Hi All -
Just checking in with you with a question... Ever since I started having symptoms with LC in April, I have had a feeling off and on like I'm getting a UTI. So far (knock on wood!), I haven't gotten one but just have a feeling of urgency. I always drink a lot of water so I have passed it off as being related to that; however, I did do a search this morning and found some great information that had been posted in this forum about D-Mannose. It sounded like others have had UTI's and found this to be very helpful. I've got some in my cart on Amazon but wanted to get some feedback from you as to whether this might be a good thing to add to my daily regimen. I am currently on 2 Budesonide/day and take 3 Mag/3 Vit D/day. I have terrible seasonal allergies so I also take a Zyrtec daily. I used 3 Budesonide/day for about a month (dropped to 2 around the end of June) and am thinking that if all continues to go as is, I will drop to 1/day around the end of August.
I can't begin to express how much I appreciate all of the knowledge that is shared in this forum. I'm not alone (Yay!!!). Thank-you in advance -
Pam
D-Mannose
Moderators: Rosie, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh, mbeezie
Hi,
I used to have UTIs nearly every second month, and I felt that D-Mannose really helped. However, as time went by and the inflammatory level in my body decreased, I do not have UTIs any longer. I often wonder if they were real UTIs, or if my inflamed guts was putting some sort of pressure on my bladder that made me run to the toilet.
Lilja
I used to have UTIs nearly every second month, and I felt that D-Mannose really helped. However, as time went by and the inflammatory level in my body decreased, I do not have UTIs any longer. I often wonder if they were real UTIs, or if my inflamed guts was putting some sort of pressure on my bladder that made me run to the toilet.
Lilja
Collagenous Colitis diagnosis in 2010
Psoriasis in 1973, symptom free in 2014
GF, CF and SF free since April, 2013
Psoriasis in 1973, symptom free in 2014
GF, CF and SF free since April, 2013
Just another thought and from my personal experience, being on Entocort (Budesonide) always makes me have to pee URGENTLY! It's one of the more annoying side affects of being on it - when I have to pee (often) I have to pee NOW! As soon as I wean off the Entocort, that urination urgency disappears.
Sue
Sue
Sue
Diagnosed November 2004, Used Asacol and Lialda, sometimes worked, sometimes made it worse. Entocort always works but hate it. Remission only lasts 3-6 months and then back on Entocort. Enterolab test July 2017, now gluten free. Time will tell!
Diagnosed November 2004, Used Asacol and Lialda, sometimes worked, sometimes made it worse. Entocort always works but hate it. Remission only lasts 3-6 months and then back on Entocort. Enterolab test July 2017, now gluten free. Time will tell!
Thank-you!
Thank-you for your input - I think I will give it a try!
Hi Pam,
I like the powder D manoose that you mix with water. I take a dose before having sex.
Mom is celiac with alzheimers. She was getting chronic UTIs that she could never shake without IV antibiotics. I think her villae are gone and she could not absorb pill form antibiotic. I've put her on daily D manoose preventative. I can't remember the exact dose she is taking but I think it is 1/4 tsp in water daily.
She has been taking this for about 3 years. Instead of chronic UTI she gets one about once every 18 months.
I like the powder D manoose that you mix with water. I take a dose before having sex.
Mom is celiac with alzheimers. She was getting chronic UTIs that she could never shake without IV antibiotics. I think her villae are gone and she could not absorb pill form antibiotic. I've put her on daily D manoose preventative. I can't remember the exact dose she is taking but I think it is 1/4 tsp in water daily.
She has been taking this for about 3 years. Instead of chronic UTI she gets one about once every 18 months.
Pam, I can tell if my intestines are inflamed because I have increased pressure on my bladder. I had a UTI last year after not having one for years. Since then I take D Mannose daily as a preventive. So far, so good. My mom has CA of the bladder and she started taking it daily as well to try to prevent UTI's after her chemo treatments.
Marcia
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My mission in life is not merely to survive, but to thrive and to do so with some passion, some compassion, some humor and some style. - M. Angelou
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My mission in life is not merely to survive, but to thrive and to do so with some passion, some compassion, some humor and some style. - M. Angelou
Thank you
Thank you also, Brandy and Marcia ~
I've been eating a very restrictive diet, with a few minor slip ups, for about 6 weeks ~ basically rice and turkey/bison/beef/fish for every meal. For the month prior, I was still restrictive but eating gluten free cereal/almond milk, gluten free bread and turkey... It is a bit disheartening to think that I probably still have that much inflammation in my intestines. I hope that there comes a point where significant healing occurs. I guess you just keep moving forward. Thank you again!
I've been eating a very restrictive diet, with a few minor slip ups, for about 6 weeks ~ basically rice and turkey/bison/beef/fish for every meal. For the month prior, I was still restrictive but eating gluten free cereal/almond milk, gluten free bread and turkey... It is a bit disheartening to think that I probably still have that much inflammation in my intestines. I hope that there comes a point where significant healing occurs. I guess you just keep moving forward. Thank you again!
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Gabes-Apg
- Emperor Penguin
- Posts: 8332
- Joined: Mon Dec 21, 2009 3:12 pm
- Location: Hunter Valley NSW Australia
Pam
it is early days of your healing journey..
have you read some of the posts in the member success stories area? in these posts you will see what others have done, and how long the healing journey has taken for them.
from my time here in the forum (over 7 years)
best case scenerio, some people have good healing at 6 month mark, some are around the 12 month mark and i would say a large portion tend to need 12-24 months for REALLY good healing.
it is early days of your healing journey..
have you read some of the posts in the member success stories area? in these posts you will see what others have done, and how long the healing journey has taken for them.
from my time here in the forum (over 7 years)
best case scenerio, some people have good healing at 6 month mark, some are around the 12 month mark and i would say a large portion tend to need 12-24 months for REALLY good healing.
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
Gabes, I do look at the Member Success Stories often and with hope. Patience has never been a virtue of mine... I also find it a little scary that things are so bad with so few indicators prior to the diagnosis that there was a problem. Thank you for getting me grounded and helping me to understand what the road ahead needs to look like to get some real healing and improvement. I'm not patient but I am determined so ... time to make some more rice and bison for breakfast:) Thank you again for your help!