Microscopic colitis in jejunum??

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kenvh
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Microscopic colitis in jejunum??

Post by kenvh »

Hi

My name is ken from belgium and i had or have also post infectious ibs (sibo) after a food poisoning. Now 2 years later...
I did get a second food poisoning a month ago.
The first calprotectin test showed 277 .. 3 weeks after infection and with negative stool tests on bad pathogens. The second calprotectin a week later showed 50 wich is normal. No ibd levels.

Still... My symptoms are not like my original ibs now.
I have abdominal pain, stabbing, stings, slight burning inflammation feeling and cramps added to my normal ibs wich was predominantly bloating.

These burning and cramps are not typical ibs feeling if u ask me.
What i also must say is that i feel this pain right under the belly button. Or one or two fingers below. More on the left side. Thats jejunum if u ask me.

Do u guys also have slight burning and cramps and stings??
And is it possible to have lymphocytic or Cc colitis in the jejunum?

I must mention i also have gastritis ( burning pain in stomach) and i had before the poisoning a very mild burning feeling in duodenum, but after the poisoning.. Abdominal pain cramps and burning came into the mix in my small intestine. Since microscopic colitis is the only colitis next to crohn or uc.... Im thinking about lymphocites in small intestine.
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tex
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Post by tex »

Hi Ken,

Yes, MC can affect any part of the digestive tract, including the jejunum. It's very common for other parts of the intestines to have LC, including the stomach and the small intestine, but the doctors can't call it that, because by definition, LC can only exist in the colon. Back when I had symptoms, I often had severe pain right under the belly button.

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Post by kenvh »

Hi Tex

Thx for answering. U are awesome btw.
Did u also have slight burning in the small intestine?
it can also feel stiff and sour. and cramps.
those are my main sympoms.
It cant be something else then inflammation right?

I will see a GI specialist soon, but i think its useless.
they always wonna do a colonscopy. this is useless for me right?
Or can they take a biopsy in jejunum with endoscopy? or only duodenum?

entocort ec would be great btw, but I get tinitus by taking 1 pill. so I cant take that :(
pentasa the same.
Im little lost. Im following low fodmap diet btw and no gluten, dairy, nuts eggs.
Only eat potato, rice, meat, fish some veggs and banana.
My diet is clean for 2 years now.
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Post by tex »

I didn't have just slight burning in the small intestine — I had major pain and cramps.

They can't reach the jejunum with a colonoscope. I don't think they can reach it from the other end, either. So I don't believe they can take biopsies from the jejunum.

You shouldn't be having symptoms after 2 years. You may be sensitive to 1 or more of the few foods you are eating or something else you are taking (unless you have Crohns disease).

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Post by Gabes-Apg »

Im little lost. Im following low fodmap diet btw and no gluten, dairy, nuts eggs.
Only eat potato, rice, meat, fish some veggs and banana.
My diet is clean for 2 years now
to expand on Tex's suggestion that you might be sensitive to food you are having - it could also be non food items that you are reacting to, mold, pollution, chemicals, pollen, stress (emotional / mental / physical)

what drinks are you having?

Also - are you taking Vit D3? magnesium? active B's? these are key for keeping inflammation levels down, histamine levels in balance etc
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Post by kenvh »

Thx guys

No, i had ibs for two years.. Only bloating.
That was ok.

But since a month ago i had food poisoning and cramps and burning and pain is there also now.

No, cant be a food trigger.
I only drink water.
Maybe its the ppi that i take for gastritis.
I will try to skip that for a few days and see.
But im sure that isnt the problem for me.

Im worried. The slight burning does worry me
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Post by Gabes-Apg »

Maybe its the ppi that i take for gastritis.
there is your answer...
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Post by Gabes-Apg »

A suggestion for getting off the PPI

start taking a H2 blocker in USA and Australia it is called Rantidine

Also take good doses of Vit D3 and magnesium glycinate orally, and use magnesium oil/lotion topically. With good levels of Vit D3 and magnesium the gastritis will resolve.
after 8 weeks of vit D3 and magnesium then go off the PPI.

hope this helps
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Post by tex »

Ken,

PPIs cause MC. You can use an H2 blocker to get the same acid suppression as the PPI, you just have to take it more often. It's much safer to take an H2 blocker than a PPI.

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Post by kenvh »

Thx Gabes en Tex

Gabes:
why do u think that vit d + magnesium glycinate would eliminate gastritis?
its actually a too thin mucosal layer in my stomach. I have interstitial cystitis too: also a too thin mucosal layer wich gives burning because the walls are irritated.
I have tried like 1000 things for those diseases and notting worked.
I did take high doses of vit D 6000 ui or more for 3 months.
Didnt do a thing. I was oil based, so it was the good absorption type.
Real vitamin D from th sun does help me I feel. But not the supplements.

H2 also generates MC I read on papers. But h2 doesnt work for my body, so cant do that.
I will manage with baking soda for now. thats ok right 1 hour after meals?
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Post by brandy »

Ken in addition to causing MC long term use of PPIs are linked to alzheimers. H2 blockers are safer for the brain.
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Post by kenvh »

Thx tex.
But i dont really feel this inflammation is caused by ppi at all.

2 years ago food poisoning gave me sibo.

Now i had again food poisoning and burning intestine cramps and pain comes.

So, the only thing that changed was the poisoning wich triggerd for sure the inflammation.
But like u say, ppi wont do any good for bowels. But it helps my gastritis stomach inflammation a lot.
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Post by tex »

Ken, I realize that the PPI may be helping now, and it may not be causing inflammation now, but many of the members here would not be here if they had not taken a PPI. It caused their MC.

And after you are hooked on PPIs, you will not be able to stop using them because when you try to stop using them they cause severe acid reflux. Using a PPI is like jumping from the frying pan into the fire. You will see what I mean when you try to stop using them.

What you need is bismuth subsalicylate to coat your stomach and intestines, but I understand that Pepto-Bismol is not available in Europe.

Here is an article about the risks of using PPIs and how to wean off them after you're hooked on them.

http://www.microscopiccolitisfoundation ... 112716.pdf

Tex
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Post by kenvh »

Hi tex

Yeah, ppi is pure evil, i know. But it helped my gastritis big time.
But like u say, it wont do the gi tract any good on other sides.

Im cold turkey off ppi now. Severe rebound yes like i knew.
But im taking baking soda all day in between meals.
Hopefully i can hold it off. The reflux isnt the problem.
The problem is the burning stomach. Not gerd for me.

Pepto bismol burns my bladder and interstitial cystitis.
Another mucosal disease in me. Im a mess.

I am 4 or 5 months on ppi. But never took it longer then 3 days in a row.
Always 3 days, then off day with baking soda. Back to ppi, and sometimes 2 days baking soda.
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Post by tex »

This is a tough situation you're in, and there's really no practical way to solve it because your digestive system cannot properly digest food without stomach acid. But then again, it can't properly digest food when it is inflamed, either.

By the way, a PPI has some effect for 3 days, but it's effect is weaker each day unless another one is taken.

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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