C-Diff & Microscopic Colitis
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
-
lalalauren16
- Little Blue Penguin
- Posts: 31
- Joined: Tue May 30, 2017 9:19 pm
- Location: Santa Barbara
C-Diff & Microscopic Colitis
Has anyone ever had to deal with C-Diff and Microscopic Colitis? And could tell me what their experience has been? I am on the 5th relapse and had a FMT and now just don't know whats what. GI doctor told me microscopic colitis should not give me fevers. Which I have been having and muscular pains. Would like to know others inputs on exactly their symptoms from microscopic colitis or if they have fought with both.
Lauren B
-
Gabes-Apg
- Emperor Penguin
- Posts: 8332
- Joined: Mon Dec 21, 2009 3:12 pm
- Location: Hunter Valley NSW Australia
you may also be interested in some of the natural treatments for C-Diff
https://www.earthclinic.com/cures/c-diff.html
the probiotic mentioned in this - S Boulardi - has worked well for many MC'ers
using things like the betonite clay and activated charcoal is like a natural version of cholestryamine. that they mop up biotoxins etc.
with some research you may find a treatment plan that will help both the C Diff and the MC.
https://www.earthclinic.com/cures/c-diff.html
the probiotic mentioned in this - S Boulardi - has worked well for many MC'ers
using things like the betonite clay and activated charcoal is like a natural version of cholestryamine. that they mop up biotoxins etc.
with some research you may find a treatment plan that will help both the C Diff and the MC.
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
Right before (3 months) my MC diagnosis I was a fecal donor for my brother who had severe C-Diff for 9 months. I thought he was going to die. It took that long to get him into a place willing to do a fecal transplant. It worked well for him but he does not have MC. He also stated it took awhile to get his normal poops back. It wasn't overnight. He had diverticulitis and ungodly amounts of IV anti-biotics. He used S. Boulardi to relieve some of his symptoms and still uses it today. How long has it been since your transplant? Possibly another donor is needed for a repeat....
Vanessa
-
lalalauren16
- Little Blue Penguin
- Posts: 31
- Joined: Tue May 30, 2017 9:19 pm
- Location: Santa Barbara
Thanks Gabes! I will do more, since I had been suffering from this since Feb I go to C-Diff support group online, I also bought Michelle Moores Book to help I am now going to be taking that S. Boulardi and kombucha.
Vanessa - It was a month and then it came back. I will probably have to do it again. I just hope at this point I don't die because thats how I feel after having this come back after all that. Did he have a lot of constipation after his transplant? Thats how it was for me and it slowly started to become normal and then went back to constipation and out of no where the diarrhea hit.
Vanessa - It was a month and then it came back. I will probably have to do it again. I just hope at this point I don't die because thats how I feel after having this come back after all that. Did he have a lot of constipation after his transplant? Thats how it was for me and it slowly started to become normal and then went back to constipation and out of no where the diarrhea hit.
Lauren B
Lauren,
He didn't poop for 5 days following the procedure. He was also on pain meds he had to wean off of from the pain associated with C-diff. Which are very constipating as well. I'm so sorry that you are going through this. I watched my brother struggle for a year in and out of hospital and I know how devastating it can be. Did they put you under for the transplant and get the poo way up there? Sorry if question is too personal. We have no poo shame on this forum after all.
Looking back, the stress associated with pooping on time for him, travel, and watching him be so sick perpetuated my MC to come full force. I felt that I gave him the last healthy poop I had before my life was forever changed.....brothers. Am I right?
He didn't poop for 5 days following the procedure. He was also on pain meds he had to wean off of from the pain associated with C-diff. Which are very constipating as well. I'm so sorry that you are going through this. I watched my brother struggle for a year in and out of hospital and I know how devastating it can be. Did they put you under for the transplant and get the poo way up there? Sorry if question is too personal. We have no poo shame on this forum after all.
Looking back, the stress associated with pooping on time for him, travel, and watching him be so sick perpetuated my MC to come full force. I felt that I gave him the last healthy poop I had before my life was forever changed.....brothers. Am I right?
Vanessa
-
lalalauren16
- Little Blue Penguin
- Posts: 31
- Joined: Tue May 30, 2017 9:19 pm
- Location: Santa Barbara
Gabes - I can't swallow pills so what would you recommend for the vit D3 supplement and B6?
Also with Epson Salt Soaks how frequent should I do them, how much salts should I put in there, and for how long?
