Does anyone NOT have problems with gluten?

[Meggie1129]

Hello - It has been over a year since I posted. I was diagnosed with CC in September 2016, went on Endocort for four months in October 2016. Was GF/DF for a year and also began a strict regimen of vitamins, supplements, etc based off of recommendations from this site and other research. I have been in remission since going on the Endocort. I have since reintroduced small amounts of gluten and dairy in the past six months and have had no problems. By following a clean diet I mainly avoid gluten, but I would say at least once a week now I may have something that contains gluten.

I do know that by having an auto-immune disease I should avoid gluten, but I was just wondering how many other people don't have problems if they have gluten. When I say don't have problems, I don't must mean having diarrhea, but no bloating, stomach problems or anything to even indicate an intolerance. Based off of this website I feel that is very rare, but I also know that the percentage of people that do not have problems is probably skewed because they most likely would not be posting here.

I do thank everyone for the advice I found on here last year. It was very helpful to me in determining which supplements and things to add to my overall diet.

[Gabes-Apg]

hi there Meggie
congratulations on achieving remission...
nb -in your post you say that you were diagnosed in sept 2016 that was only 7 months ago.. do you mean September 2015 - same as you joining date?

in my 7 years being active on this forum, I can only recall 3 or 4 people that have stated they regularly consume gluten after achieving remission. From memory none of these people have returned to provide updates 6 or 12 months later to say that they are still symptom free while consuming gluten.

what I have seen when people start introducing small amounts of things like gluten and dairy (or other major triggers) is that over time the inflammation levels build, there are no major symptoms, and then there is a tipping point, be it food based, or stress based, or health condition based ie get a flu or virus. They end up in major flare and second time around it takes way more effort to calm the inflammation and heal. for some medications like endocort do not work second time around. and rather than achieving healing and remission in 12 months, it can take 2-3 years. (or for some longer) as we age, our ability to heal reduces.

from my observations of the 1500-2000 active members here over the 10+ years of the forum, eating high inflammation food items is a big risk to long term health. there are good scientific articles explaining why modern day wheat / gluten is major contributor to auto immune health issues. why risk that danger?
as some one who has spent over 8 years struggling to attain wellness, at one stage so sick that I couldn't work or barely leave the house for over 12 months. I would not want to risk that happening again... ongoing health issues is not only expensive, but very impacting on quality of life, work life, family life, relationships, wellbeing. there are many toxins / inflammatory items that we cant avoid, so why not avoid the ones we can, to protect our long term wellness,

hope this answers the question
if you want links to the articles/science about modern day gluten let me know

[Gabes-Apg]

PS
an example of further auto immune issues - a few of us here, young, and not so old also have an auto immune condition called lichen sclerosis.
it attacks the skin, mainly in the genital and anus areas, but can also occur under arms, under breasts etc.

aside from extreme itching, excruciating pain when you urinate and poop, sometimes bleeding, it also causes permanent damage to your vagina, to the extent that sex is no longer enjoyable. and in some cases people require surgery to correct damage.

I share this detail as once you have it, it is life long management. If you thought MC flares were intense, it is nothing compared to dealing with LS.
these are they type of auto immune conditions that are very likely to happen to female MC'ers.

[Deb]

Gabes, Tex, do you have any opinions on ancient einkorn flour? I have read that those with gluten intolerances can sometimes tolerate that. I also know that I tested (very) positive to gluten (gliadin) with Enterolab. I haven't purposely tried gluten in seven years but if I did I would start with that (just in case it might be a Roundup or other issues. Deb

there are good scientific articles explaining why modern day wheat / gluten is major contributor to auto immune health issues.

[tex]

Deb,

Einkorn contains less gluten and it's a different type compared with wheat. Eincorn has less bran also. It's unique — it's a different plant. Eincorn is not wheat, but it does contain reactive storage proteins like wheat, emmer, barley, rye, spelts, etc. Eincorn has 14 chromosomes while wheat has 42. Why can't we eat barley, rye, spelts, etc? Because we react to it.

Tex

[Gabes-Apg]

Deb
long story short - it depends

all items have a risk depending on how they are grown, processed, stored etc.
and based on what we have learnt here, everyone is different as to what they can tolerate in regards to flours.

