I decided to test dairy to interesting results.
First test was sheeps milk gouda and goats milk gouda from a wheel at the wine and cheese store.
I bought a small chunk of each. I ate about a 2" square of each several days. No gastro distress and no joint pain.
Decided to test cows milk cheese. I bought some Italian mozzarella from grocery store. I ate 1" chunk. Yum, I forgot how creamy this is. I ended up eating the 4" x 4" block in one afternoon. I got up about 4:00 am during sleep to use the bathroom. SEVERE RIGHT KNEE PAIN. I'm normally pain free. 10 ON THE PAIN SCALE. I COULD BARELY WALK. I WENT INTO THE KITCHEN AND GOT A FREEZER JEL PACK TO PUT ON MY KNEE.
I woke up at 6:00 am. STILL SEVERE KNEE PAIN. I can barely walk. Ate breakfast. Took two tylenols.
I'm currently icing the knee with frozen peas while I am work. I had a b.m. No gastro upset.
Plan to drink a lot of water today to detox, stick with the frozen peas and use tylenol.
Conclusion--I don't seem to react to the goats milk cheese. I clearly have a cows milk casein allergy.
dairy test
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Hi Erica,
Since my flare last summer I would say about 4 months. I was basically healed by December 2016 (from reflare of August 2016). I've been pretty solid the last 8 weeks. I think part of the problem was the size of the piece of cheese. I had a couple of 1/2" cubes of cheddar about 8 weeks ago at the end of a meal and don't remember any joint pain. A large 4" x 4" brick of cheese is just way too much casein.
Back when I was eating salad (I'm still afraid to try salads now) I was okay with several stray cheese shreds on my plate in a restaurant setting. I think I'm ok with some inadvertent cheese shreds but don't think I will purposefully eat cows milk cheese due to the inflammation and joint pain.
This article talks about the difference in cow and goat casein. http://www.breakingtheviciouscycle.info ... nsitivity/ I appear to be okay with the goat casein but I am not going out of my way to eat goat cheese.
It is 2:30 pm. Knee pain is still extreme--I would say a 10. I took two fish oil pills at 12:20 pm. Two more tylenols at 1:00 pm. I have pea ice pack going now. I'm going to put on some mag lotion on knee.
Since my flare last summer I would say about 4 months. I was basically healed by December 2016 (from reflare of August 2016). I've been pretty solid the last 8 weeks. I think part of the problem was the size of the piece of cheese. I had a couple of 1/2" cubes of cheddar about 8 weeks ago at the end of a meal and don't remember any joint pain. A large 4" x 4" brick of cheese is just way too much casein.
Back when I was eating salad (I'm still afraid to try salads now) I was okay with several stray cheese shreds on my plate in a restaurant setting. I think I'm ok with some inadvertent cheese shreds but don't think I will purposefully eat cows milk cheese due to the inflammation and joint pain.
This article talks about the difference in cow and goat casein. http://www.breakingtheviciouscycle.info ... nsitivity/ I appear to be okay with the goat casein but I am not going out of my way to eat goat cheese.
It is 2:30 pm. Knee pain is still extreme--I would say a 10. I took two fish oil pills at 12:20 pm. Two more tylenols at 1:00 pm. I have pea ice pack going now. I'm going to put on some mag lotion on knee.
Hi, Brandy. I hope you find relief from the pain soon. I haven't had dairy for over three years and after reading this I don't think I'll try it. Sending healing hugs to you,
Marcia
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My mission in life is not merely to survive, but to thrive and to do so with some passion, some compassion, some humor and some style. - M. Angelou
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My mission in life is not merely to survive, but to thrive and to do so with some passion, some compassion, some humor and some style. - M. Angelou
Hi Marcia and Cathy,
Thanks! The boyfriend laughed hysterically when he got home from work. I told him I had a "cheese injury." He said "you have "fromage damage." At 4:00 pm I still had serious pain and was using the pea ice pack. Fortunately by 7:00 pm the pain had pretty much dissipated.
He laughed hysterically when I told him I had eaten a whole brick of cheese. He said I need to stick with baby bites when I try a new food.
This morning when I woke up I could not believe it.....no pain. I was lucky that the inflammation passed quickly.
Not that I'd recommending anyone test cheese but if you do I'd suggest small piece of goats milk gouda.
Cow cheese is pretty risky for us. I think I read 50% of celiacs have casein sensitivity so I guess I'm one of them.