Well water intake is no probably did you have to drink a ton more? How much more would you say?
Vanessa - Wow thats terrible, I mean after having c-diff for many times I can understand it is painful but I have no done pain meds for it. Its relieving though that you understand what I mean its been hell and everyone around me acts like its nothing and oh this is good you got it again because it doesnt mean its your disease and im like no this isnt good. They did put me under well it was inbetween under and awake they drugged me out a lot to say the least. No not at all trust me after having c-diff I am not offended by anything. Wow yeah feel like thats why maybe MC might have started partly in my body along with a lot of other reasons.
Also with Epson Salt Soaks how frequent should I do them, how much salts should I put in there, and for how long?
Well water intake is no probably did you have to drink a ton more? How much more would you say?
Vanessa - Wow thats terrible, I mean after having c-diff for many times I can understand it is painful but I have no done pain meds for it. Its relieving though that you understand what I mean its been hell and everyone around me acts like its nothing and oh this is good you got it again because it doesnt mean its your disease and im like no this isnt good. They did put me under well it was inbetween under and awake they drugged me out a lot to say the least. No not at all trust me after having c-diff I am not offended by anything. Wow yeah feel like thats why maybe MC might have started partly in my body along with a lot of other reasons.
Lauren B
Lauren,
I bet Gabes didn't see your post yet....(I'm glad I made her morning)
For Vit D3 I use Orhomolecular Products D3/K2 drops. You can get them on Amazon. They are pricey but work great. 1 drop is 1,000 ius of Vit D and 10 mcg of K2.
I bet Gabes has a good suggestion for B6 in drop form. I get mine from the Dr. Dean product ReAline.
For Epsom Salts soak:
For a good bath use 2 cups Epsom Salts, 1 box baking soda and squeeze of 1 lemon. I love this "detox" bath. Very soothing. 20-30 minutes everyday if you wanted.
For a foot soak use 1 cup Espsom Salts in a bucket of very warm water if you don't have a foot basin. 20 minutes. I did this daily for many months.
You can also get Ancient Minerals oil and lotion (which I slathered my body in when first diagnosed) to use topically.
Like Gabes says, getting a start on fixing nutritional deficiencies will make a huge difference in the long run. It will work on the source of what the problem may be with the C-Diff and why your immune system readily lets it in. Be patient. It's not overnight. What works for some, may not work for another. Look at the "Sticky" at the top of the forum on Magnesium. I seem to be in the minority and only found real success with my healing after starting ReMag.
I bet Gabes didn't see your post yet....(I'm glad I made her morning)
For Vit D3 I use Orhomolecular Products D3/K2 drops. You can get them on Amazon. They are pricey but work great. 1 drop is 1,000 ius of Vit D and 10 mcg of K2.
I bet Gabes has a good suggestion for B6 in drop form. I get mine from the Dr. Dean product ReAline.
For Epsom Salts soak:
For a good bath use 2 cups Epsom Salts, 1 box baking soda and squeeze of 1 lemon. I love this "detox" bath. Very soothing. 20-30 minutes everyday if you wanted.
For a foot soak use 1 cup Espsom Salts in a bucket of very warm water if you don't have a foot basin. 20 minutes. I did this daily for many months.
You can also get Ancient Minerals oil and lotion (which I slathered my body in when first diagnosed) to use topically.
Like Gabes says, getting a start on fixing nutritional deficiencies will make a huge difference in the long run. It will work on the source of what the problem may be with the C-Diff and why your immune system readily lets it in. Be patient. It's not overnight. What works for some, may not work for another. Look at the "Sticky" at the top of the forum on Magnesium. I seem to be in the minority and only found real success with my healing after starting ReMag.
