this info may be of interest to all women here not just those with Lichen Sclerosis
I had my womens health check today - this is done by a nurse in a clinic that her sole role is 'womens health' and this lady has been doing it for 25 years!
it was actually the person doing my womens check a few years ago that said I had lichen sclerosis and said I needed to see dermatologist
I find that these practitioners are very knowledgeable and proactive about these types of issues and it was good to sit and chat with someone who 'gets it' - anyways... some outcomes of our chat
- since having MC I was wearing liners everyday. I read recently that the can have high content of glyphosate (aka round up etc) and this has been linked to the increase of skin issues in the downstairs area. since reading this, I have been converting across to using flannel cloth. the practitioner agreed and she said the other issue is the glue that is used on liners. with technology the pads have become thinner, which is a great selling point but this means our delicate skin is in closer proximity to the glue.
- further the incontinent type pads (that I was using) are made to draw the liquid away from the surface, this is very drying on the delicate skin and puts people at high risk of issues.
her and her colleagues have seen an increase in vulva skin issues since the pads got thinner and people tend to wear them daily.
Even with using flannel cloth instead of liners, with my hot humid climate - it is more important that I allow enough 'air time' when at home ie long cotton skirt / sarong give body a break from underwear and liners etc.
for those with lichen sclerosis -
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
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Gabes-Apg
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- Location: Hunter Valley NSW Australia
for those with lichen sclerosis -
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
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Gabes-Apg
- Emperor Penguin
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- Joined: Mon Dec 21, 2009 3:12 pm
- Location: Hunter Valley NSW Australia
Yes, it is sad to see the impact of our 'toxic' environment.
that is why I wanted to share this info, for any female who is regularly wearing liners as protection for MC, it could be doing more harm than good in the long term.
that is why I wanted to share this info, for any female who is regularly wearing liners as protection for MC, it could be doing more harm than good in the long term.
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
I so am all for cotton and keeping dry....that's too bad round up has to penetrate so much of our daily lives....sigh....and I live in a part of the PNW that gets multiple doses of round up sprayed on wheat fields, pea fields, garbanzo bean fields....the list goes on an on.
To Succeed you have to Believe in something with such a passion that it becomes a Reality - Anita Roddick
Dx LC April 2012 had symptoms since Aug 2007
Dx LC April 2012 had symptoms since Aug 2007
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Gabes-Apg
- Emperor Penguin
- Posts: 8332
- Joined: Mon Dec 21, 2009 3:12 pm
- Location: Hunter Valley NSW Australia
Thank Connie,
lichen on its own is probably not too bad per say - but having it along with MC can make life a bit intense at times.
like MC, stress is one of the key triggers for lichen flare so lifestyle changes, along with keeping good levels of nutrients to support immune system and adrenals is super important.
I have noticed a big improvement since I started using flannel cloths instead of using commercial liners.
lichen on its own is probably not too bad per say - but having it along with MC can make life a bit intense at times.
like MC, stress is one of the key triggers for lichen flare so lifestyle changes, along with keeping good levels of nutrients to support immune system and adrenals is super important.
I have noticed a big improvement since I started using flannel cloths instead of using commercial liners.
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
For me, Lichen is almost as horrible as having colitis. Because now i can't have or enjoy sex anymore, along w/o out being able to eat anything. I spend my life on the toilet, and i can't have sex. What else is there really.....No food, No Sex......really? I find i am getting more and more depressed by the day. Gabes~ i'm glad yours is not as bad as mine seems to be. I have fusing of the clitoris, i have lost my inner labia completely....and tear every time i try to have sex. And bleed.....it's an awful awful painful thing to deal with , along with the pain of colitis, sore from one end to the other. I am so done right now.....i don't know what to do, or where to turn. Today is bad.....just bad. I feel like i am about to lose all hope for any kind of a "normal" life anymore. It's just gone......i'm sorry i'm on here whining but i can't hold it back any longer. Like i said, i do not wear underwear daily....i am on the steroid cream for it, as i was told i had to use for life. Usually once a week i use it. I don't have the intense itching that i used to have with LS, but the damage is done, and i can no longer have a normal sex life........ugh. If this is my life.......lord help me. 
I'm Still Chasing The Original High
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Gabes-Apg
- Emperor Penguin
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- Joined: Mon Dec 21, 2009 3:12 pm
- Location: Hunter Valley NSW Australia
Ohh kate sorry to hear yours at at that level and the intensity it has had/is having.
My last check they said that my vulva/labia etc is ok it was small area near my anus that is damaged.
for me, i have been single since having it so I have not idea if it has impacted sexual things.
