Question regarding Budesonide = time of day

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Sue777
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Post by Sue777 »

brandy wrote:If you are having WD 10-20 times per day topical magnesium would probably be best as well as Epsom salt foot baths. (I use a bucket)

If you are out of the WD phase and moving into pencil stool I'd transition to mag glycinate.

My experience was I could not stop WD until I eliminated oral and switched to topical for awhile.
So your experience was that the oral was adding to your WD issue? That's why I'm so afraid to add this factor into the equation right now...... I don't know how my body will react to magnesium. So confused.
Sue
Sue
Diagnosed November 2004, Used Asacol and Lialda, sometimes worked, sometimes made it worse. Entocort always works but hate it. Remission only lasts 3-6 months and then back on Entocort. Enterolab test July 2017, now gluten free. Time will tell!
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tex
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Post by tex »

Sue wrote:I should probably know what my current magnesium level is before I start dosing, right?
It would be nice if you could that but unfortunately the test normally ordered is useless. They seldom order it because it always shows a normal magnesium level. The only reason my test in the ER showed a low result was because I was absolutely out of magnesium and still the doctors all ignored it. :roll:

Chapter 2 in the book I recommended explains why this true. Trust me, it won't take you long to read it, and it will answer all your questions about magnesium. I agree with Gabes and Brandy, in your condition starting with topical magnesium is the safest plan. After so many years of malabsorption (and not supplementing magnesium), you are critically low on magnesium.

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Sue777
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Post by Sue777 »

OK, I feel like I'm climbing out of my skin right now and everything I'm feeling DOES sound like symptoms of mag deficiency. I just looked up to my Higher Powers and said "OK, I get it - I'm on it!" The only thing I can do right now, immediately, is soak my feet in Epsom salts I guess. I'm trying to find how to do that (quantity of salt, how long, etc.) so I'm off to read the book.

Thanks, Tex.
Sue
Diagnosed November 2004, Used Asacol and Lialda, sometimes worked, sometimes made it worse. Entocort always works but hate it. Remission only lasts 3-6 months and then back on Entocort. Enterolab test July 2017, now gluten free. Time will tell!
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Post by brandy »

I had to eliminate all oral supplements for several days last summer to kick out of 4 months of WD. I was very reluctant to eliminate oral mag glycinate b/c it really helps me sleep. I did not use prescription drugs this time. Once I eliminated all oral supplements and ate mostly protein I had solid stool in 3-4 days.

Magnesium really helps with stress and anxiety and also reduces cortisol spikes. It also lowers blood pressure. I think mag supplementation is one of the best things I've learned on this forum.

I found the foot baths were easier than body baths but I do them sometimes too.

https://www.amazon.com/gp/offer-listing ... =foot+bath

I bought the Japanese foot tub above but a regular bucket will work.
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Post by brandy »

You can really "feel" the difference (with mag supplementation)
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Sue777
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Post by Sue777 »

brandy wrote:
I found the foot baths were easier than body baths but I do them sometimes too.

https://www.amazon.com/gp/offer-listing ... =foot+bath

I bought the Japanese foot tub above but a regular bucket will work.
As I was frantically rummaging through medicine cupboards and linen closets (I KNOW we have some epsom salts around here somewhere!) I also remembered that my wonderful husband many years ago had come home with a surprise Homedics foot massage/soaker/bubbler/pedicure unit that he had seen while shopping and thought it would be a nice way for me to relax and pamper myself for a bit. Me, being irritable and a control-freak, didn't fully appreciate the gesture (who has time to soak my feet and my feet are the LAST thing I have on my mind right now) feebly thanked him and stashed it in the basement, unopened. Well luckily I remembered where in the basement I stuck it (and I'm talking at least 10 years ago) and am now soaking/bubbling/massaging my feet in Eucalyptus epsom salt. Maybe it's just a placebo affect or maybe it's the warm water vibrating and bubbling, but I do feel a lot more relaxed than I did 10 minutes ago when I was climbing out of my skin. Placebo or not, if it can stop some of the awful symptoms, even for a while, I'll soak!
Sue
Sue
Diagnosed November 2004, Used Asacol and Lialda, sometimes worked, sometimes made it worse. Entocort always works but hate it. Remission only lasts 3-6 months and then back on Entocort. Enterolab test July 2017, now gluten free. Time will tell!
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Post by Gabes-Apg »

My guess is - it is a combo of things as to why you feel more relaxed;
- finding the answer to the issues
- the answer is fairly simple and cheap - magnesium
- the magnesium!


For anyone else reading this thread - you don't need electric foot baths etc. just a square type bucket/container that is big enough for both feet works just as well.

for me as the Epsom salts can be drying, I put shea butter or coconut oil in my warm water soak (non electric) scrub the dead skin off my feet while I am at it and the oil moisterises the feet.
I have been doing this in front of my fire (winter here) and play a mindfulness podcast and relax.
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tex
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Post by tex »

Now we're gettin' somewhere. :thumbsup:

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Sue777
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Post by Sue777 »

Just ordered this: ReMag Pico-Ionic Liquid Magnesium by RnA ReSet. Formulated by Dr. Carolyn Dean

And this: Ancient Minerals Magnesium Lotion 5 oz.


What's next?
Sue
Sue
Diagnosed November 2004, Used Asacol and Lialda, sometimes worked, sometimes made it worse. Entocort always works but hate it. Remission only lasts 3-6 months and then back on Entocort. Enterolab test July 2017, now gluten free. Time will tell!
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Post by Gabes-Apg »

for now that is it, keep doing the Epsom salt foot soaks (daily) until those products arrive.

when they arrive, I would start with the topical Ancient minerals lotion, wait a few days then start really low dose on the ReMag drops. Ensure you follow the directions that come with the drops (having it with salt water, sip it through the day etc)

main thing with Magnesium it is best 'spread' out through the day. If you like the foot soaks and want to continue them, then do it away from using the ancient minerals lotion.

the other thing you will find as you increase magnesium levels, your body will use the Vit D3 better/more effectively and this will help a multitude of things as well...
Gabes Ryan

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tex
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Post by tex »

If you have any chelated magnesium (magnesium glycinate) on hand, you might take 1 tablet (100 mg) with or after breakfast. That would probably be enough magnesium to get you through the day so that you could take the budesonide tomorrow morning without having any problems the rest of the day. But don't take any magnesium oxide or magnesium chloride tablets. They might cause D.

The lotion works good. If it irritates your skin, you can apply it about 20 minutes before you're planning to take a shower. ReMag is potent stuff. It can be used topically. If you decide to try using it orally, start with a very low dose and work up. You can sip ReMag solution during the day, in place of water.

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Sue777
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Post by Sue777 »

Thanks, guys.
Soaking my feet again while I type this. I am taking the next two days off from work so will do it twice tomorrow and the next day, too. By then the lotion should arrive, or the Remag (one was Amazon Prime, one wasn't, don't remember which was which).

Sue
Sue
Diagnosed November 2004, Used Asacol and Lialda, sometimes worked, sometimes made it worse. Entocort always works but hate it. Remission only lasts 3-6 months and then back on Entocort. Enterolab test July 2017, now gluten free. Time will tell!
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