Jim,
It's good to hear that the inflammation is down and they will re-analyze the samples. It will be interesting to see if the pathologist finds anything new.
You're very welcome.
Tex
Here is the Histology report from my colo/endoscopies
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Fecal Elastase hmmm
Hello all hope I find you in good health. I have today been informed that I have low fecal elastase and will be started on pancreatic enzymes soon. My elastase is 172. im still trying to digest this on top of everything else (Crohns etc) , I'm still waiting for a 24hr urine test plus the result of my biopsies being resubmitted for mast cell activation syndrome. Now this comes along
Hello Jim,
I have a hunch that may be somewhat common with IBDs because many other organs in the digestive system other than the intestines tend to become inflamed when IBDs are active. Most of us never get that type of information because our docs never order the tests that are needed to detect those issues.
Thanks for the update,
Tex
I have a hunch that may be somewhat common with IBDs because many other organs in the digestive system other than the intestines tend to become inflamed when IBDs are active. Most of us never get that type of information because our docs never order the tests that are needed to detect those issues.
Thanks for the update,
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Hi Jim! Thank you for sharing your journey. It is wonderful to have a doctor willing to order these tests and be so thorough ... albeit getting results can be really scary. I totally concur with Tex that so many of us with MC also have these other issues, just without the tests and medical documentation.
I have been taking pancreatic enzymes for the past 6 weeks or so, and around that time I also added the daily antihistamine (which I learned about here on this forum - THANK YOU!), and I can't express enough the difference these 2 things have made for me!!!!!! My GI doctor recommended the pancreatic enzymes (I get them from Amazon and use 2 - "Digestzymes" and Thorne "Dipan 9") after there was fat detected in a fecal stool test. After I started the enzymes, he later ordered a 48 hour fecal fat quantity test, and the amount of fat in that test was apparently under the limit for a diagnosis. That being said, I KNOW I have malabsorption issues, from the yellow fingernails I had for so many months to the appearance of the toilet bowl!!
Anyway, I'm hoping you're doing much better and will continue on that path of healing. Just wanted to share that taking those enzymes before/with every meal or snack (and you can vary the amount of enzymes depending upon the size of your meal) as well as taking the antihistamine have helped me so much, as well as being careful with the diet. My doctor said that fat is even more difficult to digest than protein, carbs or fiber (I won't go into all the other things he's told me!!), so now that I'm taking the enzymes, I've been able to add back some of the "good" fats (such as fish oil, and others) which has greatly helped skin, hair, nails and overall well-being.
All the best,
~ Holly
I have been taking pancreatic enzymes for the past 6 weeks or so, and around that time I also added the daily antihistamine (which I learned about here on this forum - THANK YOU!), and I can't express enough the difference these 2 things have made for me!!!!!! My GI doctor recommended the pancreatic enzymes (I get them from Amazon and use 2 - "Digestzymes" and Thorne "Dipan 9") after there was fat detected in a fecal stool test. After I started the enzymes, he later ordered a 48 hour fecal fat quantity test, and the amount of fat in that test was apparently under the limit for a diagnosis. That being said, I KNOW I have malabsorption issues, from the yellow fingernails I had for so many months to the appearance of the toilet bowl!!
Anyway, I'm hoping you're doing much better and will continue on that path of healing. Just wanted to share that taking those enzymes before/with every meal or snack (and you can vary the amount of enzymes depending upon the size of your meal) as well as taking the antihistamine have helped me so much, as well as being careful with the diet. My doctor said that fat is even more difficult to digest than protein, carbs or fiber (I won't go into all the other things he's told me!!), so now that I'm taking the enzymes, I've been able to add back some of the "good" fats (such as fish oil, and others) which has greatly helped skin, hair, nails and overall well-being.
All the best,
~ Holly
2015 Hashimoto's, MTHFR
2016 LMC, Malabsorption
2017 Lymphocytic Dermatologic Vasculitis
"I strive to live in my heart, not in my head!"
2016 LMC, Malabsorption
2017 Lymphocytic Dermatologic Vasculitis
"I strive to live in my heart, not in my head!"
Jimbo... did ur MRI show inflammation itself?
A side of the biopsy i mean. did the MRI himself show the microscopic inflammation in your small intestine?
ps: how did they do the jejunum biopsy? they are gonna do a duodenum biopsy for me and a pill camera. but they cant reach the jejunum.
did u ask for it?
greets
A side of the biopsy i mean. did the MRI himself show the microscopic inflammation in your small intestine?
ps: how did they do the jejunum biopsy? they are gonna do a duodenum biopsy for me and a pill camera. but they cant reach the jejunum.
did u ask for it?
greets
yeah, i know. im afraid im never gonna have a good diagnose.
If they find notting; they gonna say IBS. with my positive calprotectin tests and nightly sweats and cramps.. IBS isnt a criteria at all.
I think its non-characterised chronic inflammation. thats the thing im suspecting thats a real diagnose. but indeed: they wont see that with blind eye.
If they find notting; they gonna say IBS. with my positive calprotectin tests and nightly sweats and cramps.. IBS isnt a criteria at all.
I think its non-characterised chronic inflammation. thats the thing im suspecting thats a real diagnose. but indeed: they wont see that with blind eye.