Had my follow up of my colonoscopy a week and half ago, the doctor read the report and said the only thing that was found was one benign polyp. NO OTHER EVIDENCE OF DISEASE! WHAT! I told him before the colonoscopy that I had been diagnosed 12 years ago when I had my last colonoscopy with LC. The report doesn't have any other report of any other biopsys taken. I don't think he did any other biopsys except for the polyp!
Is it standard for them not to do any other biopsys? And if he did wouldn't it be included in the report?
Meanwhile I am left with the question of do I still have LC or is there something else going on because, while I am improving with my stage 1 diet, I am still have issues.
Confused?
It must be a miracle or?
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
-
Gabes-Apg
- Emperor Penguin
- Posts: 8332
- Joined: Mon Dec 21, 2009 3:12 pm
- Location: Hunter Valley NSW Australia
based on the inputs of the hundreds of people here.
GI specialists that have treated other patients with MC (or mast cell issues) will do multiple biopsies
GI specialists that are not familiar with MC may not be as proactive about biopsies
If you can get a copy of the pathology report - it will state how many biopsies were provided for testing - and what part of the colon the biopsies were taken
Ie my recent report has
1. Small bowel - four pieces of tan tissue each 2-3mm in diam
2. Terminal ileum - one piece of tan tissue 2-3 diam
3. randam colonic biopsy - eight pieces of tan tissue each 2-3mm diam
then there is results for each of these sample areas
and Lymphocytic Colitis is listed against the results of the samples listed at 3.
GI specialists that have treated other patients with MC (or mast cell issues) will do multiple biopsies
GI specialists that are not familiar with MC may not be as proactive about biopsies
If you can get a copy of the pathology report - it will state how many biopsies were provided for testing - and what part of the colon the biopsies were taken
Ie my recent report has
1. Small bowel - four pieces of tan tissue each 2-3mm in diam
2. Terminal ileum - one piece of tan tissue 2-3 diam
3. randam colonic biopsy - eight pieces of tan tissue each 2-3mm diam
then there is results for each of these sample areas
and Lymphocytic Colitis is listed against the results of the samples listed at 3.
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
I have a copy of the report and the only thing it has is the report on the polyp, no other reports on anything else.
I am just a little more than disappointed about this. So now if I go to another doctor, he is most likely want to do another colonoscopy, which I am really not interested in doing at this point, and my insurance will sure be wanting to know what the heck is going on.
What a darn mess this is.
Not sure what to do.
Guess I will stay on my diet and continue to improve unless someone knows of a miraculous healing from this diseases.
Randy
I am just a little more than disappointed about this. So now if I go to another doctor, he is most likely want to do another colonoscopy, which I am really not interested in doing at this point, and my insurance will sure be wanting to know what the heck is going on.
What a darn mess this is.
Not sure what to do.
Guess I will stay on my diet and continue to improve unless someone knows of a miraculous healing from this diseases.
Randy
.jpg){kind=avatar}
Randy,
You don't need an official diagnosis to heal yourself through diet. I decided not to bother seeking an official diagnosis. I just did the Enterolab testing, figured out a safe diet and things got better. You can read my story here: http://www.perskyfarms.com/phpBB2/viewtopic.php?t=22587
There are no miracle cures but sticking to the diet is your best chance for success.
Jean
You don't need an official diagnosis to heal yourself through diet. I decided not to bother seeking an official diagnosis. I just did the Enterolab testing, figured out a safe diet and things got better. You can read my story here: http://www.perskyfarms.com/phpBB2/viewtopic.php?t=22587
There are no miracle cures but sticking to the diet is your best chance for success.
Jean
-
Gabes-Apg
- Emperor Penguin
- Posts: 8332
- Joined: Mon Dec 21, 2009 3:12 pm
- Location: Hunter Valley NSW Australia
in line with Jean's reply, the eating plan we suggest, along with the supplements like Vit D3 and magnesium, lifestyle changes (manage stress, relaxation activities etc) etc will help majority of bowel issues. if you take some time to read the posts in the success stories area you will see that these guidelines have helped many people.Guess I will stay on my diet and continue to improve unless someone knows of a miraculous healing from this diseases.
sadly it would seem the GI did not take other biopsies during the colonscopy.I have a copy of the report and the only thing it has is the report on the polyp, no other reports on anything else.
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
Thanks for the encouragement!
I am up to to 400mg of magnesium chelate a day (200 morning and evening), which does seem to be helping. Definite improvement in mood, energy level, apetite, sleep! So I think that is a step in the right direction. Also D3 daily.
It just irks me that I made it a point for the nurse to put the LC on my chart and I specifically talked to the doctor about it and he seemed to understand. But this guy is in such a hurry, I literally don't have time to ask him anyththing. My pre op appointment lasted maybe 5 to 10 minutes of him telling me what he was going to do. My post op was about the same and the appointment today was about the same. He hardly stops, he is in and out of the room so quick I am left setting there wondering what just happened.
Very disappointing, guess I need to find another doc again. I hate that. So far the best recommendations have been to go Lubbock TX which is a 6 hour drive round trip and it sure is a pain to take off a whole day from work for short appointments and then if I have to have another colonoscopy I will have to go over the day before for the prep.
