Guidance for a noob

[bttory]

I'm sorry that I am late to the game here, but to the extent it helps calm your nerves, I also had connective tissue type symptoms (lupus, etc.) with my skin at the time of my MC diagnosis. My ANA test came back similar to yours, and tests for liver function, blood count, etc., were abnormal. I even had neurological issues. Enough to scare me quite a bit. But the skin issues have improved (although they are not completely resolved), and my test results are all back to normal, as I've healed over the last year or so. And, that healing only came about when I followed the advice from this forum - but it took some time. My guess is you'll have a similar improvement over time.

Also, take it for what it's worth, but the GI/rheumatologist I saw (he practiced both over his 40 year career) felt that the skin and other connective tissue issues were linked to the active (and until then, undiagnosed MC). He felt my immune system was "ramped up and out of whack," and that affected all other parts of my body. He didn't have any hard science to back that theory, but that was his gut feeling (no put intended). Time will tell if he was right, but it gave me some comfort to know that is a plausible theory.

Hang in there, and trust that your body will heal with the right diet, nutrition, and stress reduction.

[kbb]

Hi Bttory:

Thanks for the reply. My rheumatologist was more main stream. Went today. He's going to run some blood tests on me but doesn't think I have an auto-immune problem that he would need to treat and didn't offer any advice to stop any of this progression.

I appreciate your story, it does sound familiar but I was diagnosed back end of May last year, and new stuff seems to be cropping up instead of going away, so that's concerning. But I'm trying to be patient.

Thanks so mush for sharing it helps so much to see others with similar paths. Will help me stay on track. I'm tired.

-K

[Gabes-Apg]

Kelly
there are some of us here that post the MC dx other health issues make their appearance ( i am one of them)

for some of us, it takes a bit more than Vit D3, Magnesium and active B's. There are other nutrient deficiencies and toxins at play.
3 years of the focussed supplements and clearing toxins I am making headway in the wellness journey.

I am confident that for me, MC is a symptom of the excess toxins, nutrient deficiencies it is not the root cause or first stage illness.

[kbb]

Kelly
there are some of us here that post the MC dx other health issues make their appearance ( i am one of them)

for some of us, it takes a bit more than Vit D3, Magnesium and active B's. There are other nutrient deficiencies and toxins at play.
3 years of the focussed supplements and clearing toxins I am making headway in the wellness journey.

I am confident that for me, MC is a symptom of the excess toxins, nutrient deficiencies it is not the root cause or first stage illness.

Hey Gabes:

I appreciate your response, but not sure if there's anything actionable for me there at this time. Just stay the course? I'm not taking any B's yet btw.

Thanks.

[Gabes-Apg]

stay the course for now, reduce toxin load and give the body time to heal.
Next key thing when you are ready would be taking the active B's (the thorne methyl guard product is very good product)

[kbb]

stay the course for now, reduce toxin load and give the body time to heal.
Next key thing when you are ready would be taking the active B's (the thorne methyl guard product is very good product)

Thanks Gabes. I really appreciate you.

[Gabes-Apg]

your welcome
happy healing

[kbb]

Just updating...

Got results via the phone from the rheumatologist... They say that my ANA from my PCP was a false positive but that I have a positive anti-smooth muscle antibody test and they want me to follow up with my GI. *sigh*, I thought the ANA test was scary. This sounds terrifying.

I'm tempted to stop going to the doctor until I have my diet under control, this feels like it's getting out of hand.

[kbb]

Hey all:

I just got my enterolab results.


Comprehensive Gluten/Antigenic Food Sensitivity Stool Panel

Fecal Anti-gliadin IgA 72 Units (Normal Range is less than 10 Units)

Fecal Anti-casein (cow’s milk) IgA 7 Units (Normal Range is less than 10 Units)

Fecal Anti-ovalbumin (chicken egg) IgA 14 Units (Normal Range is less than 10 Units)

Fecal Anti-soy IgA 11 Units (Normal Range is less than 10 Units)

Mean Value 11 Antigenic Foods 12 Units (Normal Range is less than 10 Units)

While all of the foods tested can be immune-stimulating, the hierarchy of reactions detected were as follows:

Food to which there was no significant immunological reactivity:
Beef
Pork
Walnut
Cashew

Food to which there was some immunological reactivity (1+):
Oat
Corn
Rice
Chicken
Tuna
Almond
White potato

Food to which there was moderate immunological reactivity (2+):
None

Food to which there was significant and/or the most immunological reactivity (3+):
None


Within each class of foods to which you displayed multiple reactions, the hierarchy of those reactions detected were as follows:

Grains:
Grain toward which you displayed the most immunologic reactivity: Oat
Grain toward which you displayed intermediate immunologic reactivity: Corn
Grain toward which you displayed the least immunologic reactivity: Rice

Meats:
Meat toward which you displayed the most immunologic reactivity: Chicken
Meat toward which you were next most immunologically reactive: Tuna

Nuts:
Nut toward which you displayed the most immunologic reactivity: Almond

Nightshades:
You displayed immunologic reactivity to white potato, the member of the nightshade family usually consumed most often and in greatest quantities. While this does not necessarily mean you would react to all other nightshade foods (tomatoes, peppers, eggplant), it is possible. In the realm of elimination diets for immunologic disorders, nightshades are usually eliminated as the entire food class (i.e., all four previously mentioned foods in this class). This is especially important to the clinical setting of arthritis.

I’m thinking I’ll couple this with my skin prick allergy tests as I continue heal on phase 1. On those I reacted to:
egg yolk, pineapple, cantaloupe, orange, celery, black pepper, peanut, brazil nut, almond, filbert/hazelnut, catfish, mackerel, apple, strawberry, banana, cranberry, tomato, green pea, rice, rye, corn, yeast, beef, turkey

I’ve been eating since the allergy tests..

Venison /w pork fat
Pastured Chicken - from local farm
Bacon
Sweet Potatoes
white potatoes
squash
carrots
home made chicken bone broth
canned peaches
water, tea (ginger, or peppermint, or green), and coffee
Nutiva hemp protein powder
silk unsweetened coconut milk
venison jerky
chips

Adjustments I think I’ll make:
Pull out chicken, and white potatoes ( including chips )
Add cauliflower
Maybe add some more pork and lamb, goat, and/or salmon.

I just added antihistamines (Zyrtec) too. That got me down to one movement a day. Still not normal though.

After I clear I can test some of the 1+’s. Also plan to swap out antihistamines for b vitamins. I’m excited that I might be able to have dairy some day!

Thoughts, interpretations?

[tex]

Hi Kelly,

Lucky you. Those are results to be envied by most of us. Here are my thoughts:

Casein should be safe for you, so as soon as your inflammation clears, the lactose intolerance will fade away and you should be able to eat dairy products without them affecting your MC

With a relatively low overall test score of 12, and all of your food sensitivities in the 1+ category for the "11 additional antigenic foods" test, you may be able to ignore all of those sensitivities after you are in remission. They might not be a factor now, but when recovering, it never hurts to be overly-cautious. The only one of those foods that I would avoid in the long run is oats, because parts of the molecular structure of the avenin in oats are very similar to the reactive peptides in the molecular structure of gluten in wheat, and most of us here react to oats.

Happy recovering.

Tex

[kbb]

Thanks for the response Tex. It's nice to have validation on the plan. I was happy with the results too!

[Gabes-Apg]

yes, you are very lucky to have a very good results in the scheme of things...

with the low overall score and the high gluten result, i would suggest that you be super careful of gluten contamination.
agree with your approach of stopping chicken and white potatoes