Hey Laine,
Sorry to hear of your recent flare. Just wondering about your progesterone cream. Is there soy in it? Have you been on it long? Some of us can't tolerate hormone therapies, even topical....
Also, I am mostly healed but still struggle with D during ovulation and PMS. This was the case before MC as well. I personally, wouldn't cut out the ReMag as I think the body needs it more during hormonal changes, maybe just switch to topical only and see if that makes a difference for you. I had WD for 3 years until my magnesium was built up enough to do proper healing. I second guessed the ReMag many times but knew I was no worse than before and just kept up with it (too many other benefits from it and wasn't willing to reduce it)....and poof. After a year on it, major benefits started happening....but your case is different. I would just look at what has changed around the timing of your flare. Cholestyramine reduction, Progesterone cream, menopausal changes?
Marshmallow root
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Yes, agree with Vanessa on the progesterone cream. Can be problematic.
Agree with Vanessa on the benefits of magnesium. It totally helped me with sleep and stress relief. It is coming back to me that I ended up doing epsom salt foot baths during those tough times using a bucket of water in front of the tv. A regular bath seemed like too much work.
Consider really, really narrow down your diet to few foods.
Agree with Vanessa on the benefits of magnesium. It totally helped me with sleep and stress relief. It is coming back to me that I ended up doing epsom salt foot baths during those tough times using a bucket of water in front of the tv. A regular bath seemed like too much work.
Consider really, really narrow down your diet to few foods.
Well, survived the trip out of the house...the nurse practitioner was cool. Rehashed everything. To be safe they sent me home with stuff to collect stool for the usual cdiff, giardia, etc. Couldn't use my sample per the lab lady. Said it was no problem to drop off the necessary paperwork for FMLA and short term disability when I get it.. Was even ballsy enough to go to the grocery store on the way home...And of course I weigh 2# less than the last time I was there in January.
The progesterone cream is soy free, made sure of that. Have been using that for awhile and think it's helped the menopausal stuff immensely. Stopped the oral mag like a week ago but have kept up with the ReMag and sprays..have been doing 8 pepto a day for like a week (like I said, did this 8 weeks when I was diagnosed before and DURING the Entocort....Entocort didn't seem like a miracle drug for me!!). I have an appt at the gynecologist next Tuesday to talk about hormones/creams-wonder if I will make that appt. I was interested in it most for the sleep aspect..and this is sort of crazy but I have been sleeping pretty well the past 2 weeks!! Go figure..
Ok, so haven't had a banana in like 5 days, will ditch the avocados. That leaves me with lamb, turkey, cod and elk. Overcooked zucchini/carrots/acorn and
butternut squash, sunflower butter and apple sauce. Black/green tea and water with lemon in it. Oh, and white sweet potatoes, root vegetable chips. That is it people... Tex-I get that some people react to tapioca, but I added those bagels back in slowly (which I haven't had for a week, or eggs for that matter) and didn't react to them as far as I could tell....so??? I SO WISH I COULD DO RICE TO ADD SOME CALORIES!!!!!
Upped the cholestryamine to 3 packets a day....was at 2/day when I decided to cut down. Don't have Entocort and Dr wont give it to me until I have another colonoscopy. Don't want to even think about that right now!!!
I just feel like I was doing so well, putting on a LITTLE WEIGHT, feeling better and now BOOM....one sideways look, one wrong weight shift and the wheels come off. Geez, really, I need to catch a break somewhere!!!
Again, think my mag levels are good Gabes as I am not an anxious, teary mess like I would have been a couple months ago. Now I am just sort of resigned to it and not stressing out so much.
Anyhoo, got turkey breasts in the pressure cooker. Bought that a few weeks ago and it ROCKS!!! Has saved me so much time with veggies and such!! If you don't have one, get one!!
Laine
The progesterone cream is soy free, made sure of that. Have been using that for awhile and think it's helped the menopausal stuff immensely. Stopped the oral mag like a week ago but have kept up with the ReMag and sprays..have been doing 8 pepto a day for like a week (like I said, did this 8 weeks when I was diagnosed before and DURING the Entocort....Entocort didn't seem like a miracle drug for me!!). I have an appt at the gynecologist next Tuesday to talk about hormones/creams-wonder if I will make that appt. I was interested in it most for the sleep aspect..and this is sort of crazy but I have been sleeping pretty well the past 2 weeks!! Go figure..
Ok, so haven't had a banana in like 5 days, will ditch the avocados. That leaves me with lamb, turkey, cod and elk. Overcooked zucchini/carrots/acorn and
butternut squash, sunflower butter and apple sauce. Black/green tea and water with lemon in it. Oh, and white sweet potatoes, root vegetable chips. That is it people... Tex-I get that some people react to tapioca, but I added those bagels back in slowly (which I haven't had for a week, or eggs for that matter) and didn't react to them as far as I could tell....so??? I SO WISH I COULD DO RICE TO ADD SOME CALORIES!!!!!
Upped the cholestryamine to 3 packets a day....was at 2/day when I decided to cut down. Don't have Entocort and Dr wont give it to me until I have another colonoscopy. Don't want to even think about that right now!!!
I just feel like I was doing so well, putting on a LITTLE WEIGHT, feeling better and now BOOM....one sideways look, one wrong weight shift and the wheels come off. Geez, really, I need to catch a break somewhere!!!
Again, think my mag levels are good Gabes as I am not an anxious, teary mess like I would have been a couple months ago. Now I am just sort of resigned to it and not stressing out so much.