I think I was very lucky that the nurse that did my pap smear was the one that first identified the LS and I started treatment early in the cycle of LS being there
of interest my elder sister has been diagnosed with it LS this week. She has had over 18 months of issues that can now be linked to LS. I am hoping there is no damage
the nurse that did my most recent pap smear said that our major hospital has a vulva expert that bad LS cases get referred to. and if there is damage they will consider repairable surgery. Have you seen a specialist of this calibre?
My last check they said that my vulva/labia etc is ok it was small area near my anus that is damaged.
for me, i have been single since having it so I have not idea if it has impacted sexual things.
I think I was very lucky that the nurse that did my pap smear was the one that first identified the LS and I started treatment early in the cycle of LS being there
of interest my elder sister has been diagnosed with it LS this week. She has had over 18 months of issues that can now be linked to LS. I am hoping there is no damage
the nurse that did my most recent pap smear said that our major hospital has a vulva expert that bad LS cases get referred to. and if there is damage they will consider repairable surgery. Have you seen a specialist of this calibre?
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
Gabes~
I have not seen a specialist for this. I am seeing just my regular gynocologist. I have recently found out as well that my older sister has a form of this. Fortunately for her it's not in the vaginal/anal area. Her's is i guess Lichen Planus~ which is on her leg, and some on between her breasts. I am 50 yrs old, my sister is 52. I find it so odd that this is happening later in life. 2 siblings with autoimmune disorders.....i don't know of any other problems in the family that i can recall. I do know my Uncle on my dad's side has been basically bedridden for most of his adult life with who knows what. He's never been diagnosed with anything other than fibromyalgia that i'm aware of. He has lots and lots of issues though. My parents were not sickly. I don't understand how this happens. Anyway~ it is what it is, and all we can do is treat it.
On to my next question for you Gabes~
I am not doing good at all stomach wise. I know there are things i can do to help. I am having an extremely hard time with giving up Pepsi. I know how horrible it is for me, i know how it's making me fat, and the sugar in it is horrible for me. I am so addicted i don't know how to stop it. I am trying so hard to drink more water. I hate water.....it makes me feel nauseated and full and more bloated than i already am. I know that in time that will all stop once i get the soft drinks out of my system and all that sugar.
The thing is, i cannot seem to digest any food. I don't know if i should go gf or not. I am just so scared. I don't know if i should go to a gastro doctor and get the colonoscopy & endoscopy done again. It's been well over 10 years since i've had that done. I have not been officially diagnosed with any form of colitis....it's always been said i just had ibs/d. I have watery diarrhea so bad....for days on end.....nothing i try to eat stays in, and causes me problems. I don't know if i just need to go to the gastro and start all over trying to figure this all out again or not. I'm just at a loss, and about to give up. I am scared~ frustrated, and i just don't know what to do or where to start. I have read up on all the elimination diet. I guess i should start there really. Ugh~ i just want to cry.....and cry and cry. My gut feels like it's been twisted, and there is barb wire around it. It just feels awful. Help please......
I have not seen a specialist for this. I am seeing just my regular gynocologist. I have recently found out as well that my older sister has a form of this. Fortunately for her it's not in the vaginal/anal area. Her's is i guess Lichen Planus~ which is on her leg, and some on between her breasts. I am 50 yrs old, my sister is 52. I find it so odd that this is happening later in life. 2 siblings with autoimmune disorders.....i don't know of any other problems in the family that i can recall. I do know my Uncle on my dad's side has been basically bedridden for most of his adult life with who knows what. He's never been diagnosed with anything other than fibromyalgia that i'm aware of. He has lots and lots of issues though. My parents were not sickly. I don't understand how this happens. Anyway~ it is what it is, and all we can do is treat it.
On to my next question for you Gabes~
I am not doing good at all stomach wise. I know there are things i can do to help. I am having an extremely hard time with giving up Pepsi. I know how horrible it is for me, i know how it's making me fat, and the sugar in it is horrible for me. I am so addicted i don't know how to stop it. I am trying so hard to drink more water. I hate water.....it makes me feel nauseated and full and more bloated than i already am. I know that in time that will all stop once i get the soft drinks out of my system and all that sugar.