[twirlitgirl]

hi there Meggie
congratulations on achieving remission...
nb -in your post you say that you were diagnosed in sept 2016 that was only 7 months ago.. do you mean September 2015 - same as you joining date?

in my 7 years being active on this forum, I can only recall 3 or 4 people that have stated they regularly consume gluten after achieving remission. From memory none of these people have returned to provide updates 6 or 12 months later to say that they are still symptom free while consuming gluten.

what I have seen when people start introducing small amounts of things like gluten and dairy (or other major triggers) is that over time the inflammation levels build, there are no major symptoms, and then there is a tipping point, be it food based, or stress based, or health condition based ie get a flu or virus. They end up in major flare and second time around it takes way more effort to calm the inflammation and heal. for some medications like endocort do not work second time around. and rather than achieving healing and remission in 12 months, it can take 2-3 years. (or for some longer) as we age, our ability to heal reduces.

from my observations of the 1500-2000 active members here over the 10+ years of the forum, eating high inflammation food items is a big risk to long term health. there are good scientific articles explaining why modern day wheat / gluten is major contributor to auto immune health issues. why risk that danger?
as some one who has spent over 8 years struggling to attain wellness, at one stage so sick that I couldn't work or barely leave the house for over 12 months. I would not want to risk that happening again... ongoing health issues is not only expensive, but very impacting on quality of life, work life, family life, relationships, wellbeing. there are many toxins / inflammatory items that we cant avoid, so why not avoid the ones we can, to protect our long term wellness,

hope this answers the question
if you want links to the articles/science about modern day gluten let me know

Gabes, very well stated none of us are getting younger we are all growing older so why not have security in keeping our health on our terms with what we know now, it is powerful. I am so grateful for all that you have posted here and shared from your heart about your other health issues as well as MC. I wish you well and a very Happy Easter. thank-you for the tip on the panty liners I had no idea it could affect us that way by using the thinner ones, I now don't use any while at home but travelling I do use toilet paper just as a security measure but do not suffer from the itchness anymore, it has changed my life.. big hugs.,

[Deb]

Gabes, Tex, so does einkorn have gliadin?

[Gabes-Apg]

A quick google search confirmed the following;

it has gluten according to this article

Einkorn wheat can be digested better than most foods. The low content of gluten in Einkorn makes it easier to digest than modern wheat. An improvement in digestion means that nutrients are better absorbed, ensuring that you have no tummy problems after consuming a delicious dish cooked with einkorn flour.

http://www.einkorn.com/einkorn-nutritional-facts/

Remember that all wheat contains gluten, and gluten consists of two proteins:
gliadin (which causes the rise)
glutenin (which causes elasticity)
Most individuals with gluten issues react negatively to the gliadin.

Einkorn has a higher ratio of gliadin to glutenin,

http://dontwastethecrumbs.com/2014/11/e ... uten-free/

[tex]

Deb,

Einkorn contains less gluten and it's a different type compared with wheat. Eincorn has less bran also. It's unique — it's a different plant. Eincorn is not wheat, but it does contain reactive storage proteins like wheat, emmer, barley, rye, spelts, etc. Eincorn has 14 chromosomes while wheat has 42. Why can't we eat barley, rye, spelts, etc? Because we react to it.

Tex

Does barley contain gluten? No, it contains hordein, but it causes us to react like gluten.

Tex

[Deb]

Thanks, Gabe. I found this too. https://healthytraditions.com/healthytr ... flour.html

[tex]

Gabes,

Einkorn is not wheat.

Tex

[tex]

You're hung up on semantics. All grain contains gluten of some type, but we don't react to all grain.

Tex

[UkuleleLady]

I think that even if I could get away with gluten, and I have ingested it accidentally with minimal effect since remission, I have no interest in eating it.

I have listened to the top researchers' programs from the Gluten Summit a few years ago; Doctor Fasano is a leading researcher. His research suggests NO ONE can even digest it due to the nature of the molecule.

Regardless, it causes inflammation, I know that. If the effects are not noticeable, it doesn't mean there isn't an effect. And inflammation is a component of most disease.

The medical community recognizes it causes Celiac, and 'we' (mc-ers) know it plays a role in MC --

Who knows what else it plays a role in? Alzheimer's? Cancer? Osteoporosis? Arthritis?

My personal suspicion is it plays a role in many diseases. It will probably never be proven to, however, because the medical community won't even acknowledge MC as a gluten-related illness.

[Erica P-G]

I'm not sure if what I have been feeling lately is gluten related but here goes....

I am not having any bowel intestine issues but I have an achy left elbow that keeps me from lifting much of anything and this has been ongoing for 2-3 weeks now....getting very annoying too.

I have a suspicion that it may be a gluten response, but I also carried around my almost 1 year old grandson who weighs around 25 pounds and he wants to be held alot, so that particular weekend I held him alot....now I can't seem to get my arm/elbow to strengthen back up properly.

Anyway...I hope due to having to use my arm...you know to 'do things obviously' that it is just taking a long time to heal.