You are a not alone Deb, many here have made the same mistake which is why we mention it.
the daily requirement for magnesium is about 350-400mg elemental magnesium, quite a few people here use more than this, and to correct deficiency you would need doses of 600mg elemental magnesium for at LEAST 8 weeks to correct the deficiency (for me it took 6 months of high dose Magnesium to correct the deficiency)
Can't catch a break with any meds
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Yeah, I forgot he wasn't an endo. But I agree that it's mighty frustrating that he is willing to let you use NDT but he's afraid of it. The correct dose shouldn't be set by looking at your TSH. The way you traditionally find the correct dose of NDT is to slowly increase the dose until the patient shows hyper symptoms and then you back off the dose a certain amount. I'm thinking it's about a half-grain, but it may be some other amount.
I don't know much about using cholestyramine. I don't have any experience with it. It may affect your mood as it lowers your cholesterol. Or selectively depleting certain vitamins or minerals may affect your mood.
Tex
I don't know much about using cholestyramine. I don't have any experience with it. It may affect your mood as it lowers your cholesterol. Or selectively depleting certain vitamins or minerals may affect your mood.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
I've wondered how taking cholestyramine effects some with "super-star" cholesterol levels. I really don't care for the idea of taking it but I have noticed an improvement for the night time issues, however it hasn't changed the D or the number of trips to the bathroom throughout the day. It's hard to say it's a success. That's why I'd like to give it a month to see if I am just being impatient again.
The thought of starting a while new round of doctor appointments for my thyroid is daunting. I'm trying to see them less and I seem to be caught up with going more. Although, He can't tell me no if I don't make contact.
You mentioned the cholestyramine depleting vitamins/minerals. Is there anything that can be done to counteract that? Is taking supplements a waste of money if the cholestyramine is going to run interferance with them? But then not taking them seems like it would a bad idea too.
I believe my whole mood thing is linked to my thyroid because thie past week has been a walk down memory lane. It is all exactly the same as before. Doctors don't understand what we in my household call crazy-lady mode. It's that same feeling of being extremely uncomfortable in my own body with a temper that is ridiculously short over mundain situations. Not like me at all. Although the constant pain (shoulder, neck, wrists, etc) make for a very cranky me.
My doc seemes to want to attribute my fatigue and complaints on fibromyalgia. He is, at least, knowledgeable about it but at the same time I have a half-dx. I have no rhuematoid issues. I was tested for fibro twice and didnt pass the eval for the sensitive spots that go with it. Yet I'm often referred to as having it yet I don't. I absolutely agree that my MC contributes to my fatigue but I've been living with it since 2007 so have a good idea what it MC related and what is thyroid related. That is really over simplified but I've has lots of time to make thise connections.
I was hoping to improve my MC and ended back down the thyroid road. I guess I might as well make the appointment and see where is goes.
The thought of starting a while new round of doctor appointments for my thyroid is daunting. I'm trying to see them less and I seem to be caught up with going more. Although, He can't tell me no if I don't make contact.
You mentioned the cholestyramine depleting vitamins/minerals. Is there anything that can be done to counteract that? Is taking supplements a waste of money if the cholestyramine is going to run interferance with them? But then not taking them seems like it would a bad idea too.
I believe my whole mood thing is linked to my thyroid because thie past week has been a walk down memory lane. It is all exactly the same as before. Doctors don't understand what we in my household call crazy-lady mode. It's that same feeling of being extremely uncomfortable in my own body with a temper that is ridiculously short over mundain situations. Not like me at all. Although the constant pain (shoulder, neck, wrists, etc) make for a very cranky me.
My doc seemes to want to attribute my fatigue and complaints on fibromyalgia. He is, at least, knowledgeable about it but at the same time I have a half-dx. I have no rhuematoid issues. I was tested for fibro twice and didnt pass the eval for the sensitive spots that go with it. Yet I'm often referred to as having it yet I don't. I absolutely agree that my MC contributes to my fatigue but I've been living with it since 2007 so have a good idea what it MC related and what is thyroid related. That is really over simplified but I've has lots of time to make thise connections.