If anyone is so inclined to test cow cheese I'd recommend a tiny tiny piece....definitely not a brick. I could not walk yesterday the pain was so bad....I had to hobble.
I seem to be ok with the goats milk gouda but honestly after this whole episode I'm stearing clear of any milk products from animals.
In a way I'm kind of blessed to have been diagnosed with MC in 2010. I see my friends....who are mid 50s struggling with aches and pains. Except for the recent cheese challenge I live pain free.
Cathy---thanks for the encouragement on salads. I think I still have about another 6 months or so before I can handle raw.
Brandy
Thanks! The boyfriend laughed hysterically when he got home from work. I told him I had a "cheese injury." He said "you have "fromage damage." At 4:00 pm I still had serious pain and was using the pea ice pack. Fortunately by 7:00 pm the pain had pretty much dissipated.
He laughed hysterically when I told him I had eaten a whole brick of cheese. He said I need to stick with baby bites when I try a new food.
This morning when I woke up I could not believe it.....no pain. I was lucky that the inflammation passed quickly.
Not that I'd recommending anyone test cheese but if you do I'd suggest small piece of goats milk gouda.
Cow cheese is pretty risky for us. I think I read 50% of celiacs have casein sensitivity so I guess I'm one of them.
If anyone is so inclined to test cow cheese I'd recommend a tiny tiny piece....definitely not a brick. I could not walk yesterday the pain was so bad....I had to hobble.
I seem to be ok with the goats milk gouda but honestly after this whole episode I'm stearing clear of any milk products from animals.
In a way I'm kind of blessed to have been diagnosed with MC in 2010. I see my friends....who are mid 50s struggling with aches and pains. Except for the recent cheese challenge I live pain free.
Cathy---thanks for the encouragement on salads. I think I still have about another 6 months or so before I can handle raw.
Brandy
Brandy, though my husband doesn't have MC he has developed a sensitivity to gluten and has been GF for a couple of years. He's a big milk drinker. I read him your experience and I think he is ready to give up milk and see if it helps the joint pain he's been experiencing. I was actually surprised he'd go there. Deb
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I do raw now too without any problem but it was about 3 years in when I got brave enough to try. Now I have a big salad every day. I used to love cheese but I do not plan to ever try any. I figure even if it doesn't cause symptoms, at least right away, internal damage could be accumulating that will manifest at some point. I just made the decision to stay with what I know is safe and leave all the rest. I am glad your pain has gone away.brandy wrote:
Cathy---thanks for the encouragement on salads. I think I still have about another 6 months or so before I can handle raw.
Brandy
Jean
HI Brandy,
It's great to read your post in that you and I have walked this path together for the past 5 years. I read the thread about balance-- also very timely for me.
It's good we can now laugh at our attempts to broaden our diets and enduring 'fromage damage'. I also know how it is to try something I haven't tasted for awhile and find I've eaten the whole thing.
Fortunately I detox better than I used to, too.
Anyway, it's good to know that you are doing well.
Carol
It's great to read your post in that you and I have walked this path together for the past 5 years. I read the thread about balance-- also very timely for me.
It's good we can now laugh at our attempts to broaden our diets and enduring 'fromage damage'. I also know how it is to try something I haven't tasted for awhile and find I've eaten the whole thing.
Fortunately I detox better than I used to, too. Anyway, it's good to know that you are doing well.
Carol
“.... people will forget what you said, people will forget what you did, but people will never forget how you made them feel.” Maya Angelou
Glad you're back to normal, Brandy. I'm like you, at almost 57 I really don't have any pain and I am grateful for that. I'm sort of curious about the goat's milk gouda...if I ever see any I might try it. But after reading about your experience, I'll be sure to just try a bit! 
Marcia
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My mission in life is not merely to survive, but to thrive and to do so with some passion, some compassion, some humor and some style. - M. Angelou
------------
My mission in life is not merely to survive, but to thrive and to do so with some passion, some compassion, some humor and some style. - M. Angelou
dairy test
I think these are really good discussions about casein and guernsey cows, jersey cows and goats if anyone is interested.
http://www.perskyfarms.com/phpBB2/viewt ... t=guernsey
http://www.perskyfarms.com/phpBB2/viewt ... t=guernsey
http://www.perskyfarms.com/phpBB2/viewt ... t=guernsey
http://www.perskyfarms.com/phpBB2/viewt ... t=guernsey
Deb....I will be interested to hear how your husbands dairy test goes.
