hard lesson to learn
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
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lighthouse
- Posts: 17
- Joined: Tue Oct 28, 2014 12:20 pm
- Location: Rochester NY
hard lesson to learn
In December I had a sandwich after my heart catheritization, because that is what they had to eat and I was hungry. I was amazed when I didn't have a negative reaction. Then when I was in the hospital for heart surgery the gluten free diet they sent me was horrible. I just ate from the regular menu without any negative effects. I thought to myself that my problem must be in remission. Well I took to much advantage of it and ate all of the things I missed. It lasted about 3 months and about two weeks ago the symptoms came crashing back. I will certainly know better the next time. I am trying not to complain to much, because I have only myself to blame. The symptom that is different is rather intense abdominal pain. I had cramping pain, but not this aching in my belly. I have kind of forgotten if that is a common symptom or not. Hopefully I will get it back under control soon. Bernice in the cold and windy upstate New York.
Bernice and the sweet Octane. I'm WORKING on it!
Hi, Bernice. I hope it doesn't take too long to get back on track. I feel your cold & windy -- we're looking at up to two feet in PA. Just when we thought spring was almost here! I'm packing extra food for work in case I can't make it home. There won't be a thing there that I can eat.
Marcia
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My mission in life is not merely to survive, but to thrive and to do so with some passion, some compassion, some humor and some style. - M. Angelou
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My mission in life is not merely to survive, but to thrive and to do so with some passion, some compassion, some humor and some style. - M. Angelou
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lighthouse
- Posts: 17
- Joined: Tue Oct 28, 2014 12:20 pm
- Location: Rochester NY
hard lesson to learn
Iamb wondering if you and others have thought you could get away with eating things you are sensitive to, just to find it was temporary?
Bernice and the sweet Octane. I'm WORKING on it!
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Gabes-Apg
- Emperor Penguin
- Posts: 8332
- Joined: Mon Dec 21, 2009 3:12 pm
- Location: Hunter Valley NSW Australia
I am aware of some MC'ers that start eating gluten and dairy again, and at first there are no issues and then there comes a stage that the inflammation levels reach their maximum and a flare happens.
MC reactions tend to be like a inflammation bucket, we can handle small amounts here and there, but too many major triggers in a short period we get to a reaction point. Keeping in mind that food is not our only inflammation trigger.
This recent discussion may help you
http://perskyfarms.com/phpBB2/viewtopic.php?t=22933
I also recall there are a very rare few that report that they are eating gluten ok in the first stages of their remission. From memory most if not all of these but don't report back on how they are doing 3 months later, or 6 months later. So there is no 'data' for me to say that people can return to having gluten for long term consumption (happy to be corrected if my memory is not accurate on this)
one aspect to why some have major flares and some only have minor symptoms, is the bodies ability to cope with inflammation (and heal from it) depends on many factors;
- age
- Vit d3 and magnesium levels in the body
- any other health issues / contact with other triggers/toxins
One thing that has been discussed here is how much some of the food types are that common triggers for MC (like Wheat/gluten, grain fed meat sources etc) are affecting more people and that and that it may not be the actual ingredient causing all the issues but in the case of things like wheat, we are reacting to the pesticides and issues with processing
this is covered in this discussion
http://perskyfarms.com/phpBB2/viewtopic.php?t=23049
hope this helps
MC reactions tend to be like a inflammation bucket, we can handle small amounts here and there, but too many major triggers in a short period we get to a reaction point. Keeping in mind that food is not our only inflammation trigger.
This recent discussion may help you
http://perskyfarms.com/phpBB2/viewtopic.php?t=22933
I also recall there are a very rare few that report that they are eating gluten ok in the first stages of their remission. From memory most if not all of these but don't report back on how they are doing 3 months later, or 6 months later. So there is no 'data' for me to say that people can return to having gluten for long term consumption (happy to be corrected if my memory is not accurate on this)
one aspect to why some have major flares and some only have minor symptoms, is the bodies ability to cope with inflammation (and heal from it) depends on many factors;
- age
- Vit d3 and magnesium levels in the body
- any other health issues / contact with other triggers/toxins
One thing that has been discussed here is how much some of the food types are that common triggers for MC (like Wheat/gluten, grain fed meat sources etc) are affecting more people and that and that it may not be the actual ingredient causing all the issues but in the case of things like wheat, we are reacting to the pesticides and issues with processing
this is covered in this discussion
http://perskyfarms.com/phpBB2/viewtopic.php?t=23049
hope this helps
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
Bernice,
I'm so sorry that you are having to deal with a relapse of symptoms. As you have discovered, after our gut has healed enough, and we have avoided gluten long enough, some of us react to gluten the same way that some completely recovered celiacs react to gluten. They don't react immediately because it takes a while for their immune system to build up a sensitivity to gluten again. This is similar to the way that the immune system reacts to vaccines. After a long enough time, our immune system forgets about gluten. But when we eat some gluten it remembers and begins to produce antibodies. Some people may have to eat it for weeks or even months before their antibody level builds up to a level that will trigger a reaction. After that their immune system is resensitized again. As long as we don't wait a long time, we will usually react immediately and this is like a booster shot to renew a vaccination. But if we wait a long enough time, then our immune system has to start over to generate antibodies and inflammation.
This is why people whose gut has healed may be able to accidentally eat a little gluten and not react. But if they continue to eat it, they will eventually be back in a flare again.
And I'm sure that Gabes is correct that many of the people who come back here to boast that they are now able to eat anything they want discover their mistake a few weeks or months later. While it's possible to have periods of spontaneous remission with MC (similar to the other IBDs), those periods of remission rarely last forever. The odds of that are about 1 in a million.
I hope that you will soon be feeling much better.
Tex
I'm so sorry that you are having to deal with a relapse of symptoms. As you have discovered, after our gut has healed enough, and we have avoided gluten long enough, some of us react to gluten the same way that some completely recovered celiacs react to gluten. They don't react immediately because it takes a while for their immune system to build up a sensitivity to gluten again. This is similar to the way that the immune system reacts to vaccines. After a long enough time, our immune system forgets about gluten. But when we eat some gluten it remembers and begins to produce antibodies. Some people may have to eat it for weeks or even months before their antibody level builds up to a level that will trigger a reaction. After that their immune system is resensitized again. As long as we don't wait a long time, we will usually react immediately and this is like a booster shot to renew a vaccination. But if we wait a long enough time, then our immune system has to start over to generate antibodies and inflammation.
This is why people whose gut has healed may be able to accidentally eat a little gluten and not react. But if they continue to eat it, they will eventually be back in a flare again.
And I'm sure that Gabes is correct that many of the people who come back here to boast that they are now able to eat anything they want discover their mistake a few weeks or months later. While it's possible to have periods of spontaneous remission with MC (similar to the other IBDs), those periods of remission rarely last forever. The odds of that are about 1 in a million.
I hope that you will soon be feeling much better.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.