I was hoping to improve my MC and ended back down the thyroid road. I guess I might as well make the appointment and see where is goes.
Deb
"Do not follow where the path may lead. Go instead, where there is no path, and leave a trail.
-Ralph Waldo Emerson
2007 CC
2013 thyroid cancer- total thyroidectomy
2013 Hashimoto's - numbers always "normal"
2017 Lyme's Disease
"Do not follow where the path may lead. Go instead, where there is no path, and leave a trail.
-Ralph Waldo Emerson
2007 CC
2013 thyroid cancer- total thyroidectomy
2013 Hashimoto's - numbers always "normal"
2017 Lyme's Disease
-
Gabes-Apg
- Emperor Penguin
- Posts: 8332
- Joined: Mon Dec 21, 2009 3:12 pm
- Location: Hunter Valley NSW Australia
Deb,
My chronic fibromyalgia issues resolved once I fixed magnesium deficiency. my mild thyroid symptoms resolved when I fixed other nutrient imbalances.
cholestryamine (and many medications etc) deplete magnesium, hence why you need to increase daily intake to counteract this impact. using topical magnesium or the better absorbed ReMag product will protect you against deficiency.
My chronic fibromyalgia issues resolved once I fixed magnesium deficiency. my mild thyroid symptoms resolved when I fixed other nutrient imbalances.
cholestryamine (and many medications etc) deplete magnesium, hence why you need to increase daily intake to counteract this impact. using topical magnesium or the better absorbed ReMag product will protect you against deficiency.
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
Yes. Magnesium deficiency is often misdiagnosed as fibromyalgia.Gabes wrote:My chronic fibromyalgia issues resolved once I fixed magnesium deficiency. my mild thyroid symptoms resolved when I fixed other nutrient imbalances.
Taking vitamins and minerals when taking cholestyramine is important. Cholestyramine may tie up and therefore suppress the absorption of many nutrients, but it doesn't totally prevent the absorption of all of them. We still get a partial benefit from taking supplements, we just don't absorb as much of them as we would without the cholestyramine.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Thank you all so much! The reMag is in my Amazon shopping cart. Shouldn't the doctors be on the lookout for these issues and advising the same? I already know the answer.....
Would my mom be better off switching to the ReMag too? She was dx with osteopenia and the doctor wanted her to start taking a calcium supplement. I got her the Doctors Best Magnesium instead. I'm sure she isn't taking the right dose either and I doubt if she will take four a day. I wouldn't want to compromise her health by giving her bad info (error on my part).
Would my mom be better off switching to the ReMag too? She was dx with osteopenia and the doctor wanted her to start taking a calcium supplement. I got her the Doctors Best Magnesium instead. I'm sure she isn't taking the right dose either and I doubt if she will take four a day. I wouldn't want to compromise her health by giving her bad info (error on my part).
Deb
"Do not follow where the path may lead. Go instead, where there is no path, and leave a trail.
-Ralph Waldo Emerson
2007 CC
2013 thyroid cancer- total thyroidectomy
2013 Hashimoto's - numbers always "normal"
2017 Lyme's Disease
"Do not follow where the path may lead. Go instead, where there is no path, and leave a trail.
-Ralph Waldo Emerson
2007 CC
2013 thyroid cancer- total thyroidectomy
2013 Hashimoto's - numbers always "normal"
2017 Lyme's Disease
HI Deb....got this in my email today and thought of you....just another area to poke around in and see if anything resonates with you. Healing our cells takes a lot of time and patience and sometimes we think it ought to happen quicker than it does. I know I have felt like that these last two years, and sometimes the things we have been doing thinking we are getting it just right we haven't all along until that one key turns in the lock...and that just means trying many different avenues but also giving them an amount of time reasonable which we don't always know. Frustrating....yes...but doable and I have faith you will find that missing key 
If you are suffering from hypothyroidism, hyperthyroidism or Hashimoto’s you are usually facing a complex of conditions.