The thing is, i cannot seem to digest any food. I don't know if i should go gf or not. I am just so scared. I don't know if i should go to a gastro doctor and get the colonoscopy & endoscopy done again. It's been well over 10 years since i've had that done. I have not been officially diagnosed with any form of colitis....it's always been said i just had ibs/d. I have watery diarrhea so bad....for days on end.....nothing i try to eat stays in, and causes me problems. I don't know if i just need to go to the gastro and start all over trying to figure this all out again or not. I'm just at a loss, and about to give up. I am scared~ frustrated, and i just don't know what to do or where to start. I have read up on all the elimination diet. I guess i should start there really. Ugh~ i just want to cry.....and cry and cry. My gut feels like it's been twisted, and there is barb wire around it. It just feels awful. Help please......
I'm Still Chasing The Original High
Kate,
I'm not Gabes, obviously, but I can tell you that everyone who has LS has leaky gut. Everyone. Like virtually all AI diseases, LS is caused by and perpetuated by the increased intestinal permeability that results from the inflammation generated with every meal due to food sensitivities. Mainstream doctors will always tell patients that they do not know what causes LS. But that's the same thing they say about all AI diseases. They don't know what causes AI diseases because they don't understand food sensitivities and they don't even acknowledge the existence of leaky gut, let alone understand it.
Food sensitivities cause leaky gut. There's no question about that — there's plenty of published research to verify that as a medical fact. But while some naturopaths have a basic understanding of food sensitivities and leaky gut, leaky gut is not even a part of the vocabulary of allopathic doctors and the mainstream medical community in general. And they don't seem to even be interested in learning about food sensitivities and leaky gut. That's why the only way they know to treat AI diseases is by prescribing powerful drugs that have long-term health risks.
If you seriously want to eliminate not only your watery diarrhea and your other digestive symptoms, but also get your LS under control, you need to buckle down and seriously commit to a diet that will allow your gut to heal. Virtually all of your other health issues will resolve as your digestive system heals.
Before my digestive symptoms began I was one of Coca-Cola's best customers. Once I adopted a GF, DF diet, and figured out that sugar was the likely cause of my leaky gut, I cut way down on my sugar intake (especially fructose and high fructose corn syrup), and my gut slowly healed.
I was lucky. My symptoms were so bad that I couldn't see how I could afford to continue trying to live with them, so the decision to radically change my diet was easy for me. Deciding whether I wanted to continue to be sick every day, with miserable symptoms, or to change my diet in order to eliminate all the stuff that was slowly poisoning me was a no-brainer as far as I was concerned. Life is too short to spend most of it in the bathroom.
If you do an Internet search to locate the few people who have been able to successfully control their LS, you'll discover that virtually every one of them did it by changing their diet and doing whatever was necessary to resolve their leaky gut and stop the inflammation in their digestive system. But similar to MC, all cases of LS are different, so everyone has to fine tune their diet to make it work effectively for them.
But it's certainly doable, if you are serious about wanting to get your life back under control.
Tex
I'm not Gabes, obviously, but I can tell you that everyone who has LS has leaky gut. Everyone. Like virtually all AI diseases, LS is caused by and perpetuated by the increased intestinal permeability that results from the inflammation generated with every meal due to food sensitivities. Mainstream doctors will always tell patients that they do not know what causes LS. But that's the same thing they say about all AI diseases. They don't know what causes AI diseases because they don't understand food sensitivities and they don't even acknowledge the existence of leaky gut, let alone understand it.
Food sensitivities cause leaky gut. There's no question about that — there's plenty of published research to verify that as a medical fact. But while some naturopaths have a basic understanding of food sensitivities and leaky gut, leaky gut is not even a part of the vocabulary of allopathic doctors and the mainstream medical community in general. And they don't seem to even be interested in learning about food sensitivities and leaky gut. That's why the only way they know to treat AI diseases is by prescribing powerful drugs that have long-term health risks.
If you seriously want to eliminate not only your watery diarrhea and your other digestive symptoms, but also get your LS under control, you need to buckle down and seriously commit to a diet that will allow your gut to heal. Virtually all of your other health issues will resolve as your digestive system heals.
Before my digestive symptoms began I was one of Coca-Cola's best customers. Once I adopted a GF, DF diet, and figured out that sugar was the likely cause of my leaky gut, I cut way down on my sugar intake (especially fructose and high fructose corn syrup), and my gut slowly healed.
I was lucky. My symptoms were so bad that I couldn't see how I could afford to continue trying to live with them, so the decision to radically change my diet was easy for me. Deciding whether I wanted to continue to be sick every day, with miserable symptoms, or to change my diet in order to eliminate all the stuff that was slowly poisoning me was a no-brainer as far as I was concerned. Life is too short to spend most of it in the bathroom.
