Feeling Lost & Confused

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Gabes-Apg
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Post by Gabes-Apg »

Gluten (namely modern day gluten / most grains) are quite inflammatory to digestion for everybody.

here are some good articles/explainations
long story short it is due to two main things - chemicals /GMO and - short cuts in the processing (to cut costs)

http://kellybroganmd.com/two-foods-may-sabotage-brain/
http://www.abc.net.au/catalyst/stories/4358631.htm (this 20 minute program is great for explaining why we react to gluten and handy resource for family and friends
Prof Alessio Fasano
We didn't know the details of why gluten is toxic until the recent past, when scientists worldwide started to really look at this indigestible fragment of gluten. To our major surprise, gluten is perceived by our immune system as a component of a bacterium or virus and unleashes the same weaponry that we use when we're under attack by an infection.
NARRATION
As gluten enters the small intestine, it's recognised as foreign and an immune reaction causes local inflammation in the gut. This occurs because humans haven't evolved with the right machinery to digest it properly.
Prof Alessio Fasano
Gluten cannot completely be dismantled because we don't have the scissors, ie, the enzymes, to cut in pieces and then peel off the single amino acids.
NARRATION
So if humans can't digest gluten properly, does that mean we should all give it up? Not so fast, says Professor Fasano.
Prof Alessio Fasano
The vast majority of people can deal with that and clean this problem without any clinical consequences.
NARRATION
But in some people, gluten may actually play a role in the development of autoimmune diseases like arthritis, lupus and Hashimoto's disease. In 2000, Professor Fasano's team made a remarkable discovery. His lab showed that gluten could stimulate a molecule in the gut called zonulin.
Prof Alessio Fasano
Zonulin is a protein that has the capability to modulate the permeability of the gut.

when we are in MC flares, the smallest amount of these triggers can cause issues.
ie toasting gluten free bread in a toaster that has had wheat bread in it is enough of contamination to cause reactions
or preparing a gluten free meal in a kitchen where wheat flour has been used

this is one of the sucky parts of life with MC is that there is no such thing as 'just a little bit cant hurt'
when we are reactive, it does cause issues.

Even when we are healed, we encourage people to avoid these highly inflammatory ingredients as even though small amounts may not seem to causing issue, one only needs to have contact with other minor triggers, (including stress) be a bit low in Vit D3 /magnesium and a major flare can eventuate (even after months of remission)

dont be afraid of the rabbit hole - one of the analagies i use here is that MC world is a bit like Alice in Wonderland - when you first fall down the rabbit hole and meet us, read discussions, at first we all appear bonkers! the restrictive diet, that the right magnesium supplementation can resolve multiple health issues etc - then over time, when you connect the dots of root causes of the health issues, and see improvements, you realise that we may be bonkers, but the best people are!! Life here in Wonderland (aka MC world) makes more sense than the life you lived before...
Gabes Ryan

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Gabes-Apg
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Post by Gabes-Apg »

this thread has some good info that may be of huge relevance to you and
http://www.perskyfarms.com/phpBB2/viewt ... h&start=15

the link for the patches was in the first post of the link I am pretty sure
https://www.patchmd.com/
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Rebecca2z
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Post by Rebecca2z »

I know you guys aren't bonkers, the doctors on the other hand... well no comment.

I did read about a separate toaster, separate jars of condiments ( people using a knife on their bread and me using that same knife on my food) Storing GF food on top shelf, new pans, different measuring spoons & cups. Oh I am learning.

I have a brother who has just been told he probably has Celiac, his antibodies tests where the worst out of range they had ever seen. He has type 1 diabetes and is having an endo the end of this month for a biopsy for Celiac, so for him I was looking at GF way of eating and now look at the mess I find myself in...