Most cases involve symptoms of magnesium deficiency and escalating mineral deficiency where you find yourself getting sicker and sicker until, finally, your thyroid tests come back abnormal as the end-stage of a Total Body Meltdown (TBM).
I’ve described TBM as “when nothing works and everything hurts”. The system that you are shunted into when you are suffering TBM separates you into your body parts, treating each part individually with an FDA-approved drug or surgery.
Here is a story of a customer with thyroid disease who used my Total Body ReSet protocol to give her body everything it requires for healing, and quickly saw improvements in her health.
=====
I would like to share what I’m experiencing as a result of being on the Total Body ReSet formulas. I’m happily, happy to be experiencing a significant decrease in chronic back pain that I’ve had for many years.
Happy also to report that I don’t have the desire for wine on a daily basis. In the past 3 weeks, I have only had 4oz on one occasion! Also, I stopped my Nature-Throid and expect to have my levels checked in 1 to 3 months. Not sure what signs I should be looking for, as when my naturopath put me on the thyroid med, my symptoms were rather “scattered” and nonspecific 2.5 years ago.
Overall, I’m just plain happier each day that I am on the formulas!!!
Chris
=====
Because of positive testimonials from people with thyroid issues (like Chris), we decided to do an in-depth webinar to demonstrate how thyroid disease is the end-stage of the progression of TBM, and that consistent use of the Total Body ReSet protocol is the answer.
It turned out to be a very well-received webinar with a great turnout and many e-mails of thanks.
One attendee even said:
"Wow, what an excellent webinar, so educational. I heard things I've never heard in that way before, Dr. Carolyn. Yay!!"
In this 1-hour webinar, Ginney Gunther and myself explained:
- Why medical and naturopathic approaches don’t work
- How thyroid disease is the end state of Total Body Meltdown
- How internal conflict contributes to thyroid disease
- How to accelerate your healing
We also walk you through every stage of the Total Body ReSet protocol that’s helping thousands overcome the low energy and brain fog that come with an unhealthy thyroid.
So, if you are interested in Total Body Meltdown or know someone looking for an answer to their thyroid condition, you can watch the free replay of the webinar on YouTube at:
https://youtu.be/15pFFCx6_as
Aloha,
Dr. Carolyn Dean
RnA ReSet
If you are suffering from hypothyroidism, hyperthyroidism or Hashimoto’s you are usually facing a complex of conditions.
Most cases involve symptoms of magnesium deficiency and escalating mineral deficiency where you find yourself getting sicker and sicker until, finally, your thyroid tests come back abnormal as the end-stage of a Total Body Meltdown (TBM).
I’ve described TBM as “when nothing works and everything hurts”. The system that you are shunted into when you are suffering TBM separates you into your body parts, treating each part individually with an FDA-approved drug or surgery.
Here is a story of a customer with thyroid disease who used my Total Body ReSet protocol to give her body everything it requires for healing, and quickly saw improvements in her health.
=====
I would like to share what I’m experiencing as a result of being on the Total Body ReSet formulas. I’m happily, happy to be experiencing a significant decrease in chronic back pain that I’ve had for many years.
Happy also to report that I don’t have the desire for wine on a daily basis. In the past 3 weeks, I have only had 4oz on one occasion! Also, I stopped my Nature-Throid and expect to have my levels checked in 1 to 3 months. Not sure what signs I should be looking for, as when my naturopath put me on the thyroid med, my symptoms were rather “scattered” and nonspecific 2.5 years ago.
Overall, I’m just plain happier each day that I am on the formulas!!!
Chris
=====
Because of positive testimonials from people with thyroid issues (like Chris), we decided to do an in-depth webinar to demonstrate how thyroid disease is the end-stage of the progression of TBM, and that consistent use of the Total Body ReSet protocol is the answer.
It turned out to be a very well-received webinar with a great turnout and many e-mails of thanks.
One attendee even said:
"Wow, what an excellent webinar, so educational. I heard things I've never heard in that way before, Dr. Carolyn. Yay!!"
