Lymes

DebE13 · Post by **DebE13** » Mon Jul 10, 2017 5:31 pm

I think I may have lymes..... Been semi-ignoring it since Wednesday. My son was married this weekend and we did all the food prep (long story). I expected to be knocked on my but for a few days recovering from the busyness but I didn't expect this.

the rash is growing, it now hurts, and I have a temp of 101.6 yet goosebumps all over.

It looks like a bullseye type rash to me. I did pull a tick out of my opposite arm but also have a red mark on my shoulder where the rash is. So many of the hallmark symtoms I already have so it's hard to tell.

I'm hoping my regular doc will fit me in. I really don't care for the walk in doctors.

The thought of taking antibiotics scares the begeebers out of me. Any better ones for MCers to take that will work for lymes

Any specific antibiotics that works well for MCers and lymes?

Gabes-Apg · Post by **Gabes-Apg** » Mon Jul 10, 2017 5:35 pm

Deb
i will delete the duplicated posts for you

Gabes-Apg · Post by **Gabes-Apg** » Mon Jul 10, 2017 5:42 pm

Deb
from my reading and research in this area, the antiobiotics used to treat lyme are not so ideal for MC.

from a non antibiotic approach, one of the main treatment protocols for Lyme /biotoxins is Cholestryamine. this along with focussed biofilm busting support is the preferred approach when one is trying to protect the gut at the same time.

this is a discussion that we had about 15 months ago
http://perskyfarms.com/phpBB2/viewtopic ... light=lyme

Gabes-Apg · Post by **Gabes-Apg** » Mon Jul 10, 2017 5:44 pm

and this one from 12 months ago
http://perskyfarms.com/phpBB2/viewtopic ... light=lyme

hope it helps

DebE13 · Post by **DebE13** » Mon Jul 10, 2017 7:49 pm

Thanks a bunch- having computer issues.......
I already have cholestyramine.... I stopped taking it because it really wasnt improving my D. Will read the links in the morning.

DebE13 · Post by **DebE13** » Wed Jul 12, 2017 5:04 am

It is Lymes. I've been running a low grade fever around 101.6 since Monday. My regular doctor was on vacation so I ended up going to the salk in clinic. My temp was normal there. The doctor looked at the rash and said there was no need for testing because there was no doubt about it and the test is no always accurate. Started doxycycline yesterday. I had a brief period of feeling somewhat better but temp came back and jumped up to 103.5. It's hard waiting for the meds to kick in. I called me GI and she she said to also take florajen antibiotic for two months. I've never had any luck with probiotics in helping with my D but I figure I might as well since I'm on antibiotics now. The nurse mentioned an increased risk of developing
C-dif.

The doctor said the standard amount of time for antibiotics for lymes in the early stages is 21 days but considering my gut issues, she said 14 may be enough. I have an appointment with my PCP ON monday so she said my progress can be evaluated at that time.

I did have to chuckle setting all the alarms on my phone for taking pills. Some with food, some without, some meds can't be taken within a certain timeframe of each other. I have 8 alarms set and it just seems like a lot.

It's day three and the rash has grown by about five times its original size. The constant, alternating extreme goosbumps/shivers along with breaking into a sweat is getting old. Ever since my thyroid problems developed I've had an extreme aversion to being cold. I'm sure covering up isn't helping the shivers. I'd say that is the worst part along with the severe headache and eye pain. I've not taken anything for it because I don't know what's effective or safe. I'm hoping one more day on antibiotics will curb it somewhat so I can go back to work.

I cannot remember when Norman made his last appearance- I think when I had my thyroidecotmy. Despite all my efforts nothing has changed my staus quo of WD. Well, Norman just stopped in this morning to give me a hey-howdy. Just makes me shake my head. My body must be sidetracked with the tick bacteria.......

I just pray in a couple weeks I can get back to my regular life.

Gabes- interesting links. I didn't see where dosages for the cholestyramine were given but I'm thinking it would be the two- three times a day. I can't do that because of my thyroid medication. When my GI put me on cholestyramine it threw my thyroid meds off and luckily my PCP allowed for a minimal increase. No one really gave me an answer when I was supposed to go from a half scoop to a full scoop. The nurse told me to ask the pharmacist and the pharmacist said that determination should be coming from my doctor. I did start taking my nightly scoop again. I'm walking on eggshells though waiting for all hell to break loose with my guts. Hopefully I'm being overly pessimistic.

Post by **tex** » Wed Jul 12, 2017 7:27 am

Hi Deb,

I've been following this thread with interest. I don't have any advice because you seem to be doing everything right. Hopefully this will knock it right out. Regarding the Norman: that's quite a surprise I'm sure. Sometimes a shock to the system will get it's attention and reset it. I have a hunch that what is really happening though is that the Borrelia bacteria (or just the realization that you have Lyme disease) are distracting your immune system so dramatically that it has temporarily forgotten that you have MC. The Borrelia bacteria are affecting you immune system in the same way that Helminths bring remission of an IBD by forcing the immune system to concentrate on them. I hope this visit with Norman lasts, but I suppose we'll see, because these are uncharted waters.

Best of luck to you in your recovery.

Tex

brandy · Post by **brandy** » Wed Jul 12, 2017 8:00 am

Hi Deb,

Sorry you are going through this. Perhaps ice packs/bags of frozen peas would help with the headache/eye pain?

Janie · Post by **Janie** » Wed Jul 12, 2017 10:44 am

So sorry Deb, that this on top of your other issues, is happening. Take care of yourself and rest as much as you can.

DebE13 · Post by **DebE13** » Wed Jul 12, 2017 11:44 am

Thanks. Thankfully my boss is more than accomodating. I hope to return to work tommorrow. Laying around the house is torture seeing all the things I'd like to, haha. Plus, I can't tell if the aches and pains are from not moving around or if they are my normal pains. The headache has lessened a bit so I think I just need to be patient. I have absolutely no appetite, which is not like me at all. I'm taking this opportunity to be vigilant with what I put in my mouth.

The feeling isn't much different than what I've experienced in the past. The biggest thing on my mind right now is recurrence and if 14 days of antibiotics will be enough and if not, how extending it may effect my MC. One day at a time. So far, most of what I've read is doom and gloom. Both my aunt and brother went through Lymes too with no major issues after antibiotics but they don't have other autoimmune issues.

The rash continues to grow and there is one bump that has actually blistered, which seems unusual. The doctor noted it and said she considered shingles but the bullseye trumped anything else.

starfire · Post by **starfire** » Wed Jul 12, 2017 7:06 pm

So very sorry you are having to endure this. I do wish you the best of luck in all things concerned.

Shirley

DebE13 · Post by **DebE13** » Sat Jul 15, 2017 8:26 am

Thanks Shirley :)

Today is day five on the doxicycline and the fatigue and pains I feel now are my usual. I wake up with a mild headache that seems to subside after I've been upright. Or, maybe since I take my first dose of antibiotic at 5:30 AM it has just worn off? Either way, I'm much better than I expected to be. Hopefully, this feeling will remain.

The biggest and most unexpected surprise is Norman is sticking around. So now I've changed from my usual WD - D to Normans/loose stools. I am sticking with the 9 mg Entocort and half scoop cholestyramine powder. Funny enough, they did not produce any noticeable change previously aside from eliminating my night issues. I don't know if I really need to stay at that high of a dose but I guess I'm not chancing it. I would expect things will return to they way they were once this is over but I would be more than happy to be wrong. The prescription label indicates that this product is known to cause D so I cautiously wait. I've never been the norm so why start now?