I am so tired of doctors and procedures. I think I am just going to stick with the diet and do the lab thing to help me refine my diet for now.
Sorry for the rant, just unbelievable.
I am up to to 400mg of magnesium chelate a day (200 morning and evening), which does seem to be helping. Definite improvement in mood, energy level, apetite, sleep! So I think that is a step in the right direction. Also D3 daily.
It just irks me that I made it a point for the nurse to put the LC on my chart and I specifically talked to the doctor about it and he seemed to understand. But this guy is in such a hurry, I literally don't have time to ask him anyththing. My pre op appointment lasted maybe 5 to 10 minutes of him telling me what he was going to do. My post op was about the same and the appointment today was about the same. He hardly stops, he is in and out of the room so quick I am left setting there wondering what just happened.
Very disappointing, guess I need to find another doc again. I hate that. So far the best recommendations have been to go Lubbock TX which is a 6 hour drive round trip and it sure is a pain to take off a whole day from work for short appointments and then if I have to have another colonoscopy I will have to go over the day before for the prep.
I am so tired of doctors and procedures. I think I am just going to stick with the diet and do the lab thing to help me refine my diet for now.
Sorry for the rant, just unbelievable.
Randy,
If that is the actual pathology report you are looking at (signed by a pathologist, not an interpretation of the actual pathology report signed by your gastroenterologist), then your doctor apparently did not order any biopsies to rule out LC. I have no idea why he would fail to take biopsies — he certainly should have. But he may be one of the many gastroenterologists who still mistakenly believe that MC runs it's course and disappears after 3 or 4 years. I would be mighty upset too. It makes one wonder what he thought he was looking for, because here's no way to rule out MC without taking biopsy samples from numerous sites in the colon and the terminal ileum.
It's possible for a pathology report to rule out MC if you have been very careful with your diet for many years. The damage will slowly heal. But that should have been verified by a pathologist after examining your biopsy samples (if your doctor had taken any samples). And the pathology report should have specifically stated (if the pathologist had been instructed by the GI doc to rule out MC) that evidence of LC (or CC, or whatever) was not identified in any of the biopsy samples (or wording to that effect).
But most GI specialists don't understand how to correctly treat the disease anyway, so I agree with Jean. I would forget him and continue to treat the disease myself by managing my diet.
Most GI specialists insist on doing another colonoscopy anyway when a patient switches GI docs, even if the patient had a colonoscopy a few weeks earlier. Those exams are a good source of income for them. It's one reason why they stay so busy.
Tex
If that is the actual pathology report you are looking at (signed by a pathologist, not an interpretation of the actual pathology report signed by your gastroenterologist), then your doctor apparently did not order any biopsies to rule out LC. I have no idea why he would fail to take biopsies — he certainly should have. But he may be one of the many gastroenterologists who still mistakenly believe that MC runs it's course and disappears after 3 or 4 years. I would be mighty upset too. It makes one wonder what he thought he was looking for, because here's no way to rule out MC without taking biopsy samples from numerous sites in the colon and the terminal ileum.
It's possible for a pathology report to rule out MC if you have been very careful with your diet for many years. The damage will slowly heal. But that should have been verified by a pathologist after examining your biopsy samples (if your doctor had taken any samples). And the pathology report should have specifically stated (if the pathologist had been instructed by the GI doc to rule out MC) that evidence of LC (or CC, or whatever) was not identified in any of the biopsy samples (or wording to that effect).
But most GI specialists don't understand how to correctly treat the disease anyway, so I agree with Jean. I would forget him and continue to treat the disease myself by managing my diet.
Most GI specialists insist on doing another colonoscopy anyway when a patient switches GI docs, even if the patient had a colonoscopy a few weeks earlier. Those exams are a good source of income for them. It's one reason why they stay so busy.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
We were probably writing at the same time, so I moved my post in case you hadn't noticed it.
That's frustrating. Evidently your doctor is too busy to actually listen to his patients, look at their records, and address their needs. He probably thought that he was doing a routine colon cancer screening exam.
He wasted your money and your time, and subjected you to a very invasive procedure that's not without risk, for nothing. You certainly have a right to be upset.
Tex
That's frustrating. Evidently your doctor is too busy to actually listen to his patients, look at their records, and address their needs. He probably thought that he was doing a routine colon cancer screening exam.
He wasted your money and your time, and subjected you to a very invasive procedure that's not without risk, for nothing. You certainly have a right to be upset.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
My respect for GI doctors decreases daily....this post really upsets me! So sorry Randy that this happened! What was the point but pure agony of being on the toilet for hours and starving to death.
Martha E.
Philippians 4:13
Jul 2008 took Clindamycin for a Sinus infection that forever changed my life
Dec 2014 MC Dx
Jul 15, 2015 Elimination Diet
Aug 17, 2015 Enterolab Test
Dec 2015 Reflux
Sept 2016 IC
Philippians 4:13
Jul 2008 took Clindamycin for a Sinus infection that forever changed my life
Dec 2014 MC Dx
Jul 15, 2015 Elimination Diet
Aug 17, 2015 Enterolab Test
Dec 2015 Reflux
Sept 2016 IC