In this 1-hour webinar, Ginney Gunther and myself explained:
- Why medical and naturopathic approaches don’t work
- How thyroid disease is the end state of Total Body Meltdown
- How internal conflict contributes to thyroid disease
- How to accelerate your healing
We also walk you through every stage of the Total Body ReSet protocol that’s helping thousands overcome the low energy and brain fog that come with an unhealthy thyroid.
So, if you are interested in Total Body Meltdown or know someone looking for an answer to their thyroid condition, you can watch the free replay of the webinar on YouTube at:
https://youtu.be/15pFFCx6_as
Aloha,
Dr. Carolyn Dean
RnA ReSet
To Succeed you have to Believe in something with such a passion that it becomes a Reality - Anita Roddick
Dx LC April 2012 had symptoms since Aug 2007
Dx LC April 2012 had symptoms since Aug 2007
Just as you guessed, yes they should, but no they don't, because there's no money in it for most of them. Dr. Dean promotes magnesium because she's figured out how to make money out of it.Deb wrote: The reMag is in my Amazon shopping cart. Shouldn't the doctors be on the lookout for these issues and advising the same?
The ReMag is a lot harder on the patient. It's doable to get your Mom started on ReMag, but I think I would see if the magnesium glycinate tablets will work first. If they do, it's probably easier for her to work with because it's more of a traditional treatment than using ReMag.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Deb,
My experience with Cholestyramine, taking 2 scoop/day, was my cholesterol went down 10%, from 200 to 180, and vitamin D went down slightly, but still close to 50. So it did not affect those values drastically, but it did have some effect.
I would be concerned about Cholestyramine binding with the Entocort, since 80% of Entocort's action takes place in the small intestine and first part of the colon. Did you start both Cholestyramine and Entocort at the same time? Why not just take the Entocort and see how it works, then add back the Cholestyramine if you need it?
My experience with Cholestyramine, taking 2 scoop/day, was my cholesterol went down 10%, from 200 to 180, and vitamin D went down slightly, but still close to 50. So it did not affect those values drastically, but it did have some effect.
I would be concerned about Cholestyramine binding with the Entocort, since 80% of Entocort's action takes place in the small intestine and first part of the colon. Did you start both Cholestyramine and Entocort at the same time? Why not just take the Entocort and see how it works, then add back the Cholestyramine if you need it?
Donna
Diagnosed with CC August 2011
Diagnosed with CC August 2011
I'm not sure why I am now taking both. Most likely because they don't know what else to try. Nothing works and I refuse to take prednisone again (didn't help anyway). I've tried both separately in the past and neither are very effective and are not proving to be much better in combination. Although I can sleep through the night without worry so that was needed. I'm not sure how much time is needed to determine if it's worth continuing but I wanted to try to follow my GIs plan since I have regularly in the past started tapering down on my own. I am already considering discontinuing the cholestyramine because the pain and personality weirdness. But doing that would potentially change lab results. My doc was out in Friday so I fully expect he will want thyroid labs drawn again before making any change which I still feel may be unlikely. It's a catch 22 situation. I am in the process of organizing a celebration for our village, trying to write a book with a deadline I already know I won't make, hold a seat on our village board, and my son is getting married in July in addition to working. I simply have too much going on to deal with this right now and as my butt is firmly planted on the couch the energetic me trapped inside this very tired body is screaming that I need to get moving.
As I re-read this I have to chuckle...... the lack of control over the situation is one heck of a lesson.
As I re-read this I have to chuckle...... the lack of control over the situation is one heck of a lesson.
Deb
"Do not follow where the path may lead. Go instead, where there is no path, and leave a trail.
-Ralph Waldo Emerson
2007 CC
2013 thyroid cancer- total thyroidectomy
2013 Hashimoto's - numbers always "normal"
2017 Lyme's Disease
"Do not follow where the path may lead. Go instead, where there is no path, and leave a trail.