Vanessa
-
Gabes-Apg
- Emperor Penguin
- Posts: 8332
- Joined: Mon Dec 21, 2009 3:12 pm
- Location: Hunter Valley NSW Australia
I think lauren and i posted at the same time and I didnt see her reply
P5P drops - you will need to rely on fellow USA members as I get mine from my Chiro practitioner here in Aus
(or get thorne P5P capsules from iHerb) buying the B6 as P5P is more expensive but sooo worth the outlay, as you are taking the B6 in its most bioavailable form, ie useable to the body)
epsom salt foot soaks, 20 mins with a cup of epsom salts will give you about 200mg elemental mag if you do this and use the topical ancient minerals product, you can easily get a good 500mg elemental magnesium input each day
P5P drops - you will need to rely on fellow USA members as I get mine from my Chiro practitioner here in Aus
(or get thorne P5P capsules from iHerb) buying the B6 as P5P is more expensive but sooo worth the outlay, as you are taking the B6 in its most bioavailable form, ie useable to the body)
epsom salt foot soaks, 20 mins with a cup of epsom salts will give you about 200mg elemental mag if you do this and use the topical ancient minerals product, you can easily get a good 500mg elemental magnesium input each day
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
Cliff & MC
Hi Lauren, I haven't posted in a while...I've had 2 cases of Cdiff, the last one in 2013 which was a particularly toxic strain. I struggled with 5 months of various antibiotic rounds which I continually failed and then had a fecal transplant which did the trick. So far I've been Cdiff free. The infectious disease doc told me that people with Celiac disease are more prone to Cdiff and you are more at risk each time you contract Cliff to get it again..so for me, the odds are stacked against me.
I did not have fever or muscle aches with MC but did with Cliff. I would test positive for Cliff even when symptoms had stopped, so they kept testing and finding it....I was extremely ill and feel that the FMT saved my life.
That said, I still struggle with diarrhea and have had quite a time finding answers...
Not much help from me, except to know there's someone who understands for sure...
Sunny
I did not have fever or muscle aches with MC but did with Cliff. I would test positive for Cliff even when symptoms had stopped, so they kept testing and finding it....I was extremely ill and feel that the FMT saved my life.
That said, I still struggle with diarrhea and have had quite a time finding answers...
Not much help from me, except to know there's someone who understands for sure...
Sunny
"It is very difficult to get a man to understand something, when his salary depends upon his not understanding it. "
Upton Sinclair
Upton Sinclair
-
lalalauren16
- Little Blue Penguin
- Posts: 31
- Joined: Tue May 30, 2017 9:19 pm
- Location: Santa Barbara
Vanessa - Thanks for the Vit D suggestion, do you know if its fish oil or just strictly vit D because I am allergic to all seafood.
I also order the Ancient Minerals on amazon both the spray and the salts! Yeah I am doing everything I can to improve my gut health with the bland eating diet, lots of water, probiotic, veggies, chicken broth homemade soup, and will be receiving the book Tex wrote soon along with the salts and sprays and trying to order these supplements.
Gabes - Yeah I wish I could do caps but I can not since have many surgeries on throat from acid reflex, however I found this on amazon thoughts? : https://www.amazon.com/Pyridoxal-5-Phos ... vitamin+b6
I also order the Ancient Minerals on amazon both the spray and the salts! Yeah I am doing everything I can to improve my gut health with the bland eating diet, lots of water, probiotic, veggies, chicken broth homemade soup, and will be receiving the book Tex wrote soon along with the salts and sprays and trying to order these supplements.
Gabes - Yeah I wish I could do caps but I can not since have many surgeries on throat from acid reflex, however I found this on amazon thoughts? : https://www.amazon.com/Pyridoxal-5-Phos ... vitamin+b6
Lauren B
-
lalalauren16
- Little Blue Penguin
- Posts: 31
- Joined: Tue May 30, 2017 9:19 pm
- Location: Santa Barbara
Sunny - Yeah its a nightmare I have had it 5 times and I got it again after having the fecal transplant. So at this point I am terrified that I will die because nothing is working and doctors do not have answers. Have you been taking a probiotic since having the disease? Well were both celiacs and MCs so I feel you on that. How have you navigated with never taking an antibiotic again since the transplant as well?
Lauren B
Lauren,
Your comment about acid reflux caught my attention and makes me curious. I wonder if you are vitamin D deficient. If so, that may be part of the reason why you are having so much trouble with recurring C. diff. Vitamin D is the fuel that our immune system runs on and without it our immune systems are crippled. Larger doses of vitamin D (8,000–10,000 IU per day for a couple of months) also helps to prevent acid reflux. Vitamin D deficiency increases the chances of developing an IBD (such as MC) and IBDs deplete vitamin D.
Tex
Your comment about acid reflux caught my attention and makes me curious. I wonder if you are vitamin D deficient. If so, that may be part of the reason why you are having so much trouble with recurring C. diff. Vitamin D is the fuel that our immune system runs on and without it our immune systems are crippled. Larger doses of vitamin D (8,000–10,000 IU per day for a couple of months) also helps to prevent acid reflux. Vitamin D deficiency increases the chances of developing an IBD (such as MC) and IBDs deplete vitamin D.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.