Jean....I am steering clear of all dairy now. The level of pain from my test was frightening. There is no doubt in my mind that if I still was eating small amounts of goats cheese that I would have inflammation going on in my body even if I couldn't "feel" it.
Carol....good to see you again and thanks for the support.
Marcia.....Not that I'm recommending it LOL but in the US goats milk cheese can generally be bought at a wine and cheese shop or a higher end grocery chain like Whole Foods. In Europe goats milk cheese has been made for thousands of years particularly around the Mediterranean basin and in the middle east and is readily available. In the US it would be considered more of a "boutique" cheese. The goats milk gouda and sheeps milk gouda that I tested (small pieces) were imported from Europe and were cut out of a cheese wheel for sale. Pre MC back in 2009 I could get goats milk gouda that was made at a small batch dairy operation in Georgia. Goats and sheeps milk cheese is more of a novelty in the US whereas in Europe is everyday cheese and much more common.
Tex has some interesting commentary about the difference types of casein and the difference between dairy from guernsey cows, jersey cows, goats and sheep in the two threads I've listed above.
Jean....I am steering clear of all dairy now. The level of pain from my test was frightening. There is no doubt in my mind that if I still was eating small amounts of goats cheese that I would have inflammation going on in my body even if I couldn't "feel" it.
Carol....good to see you again and thanks for the support.
Marcia.....Not that I'm recommending it LOL but in the US goats milk cheese can generally be bought at a wine and cheese shop or a higher end grocery chain like Whole Foods. In Europe goats milk cheese has been made for thousands of years particularly around the Mediterranean basin and in the middle east and is readily available. In the US it would be considered more of a "boutique" cheese. The goats milk gouda and sheeps milk gouda that I tested (small pieces) were imported from Europe and were cut out of a cheese wheel for sale. Pre MC back in 2009 I could get goats milk gouda that was made at a small batch dairy operation in Georgia. Goats and sheeps milk cheese is more of a novelty in the US whereas in Europe is everyday cheese and much more common.
Tex has some interesting commentary about the difference types of casein and the difference between dairy from guernsey cows, jersey cows, goats and sheep in the two threads I've listed above.
Hi Brandy,
After I discovered about two years ago (I even think you was the one that advised me to stop milk products ) very easy I couldn't tolerate casein (in cow milk products), it took me more than half a year to discover in the end that I also can't tolerate goat and sheep cheese. The effects are less severe, more diffuse and less immediate, but I definitely react also bad to goat and cheese products.
It was very hard for me not to be able to eat cheese, but after a year without any cheese at all I'm getting used to it and can accept it. At the moment I even manage to cut pieces of cheese for others
I feel much better and my osteoarthritis is less severe. Just like you preventing 'hidden' inflammation is an important stimulus for me to avoid food like cheese.
Sonja
After I discovered about two years ago (I even think you was the one that advised me to stop milk products ) very easy I couldn't tolerate casein (in cow milk products), it took me more than half a year to discover in the end that I also can't tolerate goat and sheep cheese. The effects are less severe, more diffuse and less immediate, but I definitely react also bad to goat and cheese products.
It was very hard for me not to be able to eat cheese, but after a year without any cheese at all I'm getting used to it and can accept it. At the moment I even manage to cut pieces of cheese for others
I feel much better and my osteoarthritis is less severe. Just like you preventing 'hidden' inflammation is an important stimulus for me to avoid food like cheese.
Sonja
Great info, Brandy, and thanks for sharing.
Just walking in the grocery store last weekend, I told my husband, "I would give anything to be able to have some cheese again." And then today I read your post! :)
Like you, I had all kinds of aches and pains before MC, and once I went gf, df, and soy free, and also took off about 60 pounds, I no longer have those pains! It is a blessing in disguise, if you will!
I think I'll just keep walking past the cheese!
Just walking in the grocery store last weekend, I told my husband, "I would give anything to be able to have some cheese again." And then today I read your post! :)
Like you, I had all kinds of aches and pains before MC, and once I went gf, df, and soy free, and also took off about 60 pounds, I no longer have those pains! It is a blessing in disguise, if you will!
I think I'll just keep walking past the cheese!
Jari
Diagnosed with Collagenous Colitis, June 29th, 2015
Gluten free, Dairy free, and Soy free since July 3rd, 2015
Diagnosed with Collagenous Colitis, June 29th, 2015
Gluten free, Dairy free, and Soy free since July 3rd, 2015