-Ralph Waldo Emerson
2007 CC
2013 thyroid cancer- total thyroidectomy
2013 Hashimoto's - numbers always "normal"
2017 Lyme's Disease
-
Gabes-Apg
- Emperor Penguin
- Posts: 8332
- Joined: Mon Dec 21, 2009 3:12 pm
- Location: Hunter Valley NSW Australia
and in reading your post - I think the mild stress of the activities you are doing/coming up is adding to the gut issues.As I re-read this I have to chuckle...... the lack of control over the situation is one heck of a lesson.
the ongoing stress also depletes key nutrients like magnesium etc.
we have discussions previously about 'adrenal fatigue' basically the depletion of key nutrients therefore our bodies can not respond to stress correctly..
http://www.naturalendocrinesolutions.co ... onditions/
my fear for your situation for the Gut (and the Thyroid) is that while there are nutrient deficiencies, coupled with the current events, future events you mention above, and excess toxins, the scope for things to improve is very limited.
I have spent almost 10 years now where my body can not do all the things that my mind wants to do, improvement to my health was reliant on major changes - career and lifestyle and limiting the activities I do, and the time I can spend on them. (and be at peace with it)
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
deb, I had personality weirdness on cholestyramine--and I was taking a small dose--about a 1/2 teaspoon to 1 teaspoon a day. it caused me to zone out all day. Even my boyfriend noticed. I got off of it after about 6 weeks.
Food wise it was a dream because I could eat foods I don't normally eat but that wasn't worth the personality weirdness.
Food wise it was a dream because I could eat foods I don't normally eat but that wasn't worth the personality weirdness.
Gabes, that is absolutely what I didn't want to hear but can't say I disagree with you. After leaving my previous job over two years ago I felt like a weight was lifted off my shoulders. I know stress is stress- good or bad but there has been no noticeable changes when I compare my past situations vs what I am involved in now.
Brandy, I'd like to discontinue the powder ASAP but haven't given up on seeing what happens.
I was pleasantly surprised that my doc agreed to increase my armour. The nurse wrote the prescription for 60 mg tablets 1.25 tablets twice daily and there are 115 pills in the bottle which I am assuming would be a 30 day fill but the math doesn't come out right. I asked to increase my dose by a half grain/day so what I asked for and what I received is not the same. I thought I'd just get a separate prescription for 15 mg tablets and I'd add one per day to what I am currently taking. I'm debating which way I should try it.... because if I follow her instructions I will be taking 150 mg/ day instead of the 135 mg I though may be the better dose.
Brandy, I'd like to discontinue the powder ASAP but haven't given up on seeing what happens.
I was pleasantly surprised that my doc agreed to increase my armour. The nurse wrote the prescription for 60 mg tablets 1.25 tablets twice daily and there are 115 pills in the bottle which I am assuming would be a 30 day fill but the math doesn't come out right. I asked to increase my dose by a half grain/day so what I asked for and what I received is not the same. I thought I'd just get a separate prescription for 15 mg tablets and I'd add one per day to what I am currently taking. I'm debating which way I should try it.... because if I follow her instructions I will be taking 150 mg/ day instead of the 135 mg I though may be the better dose.
Deb
"Do not follow where the path may lead. Go instead, where there is no path, and leave a trail.
-Ralph Waldo Emerson
2007 CC
2013 thyroid cancer- total thyroidectomy
2013 Hashimoto's - numbers always "normal"
2017 Lyme's Disease
"Do not follow where the path may lead. Go instead, where there is no path, and leave a trail.
-Ralph Waldo Emerson
2007 CC
2013 thyroid cancer- total thyroidectomy
2013 Hashimoto's - numbers always "normal"
2017 Lyme's Disease
-
Gabes-Apg
- Emperor Penguin
- Posts: 8332
- Joined: Mon Dec 21, 2009 3:12 pm
- Location: Hunter Valley NSW Australia
Deb
I hope you can tweak things a bit to find the delicate sweet spot of 'living life' without it impacting your health
good stress depletes adrenals just as much!that is absolutely what I didn't want to hear but can't say I disagree with you. After leaving my previous job over two years ago I felt like a weight was lifted off my shoulders. I know stress is stress- good or bad but there has been no noticeable changes when I compare my past situations vs what I am involved in now.
I hope you can tweak things a bit to find the delicate sweet spot of 'living life' without it impacting your health
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama