
for A followup.

Terry
Post Reply

Return to “Main Message Board”