Ain't life grand ... :razz:
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Gabes-Apg
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Post by Gabes-Apg »

you and your brother may be interested - there is a link with diabetes and magnesium deficiency

and this article may be of interest if either of you had the celiac blood test and tested negative
https://chriskresser.com/beyond-paleo-2/
Current laboratory testing for gluten intolerance only tests for alpha-gliadin and transglutaminase, the two components of gluten implicated in celiac disease (highlighted in red in the diagram). But as you can see, wheat contains several other components including lectins like wheat germ agglutinin (WGA), other epitopes of the gliadin protein like beta-gliadin, gamma-gliadin and omega-gliadin, another protein called glutenin, an opioid peptide called gluteomorphin, and a compound called daminated gliadin produced by the industrial processing or digestion of gluten.

So here’s the thing. Studies now clearly show that people can react negatively to all of these components of wheat – not just the alpha-gliadin and transglutaminase that celiacs react to. And the worst part of this is that up until about 2 weeks ago, no commercial labs were testing for sensitivity to these other subfractions of wheat.
Gabes Ryan

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Gabes-Apg
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Post by Gabes-Apg »

a recent discussion about magnesium and diabetes - with links
http://www.perskyfarms.com/phpBB2/viewt ... m+diabetes
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Rebecca2z
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Post by Rebecca2z »

I wish there was a like button to hit , to show we are being good students and reading our assignments :grin:
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Post by Rebecca2z »

Great great info Gabes ! You rock !! :cool:

... and you're
fast 'on them there' replies !!
:lol:
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Post by Rebecca2z »

I was antibody tested for Celiac 3 years ago, by blood work, ( Neg) but due to the IVIG I have been getting every 14 days for 9 years it skews those kind of tests. ( IVIG has tens of thousands of other peoples antibodies in it) I had a biopsy done last week via the endoscopy, waiting on my results.
I know my brothers antibody tests where way out of range, but they want to confirm celiac in him with a biopsy.

These tests can be skewed for lots of reasons and you have use careful considerations when interpreting them. So I find your info valid. Thank You !
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Gabes-Apg
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Post by Gabes-Apg »

as for the fast replies, i am home today and catching up on forum inputs / my own reading research etc..
the links are ones that I share regularly with new people and the search function is pretty easy when you know the right metadata key words to use.
Gabes Ryan

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Rebecca2z
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Post by Rebecca2z »

Lucky me you are home today Gabes ! I actually feel a little hopeful today after you and Tex worked with me.
My gratitude is so immense !

Hugs,
Rebecca
:pigtail:
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Gabes-Apg
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Post by Gabes-Apg »

And being based in Australia, it is only 1.30pm in the day....
Gabes Ryan

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Rebecca2z
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Post by Rebecca2z »

LOL, I just looked where you are and I see your day is still young, it's dinner time here, sadly my dinner is liquid and in a bad full of chemicals and goes into my blood stream.
:???:
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Gabes-Apg
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Post by Gabes-Apg »

for now that is your dinner

with some adjustments that you are reading about here, that will not always be the case...
Gabes Ryan

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Post by Rebecca2z »

aww, doing a little happy dance, thanks for your great words of encouragement !!
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tex
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Post by tex »

From an earlier post in this thread about food:
Rebecca wrote:Oh man I have been looking at the diets you all have written about, depressing, I already can't eat much. I find looking at the lists of what can be eaten a happier place... I mostly eat Salmon ( 1-2 Tablespoons) and a Tablespoon of brown rice and I am full. I have to say though I am not suffering with hunger .... I lost that feeling 3 years ago. I do pick at dry cereal somewhat, and I need to change to something other than the oats I eat. ( from what I am reading on this forum)
Many of us react to salmon, many of us cannot tolerate brown rice (because it's a high-fiber food) — white rice works much better for us while we are recovering. Most cereals contain gluten (in the form of barley malt), and most of us react to oats because the avenin in oats is very similar to the gluten in wheat.

If you want to eat cereal, some of the Chex cereals by General Mills are GF (and other brands are available at health food stores). Rice Chex and Corn Chex are safe for most of us, for example. And for most of us, unless we have a classic allergy to shellfish, they're typically a safe option for MC patients.

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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