Anyhoo, got turkey breasts in the pressure cooker. Bought that a few weeks ago and it ROCKS!!! Has saved me so much time with veggies and such!! If you don't have one, get one!!
Laine
"Do what you can, with what you have, where you are"-Teddy Roosevelt
Congrats on surviving the trip out of the house.
That said, tapioca is not a major food allergen offender normally, but it may be enough to prevent reaching remission in some cases. I had to cut it out during recovery.
It's true that hormones can have a much bigger influence than anticipated, especially progesterone. That's probably because hormones are associated with chemical stress levels in the body.
But all in all, it sounds as though you're doing better — maybe you just need a little more healing time.
Tex
That's what all the folks who react to gluten and don't want to stop eating it say. LOL. The problem is, when someone is already reacting to gluten, they can't tell that they're reacting to gluten. Agreed, that rule doesn't necessarily apply to detecting tapioca reactions because tapioca antibodies have a much shorter half-life than gluten (6 days, compared with 120 days) so a reaction is easier to detect when a reaction is already ongoing. But in general, one has to be in remission in order to reliably detect sensitivity to a newly introduced or reintroduced food sensitivity. And just because one can tolerate a food when in remission does not meat that the food can be tolerated when in a flare.Laine wrote:I get that some people react to tapioca, but I added those bagels back in slowly (which I haven't had for a week, or eggs for that matter) and didn't react to them as far as I could tell....so???
That said, tapioca is not a major food allergen offender normally, but it may be enough to prevent reaching remission in some cases. I had to cut it out during recovery.
It's true that hormones can have a much bigger influence than anticipated, especially progesterone. That's probably because hormones are associated with chemical stress levels in the body.
But all in all, it sounds as though you're doing better — maybe you just need a little more healing time.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Laine,
For now consider eliminate the lemon, the root veggie chips,(problem can be the oil and too processed) the tapioca bagel (too many ingredients). Can you eat white potato or sweet potato or beets in lieu of the root veggie chips and in lieu of the tapioca bagel? Whoops I see you are already eating sweet potato.
For now consider eliminate the lemon, the root veggie chips,(problem can be the oil and too processed) the tapioca bagel (too many ingredients). Can you eat white potato or sweet potato or beets in lieu of the root veggie chips and in lieu of the tapioca bagel? Whoops I see you are already eating sweet potato.
Dang Tex, you are taking away the one chewy, halfway grainy thing I have to hang onto in life!!! 
Mamma bear loves her tapioca bagels, but will stay away from them...
With the progesterone cream 2x/day I think I am much less stressed feeling, sleeping better and not doing the hot flashy thing as much (not that I was doing much of that anyway, and that isn't what is happening at night to prevent me from sleep). Plus I just plain old dont feel icky/crampy like I am trying to start a bad period EVERY DAY. Hard to tease out what is going on when you have abdominal stuff coming at ya from a couple directions!!! And ya, I was always one of those diarrhea/loose stool gals the first day of my period.
I am taking the time off and trying to be productive, just sent in the paperwork to update my will. House cleaning, more stuff in bags to go to Goodwill, etc. Will do some continuing education stuff online here for my PT license.
So, thanks again everyone. Think I will keep up the ReMag and see how that goes!!! Just trying to stay the course and hope the light at the end of the tunnel is NOT another oncoming train!!!
Laine
Mamma bear loves her tapioca bagels, but will stay away from them...With the progesterone cream 2x/day I think I am much less stressed feeling, sleeping better and not doing the hot flashy thing as much (not that I was doing much of that anyway, and that isn't what is happening at night to prevent me from sleep). Plus I just plain old dont feel icky/crampy like I am trying to start a bad period EVERY DAY. Hard to tease out what is going on when you have abdominal stuff coming at ya from a couple directions!!! And ya, I was always one of those diarrhea/loose stool gals the first day of my period.
I am taking the time off and trying to be productive, just sent in the paperwork to update my will. House cleaning, more stuff in bags to go to Goodwill, etc. Will do some continuing education stuff online here for my PT license.
So, thanks again everyone. Think I will keep up the ReMag and see how that goes!!! Just trying to stay the course and hope the light at the end of the tunnel is NOT another oncoming train!!!
Laine
"Do what you can, with what you have, where you are"-Teddy Roosevelt
You've got more energy than I have, you must be feeling better. Reintroduce the bagels in 5 or 6 days. The interval of 5 or 6 days of avoiding them will maximize any reaction to tapioca so that you'll be better able to detect it. Hopefully, there won't be any reaction to detect.
Tex
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Brandy-Enterolab says I react to white potato and therefore probably all nightshades, so those aren't an option. Haven't tried beets but do have a can of them in the pantry. Bought a turnip today, might overcook that!! Anyone, anyone??
Oh, Tex, don't give me too much credit energy wise. I just don't feel that great. And as a PT, you will need some time to get your energy level back up after a stroke. You are probably doing too much as it is!!! I have done alot online/making phone calls this past week-last little bit of legal stuff mostly. And I have found out that daytime tv is mindnumbing!!!
Laine
Oh, Tex, don't give me too much credit energy wise. I just don't feel that great. And as a PT, you will need some time to get your energy level back up after a stroke. You are probably doing too much as it is!!! I have done alot online/making phone calls this past week-last little bit of legal stuff mostly. And I have found out that daytime tv is mindnumbing!!!
Laine
"Do what you can, with what you have, where you are"-Teddy Roosevelt