Pepto

Discussions on the details of treatment programs using either diet, medications, or a combination of the two, can take place here.

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bvargas
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Pepto

Post by bvargas »

Hello! This is my first time writing as I just joined the group today. I am 26 years old and have been dealing with bathroom issues for the last 10 years. Finally yesterday I got my diagnosis of cc. I am definitely going to make changes to my diet but my gi doctor also wanted to put me on entocort. I do not want to take a steroid so my doctor told me to try pepto 3x a day for 3 months. Has anyone else tried this? Does it work? Thank you!
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Gabes-Apg
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Post by Gabes-Apg »

welcome !!

welcome to our group (we are very family like with lots of support) and sympathies that you have had bathroom issues for 10 years and for the CC diagnosis.

Sadly there is no 'guarenteed' medication solution for CC- what works well for one, can cause total chaos for another.

as a starting point i encourage you to read our guidelines to recovery section as this will provide good cross section of info.
http://www.perskyfarms.com/phpBB2/viewforum.php?f=79

Regarding the Pepto, here is some links to previous discussions that may help you
(i used our search function to find relevant discussions)
http://www.perskyfarms.com/phpBB2/viewt ... ight=pepto

http://www.perskyfarms.com/phpBB2/viewt ... ight=pepto

http://www.perskyfarms.com/phpBB2/viewt ... ight=pepto

http://www.perskyfarms.com/phpBB2/viewt ... ight=pepto

http://www.perskyfarms.com/phpBB2/viewt ... ight=pepto

hope this helps and feel free to ask questions and join in on discussions
Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
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tex
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Post by tex »

Hi,

Welcome to our Internet family. Yes, if done correctly (and provided that you do not develop a sensitivity to bismuth subsalicylate), the "Pepto" treatment is actually more effective than most prescription drugs used to treat CC, according to published trials. The original Pepto treatment calls for 8 tablets per day (or the liquid equivalent), for 8 weeks of treatment. I have no idea how 3 tablets per day for 3 months will work, but presumably it might work, just at a slower pace.

It has to be done in conjunction with the GF diet, or as is the case with the prescription drug treatments, a relapse will probably occur soon after the treatment ends. But if the GF diet is adopted at the start of the treatment, and faithfully followed, the average time to remission of clinical symptoms is about 2 weeks. Of course some cases take longer, and others require less time.

Some patients cannot tolerate bismuth subsalicylate however, and they begin to develop neurological symptoms before the treatment is completed. If the side effects develop, stopping the treatment typically resolves the symptoms. The most common side effect issue is tinnitus, but some patients have been known to develop balance issues, tunnel vision, and sometimes other neurological issues. And in case it matters, please be aware that the treatment will turn your tongue and your stool black. Of course this will wear off after the treatment ends.

A number of members here (who either cannot tolerate budesonide, or it was not effective for them, or they simply did not want to use a corticosteroid or any other prescription drug) have successfully reached remission by using the Pepto treatment. Note that the proper diet changes will stop the inflammation and can be used to allow the gut to heal without a need for any medications. But this process typically takes up to 6 months or more. Using the Pepto treatment speeds up remission because bismuth subsalicylate has mild antibiotic properties and it tends to coat the lining of the intestines to help suppress the inflammation.

I hope that this is helpful. Again, welcome aboard, and please feel free to ask anything.

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
bvargas
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Location: Illinois

Post by bvargas »

Thank you for your responses and the links to other discussion about it. One of the things I forgot to mention was that I have been gluten and dairy free for almost 2 years and it really has not made a difference in my bathroom habits.
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Gabes-Apg
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Post by Gabes-Apg »

I have been gluten and dairy free for almost 2 years and it really has not made a difference in my bathroom habits.
this would be an indicator that other items in the things that you are eating /drinking are causing inflammation.
Many here react to things like, eggs; soy; chemical sugar replacements; too much fibre; having proteins that are mostly grain feed, caffine,

Those of us that are very reactive to gluten, have to be super diligent about contamination, ie if you are in a house where others are having gluten, and eating at restaurants and takeouts etc.
If you are having gluten free processed items like pasta, flour etc. these can still have small amounts of gluten and have ingredients that are an issue for you.

consumption of too many inflammation triggers along with possible Vit D3 and magnesium deficiency would explain ongoing issues.
as per the suggested eating plan in our guidelines to recovery, we encourage lots of animal protein and a few safe veges well cooked.
Gabes Ryan

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Marcia K
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Post by Marcia K »

Hello and welcome! I had success with the Pepto treatment. My GI recommended 6 tablets/day for 8 weeks. After a few weeks I cut back to 4/day because I became constipated. I have not been on any medication since then, but I made major dietary changes. I read the forums on this site and eliminated gluten, dairy and soy. After EnteroLab testing and reading Tex's book I eliminated other foods. I am 3.5 years post diagnosis and the D has not returned.
Marcia
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My mission in life is not merely to survive, but to thrive and to do so with some passion, some compassion, some humor and some style. - M. Angelou
bvargas
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Post by bvargas »

That is wonderful to hear thank you for sharing. If I decided to go with the pepto treatment and develop neurological symptoms will they go away if I discontinue the pepto?
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tex
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Post by tex »

Almost always, yes, they will fade away after the medication is stopped. But as with all medications, there are no guarantees.

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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