If you do an Internet search to locate the few people who have been able to successfully control their LS, you'll discover that virtually every one of them did it by changing their diet and doing whatever was necessary to resolve their leaky gut and stop the inflammation in their digestive system. But similar to MC, all cases of LS are different, so everyone has to fine tune their diet to make it work effectively for them.
But it's certainly doable, if you are serious about wanting to get your life back under control.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Tex~
thank you so much for answering my questions!
You are 100% right~ i have to make the change.....i am sipping some organic bone broth as i type. I found this at Walmart~ it's Sam's Choice brand....it says it's organic~gf~fat free~w/7 grams of protein. I hope this is ok to have. Until i can make my own i have bought this. I guess asking the butcher for beef bones would be a good idea?
I have felt so bad for the past couple of weeks that i really don't even want the pepsi, even though i still have drank it.....i drink less and less. I know i have to stop. I've known for a long time, but the addiction is real. I know that i am fed up with feeling like this. I have tried so hard to find other things to drink. I guess water is the best option really. I don't know why i find it so hard to make the change. You would think, as you said, feeling bad for so long would be the only answer or push that i would need. Will continue daily to try my best to drink water and broth. I do not eat sweets really as far as sugar goes. I am probably 100% sure i do have leaky gut.
Question 2 for you that i forgot to ask about.....
Vit D~ is it suppose to make you nauseated when you take it? I don't know if it's the Vit D or just me but seem to feel nauseated after taking it. I know my levels are low....probably about 23. Also, is the mag spray alone enough to have sufficient levels? If i do the spray every day.....
I need all the help i can get and appreciate all the advice/suggestions/ and truth!
thank you so much for answering my questions!
You are 100% right~ i have to make the change.....i am sipping some organic bone broth as i type. I found this at Walmart~ it's Sam's Choice brand....it says it's organic~gf~fat free~w/7 grams of protein. I hope this is ok to have. Until i can make my own i have bought this. I guess asking the butcher for beef bones would be a good idea?
I have felt so bad for the past couple of weeks that i really don't even want the pepsi, even though i still have drank it.....i drink less and less. I know i have to stop. I've known for a long time, but the addiction is real. I know that i am fed up with feeling like this. I have tried so hard to find other things to drink. I guess water is the best option really. I don't know why i find it so hard to make the change. You would think, as you said, feeling bad for so long would be the only answer or push that i would need. Will continue daily to try my best to drink water and broth. I do not eat sweets really as far as sugar goes. I am probably 100% sure i do have leaky gut.
Question 2 for you that i forgot to ask about.....
Vit D~ is it suppose to make you nauseated when you take it? I don't know if it's the Vit D or just me but seem to feel nauseated after taking it. I know my levels are low....probably about 23. Also, is the mag spray alone enough to have sufficient levels? If i do the spray every day.....
I need all the help i can get and appreciate all the advice/suggestions/ and truth!
I'm Still Chasing The Original High
I think that high-fructose corn syrup is indeed addictive for some people. My mother was addicted to Big Red. One of the things that can cause such addictions/cravings is a yeast overgrowth. Candida albicans is capable of influencing brain signals to cause people to crave sugar because the yeast has to have sugar in order to thrive. I'm just guessing here, but there's a good chance that yeast is the reason why sugar causes leaky gut. The roots of C. albicans are known to be able to penetrate the lining of the intestines, and yeast is known to cause leaky gut.
When I would look in a mirror back when I was recovering I could often see thrush on my tongue, so I'm pretty sure that I had a yeast overgrowth. I never treated it though, and it eventually faded away after making the diet changes.
How much vitamin D are you taking? High doses of vitamin D can cause nausea, but most people don't have that problem with doses in the 5,000 IU or below range. I always take supplements right after a meal. Some supplements are more likely to cause side effect symptoms if taken on an empty stomach. Vitamin D is important for healing.
Yes, magnesium oil or lotion can be sufficient if you use enough of it. Gabes can give you better guidelines than I can on how much you need to use. And Gabes or someone else can better advise you about making bone broth.
Tex
When I would look in a mirror back when I was recovering I could often see thrush on my tongue, so I'm pretty sure that I had a yeast overgrowth. I never treated it though, and it eventually faded away after making the diet changes.
How much vitamin D are you taking? High doses of vitamin D can cause nausea, but most people don't have that problem with doses in the 5,000 IU or below range. I always take supplements right after a meal. Some supplements are more likely to cause side effect symptoms if taken on an empty stomach. Vitamin D is important for healing.
Yes, magnesium oil or lotion can be sufficient if you use enough of it. Gabes can give you better guidelines than I can on how much you need to use. And Gabes or someone else can better advise you about making bone broth.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.